• 제목/요약/키워드: Siblings of children with cancer

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암환아 형제자매의 경험 (The Experience of Siblings of children with Cancer)

  • 전나영
    • Child Health Nursing Research
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    • 제4권2호
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    • pp.294-304
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    • 1998
  • Illness is a situational crisis which affects entire family members. Children have different experiences and responses when their sibling has a cancer. there are many studies on sibling experiences to childhood cancer which have many problems in the USA. The main purpose of this study is to describe sibling experiences to childhood cancer accurately and coprehensively by collecting data from sibling to provide the data to develop nursing interventions for the families with childhood cancer. The data was collected from October 1 to November 6, 1995. A total of ten siblings with childhood cancer were interviewed. The meaningful contents were classified and categorized to four areas. Theses areas include knowledge and perception related to illness, changes in family life, changes in school life, and siblings' marturation. The results of this study were as follows 1. Knowledge and perception related to childhood cancer : Children had limited knowledge about illness and expressed the desire to tow more about sibling's illness. 2. Changes in family and school life : Children expressed loneness, emptiness, sadness, depression about seperation with the mother and sibling, family mood change, leisure activities and financial difficulites. Many children reported that their school performance had suffered since sibling's illness. 3. Maturation of children : Some positive outcoms related to having a sibling with a cancer are maturation, increased affection for the sibling, empathy for their parents. The results of this study indicate that it is important to develop comprehensive nursing intervention programs for the families with a childhood cancer.

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소아암 환자의 형제자매 중재에 관한 연구논문의 체계적 문헌고찰 (A Systematic Review of Interventions with Siblings of Pediatric Cancer Patients)

  • 한수연;황지혜;김초희;장혜영;방경숙
    • Child Health Nursing Research
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    • 제23권3호
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    • pp.394-404
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    • 2017
  • Purpose: The purpose of this study was to review interventions available to nurses caring for siblings of children with cancer. Methods: Searches of CINAHL, MEDLINE, PubMed, EMBASE, and RISS identified ten intervention studies published from January, 2000 to November, 2016. Results: Ten studies on interventions for siblings of pediatric cancer patients were identified as follows: 4 included camps, 4 included support groups, and 2 provided individual interventions. Theoretical frameworks were mainly cognitive behavioral theory and most studies were led by psychologists and multidisciplinary teams. The purpose of the interventions was primarily enhancing psychosocial adjustment. Siblings' fear of disease, self-esteem, and social support were improved significantly after the interventions. Findings were inconsistent with regard to depression, anxiety, behavioral problems, post-traumatic stress, health-related quality of life, and siblings' perceptions of the illness. Conclusion: Study findings showed the potential for enhancing emotional and behavioral outcomes in siblings of children with cancer. However, the number of studies was very small, and several methodological limitations were identified. In the future, more randomized controlled trials with larger samples are needed to extend the evidence base. Moreover, future research should identify sibling's characteristics and circumstances most likely to bring benefits to the siblings.

소아암 환아와 가족에 대한 이해 (Understanding Pediatric Cancer Patients and Their Families)

  • 신민선
    • 호스피스학술지
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    • 제6권2호
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    • pp.1-9
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    • 2006
  • In this thesis, Chapter I Introduction suggested the necessity of this research and defined related terms, and Chapter II defined hospice for children and examined the symptoms of pediatric cancers as well as the general characteristics of pediatric cancer patients. In particular, we surveyed the physical condition, psychological and emotional condition, financial condition, environmental aspect, educational aspect and spiritual aspect of pediatric cancer patients’ families, investigated pediatric cancer patients’ parents and siblings with regard to their understanding of the pediatric cancer patients’ death, and lastly considered spiritual care. Chapter III presented summaries and conclusions. In their developmental stage, pediatric cancer patients lack abilities to express themselves and are highly dependent on their parents, so parents who take care of cancer children have to make hard decisions and cancer children’s families are heavily burdened by the situation of preparing their children’s death and sending them away while denying their death, and for this reason they need help from specialists. That is, for pediatric cancer patients, we need highly experienced pediatricians or nurses skilful in managing young terminal patients as well as hospice counseling and family counselors for consulting on family crises. In particular, there is a keen need of child life support specialists. In addition, clergymen’s help is critical for spiritual care to ease the fear and terror of the unknown world, fear of death, etc. Moreover, in order to prevent cancer children from failing to adjust themselves to school life or peer relation after recovery, hospice service should provide cancer children with opportunities to learn school curriculums and associate with friends.

