• Title/Summary/Keyword: family caregiving

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Factors Associated with Care Burden among Family Caregivers of Terminally Ill Cancer Patients (말기암환자 가족 간병인의 간병 부담과 관련된 요인)

  • Lee, Jee Hye;Park, Hyun Kyung;Hwang, In Cheol;Kim, Hyo Min;Koh, Su-Jin;Kim, Young Sung;Lee, Yong Joo;Choi, Youn Seon;Hwang, Sun Wook;Ahn, Hong Yup
    • Journal of Hospice and Palliative Care
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    • v.19 no.1
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    • pp.61-69
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    • 2016
  • Purpose: It is important to alleviate care burden for terminal cancer patients and their families. This study investigated the factors associated with care burden among family caregivers (FCs) of terminally ill cancer patients. Methods: We analyzed data from 289 FCs of terminal cancer patients who were admitted to palliative care units of seven medical centers in Korea. Care burden was assessed using the Korean version of Caregiver Reaction Assessment (CRA) scale which comprises five domains. A multivariate logistic regression model with stepwise variable selection was used to identify factors associated with care burden. Results: Diverse associating factors were identified in each CRA domain. Emotional factors had broad influence on care burden. FCs with emotional distress were more likely to experience changes to their daily routine (adjusted odds ratio (aOR), 2.54; 95% confidence interval (CI), 1.29~5.02), lack of family support (aOR, 2.27; 95% CI, 1.04~4.97) and health issues (aOR, 5.44; 2.50~11.88). Family functionality clearly reflected a lack of support, and severe family dysfunction was linked to financial issues as well. FCs without religion or comorbid conditions felt more burdened. The caregiving duration and daily caregiving hours significantly predicted FCs' lifestyle changes and physical burden. FCs who were employed, had weak social support or could not visit frequently, had a low self-esteem. Conclusion: This study indicates that it is helpful to understand FCs' emotional status and family functions to assess their care burden. Thus, efforts are needed to lessen their financial burden through social support systems.

A Study on the Factors Affecting Sense of Well-being of Stroke Survivor Family Care Taker (뇌졸중 환자 가족원의 안녕감 영향요인에 대한 연구)

  • 백영주;정미영;안은희
    • Journal of Korean Academy of Nursing
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    • v.31 no.2
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    • pp.315-327
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    • 2001
  • This was a descriptive study clarifying the factors affecting family caregivers' sense of well-being. This study was conducted with 131 caregivers using structured self-reporting questionnaires and directly interviewing adult patients who had been under treatment in two general hospitals. The hospitals were located in M city from Aug. 10, 2000 until Sep. 2, 2000. The collected data were analyzed using SAS PC+ program, and the data were tested using descriptive statistics, t-tests, ANOVA, Pearson's Correlation Coefficient, and Stepwise Multiple Regression. The results of this study are as follows; 1) The variables affecting the caregivers' sense of burden were age (F=3.76, p=.0063), education level (F=4.67, p=.0015), monthly income (F=2.49, p=.0466), amount of assistance provided (F=4.19, p=.0037), and the relationship with patient before disease (F=9.49, p=.0001). 2) The variables affecting caregivers' sense of well-being were age (F=9.54, p=.0001), residing with patient (t=11.38, p=.0010), the period of caregiving (F=10.52, p= .0001), education level (F= 2.79, p=.0290), monthly income (F=3.04, p=.0196), and relationship with patient before disease (F= 10.51, p=.0001). Also, all of the variables which showed statistical significance. 3) In viewing the relationship between activities of daily living (ADL) and the senses of burden and well-being, a negative relation- ship between activities of daily living (ADL) and a sense of burden was found (r=-.640, p=.000). However, the relationship between activities of daily living (ADL) and a sense of well-being had a positive correlation (r= .232, p=.008). Also the relationship between the sense of burden and the sense of well-being was revealed to have a negative correlation (r=-.614, p=.000). 4) A sense of burden was the most important indicator to the well-being of the caregivers who took care of stroke patients (R2 =.36). In addition to this, living with the patient (45%), activities of daily living (51%), relationship with patient before disease (53%), and the family's monthly income accounted for 56% of the sense of well-being of the caregivers.

