• 대한간호
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• 제18권4호통권102호
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• pp.64-75
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• 1979

It is natural for parents to expect to see their children grow up healthy and become a productively contributing members of the future society. Unfortunately some parents end up with handicapped children and encounter a great deal of conflicts and burden

• 사회복지연구
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• 제45권2호
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• pp.173-202
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• 2014

본 연구는 저신장장애 자녀를 둔 부모의 양육경험을 탐색적으로 고찰하기 위해 질적연구를 수행하였다. 내부자 관점을 반영할 수 있는 심층면담을 수행하여 저신장장애 자녀를 양육하면서 겪게 되는 양육자의 고유한 현실과 그 본질적 의미를 도출하였다. 저신장장애 자녀를 키우는 부모의 고유한 양육경험을 관통하는 대주제는 '자라날 수 없는 아이'에서 '자라날 수 있는 아이'로 키우기"로 확인되었다. 참여자들은 자녀의 '자라날 수 없음'에 대한 큰 충격과 실망을 경험하지만 자녀를 '자라날 수 있는 아이'로 만들기 위해 혼신을 다한다. 그러나 자녀의 '키 키우기'의 한계와 자녀가 겪는 사회적 낙인과 어려움을 함께 감내하면서 쉽지 않지만 결국 자녀의 장애를 인정하게 되고 자녀의 자라날 수 없는 '키' 가 아닌 자녀가 '자라날 수 있는' 심리적 사회적 성장에 집중할 수 있는 대안적 관점을 갖게 된다. 이러한 결과를 근거로 본 연구는 저신장장애인 당사자와 부모들을 지원할 수 있는 사회복지적 방안을 제안하였다.

• 한국전문물리치료학회지
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• 제5권2호
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• pp.65-80
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• 1998

Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.

• 한국치위생학회지
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• 제1권1호
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• pp.1-17
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• 2001

This study was tried to suppose the necessity for the participations of the guardians or parents into dental health educations and for developing an educational program on the control of denial health in order to improve the dental health of handicapped children. For this research, it was investigated by a survey on the actual condition of dental health with an object of handicapped children, and simultaneously by analyzing the relationships between the realities of child's dental caries and guardian's acknowledgments and managements with regard to the dental health of the children. The 209 children and their guardians being in special school for the handicapped were surveyed about the actual conditions of dental health from 15 May to 30 June 2000. 1. The average of DT, MT, FT and DMFT index were 2.46, 0.13, 1.18 and 3.78, respectively. 2. As the parents' educational level (p<0.05) and economical incomes were high, the proportions the DMFT index were low (p<0.05). As the father of the handicapped children had a duty, the DMFT index were lower than the opposite case that the father had no duty. However. in the case of their mother, the presence of the duty has not showed any relationships with the DMFT index. And it was revealed that there was a tendency that the lower age of the parents showed the lower proportions (p<0.05) and index (p<0.001). 3. There was no meaningful differences for the DMFT index in the comparison between the children who can brush themselves or not, even though the children who can brush themselves showed relatively and slightly lower DMFT index than the children who can't do it themselves. 4. More frequent observations on the children's dental conditions by the parent resulted in the lower DMFT index(p<0.01). 5. As the parent had relatively more knowledges about the dental disease. the DMFT index were low. Therefore, as it was considered form these results, the parent should be required more positive participations for the improvement of their children's dental health. For promoting this participations, it must be required the development of educational programs and political services for the parent or guardians in order to improve the attendance into the educations.

• 한국보건간호학회지
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• 제12권1호
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• pp.75-89
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• 1998

