• Title/Summary/Keyword: Needs of hospice

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Needs for Hospice Care among Families of Children with Cancer for Outpatients (외래통원 암 환아 가족의 아동호스피스요구)

  • Chung, Young-Soon;Park, Sang-Youn
    • Journal of the Korea Academia-Industrial cooperation Society
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    • v.13 no.4
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    • pp.1706-1713
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    • 2012
  • The purpose of this study was to analyze the need for child hospice care in families of children with cancer for outpatient. The participants were 83 parents of children with cancer. This survey was conducted from January 2011 to March 2011 at four hospitals in Daegu. Data were collected through self-report questionnaires and analyzed by descriptive statistics, t-test and ANOVA using the SPSS/WIN Program. Needs for hospice care for the participants were high. The need for "emotional care of children" showed the highest, "control of secondary physical problems", "acceptance of the family's difficulty", "management for terminal physical symptoms", "spiritual care for preparing for death". With respect on the demographic characteristics of the participants, there were statistically significant differences in hospice care needs, among to the religion, sibling, relatives, whether of the cancer. The above findings indicate that needs for hospice care for the participants were high about emotional care, especially as it is related to children's anxiety. Therefore hospice care, based on emotional part, should be provided systematic hospice care with specialized multidisciplinary child hospice care team, child hospice center.

Basic Human Needs in the Elderly Receiving Palliative Care: A Scoping Review

  • Thaciane Alves, Mota;Manuela Bastos, Alves;Ailton de Oliveira, Dantas;Erica Brandao, de Moraes;Anderson Reis, de Sousa;Rudval Souza, da Silva
    • Journal of Hospice and Palliative Care
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    • v.25 no.4
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    • pp.178-192
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    • 2022
  • Purpose: This scoping review identified scientific evidence on basic human needs (BHNs) in the elderly receiving palliative care. Methods: Systematic searches were conducted using six electronic databases (PubMed, CINAHL, Scopus, Lilacs, IBECS, and Web of Science). The initial search resulted in 1,227 articles, of which 104 were identified as potentially relevant. Fifty-three articles that met the inclusion criteria were identified and included in the final analysis. Results: Using the three hierarchical dimensions of the BHN model, 17 needs were organised, with five in the psychobiological dimension, 10 in the psychosocial dimension, and two in the psychospiritual dimension. These needs reflect the importance of care with dignity and relief from suffering for the elderly in palliative care. Conclusion: Recognising impaired BHNs in elderly people receiving palliative care will contribute to better care plans for the elderly, considering the multiple bio-psycho-social-spiritual dimensions of BHNs. This review points to a predominance of psychosocial needs.

Comparison of the Spiritual Needs of Terminal Cancer Patients and Their Primary Family Caregivers

  • Kang, Kyung-Ah;Choi, Youngsim
    • Journal of Hospice and Palliative Care
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    • v.23 no.2
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    • pp.55-70
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    • 2020
  • Purpose: This study was conducted to examine differences in Spiritual Interests Related to Illness Tool (SpIRIT) scores and the degree of spiritual needs (SNs) between patients with terminal cancer and their primary family caregivers and to compare spiritual needs between them. Methods: The study participants were inpatients with terminal cancer and their primary family caregivers at 40 national hospice centers. The final analysis included 120 SpIRIT surveys from patients and 115 from family members, and 99 SNs questionnaires from patients and 111 from family members. Data analysis was conducted using descriptive statistics, the t-test, one-way analysis of variance, and Pearson correlation coefficients. Results: There were no significant between-group differences in SpIRIT scores or SNs. The SpIRIT sub-dimensions that ranked high for both patients and primary family caregivers were "maintaining positive perspective", "loving others", and "finding meaning". The SNs sub-dimensions were ranked identically in both groups, in the order of "love and connection", "hope and peace", "meaning and purpose", respectively. In both groups, the recognition of the importance of spiritual matters and religion were major factors influencing SpIRIT scores and SNs. Conclusion: The SpIRIT scores and degree of SNs of patients with terminal cancer and their primary family caregivers were found to be very closely related, and the needs for coherence and meaning were greater than religious needs. When providing spiritual care for patients with terminal illness, family members should also be considered, and their prioritization of spiritual needs and the importance of spiritual matters and religion shall be taken into account.

