• Korean Journal of Social Welfare Studies
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• no.37
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• pp.63-89
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• 2008

This study attempts to examine the factors influencing the Caregiving responsibility of sibling without disability on their adult siblings with intellectual disability. For this purpose, a questionnaire survey was conducted on siblings without disability who have adult siblings with intellectual disability aged 18 years old or more and also who use services provided by 8 welfare centers for persons with disabilities in Seoul. With 132 valid responses, multiple regression technique was adopted in exploring a model for characteristics of adult with intellectual disability, a model for characteristics of siblings without disability, a model for relationship factors, and a comprehensive model. The findings of the study showed that the degree of disability in the model for characteristics of adult siblings with intellectual disability and the intimacy of siblings and social support in the model of relationship factors were significant. The result of the comprehensive model revealed that the degree of disability, the gender of the siblings without disability, the intimacy of siblings, and social support were significant. Especially, the relationship factors including the intimacy of siblings and social support were found to be the most significant factors in order to explain the caregiving responsibility. The findings of the study suggest that sibling program needs to be developed and disseminated in order to increase the understanding and the trust between adult with intellectual disability and sibling without disability, that a help is critical for adult with intellectual disability to extend the social network in which sibling without disability receives support from sibling without disability, family, friends, and other acquaintances around, and that different approach is needed in order to reduce caregiveing difficulties depending on the dependence of disability.

• Korean Journal of Family Social Work
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• no.62
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• pp.5-38
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• 2018

This study explores experiences of male siblings without disability who are caring for their adult siblings with intellectual disability. To this end, in-depth interviews were conducted based on phenomenological qualitative research methods, and documents such as newspaper articles and broadcasting documentaries covering the care of participants were also used as materials. Data collection took place from August to October, 2017, and four brothers without disability participated in this study. Findings are presented as five themes: a sibling with a disability-centered life, living with complex emotions including emotional ambivalence, cautious life at all times, life to receive consolation, and life trying to achieve balance and harmony. Based on the results, political and practical considerations for brothers without disability and their families who support their adult siblings with intellectual disability are discussed. Implications for social workers are suggested.