• Title/Summary/Keyword: Registries

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Cancer Registration in India - Current Scenario and Future Perspectives

  • Chatterjee, Sharmila;Chattopadhyay, Amit;Senapati, Surendra Nath;Samanta, Dipti Rani;Elliott, Leslie;Loomis, Dana;Mery, Lesly;Panigrahi, Pinaki
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.8
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    • pp.3687-3696
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    • 2016
  • Cancer registration, an important component of cancer surveillance, is essential to a unified, scientific and public health approach to cancer prevention and control. India has one of the highest cancer incidence and mortality rates in the world. A good surveillance system in the form of cancer registries is important for planning and evaluating cancer-control activities. Cancer registration in India was initiated in 1964 and expanded since 1982, through initiation of the National Cancer Registry Program (NCRP) by the Indian Council of Medical Research. NCRP currently has twenty-six population based registries and seven hospital based registries. Yet, Indian cancer registries, mostly in urban areas, cover less than 15% of the population. Other potential concerns about some Indian registries include accuracy and detail of information on cancer diagnosis, and timeliness in updating the registry databases. It is also important that necessary data collection related quality assurance measures be undertaken rigorously by the registries to ensure reliable and valid information availability. This paper reviews the current status of cancer registration in India and discusses some of the important pitfalls and issues related to cancer registration. Cancer registration in India should be complemented with a nationwide effort to foster systematic investigations of cancer patterns and trends by states, regions and sub populations and allow a continuous cycle of measurement, communication and action.

Estimation of Time Trends of Incidence of Prostate Canner - an Indian Scenario

  • Lalitha, Krishnappa;Suman, Gadicherla;Pruthvish, Sreekantaiah;Mathew, Aleyamma;Murthy, Nandagudi S.
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.12
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    • pp.6245-6250
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    • 2012
  • Background: With increase in life expectancy, adoption of newer lifestyles and screening using prostate specific antigen (PSA), the incidence of prostate cancer is on rise. Globally prostate cancer is the second most frequently diagnosed cancer and sixth leading cause of cancer death in men. The present communication makes an attempt to analyze the time trends in incidence for different age groups of the Indian population reported in different Indian registries using relative difference and regression approaches. Materials and Methods: The data published in Cancer Incidence in Five Continents for various Indian registries for different periods and/or publications by the individual registries served as the source materials. Trends were estimated by computing the mean annual percentage change (MAPC) in the incidence rates using the relative difference between two time periods (latest and oldest) and also by estimation of annual percentage change (EAPC) by the Poisson regression model. Results: Age adjusted incidence rates (AAR) of prostate cancer for the period 2005-2008 ranged from 0.8 (Manipur state excluding Imphal west) to 10.9 (Delhi) per $10^5$ person-years. Age specific incidence rates (ASIR) increased in all PBCRs especially after 55 years showing a peak incidence at +65 years clearly indicating that prostate cancer is a cancer of the elderly. MAPC in crude incidence rate(CR) ranged from 0.14 (Ahmedabad) to 8.6 (Chennai). Chennai also recorded the highest MAPC of 5.66 in ASIR in the age group of 65+. Estimated annual percentage change (EAPC) in the AAR ranged from 0.8 to 5.8 among the three registries. Increase in trend was seen in the 55-64 year age group cohort in many registries and in the 35-44 age group in Metropolitan cities such as Delhi and Mumbai. Conclusions: Several Indian registries have revealed an increasing trend in the incidence of prostate cancer and the mean annual percentage change has ranged from 0.14-8.6.

Global Activity of Cancer Registries and Cancer Control and Cancer Incidence Statistics in Korea (암등록과 암관리사업의 최신 국제 경향 및 우리나라 암발생 통계)

  • Shin, Hai-Rim
    • Journal of Preventive Medicine and Public Health
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    • v.41 no.2
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    • pp.84-91
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    • 2008
  • The World Health Organization (WHO) reported that cancer killed 7.6 million people in the world in 2005, and that 40% of all cancer deaths can be prevented. According to the WHO Global Action Plan Against Cancer (GAPAC), monitoring of cancer patients is the essential part of cancer control, and should be conducted through cancer registration. Originally, cancer registries were primarily concerned with the description of cancer patterns, trends of cancer occurrence, and etiology of cancer. In the last 20 years, cancer registries provided not only information on the incidence and characteristics of specific cancers, but also supplied the source of cancer control planning and evaluation and the care of individual cancer patients with survival. Cancer Incidence in Five Continents (CI5) presents incidence data from populations all over the world every five year. Volume IX in the series (data for 1998-2002) has recently (November 2007) been published online at International Agency for Research on Cancer (IARC). Nine data from Korea Central Cancer Registry (National data), Seoul, Busan, Daegu, Gwangju, Incheon, Daejeon, Usan, Jejudo regional cancer registries were included in that volume. In this paper, the editorial process, the characteristics of national data, and quality indices in CI5 IX are being described. In addition, cancer control activities related to cancer registration in some selected countries are also presented.

