• Title/Summary/Keyword: Parents of Children with Disability

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A Study on the Pattern of Growth Process of the Parents of Children with Developmental Disabilities based on Online Parental Community (발달장애아동 부모의 온라인 공동체 상호작용과 성장과정 유형에 관한 연구)

  • Lee, Kyungah;Kim, Sungchun;Chang, Haelim;Lee, Eunjoung
    • Korean Journal of Social Welfare
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    • v.66 no.4
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    • pp.181-205
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    • 2014
  • The purpose of this study is to analyze the process of growth of parental empowerment of the family of the children with development disabilities in an online parental community. For this purpose, 250 posts were selected from a web-forum of an online-community(internet CAFE) for patients with developmental disabilities in a Korean portal site. In addition, the selected posts were analyzed based on the grounded theory method. The results showed that the parents with high risk children for developmental disabilities interacted with each other in short answers, self-addressing, and discussion type interactions under the causal condition in which the subject parents were in need of help and sympathy. The factors that significantly affected the focus event, which is the interactive communication between the posters of the original threads and replies, included the moderating conditions based on whether the conversation was respectful, friendly, or for general evaluation, as well as the contextual condition of exclusive attitudes. The strategies of the interactions were composed of two categories of self-reflections and sharing through a human relationship. The results of these interactions were either further interactions (sharing) or shying away. With regard to the process of reinforcing the collective empowerment of the family, the 'determination,' 'tips,' and 'empathy' models were used for the explanation of the process. Lastly, we discovered that trust, support, continuous interactions, specific and practical information, as well as provision of diversified perspectives through collective experiences are necessary to achieve such improvement of collective family empowerment.

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Research on the Stress of Mothers of Disabled Children (장애아 모의 스트레스에 관한 연구)

  • Oh, Sae-Raan
    • Korean Journal of Social Welfare
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    • v.46
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    • pp.263-289
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    • 2001
  • Many studies have shown that the parents of developmentally disabled children are adversely affected by the experience of raising a child of this type. However, the range of reactions to parenting a handicapped child is quite varied and is presumably affected by a wide variety of variables. This study examined a number of demographic and psychosocial variables to determine which particular combination could best predict the current level of stress and coping behavior of mothers. Among predictor variables, marital satisfaction and dysfunctional attitude are variables that I am particularly interested in which can mediate parental stress. Five variables are found to be related to the stress of mothers, that is, level of disability, level of needed help, marital satisfaction, type of disability, father's education level. Also variables that affect four different types of stress (which are four factors of QRS-F) are analysed and the results presented. Among these variables, some are pre-determined and some are intervenable. We should make an effort to make changes in those intervenable variables such as marital satisfaction, beliefs and attitude about disability, and level of needed help. In future research we need to search and clarify the beliefs and attitude that help mothers adjust to a life with a disabled child. Also governmental support and policy making to reduce the burden of these mothers should be accompanied as well.

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Parenting Stress as a Predictor of Child Abuse Potential (아동학대 유발요인으로서 장애아동부모의 스트레스에 관한 연구)

  • Park, Myung-Sook
    • Korean Journal of Social Welfare
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    • v.51
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    • pp.311-327
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    • 2002
  • Many studies verified the relationship between parenting stress and the abuse of children with disability. It means that disability is a risk factor for abuse. The purpose of this study is to examine the parenting stress as a predictor of child abuse potential. For this study, 150 parents of children with disabilities were recruited. A personal questionnaire, parenting stress index, and potential factors of child abuse were responded. According to the results, parents who have children with disabilities reported high parenting stress and also parenting stress significantly affected parents' attitudes toward child abuse. Income, level of education, social involvement, governmental support, and social services for disabled were related to parenting stress and child abuse. Stepwise multiple regression analysis identified the variables of social involvement and social services for disabled as the most important variables in explaining parenting stress and child abuse. This study suggests that social supports and services for the parents of children with disabilities should be provided.

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A Survey of Satisfaction of Parents with Handicapped Children at Physical Therapy Services-on the Basis of Jeon-nam Areas-1 (장애 아동 부모의 물리치료 만족도에 관한 조사)

  • Jeon, Jae-Keun;Kim, Bong-Hwan
    • Journal of Korean Physical Therapy Science
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    • v.18 no.3
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    • pp.41-51
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    • 2011
  • Purpose : The purpose of this study for the physical therapy service was to investigate the satisfaction of the parent whose child has a disability and which factors affect their satisfactions. 153 questionnaires were surveyed from parents who experienced services of physical therapy offered in 3 general hospitals, 6 disabled daycare centers and 2 welfare centers located in Jeonnam area for one month, Sep. 2009. The results of this study were as follows: 1. In the parent's satisfaction of physical therapy program, there was a significant difference in satisfaction according to their place of residence(p<.05). 2. In the child's satisfaction of physical therapy program, there was a significant difference in satisfaction according to their diagnosis time(p<.05). 3. In the general characteristics of the condition of workroom, the satisfaction of physical environment, therapist's attitude, and physical therapy program revealed the significant differences(p<0.05). In the satisfaction according to institution, only physical environment has a significance(p<.05). 4. The satisfactions were $4.17{\pm}0.67$, $3.97{\pm}0.60$ and $3.90{\pm}0.68$ for physical therapist's attitude, physical environment and physical therapy program, respectively. The overall satisfaction revealed $4.01{\pm}0.58$, relatively high.