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Effectiveness of Intervention for the Caregivers of Long-term Care Elderly (장기요양보호대상노인 가족부양자에 대한 개입의 효과성)

  • Kim, Soo-Young
    • Korean Journal of Social Welfare
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    • v.56 no.2
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    • pp.285-310
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    • 2004
  • The major purpose of this study is to examine effectiveness of an intervention program which aims at education/training caregivers of the dementia and/or stroke elderly. This program was conducted at group level. Participants of this program were the primary caregivers who have taken care of the elderly with dementia and/or stroke. To test the effectiveness of the caregiver education/training program, this study employed an quasi-experimental design: to compare pretest score with posttest ones for the same participants. Total forty two primary caregivers have completed the program. Seventeen caregivers were in experimental group, whereas twenty five ones belonged to control group. Our data suggest that, for the primary caregivers, subjective quality of life was more important than cargiving burden. Subjective quality of life among the caregivers significantly improved, after completing the program. This result suggests that a short-term intervention program at group level is not effective to reduce caregiving burden because an infra structure of community resources, to which the caregivers and their family access, did not remain at sufficient level. However, participants have showed improved mutual solidarity, and they have exposed to wider spectrum of a variety of information. As a result, they have perceived that the level of subjective quality of life has positively changed. Additional factors have influenced on determining the quality of life among the caregivers. The caregivers, whose demented elderly showed lower level of ADL and IADL, or who have experienced the short period of caregiving, were more likely to belong to higher level of quality of life. The quality of life among the caregivers were even more improved in the following group: being young, and highly educated, man. One of the contributions from this study is that we have found caregiver's characteristics, which need an intervention most. In addition, our study implies that specific contents of the caregivers' education/training program should be conducted based on each family's unique characteristics.

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The Impact of Family Caregiving for the Elderly with Dementia on Depression in the United States: Does the Relationship of Caregivers to Care Recipients Matter? (미국 치매노인 부양자의 우울증에 영향을 미치는 요소: 배우자 부양자와 딸 부양자 비교 연구)

  • Baek, Ju-Hee;Zarit, Steven H.
    • 한국노년학
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    • v.29 no.4
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    • pp.1591-1609
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    • 2009
  • Adult child caregivers and spousal caregivers might deal with differential challenges. Studies about caregivers' psychological outcomes, however, tended to investigate associations between caregiving and its outcomes by pooling adult child caregivers and spousal caregivers together. By using a U. S. sample of family caregivers who assisted a relative with dementia, this study examined whether the relationship of caregivers to care receivers (daughter caregivers or spousal caregivers) made a difference in levels of depressive symptoms. The result showed that wife caregivers were more likely to be depressed than daughter caregivers. For daughter caregivers, role overload, role captivity, and behavior problems significantly influenced on depression. Besides these variables, the level of education was a significant predictor for wife caregivers. Role captivity and behavior problems significantly impacted on depression for husband caregivers. Thus, role captivity and behavioral problems were common predictors for all the caregivers. Specifically, higher levels of role captivity and behavioral problems were likely to make caregivers more depressed. The implication of these results were discussed.

The Effects of a Support Group Intervention on the Burden of Primary Family Caregivers of Stroke Patients (집단적 지지 간호중재 프로그램이 뇌졸중 환자 가족 수발자의 부담감에 미치는 효과)