Spiritual Care in Hospice and Palliative Care

  • Ferrell, Betty R.
    • Journal of Hospice and Palliative Care
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    • v.20 no.4
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    • pp.215-220
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    • 2017
  • Spiritual care is at the center of hospice and palliative care. Patients facing serious and life-threatening illness have important needs in regard to faith, hope, and existential concerns. The purpose of this article is to review the key aspects of this care, including the definitions of spirituality, spiritual assessment, and spiritual care interventions. A review of the current literature was conducted to identify content related to spiritual care in hospice and palliative care. A growing body of evidence supports the importance of spiritual care as a key domain of quality palliative care. The literature supports the importance of spiritual assessment as a key aspect of comprehensive patient and family assessment. Spirituality encompasses religious concerns as well as other existential issues. Future research and clinical practice should test models of best support to provide spiritual care.

Assessment for the Needs to Develop Hospice Training Program for Nurses (간호사를 위한 호스피스 연수교육 요구도 조사)

  • Kwon, So-Hi;Yang, Seong-Kyeong;Park, Myung-Hee;Choe, Sang-Ok
    • Journal of Hospice and Palliative Care
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    • v.11 no.3
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    • pp.147-155
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    • 2008
  • Purpose: This study aimed to assess the educational needs for nurses who care for terminal cancer patients and their families. To identify top needs along with key issues in consideration to develope hospice training program and provide specific recommendations. Methods: A cross-sectional design with nurses from nine universities' hospice specialist courses and seven cancer centers was used. Data were collected via e-mail or mail service from March to April in 2008. One hundred seventy three questionnaires were returned (return rate: 73.6%), and 156 questionnaires were eventually analyzed. The questionnaire consisted of Mason and Ellershaw's The Self-efficacy in Palliative Care (SEPC) and self-reporting confidence and educational needs in hospice care. Results: The mean age of the participants was 37.94 years, 82.1% were staff nurses, and 44.9% completed over six months hospice education. Mean$\pm$standard deviation score for total SEPC was $2.67{\pm}.62$, which was lower than average (score 3), with communication score being the lowest ($2.49{\pm}.69$). The lowest self-reporting confidence score was $2.03{\pm}.77$ in hospice administration and management, followed by providing complement therapy ($2.34{\pm}.77$), bereavement care ($2.34{\pm}.71$), lymph edema management ($2.35{\pm}.79$), and care planning ($2.36{\pm}.81$). The participants reported that additional education is needed in all topics, with pain management score being the highest ($3.71{\pm}.50$), followed by pain and symptom evaluation ($3.67{\pm}.52$), care for dying ($3.67{\pm}.52$), and communication and counseling ($3.63{\pm}.53$). There were significant subgroup differences in SEPC and self-reporting confidence between groups who completed 6 months hospice education or not, however, no significant difference in educational need between the groups. Conclusion: This study showed the need for developing hospice training program to improve compentency of nurses in hospice palliative care.

