• Title/Summary/Keyword: Family-centered care

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A Comparative Study of Family Management Style According to Severity of Childhood Atopic Dermatitis (아토피피부염 환아의 중증도에 따른 가족관리방식의 비교)

  • Son, Hae Kyoung;Kim, Hee-Soon
    • Child Health Nursing Research
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    • v.22 no.4
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    • pp.309-316
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    • 2016
  • Purpose: This study of secondary analysis aims to compare family management style according to severity in children with atopic dermatitis. Methods: A convenience sample of 109 Korean mothers caring for a child with atopic dermatitis, were recruited from the pediatric departments of two general hospitals in Seoul. Data were collected from November 1, 2015 to February 28, 2016. A structured self-report questionnaire was used. Data were analyzed using descriptive statistics, correlation analysis, and one-way ANOVA with IBM SPSS Version 22.0. Results: For family management style, condition management effort, family life difficulty, and view of condition impact were significantly different according to the severity of the atopic dermatitis in these children. Conclusion: The findings indicate that family management strategies to enhance care of children with atopic dermatitis as well as members of the family should include these significant variables in a family-centered approach.

End-of-Life Care Practice in Dying Patients after Enforcement of Act on Decisions on Life-Sustaining Treatment For Patients in Hospice and Palliative Care or at the End of Life : A Single Center Experience

  • Jin, Sol;Kim, Jehun;Lee, Jin Young;Ko, Taek Yong;Oh, Gyu Man
    • Journal of Hospice and Palliative Care
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    • v.23 no.2
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    • pp.93-102
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    • 2020
  • Purpose: The Act on Hospice and Palliative Care and Decisions on Life-Sustaining Treatment for Patients at the End of Life came into force in February 2018 in Korea. This study reviews the practices of end-of-life care for patients who withdrew or withheld life-sustaining treatment at a tertiary care hospital, addresses the limitations of the law, and discusses necessary steps to promote patient-centered self-determination. Methods: We retrospectively analyzed the medical records of patients who died after agreeing to withhold life-sustaining treatment in 2018 at our university hospital. The cause of death, the intensity of end-of-life care, and other characteristics were reviewed and statistically analyzed. Results: Of a total of 334 patients, 231 (69%) died from cancer. The decision to stop life-sustaining treatment was made by family members for 178 patients overall (53.3%) and for 101 (43.7%) cancer patients, regardless of the patient's wishes. When the patient decided to stop life-sustaining treatment, the time from the authorization to withhold life-sustaining treatment to death was longer than when the decision was made by family members (28.7±41.3 vs 10.5±23.2 days, P<0.001). Conclusion: In many cases, the decision to discontinue life-sustaining treatment was made by the family, not by the patient. In order to protect human dignity based on the patients' self-determination, it is necessary for patients to understand their disease based on careful explanations from physicians. Ongoing survey-based research will be necessary in the future.

The Effect of Family Care Providers' Capital on Life Satisfaction -centered on grandparents caring for grandchildren- (가족돌봄 제공자의 자본이 삶의 만족도에 미치는 영향 -손자녀를 돌보는 조부모를 중심으로-)

  • Ahn Na, Lim;Young Suk, Park
    • The Journal of the Convergence on Culture Technology
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    • v.10 no.1
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    • pp.97-103
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    • 2024
  • This study used data from the 8th main survey of the National Old Age Security Panel to find out the effect of grandparents' capital that provides family care for grandchildren on life satisfaction. As a result of the study, the influence of capital of the study subjects on life satisfaction was 20.1%. Among the grandparents' capital, household gross income and health status had a significant positive (+) effect on life satisfaction. In other words, the higher the household gross income of grandparents who provide family care to grandchildren and the better the health status, the higher life satisfaction. On the other hand, caring time was found to have a negative (-) effect on life satisfaction, which means that the longer the time to care for grandchildren, the lower the life satisfaction of grandparents. These results suggest factors influencing grandparents' life satisfaction in these days when the likelihood of grandparents caring for grandchildren increases, and it was found that household gross income, health status, and caring time are major variables. Based on this, a plan was suggested to increase the life satisfaction of grandparents caring for grandchildren.