  • Yoo, Eun-Kwang;Jeon, Sang-Hee;Yang, Jeong-Eun
    • Journal of Korean Academy of Nursing
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    • v.37 no.5
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    • pp.693-702
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    • 2007
  • Purpose: The purpose of this study was to develop and evaluate the effects of a support group intervention on the burden of primary family caregivers of stroke patients. Method: A nonequivalent control group pretest-posttest design was used. The subjects were 36 primary family caregivers of stroke patients [experimental(N=18) and control(N=18) groups] in a neurosurgery ward of a university hospital. The experimental group members participated in six sessions of a support group intervention for two weeks and the degree of their caregiving burden was evaluated. Data was analyzed by Chi-square tests, t-tests, and paired t-tests using SPSS 10.0. Result: The experimental group had a significantly lower total burden score (t=2.06l, p= .047)and sub-scales of emotional(t=-3.319, p= .002), time-dependent(t=-2.045, p= .049) and developmental(t=-2.656, p= .012) burden scores than the control group, while no significant differences were found in physical, social or financial burden scores between the two groups. Within the experimental group, there was a significant decrease in physical(t=2.507, p= .023), emotional(t=4.754, p= .000), social(t=2.932, p= .009), time- dependent(t=5.015, p= .000) and developmental(t=7.541, p= .000) burden scores but not the financial burden score. Conclusion: The results suggest that a support group intervention can be utilized as an effective nursing program to reduce the burden of primary family caregivers of stroke patients.

A Comparative Study of Productive Activities between Middle-aged and Elderly Women (중년여성과 노년여성의 생산적 활동 특성 비교)

  • Jang, Yeon Jin
    • Korean Journal of Family Social Work
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    • no.53
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    • pp.7-44
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    • 2016
  • The purpose of this study was to find an appropriate approaches for successful aging adapt to Korean older women 's needs. For this purpose, this study did a comparative study between middle-aged and elderly women. Data from the third Korean longitudinal study of aging were analyzed by network analysis and statistical methods. The results were as follows. From network analysis, it was identified the participation difference of productive activities between middle-aged and elderly women according to level of education, subjective heath condition and residential area size. From the multiple regression analysis, voluntary activity, existence of spouse, residential area, family income and level of education significantly affected satisfaction of life quality in middle-aged women while family caregiving, age, religion, residential area, family income and level of education were significant in elderly women's satisfaction of life quality. Based on these results, it was suggested several implications to increase productive activities according to characteristics of Korean middle-aged and elderly women.

A Comparative Study of family gap in Welfare States :The Role of family policy and labor market structure (복지국가의 '자녀유무별 여성임금격차(Family gap)' 비교연구 : 가족정책과 노동시장구조의 영향을 중심으로)

  • Huh, Soo Yeon
    • Korean Journal of Social Welfare Studies
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    • v.41 no.2
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    • pp.279-308
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    • 2010
  • This study examines the association between family policies and family gap using data for 14 OECD countries. As family policies have different assumptions about women's roles and include variant sub-policies, this study identify two distinct family policies: 'employment support policy' to support women as employed workers and 'caregiving support policy' to support women as caregivers. Meanwhile, women's wage cannot be determined by the effect of 'only' family policy. Therefore, analysis model includes variant macro structure supposed to affect women's labor status and wage, like labor market structure, wage structure(compression), women's social status and economic status, and examines interaction effects between family policies and these labor market and social structures using Fuzzy-Set Qualitative Comparative Analysis (FSQCA). The FSQCA result shows that relatively low family gap is associated with the conjunctual causation of developed 'employment support policy' and compressed wage structure.

The Family Caregivers' Stress Pathways by Types of Long Term Care Services for the Elderly (장기요양보호서비스 유형별 가족 부양스트레스 경로)