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소아암 아동과 가족에 관한 국내 연구 동향 (Trends in Research on Children with Cancer and Their Families in Korea)

  • 조헌하;윤지원
    • Child Health Nursing Research
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    • 제16권1호
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    • pp.73-83
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    • 2010
  • Purpose: This study was designed to analyze recent trends in pediatric oncology research in Korea and suggest future research directions in this area. Methods: Studies (105) selected from http://www.riss4u.net for last 15 yr were used. They were analyzed by publication type, field and design of the study, study participants, main theme, and outcome variables used in intervention studies. Results: 1. Of the 105 studies, 67 were master and doctoral dissertations and 49.5% of studies were conducted in nursing. 2. There were 73 (69.5%) quantitative studies and 20 (19.1%) qualitative research studies and the most frequently used study design was that of a descriptive study. 3. Children with cancer undergoing treatment and their parents, mostly mothers, were the participants most frequently studied. 4. Most themes were psychological/spiritual problems, coping, and family function. 5. Most frequently measured outcome variables were nausea/vomiting, fear/anxiety and adjustment. Conclusion: The results indicate that future research should include more well-designed intervention studies to develop new intervention protocols and to confirm the effect of previous study findings. It is also necessary to use an interdisciplinary approach to deal with physical and psychosocial needs of these children and their families including siblings and fathers of children with cancer.

소아암 환자의 초기 진단단계의 간호중재 프로토콜 개발 (Development of Nursing Intervention Protocol for Childhood Cancer at Early Diagnosis Stage)

  • 최자윤;유일영
    • Child Health Nursing Research
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    • 제8권1호
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    • pp.44-54
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    • 2002
  • The main purpose of this methodological study was to develop an assessment tool and intervention protocol for child and family with childhood cancer at early diagnosis stage. The assessment tool and intervention protocol was developed by extensive literature review and consultation with experts. Review of nine domestic and sixty-six international journal articles were done to identify stress, interventions, coping strategies and adjustment of children with cancer and their family. Results were as follows; First, assessment at the early diagnosis stage need to include information on patient, family, and patient/family attitude toward diagnosis and treatment. Second, intervention protocol for children with cancer includes control physical symptoms, manage the side effects of chemotherapy and diagnostic or therapeutic procedures, control emotional responses, provide support and information, assist decision-making and adjust to environment. Third, intervention protocol for family includes controlling emotional responses, provision of informations, inducing family support to patient, improving family cohesion, supporting siblings and supporting spiritual growth. In conclusion, the early diagnosis stage in cancer treatment is important for child and family since this stage greatly affects the overall adjustment of child and family to live with cancer. Therefore, pediatric nurses need to be sensitive to the need of patient/family and systematically manage their needs at this stage.

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암 환아 부모의 경험에 대한 질적 연구 (The Experience of Parents Whose Child is Dying with Cancer)

  • 조영숙;김수지
    • 대한간호학회지
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    • 제22권4호
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    • pp.491-505
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    • 1992
  • The purpose of this research was to understand the structure of the lived experience of parents of a child terminally ill with cancer The research question was “What is the structure of the experience of parents of a child terminally ill with cancer\ulcorner” The sample consisted of 17 parents of children admitted to the cancer units of two university hospitals in Seoul. The unstructured interviews were carried out from October 10, 1991 through January 10, 1992. They were audio-recorded and analysed using Van Kaam's method. Parents ascribed the cause of the cancer to the mother's emotional imbalance during pregnancy, the mother's stress, failure to observe religious rites, food, the parent's sin, misfortune and pollution. The theme clusters were tension, fear and depression experienced during pregnancy, stress that children suffer from abusive parents, failure to observe religious activites, bad luck, and sins committed during a previous life. When the child suffered a recurrence of cancer, the parents experienced negative emotions, nervousness, sorrow. depression and death. The theme clusters were feelings of despair, helplessness, regret, guilt, insecurity, emptyness and apathy. The long struggle with cancer resulted in the loss of economic security, loss of psychological and physical well being, and social withdrawal. The theme clusters were the economic burden of medical cost, giving up treatment, debt, limited medical insurance coverage and blood transfusion. The loss of psychological well being included stress, lack of support systems, inability to carry out responsibilities, lack of trust of the medical ten family breakdown, inappropriate expression of emotion and not disclosing the diagnosis to the child. Physically the parents suffered fatigue, insomnia, loss of appetite, loss of weight, dizzness, headache, psychosomatic symptoms, and increased consumption of liquor and cigarettes. Social withdrawal was manifested by taking time off from work to look after the child, decrease of outside social activities and feelings of isolation. Influences on family life were spousal conflicts, negative response of siblings, separation of the family members and economic hardship. The theme clusters were blaming a spouse for the cause of the illness and disagreements, maladjustment, lonliness, hostility and depression of siblings. The high price of medical care over the long period was a major factor influencing the life of the family. Positive experiences during the child's long illness were the strengthening of support systems and religious beliefs and financial help from social organizations. The support of one's spouse primarily helped to overcome the stress of the long illness. In addition, support was received from parents of other children with cancer and from nurses and religious leaders. The nurse, by providing empathetic support, should be a person with whom parents can express their feelings and share their experiences.