What Roles should Population-based Cancer Registries be Playing in the 21st Century? Reflections on the Asian Cancer Registry Forum, Bangkok, February 2014

  • Roder, David
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.5
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    • pp.1895-1896
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    • 2014
  • Cancer registries have fundamental roles in cancer surveillance, research, and health services planning, monitoring and evaluation. Many are now assuming a broader role by contributing data for health-service management, alongside data inputs from other registries and administrative data sets. These data are being integrated into de-identified databases using privacy-protecting data linkage practices. Structured pathology reporting is increasing registry access to staging and other prognostic descriptors. Registry directions need to vary, depending on local need, barriers and opportunities. Flexibility and adaptability will be essential to optimize registry contributions to cancer control.

A Model for Metadata Registry Management Systems (메타데이터 레지스트리 관리 시스템 모델)

  • 신동길;정은주;정동원;박수현;백두권
    • Proceedings of the Korea Society for Simulation Conference
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    • 2003.11a
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    • pp.173-177
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    • 2003
  • Until now, many metadata registries have been built in various fields and the metadata registries were built based on ISO/IEC 11179 which is the international standard for metadata management. However, their management systems do not fully support various and useful tools to easily and systematically manage the metadata registries. In this paper, we describe the metadata registry management system we designed and implemented. The implemented metadata registry management system provide many useful tools for efficient and easy metadata management. Finally, the developed system is also based on the international standard, ISO/IEC11179. Therefore, we can apply it to other fields for building and managing metadata registries.

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A Query Language for Consistent Access of Metadata Registries (메타데이타 레지스트리의 일관성 있는 접근을 위한 질의 언어)

  • Shin Dongkil;Kim Young-Gab;Jeong Dongwon;Park Soo-Hyun;Baik Doo-Kwon
    • Journal of KIISE:Databases
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    • v.31 no.6
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    • pp.609-623
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    • 2004
  • Various metadata registries have been built in many countries of the world. Although the metadata registry is an international standard, it does not provide a consistent access interface for handling the metadata registries. Therefore, all systems for managing them were developed by using different operations and access interfaces. It requires duplicate efforts on the same operations whenever metadata registry systems are developed. As a result, it causes unnecessary costs and efforts for building metadata registries, and also incurs inconsistency between the metadata registries because the previous developed systems use the different interfaces for the metadata registry elements This paper analyzes and defines operation patterns that are commonly used for the metadata registries. We defined and designed SQL/MDR extended from SQL using the analyzed operation patterns. SQL/MDR provides a standardized access interface for developing metadata registry systems. This paper shows the implementation of SQL/MDR and the result that we actually applied it to the bibliographical databases. By developing the metadata registry systems using SQL/MDR, we can reduce much time and efforts owing to its standard interface. It allows metadata registries to be accessed consistently. Additionally, it makes all metadata registries follow the international standard, ISO/IEC ll179.

Application Strategies of Geospatial Service Registry for SOA in GIS Web Services (GIS 웹 서비스에서 SOA를 위한 공간정보 레지스트리 적용 전략)

  • Ha, Su-Wook;Park, Jong-Min;Nam, Kwang-Woo
    • Spatial Information Research
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    • v.18 no.4
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    • pp.121-128
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    • 2010
  • In this paper, we propose the application models and strategies of geospatial services registries for SOA in GIS web services. Recently. a number of SOA/web services are being developed for various commercial or public applications. However, geospatial SOA services are less used than general purpose SOA services, because GeoSpatial service registries has been neglected in many GIS applications even though GeoSpatial registries are essential component for open geospatial services. These problems are due to lack of researches for GIS registry usages. In this paper, we define the role player ill GIS SOAs, and develop the various GIS web service models among the players. Besides, we suggest the applications strategies of GeoSpatial services registries in the service models.