  • Park, Chang-Je;Lee, Sung-Jin
    • 한국노년학
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    • v.31 no.3
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    • pp.831-848
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    • 2011
  • The purpose of this study is to analyse the family caregivers' stress pathways by types of long term care services for the elderly, and then to discuss the findings of analysis. For this research, primary caregivers that provide care the elderly requiring long term care services sanctioned by National Health Insurance Corporation were drawn and surveyed. Among collected data, data for 258 primary caregivers by type of long term care services were used for this study. The results of this study can be summarized as follows. First, on average, the elders that utilize care service in institutions for the elderly were higher proportion of women, older, higher rate of bereavement, more children than the elders that utilize in-home care service, but some cases were vice-versa. Second, the elders that utilize care service in institutions more ADL dependency, higher proportion of severe dementia or severe stroke, higher care rank by National Health Insurance Corporation than the elders that utilize in-home care service on average. Third, primary caregivers with elders that utilize in-home care service were higher proportion of women, older, lower education level, higher rate of spouse and daughter-in-law in relationship with care recipient, less health, lower income than primary caregivers with elders that utilize care service in institutions. Fourth, subjective indicators representing caregivers' reactions to caregiving for the elderly significantly impact on caregivers' stress(ie, depression), and pathway of caregivers' stress are differentiated by type of long term care services. Fifth, stressors that have direct impacts on depression as caregiving family are differentiated by type of long term care services. Therefore, policies or programs to reduce negative mental health or stress of caregivig families should be designed differently by reflecting pathway of various stressors and stress by use types of long term care services for the elderly.

Burden of COPD among Family Caregivers (만성폐쇄성폐질환자 가족의 보호부담에 관한 연구)

  • Kim, Jeong-Hwa;Kim, Eun-Kyung;Park, Sun-Hyung;Lee, Kyung-Ae;Hwang, Yong-Il;Kim, Eun-Ji;Jang, Seung-Hun;Park, Sung-Hoon;Lee, Chang-Youl;Lee, Myung-Goo;Lee, Ji-Yeon;Kim, Dong-Gyu;Jung, Ki-Suck
    • Tuberculosis and Respiratory Diseases
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    • v.69 no.6
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    • pp.434-441
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    • 2010
  • Background: Chronic obstructive pulmonary disease (COPD) is a major health problem resulting in significant burden for patients and families. However, family caregivers' burden has not been well recognized. The objectives of this study were to evaluate the level of caregivers' burden and to explore the related factors based on family, patient, and social support factors. Methods: A face-to-face interview with 86 family caregivers who had been taking care of COPD patients was conducted. The participants answered a self-administered questionnaire. The questionnaire included the level of family caregivers' burden, health status and the relationship within the family, functional limitation of patients perceived by family caregivers and the social support. Results: The level of caregivers' burden among participants was considerably high. Risk factors for caregivers' burden included low educational level of family caregivers, low family income, hours of caregiving, and functional limitation of the patients. Protective factors for caregivers' burden were good relationship within the family and support from other family members or friends. Conclusion: It is proved that family caregivers are facing significant burden in taking care of COPD patients. To reduce family caregivers' burden, it is necessary to address socioeconomic status of the family and to provide various community resources including financial support and nursing services.

Trend and Perspectives of Studies on Paternal Parenting in Pediatric Nursing (아동간호학에서의 아버지 자녀양육에 대한 연구 경향과 전망)

  • Kwon, In-Soo
    • Child Health Nursing Research
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    • v.19 no.2
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    • pp.69-75
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    • 2013
  • The significance of father's parenting has been considered as a critical factor in facilitating growth and development and in promoting wellbeing of children. Pediatric nursing is a pertinent science to develop parenting roles, because it deals with knowledge and skills on growth and development and health of child. For this paper current studies were reviewed related to consequences to the family, content and factors influencing paternal parenting, and father's reactions to child rearing participation. Perspectives of future studies in pediatric nursing are summarized as follows. First, paternal parenting has to be studied more actively to contribute to family health and to meet the academic responsibility of pediatric nursing. Second, it is necessary to study the consequences to child's health and health behavior of paternal parenting. Also it is necessary to be concerned about fathers' reactions, like stress in parenting behavior, to understand the parenting father himself. Third, an objective measure of caregiving behavior (not self-reporting) is needed to determine whether the father is behaving appropriately. Further, experimental research has to be implemented to develop intervention programs for paternal parenting. It is hoped that the examination of these studies leads to develop of knowledge and practice in paternal parenting.