Communication at the End of Life

  • Onishi, Hideki
    • Journal of Hospice and Palliative Care
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    • v.24 no.3
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    • pp.135-143
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    • 2021
  • End-of-life patients experience physical, mental, social, and existential distress. While medical personnel provide medication and care to alleviate patients' distress, listening to and interacting with patients remains essential for understanding their psychological condition. The most important tool, though difficult to implement in practice, is end-of-life discussion (EOLD). EOLD has been shown to have positive effects on end-of-life treatment choices, achievement of patients' life goals, improvements in the quality of life of patients and their families, and the prevention of depression and complicated grief among bereaved family members. EOLD is not often undertaken in clinical practice, however, due to hesitancy among medical personnel and patients for various reasons. In order to conduct an EOLD, the patient's judgment, psychiatric illnesses such as delirium and depression, and psychological issues such as the side effects of psychotropic drugs, denial, and collusion must be evaluated. Open and honest conversation, treatment goal setting, the doctor's familiarity with the patient's background, and attentiveness when providing information are important elements for any dialogue. Meaning-centered psychotherapy was developed to alleviate the existential distress of cancer patients, and its application may promote EOLD. The future development of meaning-centered psychotherapy in practice and in research is expected to further promote EOLD.

Understanding of Eco-centered Early Childhood Education Program (생태유아교육 프로그램에 대한 원장.교사 및 학부모의 인식과 요구도에 관한 연구)

  • Min, Koang-Soon;Moon, Hyuk-Jun
    • Journal of the Korean Home Economics Association
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    • v.44 no.3 s.217
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    • pp.69-77
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    • 2006
  • The purpose of this research was to provide recommendations for eco-centered early childhood education as a new paradigm in Korean society. Questionnaires were collected from directors, teachers, and parents of private & public kindergartens, as well as child care centers, in Bucheon city. The data were analyzed based on the frequencies, $X^2$ test, F test, and Scheffe test. The results were as follows. (a) Most directors, teachers, and parents positively agreed with the eco-centered early childhood education and recognized its benefits. (b) In order for the eco-centered early childhood education to be successful, development of various programs, systematic study, ongoing teacher training, and parents' education were required. (c) In order for the eco-centered early childhood education to develop more culturally appropriate program, close connection with local community, reorganization of the early childhood education curriculum, and government support were needed. The findings demonstrate that eco-centered early childhood education is necessary for the future wellbeing of Korean society.

The art of diabetes care: guidelines for a holistic approach to human and social factors

  • Muhammad Jawad Hashim
    • Journal of Yeungnam Medical Science
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    • v.40 no.2
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    • pp.218-222
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    • 2023
  • A holistic approach to diabetes considers patient preferences, emotional health, living conditions, and other contextual factors, in addition to medication selection. Human and social factors influence treatment adherence and clinical outcomes. Social issues, cost of care, out-of-pocket expenses, pill burden (number and frequency), and injectable drugs such as insulin, can affect adherence. Clinicians can ask about these contextual factors when discussing treatment options with patients. Patients' emotional health can also affect diabetes self-care. Social stressors such as family issues may impair self-care behaviors. Diabetes can also lead to emotional stress. Diabetes distress correlates with worse glycemic control and lower overall well-being. Patient-centered communication can build the foundation of a trusting relationship with the clinician. Respect for patient preferences and fears can build trust. Relevant communication skills include asking open-ended questions, expressing empathy, active listening, and exploring the patient's perspective. Glycemic goals must be personalized based on frailty, the risk of hypoglycemia, and healthy life expectancy. Lifestyle counseling requires a nonjudgmental approach and tactfulness. The art of diabetes care rests on clinicians perceiving a patient's emotional state. Tailoring the level of advice and diabetes targets based on a patient's personal and contextual factors requires mindfulness by clinicians.

Aromatherapy of Patients with Chronic Diseases (만성 질환자의 건강문제와 아로마 요법)

