• 제목/요약/키워드: National Registry

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Population-Based Cancer Registration in Indonesia

  • Wahidin, Mugi;Noviani, Rini;Hermawan, Sofia;Andriani, Vita;Ardian, Ardi;Djarir, Hernani
    • Asian Pacific Journal of Cancer Prevention
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    • 제13권4호
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    • pp.1709-1710
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    • 2012
  • Cancer is a major public health problem in Indonesia, becoming the 7th largest cause of death based on a national survey in 2007, accounting for 5.7 of all mortality. A cancer registry was started in 1970, but it was partial and was stopped mainly because no government body was responsible. Realizing the above situation, the Indonesian government established the Sub Directorate of Cancer Control within the Ministry of Health, with responsibility for developing a national cancer control program, including a cancer registry. A sustainable cancer registry was then started in 2007 within Jakarta Province, first hospital-based but then expanded to be population-based. Steps of cancer registration in Jakarta are data collection, data verification, data validation, data management and analysis, and data publication. Data collection is conducted by health facilities (hospitals, laboratories, primary health centers) at the district/municipal level, with reports to the provincial level. Data are collected passively by holding meetings every three months in the district/municipality. Verification of data is the responsibility of the medical doctor or pathologist in each data source. Data validation is conducted by a team in the cancer registry, consisting of district/municipal/province health officers, pathologists, and registrars. Data management and analyses are conducted by a cancer registry team at the provincial level, assisted by the national team. We use software named Indonesian Cancer Registry System (SRIKANDI) which is adopted from CanReg4 IARC. Data from the population-based cancer registry in Jakarta Province showed the leading cancers among females in 2005-2007 to be breast cancer, cervical cancer, ovarian cancer, colorectal cancer and among males are bronchus and lung cancer, colorectal cancer, liver cancer, pharyngeal cancer, and prostate cancer. The leading childhood cancers are leukaemia and retinoblastoma.

Roles of Cancer Registries in Enhancing Oncology Drug Access in the Asia-Pacific Region

  • Soon, Swee-Sung;Lim, Hwee-Yong;Lopes, Gilberto;Ahn, Jeonghoon;Hu, Min;Ibrahim, Hishamshah Mohd;Jha, Anand;Ko, Bor-Sheng;Lee, Pak Wai;MacDonell, Diana;Sirachainan, Ekaphop;Wee, Hwee-Lin
    • Asian Pacific Journal of Cancer Prevention
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    • 제14권4호
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    • pp.2159-2165
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    • 2013
  • Cancer registries help to establish and maintain cancer incidence reporting system, serve as a resource for investigation of cancer and its causes, and provide information for planning and evaluation of preventive and control programs. However, their wider role in directly enhancing oncology drug access has not been fully explored. We examined the value of cancer registries in oncology drug access in the Asia-Pacific region on three levels: (1) specific registry variable types; (2) macroscopic strategies on the national level; and (3) a regional cancer registry network. Using literature search and proceedings from an expert forum, this paper covers recent cancer registry developments in eight economies in the Asia-Pacific region - Australia, China, Hong Kong, Malaysia, Singapore, South Korea, Taiwan, and Thailand - and the ways they can contribute to oncology drug access. Specific registry variables relating to demographics, tumor characteristics, initial treatment plans, prognostic markers, risk factors, and mortality help to anticipate drug needs, identify high-priority research area and design access programs. On a national level, linking registry data with clinical, drug safety, financial, or drug utilization databases allows analyses of associations between utilization and outcomes. Concurrent efforts should also be channeled into developing and implementing data integrity and stewardship policies, and providing clear avenues to make data available. Less mature registry systems can employ modeling techniques and ad-hoc surveys while increasing coverage. Beyond local settings, a cancer registry network for the Asia-Pacific region would offer cross-learning and research opportunities that can exert leverage through the experiences and capabilities of a highly diverse region.