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A Study on the Occurrences and Preventive Strategies of Accident in Children (초등학생의 안전사고 실태 및 예방전략에 관한 조사 연구)

  • Bae Jeong-Yi
    • Child Health Nursing Research
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    • v.8 no.4
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    • pp.435-448
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    • 2002
  • Accidents are important causes of death and disability in children. They also have enormous financial implications. Young children become an victim of accidents easily because of their physical fragileness and their coping behavior being vulnerable to any actions taken by accidents. Once they have a accident, the children whose not fully developed, suffer from devastating long-term after-effects. Lee, Lee, Kang and Han(1995) reported that ninety percent of accidents can be prevented. But there is no national system to manage, evaluate and analyse the information about child accidents, even though it is necessary for accident prevention policies and health promotion of the general public. The purpose of the study was to determine how often children have accidents and define the accident prevention strategies in children. The investigator conducted a descriptive study by performing the surveys, interviews, and workshops for the 2,458 young children, 10 teachers, and 1,494 parents. The data collection for the study began on September 2000 and completed on April 20, 2001. The analysis of the data was done with Window SPSS 10.0 for descriptive statistics. Among those children, 1,298 children(52.8%) injured from accidents. The children who had accident answered that they injured from traffic accident(27.3%), inside the home(26.3%), on the playground(17.0%), during playtime(13.6%), in the school(5.9%) and food poisoning(7.1%). To define accident prevention strategies for the school children, the parents and the teachers who had a special interest in this topic formed a special task force under the guidance of the investigator. The team was charged to prepare the basis of content materials by identifying the problems, setting standards for the program, prioritizing the process, and selecting the methods of implementation and evaluation. Eight issues and concerns identified by the team were: 1)allowing young children to learn undesirable habits and behaviors that would bother others without knowing; 2) not guarding young children from car accident; 3)unattended accident at playground; 4) considering home places safe; 5)unattended accident at school. These issues were found to be coinciding with the actual child accident cases occurred recent years in Korea. Greater efforts are required to reduce unnecessary deaths and disability from childhood accidents. This study gave a very useful and important data to prepare accident prevention educational program and to prepare accident prevention strategies.

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CRITICAL PATHWAY ON GENERAL ANESTHESIA FOR DISABLED CHILDREN (장애아동 전신마취에 대한 Critical Pathway적용)

  • Kum, Jin-Eun;Lee, Su-Jin;Huh, Jeong-Ae;Jeong, Tae-Sung
    • The Journal of Korea Assosiation for Disability and Oral Health
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    • v.3 no.2
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    • pp.80-86
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    • 2007
  • A critical pathway (CP) defines the optimal care process, sequencing and timing of intervention by multi-disciplinary health care teams for a particular diagnosis and procedure. It plays an important role as a cost-effective health care delivery system and a tool for quality control of medical and dental services by means of standardizing medical practices. The aim of this study is to investigate the satisfaction of patients and medical/dental staff after implementation of a critical pathway for dental treatment of disabled children under general anesthesia and its cost effectiveness. Ten patients who underwent dental treatment under general anesthesia were included in the CP group between August and December 2006. The pre-CP group included 20 patients who underwent the same procedure from February 2003. The satisfaction of parent of child patient and medical staff members were compared between two groups. The parents' satisfaction was significantly improved after the implementation of CP and medical/dental staff members were highly satisfied with the usefulness of the critical pathway. In conclusion, the critical pathway for the dental treatment of disabled treatment under general anesthesia can highly improve the satisfaction of parents and medical/ dental staff members.

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A Study on the Occurrences and Causes of Accidents in Lower Grade Elementary School Children (초등학교 저학년 아동들의 안전사고 발생 실태 및 관련요인 분석)