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Reliability and Validity of an Instrument Assessing Spiritual Needs of Families of Terminal Cancer Patients (말기 환자 가족 영적요구 측정도구의 신뢰도 및 타당도 검증)

  • Kang, Kyung-Ah;Choi, Youngsim;Kim, Yejean
    • Journal of Hospice and Palliative Care
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    • v.21 no.4
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    • pp.144-151
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    • 2018
  • Purpose: The purpose of this study was to test the reliability and validity of an instrument that measures spiritual needs of families of terminal cancer patients. Methods: This methodological study was processed as follows: 1) The preliminary 26 items were developed based a conceptual framework of spiritual needs of families of patients with cancer. 2) The content was validated by an expert panel (Three nursing professors and five hospice nursing specialists). 3) The instrument was validated by a survey (n=111). 4) Twenty-six items were selected and used for the final version of the scale. Results: Three factors were extracted through factor analysis: 'relationship with God/Acceptance of dying', 'recovery of relationship/hope and peace', and 'meaning and purpose of life'. These factors explained 61.088% of the total variance. Cronbach's alpha and Guttman split-half coefficient of the 26 items were 0.944 and 0.826 respectively. Conclusion: This scale was identified as a valid and reliable tool. Therefore, the scale is useful in assessing spiritual needs of families of terminal cancer patients in the field of hospice and palliative care.

A Study on the Architectural Characteristics of the German Stationary Hospice Facility (독일 입원형 호스피스 시설의 건축 계획적 특성에 관한 연구)

  • Kim, Cheol-Hwan
    • Journal of The Korea Institute of Healthcare Architecture
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    • v.14 no.1
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    • pp.39-48
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    • 2008
  • Well-dying is as important as Well-Being because dying is also a natural part of life. Recently, due to the change of lifestyles, cancer, AIDS and other chronic diseases cause drastic increase of mortality rate. Needs for hospice services are growing as many terminal patients interested in quality of life during their end of life period. They want calm and dignity in case process as well as pain-relieving. However, there is not many researches on the architectural planning of hospice facilities and their service system as well as government regulations. This study focuses on the German hospice facilities which have developed advanced models through researches on service contents and architectural planning. The purpose of this study is to provide fundamental data for designing hospice facilities through analyzing 7 cases of German hospice facilities with different characteristics.

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The Knowledge and Needs of Hospice for Inpatients' Family (입원환자 가족의 호스피스 인지 및 요구도)

  • Ko, Sung-Hee;Kim, Hyun-Kyung
    • Journal of Hospice and Palliative Care
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    • v.8 no.2
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    • pp.131-142
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    • 2005
  • Purpose: The purpose of this study was to survey the knowledge and needs of hospice for inpatients' family. Methods: This study was carried out with 277 inpatients' families at J General Hospital located in J city, Korea during the period from March to May, 2004. The data were collected through a self-reporting questionnaire constructed by the authors. The data were analyzed by descriptive statistics and $x^2-test$ with SPSSWIN 10.0. Results: 83.8% of the respondents heard about hospice mostly through mass communication. 76.9% of the respondents recognized hospice to be helpful and to provide comfort during the remainder of life and to confront the moment of death. Most of the respondents responded positively to the necessity of hospice service, and would receive hospice if necessary. 76.5% of them would consider arranging preparation for death if he/she were to be diagnosed with a terminal illness. 63.9% of the respondents wanted only to be with their family members, 31.4% wanted both the family and hospice members at the moment of death. They named the best helper among the hospice members to be the nurse. 81.6% of the respondents wanted a hospice institution to be established, 23.8% of them report that the most adequate hospice management institution would be the hospice ward in hospital. Conclusion: Consequently, most respondents wanted hospice services. So Korean society is in need of developing adequate teaching and care programs for hospice according to local needs.

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Death anxiety and Needs of Interpersonal Caring Behaviors of Nurses in Hospice Wards: Focused on Types of Personality (호스피스 병동 간호사의 죽음 불안 및 돌봄 요구: 성격유형을 중심으로)