Surveillance Evaluation of the National Cancer Registry in Sabah, Malaysia

  • Jeffree, Saffree Mohammad;Mihat, Omar;Lukman, Khamisah Awang;Ibrahim, Mohd Yusof;Kamaludin, Fadzilah;Hassan, Mohd Rohaizat;Kaur, Nirmal;Myint, Than
    • Asian Pacific Journal of Cancer Prevention
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    • 제17권7호
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    • pp.3123-3129
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    • 2016
  • Background: Cancer is the fourth leading cause of death in Sabah Malaysia with a reported age-standardized incidence rate was 104.9 per 100,000 in 2007. The incidence rate depends on non-mandatory notification in the registry. Under-reporting will provide the false picture of cancer control program effectiveness. The present study was to evaluate the performance of the cancer registry system in terms of representativeness, data quality, simplicity, acceptability and timeliness and provision of recommendations for improvement. Materials and Methods: The evaluation was conducted among key informants in the National Cancer Registry (NCR) and reporting facilities from Feb-May 2012 and was based on US CDC guidelines. Representativeness was assessed by matching cancer case in the Health Information System (HIS) and state pathology records with those in NCR. Data quality was measured through case finding and re-abstracting of medical records by independent auditors. The re-abstracting portion comprised 15 data items. Self-administered questionnaires were used to assess simplicity and acceptability. Timeliness was measured from date of diagnosis to date of notification received and data dissemination. Results: Of 4613 cancer cases reported in HIS, 83.3% were matched with cancer registry. In the state pathology centre, 99.8% was notified to registry. Duplication of notification was 3%. Data completeness calculated for 104 samples was 63.4%. Registrars perceived simplicity in coding diagnosis as moderate. Notification process was moderately acceptable. Median duration of interval 1 was 5.7 months. Conclusions: The performances of registry's attributes are fairly positive in terms of simplicity, case reporting sensitivity, and predictive value positive. It is moderately acceptable, data completeness and inflexible. The usefulness of registry is the area of concern to achieve registry objectives. Timeliness of reporting is within international standard, whereas timeliness to data dissemination was longer up to 4 years. Integration between existing HIS and national registration department will improve data quality.

텔파이 방법에 의한 응급구조사 국가시험 과목개선 제안 (Proposal of a New EMT National Registry Exam using the Delphi Method)

  • 유순규;조진만;김진회;엄태환
    • 한국응급구조학회지
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    • 제14권2호
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    • pp.57-69
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    • 2010
  • Purpose : The National Registry Exam had some problems on validity of EMT evaluation and verification. The aim of this study was to propose a New EMT National Registry Exam. Methods : Conducted using the Delphi Method(lst meeting March 29 in 2008, 2nd meeting May 31 in 2008, 3rd meeting September 20 in 2008, 4th meeting January 16 in 2009) from questionnaire data(391 from Paramedic, 317 from Basic EMT) collected between June 16-30(lst questionnaire) and October 16-30(2nd questionnaire) in 2008 and a public hearing on February 5 in 2009. Results: The subjects proposed at the request of the National Health Personnel Licensing Examination Board were Introduction, Medical+Trauma Emergencies(Paramedic & Basic) for written examination and scenarios+protocols(Paramedic), protocols(Basic) for practical examination. Conclusion : To be able to response patients' problems in various emergencies, this integrated examination was selected and proposed.

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임부의 약물 노출 관련 등록지침 개발 연구 (Development of Drug Exposure Registries on Pregnant Women)

  • 김수희;노혜진;지은희;윤정현;김경임;신완균;오정미
    • 한국임상약학회지
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    • 제20권2호
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    • pp.114-119
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    • 2010
  • Objectives: We developed a registry guidance to provide a standard for data collection, analysis and methodical management of information on the influence of drug exposure on pregnant women and fetus. Methods: We surveyed guidances and regulations of clinical trials and the pharmaceutical affairs law, compared them with Pregnancy Exposure Registry of other countries and in addition, investigated related references. We found the flaws of the present registry and supplemented it based on better results from other countries. Results: We developed a concrete and detailed report that included pregnancy drug exposure cases necessary for close monitoring, types and characteristics of data on pregnancy drug exposure, the requirements of registry data, and essential items needed to be researched. Conclusions: Information on pregnancy drug exposure in Korea can be effectively collected by using this report which provides a comprehensive assess to drug's influence on pregnant women and fetus, and in addition, accurate information about safety and effectiveness of drug use in pregnant women and fetus can be obtained by sharing data globally and managing it synthetically and systematically.

블록체인 부동산 등기와 스마트계약 (Blockchain Property Registry and Smart Contract)

  • 한정희
    • 한국정보통신학회논문지
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    • 제25권2호
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    • pp.286-293
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    • 2021
  • 블록체인 기술을 부동산등기 및 거래에 적용하는 스마트계약은 다층식 코딩이 가능한 이더리움 기반의 시스템 구축이 보편화되고 있다. SOLIDITY 또는 PYTHON으로 코드화되는 스마트계약의 구축은 매매와 임대를 포괄하는 다양한 종류의 시나리오를 통하여 실현될 수 있는데, 스마트계약이 적용되는 부동산시장은 국경, 언어, 법제도, 비대칭 정보, 환전 등의 전통적 거래비용을 크게 감소시킬 수 있는 대안으로 기대되고 있다. 블록체인 고유의 투명성과 보안성, 분산성과 개방성 역시 그 높은 잠재력을 평가받고 있다. 다만 최근 부동산등기를 블록체인 네트워크에 구현하려는 프로젝트가 여러 나라에서 추진되고 있으나 완비된 새 제도로서 현실에서 운용되기까지는 아직 몇가지 난관이 남아있다.