  • 김소선;이은숙
    • Journal of Korean Academy of Nursing
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    • v.29 no.1
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    • pp.117-126
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    • 1999
  • Accidents involving children are an important cause of death and disability. They also have enomorous financial implications. In order to prevent childhood accidents, research and education for safety should be strengthened. The purpose of this study was to determine how often young children have accidents and what factors affect the accident rate. The sample consisted of 771 children who were in the second, third and forth grades of two elementary schools located in Kyung-gi Province. One school had students from middle class families living in apartment complexes and the other, students from lower income families mainly living in single houses. The questionnaires included items on the occurance of accidents and the parents' attitudes regarding accidents during the academic year from March 1997 to February 1998. The Questionnaires were distributed to conventiently selected students to be compeleted by their parents and collected during the period of May 28, to June 6, 1998. The data were analyzed using SAS PC statistical package. The results of the study are as follows ; 1. Of 771 student subjects, 393 had 887 accidental injuries during the study period. 2. The month, the day and the time with the highest accident rate were May, Sunday, and between 1 and 4 p. m. each. 3. In the analysis of the location where the injury took place, the most frequent place was on around their homes followed by school and, then, inside the home 4. Most of the accidents were caused by carelessness on the part of the children and the most frequent type of injury was an abrasion. 5. Children most injured their legs 6. They were treated at home most often and usually emergency treatment was performed by family members with, disinfection being the main type of first aid. Cost of the treatment ranged from 8,000 to 20,000 won in most cases. 7. House type and parents' education level were statistically significant in chi-square analysis. 8. Parents educate their children about traffic safety most frequently followed by fire safety and, then, prevention of violence. 9. Parents think that prevention of violence should be the most important part of injury prevention education both at school and home. 10. To identify factors related to accident occurrence, multiple logistic regression was performed and the main factors were birth order and house type.

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Functions (Mobility, Self-care, Social Ability) and Health-related Quality of Life in Children with Cerebral Palsy

  • Ko, Joo-Yeon;Lee, Suk-Min
    • The Journal of Korean Physical Therapy
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    • v.22 no.3
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    • pp.37-44
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    • 2010
  • Purpose: The purpose of this study was to describe the functional (mobility, self-care, social ability) and health-related quality of life in children with cerebral palsy (CP). Methods: A cross- sectional survey of 202 children with CP, mean age $5.91{\pm}1.57$ years, was carried out using the Gross Motor Function Classification System (GMFCS), Gross Motor Function Measure (GMFM), Pediatric Evaluation of Disability Inventory (PEDI), and Child Health Questionnaire (CHQ). Results: The functional assessment of children with CP showed that a more severe GMFCS level was associated with lower functional abilities (p<0.05). The health-related quality of life assessment showed that psychosocial well-being was less impaired than physical well-being. The internal consistency of the three instruments was satisfactory (cronbach's ${\alpha}$>0.80). The three different scales were correlated from moderate to strong (r=0.44 to 0.92). It was also found that mobility, tone distribution, and the parents' education level exerted a significant effect on the quality of life of children with CP (p<0.05). Conclusion: These findings suggest that children with CP have reduced function and quality of life and these are influenced by various factors. However, planning and application of various task-oriented functional interventions to childhood CP may be useful.

The Analysis of Difference in Awareness and Needs of Social Communication of Guardians Caring for Adolescent with Development Disorders Adolscents (발달장애 청소년 양육자의 사회적 의사소통 인식과 요구도 차이 분석)

  • Park, Hyun;Lee, Myung-Soon
    • The Journal of the Korea Contents Association
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    • v.18 no.8
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    • pp.561-572
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    • 2018
  • This study the awareness and the demands of the parents on the communication level for social participation of the youth with developmental disability were identified and investigated the relation on client's age, detection time of the condition, disability grades, handicapped types, speech therapy period. For the non-parametric test, Man-Whitney U test, and Kruskal-Wallis test were performed and for post-hoc test, Scheffe test was performed. The results of this study was that the significant difference was found in the awareness and the demand of the communication level of the youth with developmental disability according to the age of children, time of discovery, disability grade, type of disability and speech therapy period. In conclusion, the speech therapy for the youth with developmental disability should be made in the dimension of communication for the purpose of social participation. The follow-up research to emphasize the social support and the institutional backup will be required.

Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach

  • Vadivelan Kanniappan;Abishek Jayapal Rajeswari;Pearlyn Esther Padma Lawrence;Subash Sundar
    • Journal of Preventive Medicine and Public Health
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    • v.57 no.2
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    • pp.157-166
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    • 2024
  • Objectives: Children with disabilities may exhibit a multitude of symptoms, and treatment requires a multidisciplinary approach for a satisfactory outcome. Lack of awareness among physicians, lack of referral, and lack of inter-sectoral coordination have hindered paediatric practice in Tamil Nadu, a state in India with a striking childhood disability rate that warrants a timely interdisciplinary approach. However, the perspectives of paediatricians on paediatric physiotherapy are unknown. The aim of the study was to investigate the perspectives of practicing paediatric physicians in Chennai on the role of physiotherapy in paediatrics. Methods: For an in-depth exploration, qualitative semi-structured interviews were conducted in person with 10 paediatricians. Audio from the sessions was recorded and transcribed, and data saturation was achieved through iterative analysis. Results: A grounded theory analysis of the results yielded 5 domains under which the perspectives and expectations of the physicians were described, along with the barriers experienced by patients' parents as explained by their paediatrician. The responses highlighted deficits in awareness, structural support, accessibility and direct communication between physicians and physiotherapists. Conclusions: Paediatric physicians have different opinions, and some ignorance persists concerning paediatric physiotherapy. This study warrants a proper structure of the paediatric rehabilitation unit and regular interdisciplinary meetings and focus group discussions to increase access for parents and improve patient outcomes.