• Title/Summary/Keyword: Parents with cerebral palsy

Search Result 44, Processing Time 0.029 seconds

A Study of Current Use and Subsidy Adequacy of Motor Development Rehabilitation Part of Development Rehabilitation Service in Children and Adolescents with Cerebral Palsy: A Parental Survey (뇌성마비 소아청소년의 발달재활서비스 운동발달재활 영역 이용 및 지원금 현황: 보호자 조사연구)

  • Han, Seoung-Hyun;Hahm, Suk-Chan
    • Journal of The Korean Society of Integrative Medicine
    • /
    • v.10 no.2
    • /
    • pp.155-167
    • /
    • 2022
  • Purpose : Accumulation of accurate data regarding the use and adequacy of subsidies is important to provide optimal development rehabilitation services. However, no reports have discussed the status regarding the use and adequacy of subsidies available for motor development rehabilitation as a part of development rehabilitation services in children and adolescents with cerebral palsy. In this study, we investigated the current use and subsidy adequacy of motor development rehabilitation as an essential part of development rehabilitation services in children and adolescents with cerebral palsy. Methods : The study included parents of children and adolescents with cerebral palsy, who underwent motor development rehabilitation of development rehabilitation services (n=148). The participants were administered a questionnaire to investigate the current use and subsidy adequacy of the motor development rehabilitation part of development rehabilitation services. Results : Most respondents indicated that 310,000-410,000 /month was an appropriate subsidy and agreed that the subsidy should be extended to adults with cerebral palsy. We observed a significant difference in the appropriate subsidy based on age groups (p=.029), as well as type of development rehabilitation service most needed (p=.005) and whether or not agree to extend the subsidy to adults according to gross motor function classification system level (p=.015). There were significant relations of appropriate subsidy (p<.001) and appropriateness of copay (p=.004) according to degree of transportation cost burden. Moreover, there were significant relations of appropriateness of current subsidy (p=.015) and appropriate subsidy (p<.001) according to degree of inconvenience of using transportation. Conclusion : This study highlights the need to increase subsidies for motor development rehabilitation of development rehabilitation services and that the subsidy should be determined based on the burden of transportation costs and the inconvenience of using transportation. Development rehabilitation service for adults with cerebral palsy should also be supported.

Evaluation and Treatment of Malnutrition and Associated Gastrointestinal Complications in Children with Cerebral Palsy

  • Trivic, Ivana;Hojsak, Iva
    • Pediatric Gastroenterology, Hepatology & Nutrition
    • /
    • v.22 no.2
    • /
    • pp.122-131
    • /
    • 2019
  • The majority of children with cerebral palsy (CP) have feeding difficulties and are especially prone to malnutrition. The early involvement of a multidisciplinary team should aim to prevent malnutrition and provide adequate nutritional support. Thorough nutritional assessment, including body composition, should be a prerequisite for the nutritional intervention. As in typically-developed children nutritional support should start with dietary advice and the modification of oral feeding, if safe and acceptable. However, for prolonged feeding, in the presence of unsafe swallowing and inadequate oral intake, enteral nutrition should be promptly initiated and early gastrostomy placement should be evaluated and discussed with parents/caregivers. Gastrointestinal problems (oropharyngeal dysfunction, gastroesophageal disease, and constipation) in children with CP are frequent and should be actively detected and adequately treated as they can further worsen the feeding process and nutritional status.