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국내 고위험 유전성 유방암 환자의 유전자검사 경험 (Experiences of Breast Cancer Women Undertaking Genetic Test)

  • 전명희;최경숙;안세현;구보경
    • 종양간호연구
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    • 제5권2호
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    • pp.146-158
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    • 2005
  • Purpose: This study was to obtain a understanding of breast cancer women with high risk for hereditary cancer syndrome. Method: A micro-ethnography was used, including participation observation, open-ended in-depth interviews. Results: Two major arguments were derived. First, When Korean women at high risk to hereditary breast cancer make a decision about whether to take a genetic test, they are strongly motivated by a desire to preserve close kinship bonds and "family love" among their siblings, parents and children. Second, Even after genetic risk assessment and counseling services, Korean women at high-risk for developing a hereditary breast cancer who have been informed that they are mutation carriers, still hold onto previous beliefs about cancer causation. Their cancer prevention strategies are constructed according to their unchanged perceptions and beliefs about cancer causation. Conclusion: More sensitive genetic counseling program needs to be developed. Referral programs and clinical services must be attentive to cultural values and beliefs otherwise cultural attitudes and practices toward genetic counseling will not change.

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Gastric Precancerous Lesions in First Degree Relatives of Patients with Known Gastric Cancer: a Cross-Sectional Prospective Study in Guilan Province, North of Iran

  • Mansour-Ghanaei, Fariborz;Joukar, Farahnaz;Baghaei, Seyed Mohammad;Yousefi-Mashhoor, Mahmood;Naghipour, Mohammad Reza;Sanaei, Omid;Naghdipour, Misa;Shafighnia, Shora;Atrkar-Roushan, Zahra
    • Asian Pacific Journal of Cancer Prevention
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    • 제13권5호
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    • pp.1779-1782
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    • 2012
  • Background & Objectives: In patients with gastric cancer, the most frequently reported family history of cancer also involves the stomach. The aim of this study was to assess the presence of gastric precancerous lesions in first-degree relatives of patients with gastric cancer and to compare the obtained results with those of individuals with no such family history. Methods: Between 2007 and 2009, 503 consecutive persons more than 30 years old were enrolled in the study covering siblings, parents or children of patients with confirmed adenocarcinoma of stomach. The control group was made up of 592 patients who were synchronously undergoing upper gastrointestinal endoscopy for evaluation of dyspepsia without gastric cancer or any family history. All subjects were endoscopically examined. Results: The overall prevalence of Helicobacter pylori was 77.7% in the cancer relatives and in 75.7% in the control group. Chronic gastritis was found in 90.4% vs. 81.1% (P<0.001). Regarding histological findings, 37(7.4%) of the study group had atrophy vs. 12(1.7%) in the control group (P<0.001), while no difference was observed for intestinal metaplasia (20.3%vs. 21.6%, P=0.58). Dysplasia were shown in 4% of cancer relatives but only 0.4% of the control group (P<0.001). There was no gender specificity. Conclusions: Findings of our study point to great importance of screening in relatives of gastric cancer patients in Iran.