It is the purpose of this study to provide the basic data to stimulate the social understanding of an abandoned child from the medical viewpoint and the viewpoint of administrative management. The data are based on the medical dossier of 305 patients which were hospitalized in 'A' hospital (of Seoul municipal hospital) between 1992 and 1996. The method of analysis is SPSS statistical package and the following results can be obtained 1. The abandoned children were frequently found in the Spring by season, in April by month, on Friday by day, and especially in the night and before an individual home and an medical institution in many cases. 2. The children found in an individual home were younger, handicapped smaller, and hospitalized for shorter period. As they were healthy relatively, parents might hope that they were accepted as foundling foster children. Contrary to above case, the children found in an medical institution were worse, handicapped more, and hospitalized for longer period. Accordingly, parents might hope that they were protected in an public institution. 3. The $69.8\%$ of abandoned children had caught a disease at that time and the $53.8\%$ of them had been handicapped. The most serious disease and handicap were the heart-lung trouble and the cerebral palsy, respectively. 4. The only $60.8\%$ of them were adopted and the most of them were healthy relatively. The $10.2\%$ which have been dead had caught four diseases on the average. As the results of above, the followings can be proposed : 1) It is required that the system connected to administrative management, which can provide the abandoned children turned for the better with the family relations to voluntary servants, be developed. 2) It is required that the system of registration management and plan for support economy, which can support the handicapped birth as the congenital malformation in national aspect, be developed. 3) It is required that to protect abandoned children, the health educational program for childbirth-people be prepared in the unit of a public health center.

• 한국치위생학회지
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• 제6권4호
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• pp.361-374
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• 2006

The purpose of this study was to obtain basic data for development of oral health educational program on the control of handicapped children at social welfare facilities. For this research, it was investigated by a survey on the actual condition of dental health of handicapped children, and simultaneously by analyzing the relationships between the realities of child's dental condition and parents and guardian's acknowledgments and managements with regard to the dental health of children. This survey was conducted 135 children and their guardians being 4 social welfare facilities in Ulsan metropolitan city. 1. The average of DT, MT, FT and DMFT index were 1.82, 0.01, 0.98 and 2.84 respectively. 2. Rolling Toothbrushing method was the highest response(58.5%) and 3 times per a day(77.0%). A proxy of toothbrushing was parents(39.2%) and teacher(60.8%). 3. Recognition routes of toothbrushing method were family(13.3%), school(43.7%) and dental chinic(42.2%). 4. The numer of times electromotion tooth brushing was the highest response in more than 4 times per a day. Toothbrushing after eating between meals was higher negative response(50.4%). The number of times visiting dental clinic was the highest response in more than 5 times during a year(51.9%).

• Child Health Nursing Research
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• 제5권2호
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• pp.151-166
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• 1999

The purposes of this study were to measure the degree of perceived uncertainty, social support & powerlessness, to examine the relationship between the perceived uncertainty, social support & powerlessness and then to find the predictors of powerlessness in mother's of handicapped children. The subjects of this study consist of 102 mothers of handicapped children, registered at rehabilitation & handicapped children school. Data was collected from September 1998 to March 1999. The tools used in this study were Mishel's the Parents' Perception of Uncertainty Scale (28 item, 4 likert scale), Miller's Powerlessness measurement Scale(28 itewt 4 likert scale) & Cohen's Interpersonal Support Evaluation List (40 items, 4 likert scale). Data was analyzed by t-test, ANOVA, Duncan comparison, Pearson Correlation coefficient & Stepwise multiple regression Results of this study are summarized as follows : 1. Mothers perceived their uncertainty to be slightly high(Mn 2.50). The degree of perceived uncertainty by the four components were followed as : lack of clarity(2.69), unpredictability(2.56), ambiguity(2.56) & lack of information(2.46). The degree of perceived uncertainty of the mothers of handicapped children revealed to be influenced significantly by age of children, admission experience, disability types of children. 2. The degree of mothers' powerlessness was measured to be slightly high(Mn 2.14). The degree of perceived powerlessness of the mothers with handicapped children revealed to be influenced significantly by age of children, duration of illness admission experience,8E marital status of the mothers. 3. Mothers perceived their social support to be slightly high(Mn 2.71). The degree of perceived social support revealed to be influenced significantly by sex of children, married state of mothers. 4. Mothers' uncertainty was related positively to the mothers' powerlessness(r=.33, p=.0008). And also mothers' powerlessness was related inversely to social support(r=-.50, p=.0001). But, mothers' uncertainty was not related to social support significantly. 5. To analyze the variables which affect powerlessness, stepwise regression was implemented. As a result, about 61% of the powerlessness were explained by social support, marital status of the mothers and perceived uncertainty. Based upon these results, it is recommended that the nurses, who are caring handicapped children and their families, provide various support programs for them to overcome their difficulties. Also programs which decrease the uncertainty & powerlessness used social support multidimensionally & individually are recommended to be developed.