Epidemiological Trends of Histopathologically WHO Classified CNS Tumors in Developing Countries: Systematic Review

  • Khan, Ishaq;Bangash, Mohammed;Baeesa, Saleh;Jamal, Awatif;Carracedo, Angel;Alghamdi, Fahad;Qashqari, Hanadi;Abuzenadah, Adel;AlQahtani, Mohammed;Damanhouri, Ghazi;Chaudhary, Adeel;Hussein, Deema
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.1
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    • pp.205-216
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    • 2015
  • Background: Many developing countries are lagging behind in reporting epidemiological data for individual central nervous system (CNS) tumors. This paper aimed to elicit patterns for the epidemiology of individual World Health Organization (WHO) classified CNS tumors in countries registered by WHO as "developing". Materials and Methods: Cyber search was carried out through 66 cancer networks/registries and 181 PubMed published papers that reported counts of CNS tumors for the period of 2009-2012. The relationship between the natural log of incidence Age Standardized Rate (ASR) reported by Globocan and Latitude/ Longitude was investigated. Results: Registries for 21 countries displayed information related to CNS tumors. In contrast tends for classified CNS tumor cases were identified for 38 countries via 181 PubMed publications. Extracted data showed a majority of unclassified reported cases [PubMed (38 countries, 45.7%), registries (21 countries, 96.1%)]. For classified tumors, astrocytic tumors were the most frequently reported type [PubMed (38 countries, 1,245 cases, 15.7%), registries (21 countries, 627 cases, 1.99%]. A significant linear regression relationship emerged between latitudes and reported cases of CNS tumors. Conclusions: Previously unreported trends of frequencies for individually classified CNS tumors were elucidated and a possible link of CNS tumors occurrence with geographical location emerged.

The design of Intelligent and Integrated Registries System for e-Business (e-비즈니스를 위한 지능형 통합 레지스트리 시스템 설계)

  • 유정연;김계용;이규철
    • The Journal of Society for e-Business Studies
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    • v.8 no.2
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    • pp.63-76
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    • 2003
  • The fundamental technology to the b2b e-commerce framework is Registry. Although Registries have developed, it is yet difficult to apply in actual e-business . That is, the e-business information was stored in physically and/or logically distributed and heterogeneous Registries. And Registry uses the keyword-based search to discovery the information stored. But, the keyword-based search technology can't provide the discovery the business information necessary for parties and trading partners. As spreading the understand of this problem, it requires the technologies for the integration of distributed and various Registries and the systematic definition and intelligent discovery of the e-business information. In this paper we propose the architecture of intelligent and integrated e-business registry system for solving these problems . This system composed of the Registry Integration Query Manager for integrating various registries and the Intelligent Registry Agent providing the systematic organization and discovery of e-business information.

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A Validation of Estimating the National Cancer Incidence in Korea using the Databases of 7 Population-based Regional Cancer Registries except Seoul (서울을 제외한 7개 지역암등록본부 자료를 활용한 국가 암통계 추정의 타당성)

  • Bae, Jong-Myeon
    • Journal of Preventive Medicine and Public Health
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    • v.42 no.2
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    • pp.130-134
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    • 2009
  • Objectives : A method of estimation using 8 populationbased cancer registries databases in Korea(KRCR DB) has been introduced as another strategy for validly estimating the national cancer incidence(NCI) in Korea. The purpose of this study was to evaluate the validity of this method with using the 7 KRCR DBs, excluding Seoul covering 21% of the total population of Korea. Methods : We designed the study method(NCSE_7) as same as the estimating method with using 8 KRCR DBs (NCSE_8) in order to ensure maximal comparability. We defined the expected number of cancer cases in each registry as the number of observed cases and then we added the weighted observed cases according to gender, age and the proportion of the population covered by each registry for the population of the seven regions and the population of all areas, with excluding these seven regions. From the expected number of total cancer incidents, the estimated NCI was calculated by dividing the expected number of cancer cases by the number of the total population. The standard error(SE) of the estimated incidence was also taken from the expected number of total cancer incidents. Results : Compared with the results of the NCSE_8, the overall age-standardized rates(ASR) in men and women became over-estimated and under-estimated, respectively. Primary sites that showed statistically significant differences were the colo-rectum, prostate, breast and thyroid. The index of death certificate only(DCO)and microscopically verified(MV)% indicating levels of data quality were decreased, especially for the brain in DCO% and kidney in the MV%. Conclusions : The database of Seoul regional cancer registry has a key role for the method to estimate the valid nationwide cancer statistics in Korea with using the population-based cancer registries databases.