암 환아 가족의 아동 호스피스 요구도 (The Need for Child Hospice Care in Families of Children with Cancer)

  • 강경아;김신정;김영순
    • Journal of Hospice and Palliative Care
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    • 제7권2호
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    • pp.221-231
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    • 2004
  • 목적: 본 연구는 암환아 가족의 호스피스 요구도를 파악하여 앞으로 암 환아 간호시, 대상자의 요구에 적절한 호스피스 간호를 제공하기 위한 목적으로 시도되었다. 방법: 자료수집은 2004년 2월부터 7월까지 서울의 2개 대학병원에서 암으로 진단 받고 입원한 아동의 가족 104명을 대상으로 하였다. 대상자의 아동 호스피스 요구도를 측정하기 위해서는 아동 호스피스에 대한 국내 외 문헌고찰과 아동 호스피스 전문가와 관련자, 암 환아 가족 20명을 대상으로 면담하여 개발한 암 환아 가족의 아동 호스피스 요구 측정도구[10]를 사용하였다. 결과: 1. 대상자의 아동 호스피스 요구 정도는 4점 만점에 $2.77{\sim}4.00$점의 범위로 평균 3.41점(.38)으로 높게 나타났다. 각 요인에 따른 요구정도는 아동의 정서적 간호 말기 주요 신체적 증상의 조절, 2차적인 생리적 문제의 조절, 가족이 어려움 수용, 죽음준비를 위한 영적 돌봄의 순으로 나타났다. 2. 대상자의 일반적 특성에 따른 아동 호스피스의 요구 정도는 아동 어머니의 연령(F==4.980, P=.009), 형제나 친척 중 암 환자의 유무(t=2.423, P=.017)에 따라서만 유의한 차이가 있었다. 즉, 대상자의 아동 호스피스 요구정도는 어머니의 연령이 $36{\sim}40$세인 경우가 요구 정도가 가장 높고 35세 이하인 경우가 가장 낮았으며 형제나 친척 중 암 환자가 있는 경우가 없는 경우보다 요구 정도가 더 높았다. 결론: 아동 호스피스에 대한 암 환아 가족의 요구 정도는 정서적, 신체적, 사회적, 영적 돌봄의 순으로 나타나 가족이 자녀의 죽음을 앞두고 자녀의 신체적 증상관리와 함께 자신의 죽음에 대한 이해가 어려운 자녀의 불안과 두려움을 경감시켜주기 원하는 부모의 특성이 파악되었다. 또한 호스피스에 대한 요구도는 높았으나 자녀에 대한 호스피스 돌봄의향은 낮게 나타나 암 환아 부모들이 적극적인 치료와 호스피스에 대한 양가감정을 가지고 있음을 유추해 볼 수 있었다. 본 연구의 결과는 암 환아 가족들을 위해 간호사가 제공해야 하는 호스피스 돌봄의 방향을 제시하고 있다고 생각되며 이를 위해서는 호스피스 관련 기관뿐만 아니라 국가적 차원의 아동 호스피스에 대한 관심과 지원이 요구된다고 생각한다.

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Self-Disclosure of Breast Cancer Diagnosis by Iranian Women to Friends and Colleagues

  • Najmabadi, Khadijeh Mirzaii;Azarkish, Fatemeh;Latifnejadroudsari, Robab;Shandiz, Fatemeh Homaei;Aledavood, Seyed Amir;Kermani, Ali Taghizadeh;Esmaily, Habib Ollah
    • Asian Pacific Journal of Cancer Prevention
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    • 제15권6호
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    • pp.2879-2882
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    • 2014
  • Background: Breast cancer (BC) is the most common form of cancer in Iranian women, and it remains a major health problem. An increasing number of young women are being diagnosed with BC, and therefore, there is an increasing likelihood that more women will survive breast cancer for many years. Many opine that self-disclosure of BC diagnosis is important because talking about cancer helps people to make sense of their experiences; in fact, self-disclosure appears to play an important role in many health outcomes. However, this has not yet been studied in BC patients in Iran. Therefore, this study aimed to explore the status of self-disclosure of BC diagnosis by Iranian women to friends and colleagues. Materials and Methods: All BC records for 2001-2011 of employed women were studied at five hospitals in Mashhad. Data about the self-disclosure of BC diagnosis were gathered through telephone interviews, and the participants filled out a questionnaire about their status of self-disclosure of BC diagnosis to various groups of people. Results: The mean age of employed women at the time of diagnosis was $44.3{\pm}6.7$ years. Over 60% self-disclosed to work colleagues and over 90% to bosses/managers. Seventy per cent reported that they had support from their family and husband's family, while 95% reported that they had support from parents, siblings, children and friends. Conclusions: Most employed women self-disclosed freely to family, friends, colleagues and bosses/managers. Apparently, self-disclosure of breast cancer diagnosis may have negative effects at work. About half of patients reported that they had support from family, managers and colleagues; however, for nearly 28% of employed women, disclosure had less positive effects. In particular, it altered their perception of others, produced difficulties with work and family and diminished closeness with the people who were told. However, the stigma of BC is far less than it once was.