• 보건행정학회지
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• 제31권4호
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• pp.518-530
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• 2021

Background: This study examined the effect of having a usual source of care on the degree of patient-centered communication among persons with disability. The role of the usual source of care has been emphasized to improve patient experience, especially for patients with complex health conditions. Methods: This study used the 2017-2018 Korean Health Panel data, and the final study observations were 22,475 (20,806 people without disability and 1,669 people with disability). We applied generalized estimating equation model to show the effect of having a usual source of care on patient-centered communication, and subgroup analysis considering the types and severity of disabilities. Results: Persons who have disabilities, compared with ones without it, significantly had more usual sources of care (32.4% vs. 24.6%). By type of disability, persons with mental (51.4%), internal organ (43.8%), visual (37%), and physical disabilities (31.6%) had more usual sources of care than hearing/speech (26.6%), and developmental disabilities (18.6%). The average score of patient-centered communication was higher among who had a usual sources of care (3.2 vs. 2.7), and the regression analysis showed that having a usual sources of care was positively associated with higher patient-centered communication score (𝛽=0.476, p<0.05). However, the positive effects of usual sources of care was not observed among persons with severe hearing/speech, developmental, and mental disabilities. Conclusion: This study showed that role of patient-centered communication was limited in persons with severe hearing/speech disabilities, developmental, and mental disabilities. The education programs and supports are needed to improve communication skills between medical staff and persons with specific types of disabilities.

• Journal of Preventive Medicine and Public Health
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• 제39권3호
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• pp.263-269
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• 2006

Objectives: As the number of people with disabilities is increasing and their needs for care are varied, the continuum and comprehensiveness of their rehabilitative care are getting more important. This study was performed to understand the utilization of rehabilitation services and requirements of care among the people with severe disabilities in Korea. Methods: We interviewed 578 disabled persons who had severe extremity and cerebral impairment in the urban and rural areas of Korea. The questionnaire included questions on their general characteristics, the type of disability, their physical function (ADL, IADL), their use of rehabilitation services after discharge and their requirements for rehabilitation care Results: Only 12.6% of people with disability in the community continuously used the available medical rehabilitation care. The associated factors for utilization of rehabilitation services were pain and admission for rehabilitative treatment in the acute phase. There was a great need for rehabilitation services in community and this varied according to gender, the socio-economic status, the functional status and the geographic region. The gap between utilization and need for rehabilitation services was largest in the economic support. The gap of primary health care was larger in the rural area than in the urban area. Conclusions: The needs for rehabilitation service were diverse according to the individual functional status, the regional characteristics and other general characteristics of people with disability. Strategies should be considered to eliminate the barriers to obtain rehabilitation services for the people with disability in the community.

• 대한인간공학회지
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• 제35권1호
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• pp.11-27
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• 2016

Objective: The purpose of this study was to develop and evaluate high technology adaptive driving controls, such as mini steering wheel-lever system and joystick system, for the people with physical disabilities in the driving simulator. Background: The drivers with severe physical disabilities have problems in operation of the motor vehicle because of reduced muscle strength and limited range of motion. Therefore, if the remote control system with driver-by-wire technology is used for adaptive driving controls for people with physical limitations, the disabled people can improve their quality of life by driving a motor vehicle. Method: We developed the remotely controlled driving simulator with drive-by-wire technology, e.g., mini steering wheel-lever system and joystick system, in order to evaluate driving performance in a safe environment for people with severe physical disabilities. STISim Drive 3 software was used for driving test and the customized Labview program was used in order to control the servomotors and the adaptive driving devices. Thirty subjects participated in the study to evaluate driving performance associated with three different driving controls: conventional driving control, mini steering wheel-lever controls and joystick controls. We analyzed the driving performance in three different courses: straight lane course for acceleration and braking performance, a curved course for steering performance, and intersections for coupled performance. Results: The mini steering wheel-lever system and joystick system developed in this study showed no significant statistical difference (p>0.05) compared to the conventional driving system in the acceleration performance (specified speed travel time, average speed when passing on the right), steering performance (lane departure at the slow curved road, high-speed curved road and the intersection), and braking performance (brake reaction time). However, conventional driving system showed significant statistical difference (p<0.05) compared to the mini steering wheel-lever system or joystick system in the heading angle of the vehicle at the completion point of intersection and the passing speed of the vehicle at left turning. Characteristics of the subjects were found to give a significant effect (p<0.05) on the driving performance, except for the braking reaction time (p>0.05). The subjects with physical disabilities showed a tendency of relatively slow acceleration (p<0.05) at the straight lane course and intersection. The steering performance and braking performance were confirmed that there was no statistically significant difference (p>0.05) according to the characteristics of the subjects. Conclusion: The driving performance with mini steering wheel-lever system and joystick control system showed no significant statistical difference compared to conventional system in the driving simulator. Application: This study can be used to design primary controls with driver-by-wire technology for adaptive vehicle and to improve their community mobility for people with severe physical disabilities.