Utilization of Korean Medicine among Children with Cerebral Palsy - Qualitative Study by Grounded Theory (뇌성마비 아동의 한방의료 이용행태 - 근거이론에 의한 질적연구)

  • Lee, Hyunjoo;Kim, Buyoung;Yun, Youngju
    • Journal of Society of Preventive Korean Medicine
    • /
    • v.23 no.2
    • /
    • pp.25-42
    • /
    • 2019
  • Objectives : The purpose of this study was to identify factors that affect the utilization of Korean medicine (KM) among children with cerebral palsy (CP) and explore a processing model of decision-making by their parents. Methods : We conducted an individual in-depth interview with 21 mothers of children with CP who were recruited during the observational study. A grounded theory of Strauss and Corbin was used for qualitative analysis. Thus, collected data were classified into open coding including 121 concepts, 27 sub-categories and 7 categories. Results : The central phenomenon of the process of using KM for children with CP is 'KM as an optional treatment not essential'. Therefore there are many obstacles to starting KM treatment and it is easily interrupted for various reasons, unlike general rehabilitation treatment. However, if the patient experiences the therapeutic effect, the parents want to continue KM treatment. They try to provide treatment as much as possible if they can afford it. The parents give priority to general rehabilitation treatment and value the information and experience provided by the caregivers in similar situation as well as expert opinions. Conclusions : To expand and generalize KM treatment for children with CP, efforts to change interventional conditions such as treatment effect, treatment cost, treatment compliance, and convenience of treatment based on the understanding of the strategy used by the parents in KM utilization.

Correlations among Motor Function, Quality of Life, and Caregiver Depression Levels in Children with Cerebral Palsy

  • Yoo, Ji-Na
    • The Journal of Korean Physical Therapy
    • /
    • v.28 no.6
    • /
    • pp.385-392
    • /
    • 2016
  • Purpose: This study aimed to evaluate the relationships among quality of life, caregiver depression levels, and disease severity, especially motor function, in children with cerebral palsy. Methods: Data were collected through questionnaires using survey and interview from 80 caregivers of children with cerebral palsy. The caregivers' quality of life was measured using medical outcomes study 36-item short form health survey, and level of depression was scored using the beck depression inventory. In addition, children's motor function was evaluated using gross motor function measure-88 and functional independence measure scores. Results: Among 8 domains of medical outcomes study 36-item short form health survey, "physical functioning," "physical role functioning," "mental health," and "bodily pain" domains were significantly correlated to "total" percentage scores of gross motor function measure-88. In addition, "mental health" and "bodily pain" domains were correlated to each sub-dimension, including "lying and rolling," "sitting," "crawling and kneeling," "standing," and "walking, running, and jumping." Similarly, the "running" and "jumping" dimensions including motor function measures correlated with "transfer," "locomotion," and "motor subtotal" of functional independence measure scores. The beck depression inventory scores were negatively correlated to "lying and rolling," "sitting," "crawling and kneeling," and the "total" percentage scores of gross motor function measure-88. The beck depression inventory scores were negatively correlated to "sphincter control," "communication," "social cognition," "cognitive subtotal," and "total" functional independence measure scores. Conclusion: It is necessary to consider the quality of life and emotional problems of caregivers of CP children and support them both physically and psychologically with comprehensive rehabilitation.

Survey Research on the Cerebral Palsy Children (소아(小兒) 뇌성마비환자(腦性麻痺患者)에 관한 연구(硏究))

  • Kim, Young-wah;Jang, Suk-geun;Kim, Young-il;Hong, Kwon-eui;Lee, Hyun;Lee, Byung-ryul
    • Journal of Acupuncture Research
    • /
    • v.19 no.4
    • /
    • pp.89-100
    • /
    • 2002
  • Objective : We want to have a correct understanding and the distance about the Oriental Medical therapy on the CP(cerebral palsy) children. Methods : We made up a question of parents of CP children and analyzed it. Conclusion : 19 patients were taken physical treatment and 12 patients were taken occupational treatment in company with physical treatment(In our OPD CP patient) Parents complained about poor surroundings of our hospital for children and deficiency of physical treatment. The most satisfactory thing is acupuncture treatment, then the next thing is aroma therapy. On the satisfaction degree about the Oriental Medical therapy, very good is 27.3%, good 45.5%, ordinary 27.3% and unsatisfaction is none. The place Oriental medical therapy before our hospital was taken is local Oriental medical clinic, 9 cases out of 22.

