• Title/Summary/Keyword: Parents of Children with Disability

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The Effects of Family Resilience on the positive attitudes toward a Children with Disabilities and Non-Disabled Siblings (장애아동 가족의 가족탄력성이 장애아동에 대한 비 장애 형제 자매의 긍정적 태도에 미치는 영향)

  • Bae, Seon-Young;Cho, Nam-Ju;Park, Sun-Ja
    • Journal of Digital Convergence
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    • v.11 no.9
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    • pp.239-246
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    • 2013
  • The purpose of this study was to identify the effects of family resilience on the positive attitudes toward a children with disabilities of non-disabled siblings. For this purpose, a survey data was collected from 110 siblings with disabled children. The general characteristics of the parent questionnaire, and the general characteristics of a child with a disability, non-disability sibling's general characteristics, be receptive attitude, consisted of family resilience, and the data were analyzed by frequency analysis, descriptive statistics, t test, ANOVA and regression analysis by SPSS 18.0. Structural equation was used for black AMOS18. The results of the measurement analysis were summarized as follows: 1. family resilience showed positive correlation with positive attitudes toward a children with disabilities of non-disabled siblings. 2. as a result of regression analysis for find out influence of family resilience on the positive attitude of non-disabled siblings, family resilience was statistically significant influence factors, which 50%, 50% explanatory power. In conclusion, these results reinforce the important of considering family context as a contributor to the positive attitudes toward a children with disabilities of non-disabled siblings, so it could be suggested that family resilience needs to be improve.

Chemical Risk Factors for Children's Health and Research Strategy (어린이 건강관련 유해물질 연구방향)

  • Lee, Hyo-Min;Jung, Ki-Hwa
    • Journal of Food Hygiene and Safety
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    • v.23 no.3
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    • pp.276-283
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    • 2008
  • To provide the research strategy for protection of children's health from hazardous chemical, we reviewed the hazardous chemicals can be exposed through maternity, children's life style and living environment. Recently, diseases related with children's living condition were focused as asthma, atopy, childhood developmental disability, congenital malformations and obesity. Children can be exposed to hazardous chemicals through an ambient air, water, soil, food, toys and other factors such as floor dust. Also children's health was deeply related with a wrong life style and neglectful caring by a lack of knowledge and information of harmful ones at parents and child care center's nursers. According to the previous study, the chemical risk factor of children's health were identified as inorganic arsenic, bisphenol A, 2,4-D, dichlorvos, methylmercury, PCBs, pesticide, phthalates, PFOA/PFOS, vinyl chloride, et al. Domestic studies for identification of causality between children exposure to chemicals and resulted hazardous effects were not implemented. The confirmation of chemical risk factors through simultaneously performing toxicological analysis, human effect study, environmental/human monitoring, and risk assessment is needed for good risk management. And also, inter-agency collaboration and sharing information can support confirming scientific evidence and good decision making.

The Effects of Parent's Positive Perception of Parenting Children with Disabilities on Family Adaptation -Focusing on the Mediating Effect of Empowerment - (장애자녀 양육경험 인식이 가족적응에 미치는 영향 - 임파워먼트의 매개효과 -)

  • Kim, Su Jeong
    • 재활복지
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    • v.17 no.4
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    • pp.79-101
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    • 2013
  • This research investigated the relationship between the parent's positive perception of parenting children with disabilities and family adaptation, and the mediating effect of empowerment on the relationship. For this research, data from 189 parents of children with disabilities who had used social service facilities and a school for the disability. There are the research results. First, the level of empowerment and positive perception are both high and were different between father and mother. The level of Self-efficacy is highest among sub-factors of empowerment. The parent's positive perception of parenting children with disabilities was positively correlated with empowerment. The empowerment and parent's positive perception had an direct effect on the family adaptation. On the verification of the effect of empowerment as the mediator, the empowerment variable revealed possessing the partial mediating effect. Therefore, this study suggest for the practical promotion about empowerment and parent's positive perception of parenting children with disabilities.

The Effect of a Program Combining Resistance Exercise and Group Exercise on Balance, Grip Strength, and Quality of Life of Children with Cerebral Palsy (저항성 운동과 그룹 운동을 병합한 프로그램이 뇌성마비 아동의 균형능력, 파악력 및 삶의 질에 미치는 영향)