• 융합정보논문지
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• 제10권4호
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• pp.151-159
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• 2020

장애인구의 고령화나 일차장애의 특성 및 사회환경적인 장애억압과 스트레스로 인해 장애인의 이차적 건강상태는 더욱 취약하다. 이에 본 연구에서는 장애인의 이차장애 경험이 어떠하며, 이차장애 발생시 어떻게 대응하였는지 살펴보고자 하였다. 총 13인의 이차장애를 가지고 있는 중증장애인을 초점집단면접하였으며, 현상학적 연구방법을 적용하여 분석하였다. 분석결과, 장애인들은 노화와 일차장애의 경험의 변주, 일차장애 관리문제와 생활사고, 장애와 건강에 대한 노동시장의 몰이해, 이차장애 위험에 대한 이해 및 예방부족 속에서 이차장애 발생을 경험하고 있었다. 이에 대한 대응으로, 장애인은 몸과 일, 몸과 학업사이에서 양자택일을 하거나, 개인차원에서 이차장애 악화를 예방하고자 애쓰거나, 병원 출입을 계속해나가거나 건강을 최우선으로 하는 삶을 선택하는 등 삶의 조율을 끊임없이 해나가고 있었다. 이차장애를 경험하면서 장애인들은 생의 위협을 경험하고, 삶을 끝까지 견디고 싸워내야 하는 것으로 인식하기도 하였고, 장애인과 비장애인의 다름을 인정하고, 이차장애를 겪어내야 하는 삶에 초연해지기도 하였으며, 사회제도적 지원을 요청하기도 하였다. 본 연구 결과를 바탕으로 의료적 차원의 방안, 노동시장에서의 제도적 지원 방안, 사회복지 실천상의 지원방안에 대하여 논의하였다.

• International Journal of Advanced Culture Technology
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• 제12권1호
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• pp.43-50
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• 2024

Patients with acute respiratory diseases, such as Middle East Respiratory Syndrome (MERS) due to COVID-19, must wear masks, protective clothing, face shields, and gloves to prevent infection during treatment and performance. Even if it is applied to disabled people, families who protect them are severely mentally tired from severe physical fatigue and stress from exposure to high-risk infectious diseases. As such, the spread of infectious diseases such as respiratory diseases has not only caused difficulties in using existing welfare and medical services but also caused various problems throughout the daily life of disabled people due to the prolonged infectious disease, and its scope is gradually expanding. Therefore, it should not be overlooked that disabled people may experience various difficulties, from the spread of infectious diseases such as respiratory diseases to isolation, diagnosis, and treatment, and it is time to actively assess the life changes felt by families caring for disabled people and consider and research to provide adequate services. According to the survey of disabled people is being conducted in the context of the spread of infectious diseases such as respiratory diseases, while research on the spread of infectious diseases such as respiratory diseases is rare for parents with disabilities. There is a need for additional investigation into the characteristics in other areas of everyday life, including the health field, which is deteriorating through prior research. Therefore, through this survey, the purpose of this study is to investigate the life changes of parents with disabilities in the context of the spread of infectious diseases such as respiratory diseases and to compare and analyze them to find out how parents were affected by each type of disability. It will be used as evidence to identify more necessary needs and problems for parents with disabilities in the spread of infectious diseases such as respiratory diseases and to provide more appropriate health care and welfare services in the future.