  • PDF

Analysis of Korean Qualitative Studies on Cerebral Palsy (뇌성마비에 대한 국내의 질적 연구 분석)

  • Lee, Moonsung;Shin, Daewon;Kim, Buyoung;Yun, Youngju
    • Journal of The Korean Society of Integrative Medicine
    • /
    • v.7 no.1
    • /
    • pp.99-112
    • /
    • 2019
  • Purpose : The purpose of this study was to analyze Korean qualitative research studies on cerebral palsy and provide a basis for future direction of research. Methods : Twenty-six articles were selected by searching 4 Korean databases (NDSL, DBpia, KISS, and RISS) and reviewing the list of additional references. All the articles were analyzed and assessed using the Consolidated criteria for Reporting Qualitative research (COREQ). Results : Seventeen qualitative studies and 9 mixed quantitative and qualitative studies were selected, and methodologies such as case study (42.3 %), constant comparative method (23.1 %) and phenomenology (23.1 %) were used. The studies investigated the effects of interventions (38.5 %), support programs (30.8 %), and life experiences (26.9 %). Among the participants, 50.0 % were persons with disabilities only, 19.2 % were parents only, and 30.8 % were combination of persons with disabilities, parents, teachers, and therapists. The number of participants in most studies was 2-9 (57.7 %). The COREQ evaluation of the selected articles revealed many shortcomings in the studies. Interview guidelines were used only in 26.9 % of the studies. In particular, many articles did not describe in detail the characteristics of researchers and the relationship between researchers and the participants. Conclusion : In future, various research methodologies and research checklists must be used to stimulate high-quality qualitative research with on cerebral palsy.

Rehabilitation Therapy Selection Process in Parents of Children with Cerebral Palsy: Grounded Theory (뇌성마비아동 보호자들의 재활치료 선택 과정: 근거이론 중심)

  • Kim, BuYoung;Yun, YoungJu;Lee, HyunJoo
    • 재활복지
    • /
    • v.22 no.2
    • /
    • pp.175-212
    • /
    • 2018
  • The purpose of this study was to identify factors that affect the optimal selection of rehabilitation therapy and explore a processing model of rehabilitation decision-making for parents of children with cerebral palsy. A ground theory of Strauss and Corbin(1988)was used. Thus, collecting data was classified into open coding 140 concepts, 29 sub-categories and 8 categories. As a result of analysis, we identified that the main phenomenon was 'finding optimal therapy in trial and error' and parents experienced 6 stages including 'embarrassment', 'confusion', 'maximization', 'wandering', 'strategy', and 'balance'. Furthermore, 'rehabilitation-daily life balance' was a key category for continuation of treatment. This qualitative study discribed factors influencing determination of treatment and its continuation, and suggested a processing model of parents' decision- making for rehabilitation of their children.

Maternal and Child Factors Associated with Early Detection of Cerebral Palsy (뇌성마비아 조기발견과 관련된 모자인자)

  • Bae, Sung-Soo;Park, Jung-Han
    • Journal of Preventive Medicine and Public Health
    • /
    • v.20 no.2 s.22
    • /
    • pp.312-321
    • /
    • 1987
  • To investigate the maternal and child factors associated with early detection of cerebral palsy, 74 mothers of cerebral palsy children who were born since January 1, 1980 and being treated at Taegu Rehabilitation Center for the Handicapped, Rehabilitiation Center of Taegu University, St. Paul Children's House and Pusan Welfare Association of Cerebral Palsy Children were interviewed from February to April 1987. There is no association between age of child when parents noticed the child's abnormality and educational level of father but it tend to be detected earlier when education level of mother is college or above compared with high school or under. There is a trend of earlier detection of child's abnormality although statistically not significant in case father is professional or managerial worker, monthly income of father is over \610,000, child is first-born, age of the parents is 34 years or under, child is a boy, and child has periodic well-baby check-up. The child's abnormality is detected earlier when mothers had 7 prenatal visits or more compared with those who had 6 visits or less (p<0.05). Parents noticed the child's abnormality first in 85.1% of the cases whereas doctors detected it first in 2.7% and this percentage was not different whether the child had periodic well-baby check-up or not. The first physician's diagnosis of the children was cerebral palsy in 36.5% and the rest was normal, need for observation, uncertain, etc. Parents took the child to doctor for diagnosis 2-3 months after they noticed the child's abnormality and after the child was diagnosed as cerebral palsy parents either took no therapeutic measure or brought the child to physiotherapy or acupuncture or gave herb medicine before they started specific rehabilitative therapy. For early detection of the cerebral palsy children, teaching of evaluation method for child development should be reinforced both in medical school and clinical training course and should train the specialist for diagnosis and treatment of crippling conditions. Also, public education is needed for the importance of early detection of crippling conditions and currently available methods for diagnosis and treatment.