• 대한물리치료과학회지
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• 제18권3호
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• pp.41-51
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• 2011

Purpose : The purpose of this study for the physical therapy service was to investigate the satisfaction of the parent whose child has a disability and which factors affect their satisfactions. 153 questionnaires were surveyed from parents who experienced services of physical therapy offered in 3 general hospitals, 6 disabled daycare centers and 2 welfare centers located in Jeonnam area for one month, Sep. 2009. The results of this study were as follows: 1. In the parent's satisfaction of physical therapy program, there was a significant difference in satisfaction according to their place of residence(p<.05). 2. In the child's satisfaction of physical therapy program, there was a significant difference in satisfaction according to their diagnosis time(p<.05). 3. In the general characteristics of the condition of workroom, the satisfaction of physical environment, therapist's attitude, and physical therapy program revealed the significant differences(p<0.05). In the satisfaction according to institution, only physical environment has a significance(p<.05). 4. The satisfactions were $4.17{\pm}0.67$, $3.97{\pm}0.60$ and $3.90{\pm}0.68$ for physical therapist's attitude, physical environment and physical therapy program, respectively. The overall satisfaction revealed $4.01{\pm}0.58$, relatively high.

• 한국간호교육학회지
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• 제9권1호
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• pp.155-162
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• 2003

The comparative study of the administration policy that the government and the local self-governing body have enforced to a handicapped child and the family, was made in South Korea and Japan. As data, I utilized brochures distributed to a handicapped child's guardian in the government publication, health center, and hospital of both countries and the homepage that each organization manages. With the investigation of (1) the handicapped child's present condition, population and entering-school situation, (2) the organization which can consult about a juvenile entering-school problem, (3) the public service with which the parents of handicapped child, or a handicapped child are provided and (4) the feedback surveys of (3)’s services, the followings were proved. In (1), the handicapped child's population and their school attendance are not be specified by the South Korea side. In (2), a private consultation organization is mainly opened and be hard to say that use is simple from the little of a kind. In (3), there is almost nothing than rehabilitation education as the administration policy, which is universally held for the handicapped child. Besides they cannot receive freely the education. In (4), it became clear not to carry out. The improvement from the direction of both hard and soft aspects - the institution of basic education for the handicapped child who lives in all areas and the equal opportunity to all children - is called for urgently.

• The Journal of Korean Physical Therapy
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• 제17권4호
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• pp.575-588
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• 2005

Family and parents which serve as a primary group for the children's development also play important role in their cerebral palsy children's treatment. This study wants to know how the parents' participation in their children's physical therapy and satisfaction degree have an impact on their children's improvement of the motor function. For that purpose, a home made self filling survey was conducted of 156 cerebral palsy children's parents whose children were treated in 4 university general hospitals and 3 welfare centers from the 1st of April 2004 to the 31th of march 2005. The gross motor function was employed to evaluate the cerebral palsy children's motor function improvement. In this study, those questioned were divided into two groups according to the time of treatment. 'Group A' is consist of the patients whose parents attended to the treatment more than one hour at home. The patients who belonged to 'Group B' were treated less than one hour at home. The general features of the cerebral palsy children and their parents and the characteristics of their physical disability, the parents' participation and their satisfaction degree were examined by survey. Evaluating the difference between two groups' motor function according to their parents participation degree in the physical therapy leads to the following results. First, 'Group A' was better than 'Group B' in their satisfaction degree with the physical therapy and participation degree. Statistically 'Group A' was superior to 'Group B' in the requirements of the information and education for the children with cerebral palsy. Second, after two months of treatment, 'Group A' showed more statistically significant improvement than 'Group B' in every items as like lying in item 1, sitting in item2, crawling and kneeling in item 3, standing in item 4, walking,running, jumping in item 5. Third, parents' participation in physical therapy and satisfaction degree have some relevance to their children' motor function improvement. The satisfaction degree is related to motor function like crawling and kneeling in item 3, walking,running, jumping in item 5. It is showed that the parents' participation degree and information about handicapped children.