• 보건행정학회지
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• 제24권2호
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• pp.172-180
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• 2014

Background: People with disabilities have higher prevalence rates and earlier onset of chronic disease than the non-disabled; therefore, their participation in health screening is important. This study evaluates the participation rate and trends in health screening of people with disabilities, and examines the association between their participation rate and disability characteristics, and socioeconomic status. Methods: Data on disability-related characteristics were collected from the National Disability Registry, and participants' corresponding health examination data were taken from the Korean National Health Insurance Corporation between 2002 and 2011. A total of 873,819 participants aged ${\geq}20$ years were analyzed in this study. Results: The rate of participation of people with disabilities in health screening has increased each year, but their participation rate is lower than that of the total population. The participation rate was lower in females than in males; the elderly group than in the younger group; those who live in city areas than rural areas; self-employed for health insurance than employees; those with an internal organ disability than those with an external physical disability; those with a severe disability than those with a mild disability; and those with a short-term disability than for those with a long-term disability. Conclusion: The factors associated with participation rate are age, sex, socioeconomic status, and disability characteristics. These findings indicate that health check-ups of people with disabilities should be promoted using an approach that takes into account the large individual differences in socioeconomic status and disability characteristics in this population.

• 산업융합연구
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• 제18권5호
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• pp.88-96
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• 2020

우리나라 발달장애인의 시설입소율은 다른 장애유형에 매우 높은 편이다. 따라서 발달장애인의 지역사회 삶을 지원하는 '커뮤니티 케어'는 다른 장애유형에 비해 매우 중요하다. 하지만 우리나라는 장애가족이 돌봄의 주체가 되어 부양부담을 호소하고 있다. 본 연구는 일본의 발달장애인의 지역사회 자립지원에 대한 기관방문과 인터뷰를 통해 실천사례를 분석하였다. 연구결과 일본 발달장애인의 지역사회로의 전환은 그룹홈을 중심으로 이루어지고 있었다. 민간은 그룹홈에서 중증장애인까지도 지역사회 생활이 가능하도록 지원하고 있으며, 삿포르시청은 고령부모의 발달장애인 돌봄문제 해결을 위한 민간연계를 진행하고 있었다. 이에 우리나라의 정책적 제언으로 그룹홈 확대와 장애인 거주시설의 기능전환, 고령부모의 장애인 돌봄 문제 대처, 청장년 독거인의 실태조사로 예방적 서비스의 제공을 제언한다. 실천적 제언으로는 자립을 위한 일상생활 능력향상을 위한 그림 등의 교육교재 개발과 보급, 자립생활을 위한 직업훈련에서 충분한 인력과 시설 확충, 성인 발달장애인과 보호자를 위한 쉼터 운영이 필요할 것이다.

• International journal of advanced smart convergence
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• 제9권1호
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• pp.54-62
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• 2020