  • Shim, Ji-Yeun;Lee, Sook
    • The Journal of the Korea Contents Association
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    • v.21 no.5
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    • pp.737-745
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    • 2021
  • Purpose: The purpose of this study is to investigate Death anxiety and Needs of Interpersonal caring behaviors of nurses in hospice wards focused on types of personality. Methods: The data were collected from 118 nurses working in hospice wards and analyzed SPSS Statistics 26. Results: Death anxeity was 2.41±0.27, and the highest subscale was Dying of Self(2.60±0.38). Needs of Interpersonal caring behaviors was 3.58±0.60, and the highest subscale was forgiving(3.74±0.64). significant static correlation between death anxeity and Needs of Interpersonal caring behaviors was confirmed(r=.265, p=.004). The affect of Death anxiety by personality type on Needs of Interpersonal caring behaviors was confirmed as a factor in which 'fear of others' dying' influences Needs of Interpersonal caring behaviors in Emotion centered type. Conclusion: Death anxiety and Needs of Interpersonal caring behaviors have significant static correlation, Death anxiety influenced Needs of Interpersonal caring behaviors in Emotion centered type.

Development of Wholistic Hospice Nursing Intervention Program for In-patient of Hospice Palliative Care Unit (병동형 호스피스 대상자를 위한 전인적 호스피스 간호중재 프로그램의 개발)

  • Kang, Eun-Sil;Choi, Sung-Eun;Kang, Sung-Nyun
    • Korean Journal of Hospice Care
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    • v.7 no.1
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    • pp.29-45
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    • 2007
  • People in the end of life and their families suffer in their physical disease and other aspects as a whole person. They need hospice care to palliate their total suffering in physical, emotional, social and also spiritual aspect through professional hospice team. To care their whole personal needs, hospice team must be a multi-discipline team which consists of medical doctors, nurses, social workers, pastors and volunteers. Recently those who die in hospice palliative care unit have trend to increase more than in home year by year. So it is necessary to develop the nursing intervention program to be performed by multi-discipline team approach for in-patient of hospice palliative care unit. The purposes of this study were to develop of wholistic hospice nursing intervention program for inpatient of hospice palliative care unit. The subjects of study were collected from 30 patients those who were over 18 years old and admitted in hospice palliative care unit of S hospital in P city with agreement in hospice palliative care in their terminal disease. The period of data collection was from December 15, 2003 to March 15, 2004. The result were as follows : 1. The result of Wholistic Hospice Nursing Program's development was as follow : A Wholistic Hospice Nursing Program was developed by me in this study is one of the service program for hospice palliative care unit. It was named as ‘Rainbow Program’ to be approached easily by hospice patients. The purposes of it are to improve the quality of life of the terminal patients with their dignity, to help them live in abundant and meaningful in their lives, to care them in peaceful in dying process with understanding them in whole personal, and also to palliate the grief and suffering of the bereaved. It was provided by hospice professionals(nurses, medical doctors, social worker, pastors, art therapists) and volunteers those who were educated in hospice for multi-diciplinary team approach to collaborate with each role play I 20-30 minuters of each through visiting their rooms individually and a place of hospice palliative care unit of S hospital in P city. The subjects of it were the terminal patients those who admitted hospice palliative care unit and their familes. with agreement in hospice palliative care in their terminal disease. The characteristics of it were multi-disciplinary team approach, whole personal care, individual care and total care according to their needs in their condition. The contents of it were pain control, symptom control, counseling patient, counseling family, hair cutting, hair shampooing, bed bath, recreation, taking a walk, event of culture(screen, recital, festival of praises, exhibition and so on), pastoral counseling, ritual service in bed, praying, service in bed, sing a worship praise, listening to the music, sharing remembrance of life, individual visiting music service(sing and praying), meditation Bible, art therapies(dance and drawing), social worker's counselling, confessing and sharing love and thanksgiving. The experimental group subjects participated in Wholistic Hospice Nursing Program which takes 120 minutes per session, total 10 sessions(total 1,200 minutes) altogether. In conclusion, this Wholistic Hospice Nursing Intervention can be used actively for whole personal well-being of the patients in hospice palliative in hospice palliative care unit and also applied in hospice practice as an useful model of multi-disciplinary team approach by hospice professionals.

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