  • Kim, Myung-Ja;Park, Hyung-Sook;Song, Hyo-Jeong
    • Journal of Korean Academic Society of Home Health Care Nursing
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    • v.10 no.1
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    • pp.25-33
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    • 2003
  • In this paper, we checked health problems of outpatients who suffered from cancer, apoplexy, and arthritis. After accessing each patients condition, in order to alleviate their sufferings, we introduced several methods of aroma therapy as a holistic approach to these health problems. Aromatherapy, which can be defined as a nature-friendly complementary / alternative method, has its great merit in its easy way of treatment by the family member of patient or patient himself. Recently, it was scientifically proved that aroma therapy has various curative effects. The easiness of applying aroma therapy is full of suggestions concerned with the future of nursing science. Recently, in the domain of home care nursing, there happened a fundamental change in its structure: a change from the supplier/professional-centered to the consumer/patient-centered one. With this change, home care nursing as a cherished desire of nursing science obtained its legal ground in the established medical programs and, in the same context, patients came to have the chance to receive demanded medical services in their home without going through complicated hospital admission procedures. Considering the future status of home care nursing as a major contributor in the consumer-centered structure of medical health service, aroma therapy as a complementary/alternative method is expected to contribute not only to establishing more effective structure of health service supply but also to resolving chronic health problem of outpatients.

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Determinants of Caregivers' Conflict Experience in Elderly Care Institutions (요양기관 간병인의 갈등 경험에 영향을 미치는 요인)

  • Lee, Ji-Eun;Jin, Ki-Nam;Seo, Young-Joon
    • Korea Journal of Hospital Management
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    • v.14 no.3
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    • pp.66-82
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    • 2009
  • The purpose of this study is to investigate the determinants of caregiver's conflict experience in elderly care institutions. This study focused on the three key independent variable groups(e.g., socio-demographic, job-related, and individual personality). The sample used in this study are 311 caregivers who are randomly selected from 21 elderly care institutions in Korea. Data were collected with a structured questionnaire by mail from Oct. 15 to Nov. 30 in 2007. The collected data were analyzed using logistic regression. The major findings of the study are as follows: 1) Nearly 40% percent of the respondents reported that they had experienced conflicts with elderly patients. The conflict with other caregivers ranked as second(20.6%), followed by patients' families(18.6%) and hospital employees(15.1%). 2) The personality, especially uniqueness caused conflict with patients or other caregivers. The professional identity reduced conflict with patients. The negative work experiences caused conflict with patients or family. The service attitude reduced conflict with family. The service-centered culture reduced conflict with hospital employees. Those who lived with the elderly showed lower level of conflict with family or hospital employees.

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Experiences of Meaning in Life among Elementary School Students: Content Analysis Based on Major Concepts of Logotherapy (초등학생이 경험하는 삶의 의미: 의미요법의 주요개념에 따른 내용분석)

  • Kang, Kyung-Ah
    • Child Health Nursing Research
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    • v.23 no.1
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    • pp.37-47
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    • 2017
  • Purpose: The purpose of this study was to explore the experience of the meaning in life for elementary school students. Methods: The conceptual framework was based on the five main concepts (meaning in life, creativity, experiences, attitudes, choice and responsibility) of logotherapy. Data from 1,600 higher grade elementary school students were analyzed for content of meaning in life. Results: The experiences of meaning in life were identified as follows: Important things in my life (people close to me, things that brings me happiness, to live in earnest, surrounding environment), Activities I like to do (relaxing, achievements, family relationships), Experiences that made me feel like I am loved (taken care of by family, material recompense, being respected), Times when I feel grateful (receive love and care, health), Importance of choices (consequences of bad choices, result of good life choices). Conclusion: These results suggest that elementary school students can understand meaning-centered health education and this kind of education is necessary to promote their wholistic health.

Utilization of and Satisfaction with Smart Bedside Station System as a Patient-centered Healthcare System (일 병원의 환자중심 지능형 병상 지원(Smart Bedside Station) 시스템의 이용현황 및 사용 만족도)

  • Cho, Moon Suk;Park, Yeon-Hwan
    • Journal of muscle and joint health
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    • v.24 no.2
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    • pp.89-100
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    • 2017
  • Purpose: The aim of this study was to examine the utilization of and satisfaction with the smart bedside station (SBS) system among users in a hospital. Methods: A cross-sectional descriptive design was used. The participants were 190 patients, 186 family caregivers, and 154 nurses in a hospital. Results: Around 78.1% of patients or family caregivers used the SBS system at least once during their hospital stay. The commonly used items on the SBS system menu were "lab findings", "hospital cost", "today's medication", and the "alarm message". Satisfaction with the SBS system of patients and family caregivers were significantly higher than those of nurses (F=39.88, p<.001). Conclusion: A patient-centered SBS system was a useful system that could increase patient satisfaction and comfort. More specific and technical service contents reflecting the current healthcare system should be added.