According to the Ministry of Health and Welfare, "Status of Registered Persons with Disabilities", the number of people with disabilities is 2,494,460 as of 2015. The lowest rates of children with disabilities were intellectual disabilities (23%) and mental disorders (33.3%). The highest rates of screening were blindness (97%), heart failure (94.4%), and hearing impairment (92.7%). 65.2% of visually impaired people who have already had a disability at the time of marriage, and the remaining 34.8% can be thought to be the cause of high incidence of disability after marriage. 'SID (Seed in the Dark)' project was designed to recapture the visually impaired parent's desire for attachment and the space difficulties of the blind who want to be a normal parent to their children through a visual impairment of a father with 7-year-old daughter. Using Gear VR(Virtual Reality), the general public was able to feel the surroundings as if they had no vision and focused on the hearing. Especially, We expressed the sound wave visually and added the hilarious game element which grasps the terrain of the maze by sound wave like a 'blind person who perceives the surroundings by sound' and catches up with daughter. People with disabilities who are far from mental illness often have a form of family with children. The fact that the rate of childbirth is high means that there is relatively little problem in daily life. It is wondered that the rate of blindness among the visually impaired, which accounts for 10% of the total disabled, is the highest at 97%. This is because, in the case of the visually impaired, the obstacle is often caused by aging, accidents, or diseases due to inherited causes rather than the visual disorder. In particular, However, the fact that there is an obstacle in vision that accounts for 83% of the body's sensory organs causes other difficulties in the nursing process of children who are non-disabled. Parents do not know the face of child when their visual impairment is severe. Parents are extremely anxious about worry that they will be lost or abducted if their children are not by their side. And that the child recognizes the disability of his or her parents other than the other parents easily and takes it as a deficiency. Since visually impaired parents are mentally mature parents with non-disabled people, they may want their children not to feel deprived of their disability. The number of people with visual impairments has been increasing since 2001, and people with impairments often become disabled. In addition, there is much research on the problem of nondisabled parents who have children with disabilities, while there is relatively little interest and research on the problem of nondisabled child rearing of parents with disabilities.

• ETRI Journal
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• 제28권1호
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• pp.111-114
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• 2006

An alternative human interface enabling people with severe motor disabilities to control an assistive system is presented. Since this interface relies on the biosignals originating from the contraction of muscles on the face during particular movements, even individuals with a paralyzed limb can use it with ease. For real-world application, a dedicated hardware module employing a general-purpose digital signal processor was implemented and its validity tested on an electrically powered wheelchair. Furthermore, an additional attempt to reduce error rates to a minimum for stable operation was also made based on the entropy information inherent in the signals during the classification phase. In the experiments, most of the five participating subjects could control the target system at their own will, and thus it is found that the proposed interface can be considered a potential alternative for the interaction of the severely disabled with electronic systems.

• 산업융합연구
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• 제18권6호
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• pp.139-146
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• 2020

중증장애인의 돌봄은 비장애 가족에 비해 전 생애주기에 돌봄이 필요하다. 이런 이유로 중증장애 가족의 돌봄자는 일상적인 스트레스는 물론 가족 전체에 부정적인 감정을 가질 우려가 높다. 장애가족 역시 장애인을 중심으로 이루어지는 생활에서 비 장애자녀나 부부간의 어려움을 경험하는 비율이 높다. 특히 우리나라의 급격한 고령화는 장애 돌봄자의 노령화와 함께 노인장애인의 삶에도 영향을 미친다. 연구는 질적 연구방법을 통해 장애인 돌봄자의 과거와 현재 경험을 통한 현실적 지원에 대한 대안을 탐색하였으며, 미래에 대한 희망과 기대를 다음과 같이 도출하였다. 첫째, 장애 영유아에 대한 장애확인 후 지원체계나 제도에 대한 정보전달이 등급판정 기관에서부터 제공. 둘째, 장애유형이나 개별특성에 적합한 '맞춤형 돌봄지원'의 사회, 정치, 제도, 경제적 차원에서의 제공. 셋째, 비장애 자녀대상의 프로그램의 제공과 장애인을 포함하거나 혹은 장애가족만을 위한 힐링 프로그램의 제공. 넷째, 성인장애인을 위한 휴식과 쉼을 제공하는 공간과 프로그램의 제공. 다섯째, 장애인 노화연령을 반영한 노인장기요양제도 적용과 장애인 커뮤니티케어의 제도화이다. 이러한 대안제시를 통해 연구는 성인과 노인 장애인의 삶의 질 향상을 위한 논의점의 제시에 연구의 의의를 두고 있다.