  • Kim, Sung-Hyeon;Shin, Ho-Jin;Hahm, Suk-Chan;Park, Sun-Wook;Cho, Hwi-Young;Lee, Min-Goo
    • Journal of the Korean Society of Physical Medicine
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    • v.15 no.4
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    • pp.75-85
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    • 2020
  • PURPOSE: Cerebral palsy is a common cause of disability in children, requiring constant rehabilitation. Improving balance in children with cerebral palsy helps to alleviate daily movement and the quality of life. This study examines a program that combines Resistance Exercise and Group Exercise, and investigates the effect on trunk control ability, balance ability, maximum grip strength, and quality of life of children with cerebral palsy. METHODS: Totally, 9 children with cerebral palsy participated in this study. Resistance exercise was performed for 8 weeks, 40 minutes every day. Group Exercise was conducted for 8 weeks, 40 minutes each Sunday. All participants were evaluated by the Korean version of the trunk control measurement scale, pediatric reach test, grip strength test, and KIDSCREEN-52. RESULTS: The trunk control ability was significantly improved in all subcategories (p < .05). In the pediatric reach test, the left and right directions were significantly improved (p < .05). Maximum grip strength was significantly improved in both hands (p < .05). The quality of life significantly improved in total score, physical well-being, general moods, self-perception, autonomy, relationship with parents, and home life (p < .05). CONCLUSION: Considering the encouraging results, we propose to use Resistance Exercise and Group Exercise as programs other than rehabilitation treatment in hospitals, to improve motor function and quality of life of children with cerebral palsy.

Self-Differentiation and Depression of Parents of Children with Disabilities: Mediating Effects of Self-Efficacy (장애자녀 부모의 자아분화와 우울감: 자기효능감의 매개효과를 중심으로)

  • Chung, Young Sook
    • 재활복지
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    • v.21 no.3
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    • pp.23-47
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    • 2017
  • This study examines the mediating effects of self-efficacy between self-differentiation and depression by analyzing 105 parents who have at least one child with a disability. Regression analysis confirmed all hypothesis between self-differentiation, self-efficacy, and depression. There exists partially or complete mediation. That is the indirect effect on depression, self-efficacy explains the relationships between self-differentiation and depression to be as minimum as 24 percent to as maximum as 100 percent. This demonstrates that the self-efficacy significantly affects the relationship between self-differentiation and depression. Findings of this study recommend that self-efficacy should be enhanced through improving the level of self-differentiation. The results also imply that rehabilitation counselors need to understand the way of improving self-efficacy as well as the fact that the influencing factors of self-differentiation on self-efficacy is important. The findings of this study are informative for researchers, educators, and clinicians for mental health and psychological rehabilitation who assist the parents of children with disabilities.

Al Capone Does My Shirts and the Family's Spiritual Growth (『알 카포네가 내 셔츠를 세탁한대』에 나타난 가족의 내적 성장)

  • Choi, Sung Hee
    • English & American cultural studies
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    • v.17 no.2
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    • pp.63-88
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    • 2017
  • Al Capone Does My shirts is a book that received the Newbery Honor Award in 2005. The novel is set on Alcatraz Island, where the Alcatraz Federal Penitentiary housed the most dangerous and heinous criminals during the Great Depression era, and is centered on autism. The purpose of this study is to analyze the living conditions of a family with an autistic child in Al Capone Does My Shirts and the family's spiritual growth through conflict and pain. This study finds that the parents' and siblings' pain from the autistic child is certainly a negative experience, but such pain can help grow the family's love and spirit. Moose, the protagonist, grows into a mature teenager who truly understands his autistic sister and attempts to remedy his mother's wrongdoing. The mother also lays down her unreasonable expectations for her children, learns how to wait and observe from a patient's point of view, and mends her relationship with her son. This novel thus conveys a hopeful message: the family of disabled children can overcome difficulties stemming from the disability through continuously trying to understand each other.

Study on smart contents development directions for children with autistic disorder to enhance adaptive behavior (자폐성장애 아동의 적응행동 향상을 위한 스마트 콘텐츠 개발 방향에 대한 연구)

  • Han, Dong-Wook;Kang, Min-Chae
    • Journal of Digital Convergence
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    • v.11 no.10
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    • pp.123-131
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    • 2013
  • This study aims to investigate development directions for smart contents to support enhancing adaptive behavior skills of children with autistic disorder in elementary school. AHP survey of experts including special education teachers and directors in educational institution for disability children was performed to analyze importance weight for smart contents development necessity and effectiveness in adaptive behavior skills. And the smart contents development suitability through pre-discussion for idea generation for various development method and AHP survey with smart application development experts was evaluated. The results show that the effective and suitable adaptive behavior skills for smart contents development were understanding of languaging, time management and keeping, movement skills, wearing clothes, and personal hygiene in order of importance. Based on this study, education authorities should make an effort not to develop fragmentary educational smart contents but to support development of smart contents and service systems with better effectiveness and usability to meet demand for special education teachers and parents considering characteristics of children with autism.