  • PDF

Functions (Mobility, Self-care, Social Ability) and Health-related Quality of Life in Children with Cerebral Palsy

  • Ko, Joo-Yeon;Lee, Suk-Min
    • The Journal of Korean Physical Therapy
    • /
    • v.22 no.3
    • /
    • pp.37-44
    • /
    • 2010
  • Purpose: The purpose of this study was to describe the functional (mobility, self-care, social ability) and health-related quality of life in children with cerebral palsy (CP). Methods: A cross- sectional survey of 202 children with CP, mean age $5.91{\pm}1.57$ years, was carried out using the Gross Motor Function Classification System (GMFCS), Gross Motor Function Measure (GMFM), Pediatric Evaluation of Disability Inventory (PEDI), and Child Health Questionnaire (CHQ). Results: The functional assessment of children with CP showed that a more severe GMFCS level was associated with lower functional abilities (p<0.05). The health-related quality of life assessment showed that psychosocial well-being was less impaired than physical well-being. The internal consistency of the three instruments was satisfactory (cronbach's ${\alpha}$>0.80). The three different scales were correlated from moderate to strong (r=0.44 to 0.92). It was also found that mobility, tone distribution, and the parents' education level exerted a significant effect on the quality of life of children with CP (p<0.05). Conclusion: These findings suggest that children with CP have reduced function and quality of life and these are influenced by various factors. However, planning and application of various task-oriented functional interventions to childhood CP may be useful.

MITIGATION OF MAXILLARY ANTERIOR TEETH PROTRUSION WITH CEREBRAL PALSY USING REMOVABLE APPLIANCE : A CASE REPORT (뇌성마비환자에서 가철성장치를 이용한 상악 전치부 돌출 완화 : 증례보고)

  • Min, Boram;Lee, Jae-Ho
    • The Journal of Korea Assosiation for Disability and Oral Health
    • /
    • v.9 no.2
    • /
    • pp.122-126
    • /
    • 2013
  • Cerebral palsy is one of the primary handicapping conditions of childhood. The prevalence of malocclusions in patients with cerebral palsy is approximately twice than in general population. Even though these high rates of malocclusions, most clinicians may feel uncomfortable about treating such problems to reduce inclination of anterior teeth because to reduce of protrusion makes to decrease risk of trauma. This is the case report about mitigation of maxillary anterior teeth protrusion in patient with cerebral palsy. A 14 year old boy who had cerebral palsy visited our dental hospital. He had severe protrusive maxillary anterior teeth and narrow arch form. He was experienced at using Castillo morales appliance in early childhood. He had mild mental retardation and was able to learn simple skills. He and his parents had willing to improve his dental problems. A gentle impression taking on maxilla was done. Removable appliance was made including median screw and labial bow. We provide a period of adaption for 3 weeks. After of anterior teeth through activation of labial bow was done once a month by dentist. The treatment carried out for 10 months and we could observe reduced labial inclination of maxillary right central incisor and more wide arch form. Hawley type retainer was set at maxilla for retention. In conclusion, accompanying careful case selection and treatment, patient with cerebral palsy can be treated and should not be ignored their orthodontic needs.