센서 정보의 안정적인 이용을 위한 경로 예측 기반 센서 레지스트리 시스템 (A Path Prediction-Based Sensor Registry System for Stable Use of Sensor Information)

  • 정동원;두미경
    • 정보과학회 논문지
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    • 제42권2호
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    • pp.255-263
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    • 2015
  • 센서 레지스트리 시스템은 이기종 센서 네트워크 환경에서 센서 데이터의 즉시적 활용 및 끊김 없는 해석을 위해 개발되었다. 그러나 기존 센서 레지스트리 시스템은 불안정한 네트워크 상황에서 센서 데이터 해석을 위한 정보를 제공하지 못하며, 이로 인해 센서 데이터의 손실, 처리 결과의 부정확성, 서비스 품질 저하 등의 문제를 야기한다. 이 논문에서는 소프트웨어 관점에서 이러한 문제점을 해결할 수 있는 방안을 제시한다. 사용자의 이동 경로를 예측하여 사전에 센서 정보를 이동 단말기에 제공함으로써 불완전한 네트워크 접속 시점에 안정적으로 센서 정보를 활용할 수 있는 확장된 센서 레지스트리 시스템을 제안하고 실험 및 평가 결과를 보인다. 이 논문에서 제안한 확장된 센서 레지스트리 시스템은 센서 정보의 안정적 활용성 증가와 더불어 센서 기반 서비스 품질을 향상시킨다.

Trends of clinical trials from 2014 to 2016 in South Korea

  • Huh, Ki Young;Hwang, Jun Gi;Lee, SeungHwan
    • Translational and Clinical Pharmacology
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    • 제26권4호
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    • pp.172-176
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    • 2018
  • Mandatory registration of clinical trials in public registry can ensure the transparency of clinical trials. Public clinical trial registry of can provide current chronological and geographical distribution of clinical trial throughout the country. We used public clinical trial registry provided by Ministry of Food and Drug Safety to analyze current status of clinical trial from 2014 to 2016 in South Korea. The number of clinical trials in antineoplastic and immunomodulating agents area was the greatest, followed by cardiovascular system and antiinfectives for systemic use as a whole. From 2014 to 2016, overall number of clinical trials decreased while the number of phase I clinical trials increased. Seoul accounted for more than half number of clinical trials in Korea. Supports for clinical trials in non-metropolitan area needs to be considered.

Auto-Coding of Cancer Registry Data in China

  • Wei, Kuang Rong;Liu, Sheng Chao;Wei, Dongling;Liang, Zhiheng;Chen, Wanqing
    • Asian Pacific Journal of Cancer Prevention
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    • 제17권6호
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    • pp.3021-3023
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    • 2016
  • The significance, difficulty and strategy of coding cancer data according to international coding standards are discussed, and the concept, methods and realization of cancer data automatic coding in cancer registries in China are introduced in the paper. Coding cancer data automatically with software could not only reduce the time, manpower and workload, while improving the accuracy and efficiency of cancer data coding, but also enhance the validity of cancer registration and the value of cancer registry data, which is of great significance.

국가연구자등록코드시스템을 통한 NTIS 활성화 방안 연구 (A Study on NTIS Revitalization Plan through the National Research Automated Registry System)

  • 이상화
    • 기술혁신학회지
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    • 제13권1호
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    • pp.28-43
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    • 2010
  • 최근 국가연구개발사업의 관리에 있어 법령 개정과 국정과제 제시 등을 통하여 연구자 중심의 국가연구개발사업 관리제도 구축에 대한 관심이 집중되고 있으나 연구자들이 주목할만한 제도를 구축했다고 하기에는 미흡하다. 본 연구에서는 연구자 중심 국가연구개발사업관리를 위하여 국가연구개발사업 인력 신고제를 통한 국가연구자등록 코드번호 제도를 제안하였다. 이와함께 이를 구현하는 국가연구자등록코드시스템을 모색해보았다. 이 제안을 통하여 국가적 경력 관리를 통한 개인정보보호 강화를 이룰수 있으며, 연구자의 참여도를 자연스럽게 높임으로써 행정 업무 경감, 성과물 검증 간소화, 조 분 평 통계 품질 향상을 기대할수 있다.

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