A Study on the Factors Affecting the Qualities of Lives in Mothers with Disabled Children in Seoul (서울 지역 장애아어머니의 삶의 질에 영향을 미치는 제 요인에 관한 연구)

  • Yoo, Hye-Kyung
    • Journal of Families and Better Life
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    • v.27 no.1
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    • pp.73-88
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    • 2009
  • The purpose of this study was to investigate the influence of the factors such as self-esteem, social supports, socio-economic status of parents, degree of disability in child, stress coping, religion, and sports.exercise on the qualities of lives in mothers with disabled children. Data were collect from 45 institutions(schools from kindergarten to senior-high, special education institutes, and social welfare institutions) by self-report questionnaire, and the subjects of the study were 386 mothers in Seoul whose children were attending the schools or institutions. Findings according to socio-demographic variables are as follows: 1. Mothers with disabled children in this study thought their quality of life as average degree. 2. The younger the mothers and children, the higher the quality of life was. 3. The higher the educational level and monthly income, the higher the quality of life was. 4. There was no statistically significant difference between the existence and nonexistence of spouse, and between the existence and nonexistence of religion as well. Findings analyzed by multiple regression are as follows: 1. Among 7 independent variables 'self-esteem'(${\beta}$=.49, p<.001), 'social supports'(${\beta}$=.15, p<.01), and 'socio-economic status'(${\beta}$=.11, p<.05) were found to be statistically significant in quality of life in mothers, while the rests were found not significant. 2. 'Self-esteem' was found to be the most influencing variable, meaning that the psychological factor such as self-esteem is more important than environmental factors in qualities of lives in mothers. 3. The total amount of explanation of the model was Adjusted R square=.301, so that it can be said about 30% can be explained among total variance of the qualities of lives in mothers with disabled children. Conclusions and recommendations based on the results above are: First, it is strongly recommended to conduct programs promoting self-esteem in mothers with disabled children, and to include 'self-esteem' hereafter in the studies related to qualities of lives in mothers with disabled children. Second, comprehensive and practical countermeasures should to be formulated to back up expenses for education and medical care, purchasing relative tools and equipments, plus helping to find jobs.

DENTAL TREATMENT OF A 11-YEAR-OLD MALE PATIENT WITH ADRENOLEUKODYSTROPHY UNDER GENERAL ANESTHESIA : A CASE REPORT (부신백질이영양증 환자의 전신마취 하 치과 치료 : 증례보고)

  • Jang, Jun-Hyuk;Shin, Teo-Jeon;Kim, Young-Jae;Kim, Jung-Wook;Jang, Ki-Taeg;Lee, Sang-Hoon;Kim, Chong-Chul;Hyun, Hong-Keun
    • The Journal of Korea Assosiation for Disability and Oral Health
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    • v.9 no.2
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    • pp.107-110
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    • 2013
  • Adrenoleukodystrophy (ALD) is a rare, inherited disorder that leads to progressive brain damage and failure of the adrenal glands. It is passed down from parents to their children as an X-linked genetic trait. Therefore, it affects primarily males especially under the age of 10. People with ALD have excessive accumulation of very long chain fatty acids (VLCFAs) in their brain because they do not have the enzyme which break down these fatty acids. Special method for treatment of ALD is not available. Eating a diet low in VLCFAs and taking special oils, called Lorenzo's oil, can lower the blood levels of VLCFAs. But this oil cannot stop the destruction of nerve cell. This article presents a case report: Dental treatment of a 11-year-old male patient with ALD under general anesthesia. Careful management must be required during treatment procedure because of difficulty in cooperation, seizure disorders, gastroesophageal reflux, pulmonary aspiration and airway complications.

Relationship between motivation, satisfaction, and re-use intention when selecting a psychomotor center for parents with developmental disabilities (발달장애 부모의 심리운동센터 선택 시 동기, 만족도, 재이용 의사의 관계)

  • Ryu, Jin-Ho
    • Journal of Industrial Convergence
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    • v.20 no.3
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    • pp.73-79
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    • 2022
  • The purpose of this study was to examine the relationship between parental participation motivation, satisfaction, and intention to reuse children with developmental disabilities using psychomotor centers. To this end, a questionnaire survey was conducted on the parents of children participating in psycho-exercise programs at a private developmental disability center located in the metropolitan area. The collected data was 188 copies, and the causal relationship was verified through descriptive statistics, factor analysis and reliability analysis, correlation analysis and regression analysis. As a result of the analysis, the following conclusions were obtained. First, in the relationship between parental participation motivation and satisfaction with regard to psychological exercise participation of children with developmental disabilities, only pleasure and social factors were significant in use satisfaction, and only social, health and physical fitness factors in performance satisfaction showed a significant influence. Second, in the relationship between participation motivation and intention to reuse, there were significant influences on pleasure, skill development and sense of achievement, and social factors. Third, in the relationship between satisfaction and intention to reuse, intention to reuse was significantly explained in factors of satisfaction with use and satisfaction with performance. In order to increase the reuse rate of psychomotor centers in the future, it is judged that additional analysis is necessary in addition to the measurement variables of this study.