• Title/Summary/Keyword: Family Registry System

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Surveillance Evaluation of the National Cancer Registry in Sabah, Malaysia

  • Jeffree, Saffree Mohammad;Mihat, Omar;Lukman, Khamisah Awang;Ibrahim, Mohd Yusof;Kamaludin, Fadzilah;Hassan, Mohd Rohaizat;Kaur, Nirmal;Myint, Than
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.7
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    • pp.3123-3129
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    • 2016
  • Background: Cancer is the fourth leading cause of death in Sabah Malaysia with a reported age-standardized incidence rate was 104.9 per 100,000 in 2007. The incidence rate depends on non-mandatory notification in the registry. Under-reporting will provide the false picture of cancer control program effectiveness. The present study was to evaluate the performance of the cancer registry system in terms of representativeness, data quality, simplicity, acceptability and timeliness and provision of recommendations for improvement. Materials and Methods: The evaluation was conducted among key informants in the National Cancer Registry (NCR) and reporting facilities from Feb-May 2012 and was based on US CDC guidelines. Representativeness was assessed by matching cancer case in the Health Information System (HIS) and state pathology records with those in NCR. Data quality was measured through case finding and re-abstracting of medical records by independent auditors. The re-abstracting portion comprised 15 data items. Self-administered questionnaires were used to assess simplicity and acceptability. Timeliness was measured from date of diagnosis to date of notification received and data dissemination. Results: Of 4613 cancer cases reported in HIS, 83.3% were matched with cancer registry. In the state pathology centre, 99.8% was notified to registry. Duplication of notification was 3%. Data completeness calculated for 104 samples was 63.4%. Registrars perceived simplicity in coding diagnosis as moderate. Notification process was moderately acceptable. Median duration of interval 1 was 5.7 months. Conclusions: The performances of registry's attributes are fairly positive in terms of simplicity, case reporting sensitivity, and predictive value positive. It is moderately acceptable, data completeness and inflexible. The usefulness of registry is the area of concern to achieve registry objectives. Timeliness of reporting is within international standard, whereas timeliness to data dissemination was longer up to 4 years. Integration between existing HIS and national registration department will improve data quality.

Some Characteristics of Family Policy in Korea During Roh, Moo Hyun Government, 2003-2008 (<참여정부>의 가족정책 성격: 3개 법을 중심으로)

  • Kim, Mi-Sook
    • Korea journal of population studies
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    • v.31 no.3
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    • pp.27-55
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    • 2008
  • This paper tries to introduce most recent trends of Korean family policies during Roh, Moo Hyun Government of March 2003-February 2008. Focusing on the gender perspectives, discussions are, for heuristic purposes, centered around three major family issues in S. Korea, one of the most dynamically changing societies in the world: 1) the abolishment of male-centered traditional Family Registry System('the hoju') and the launching of brand-new Family Record Book of five different versions for individual from January 2008; 2) the application of Framework Act On Healthy Homes, a first formal measure to step in various forms of family break-ups these days; and 3) the emergence of Multi-Cultural Family Protection Act, thanks to a massive volume of international marriage migrants from overseas. It can be said that all these family policies are the result of rapidly changing socio-demographic trends into an aging society since 1990s. These trends include late/no marriage with low birth rates, high divorce(and thus remarriage) rates, breakdown of male-breadwinner family model and increase of dual-income family, and a sudden increment of international marriage particularly in rural areas. All in all, overall trends of Korean family life these days that have been taking place so far would provide an excellent exemplary how to deal with an unprecedented societal challenges with the brand-new family policies.

Adapting the Australian System: Is an Organised Screening Program Feasible in Malaysia? - An Overview of the Cervical Cancer Screening in Both Countries

  • Abdul Rashid, Rima Marhayu;Dahlui, Maznah;Mohamed, Majdah;Gertig, Dorota
    • Asian Pacific Journal of Cancer Prevention
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    • v.14 no.3
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    • pp.2141-2146
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    • 2013
  • Cervical cancer is the third most common form of cancer that strikes Malaysian women. The National Cancer Registry in 2006 and 2007 reported that the age standardized incidence (ASR) of cervical cancer was 12.2 and 7.8 per 100,000 women, respectively. The cumulative risk of developing cervical cancer for a Malaysian woman is 0.9 for 74 years. Among all ethnic groups, the Chinese experienced the highest incidence rate in 2006, followed by Indians and Malays. The percentage cervical cancer detected at stage I and II was 55% (stage I: 21.0%, stage II: 34.0%, stage III: 26.0% and stage IV: 19.0%). Data from Ministry of Health Malaysia (2006) showed a 58.9% estimated coverage of pap smear screening conducted among those aged 30-49 years. Only a small percentage of women aged 50-59 and 50-65 years old were screened, 14% and 13.8% coverage, respectively. Incidence of cervical cancer was highest (71.6%) among those in the 60-65 age group (MOH, 2003). Currently, there is no organized population-based screening program available for the whole of Malaysia. A pilot project was initiated in 2006, to move from opportunistic cervical screening of women who attend antenatal and postnatal visits to a population based approach to be able to monitor the women through the screening pathway and encourage women at highest risk to be screened. The project was modelled on the screening program in Australia with some modifications to suit the Malaysian setting. Substantial challenges have been identified, particularly in relation to information systems for call and recall of women, as well as laboratory reporting and quality assurance. A cost-effective locally-specific approach to organized screening, that will provide the infrastructure for increasing participation in the cervical cancer screening program, is urgently required.