• Asian Pacific Journal of Cancer Prevention
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• 제17권7호
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• pp.3123-3129
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• 2016

Background: Cancer is the fourth leading cause of death in Sabah Malaysia with a reported age-standardized incidence rate was 104.9 per 100,000 in 2007. The incidence rate depends on non-mandatory notification in the registry. Under-reporting will provide the false picture of cancer control program effectiveness. The present study was to evaluate the performance of the cancer registry system in terms of representativeness, data quality, simplicity, acceptability and timeliness and provision of recommendations for improvement. Materials and Methods: The evaluation was conducted among key informants in the National Cancer Registry (NCR) and reporting facilities from Feb-May 2012 and was based on US CDC guidelines. Representativeness was assessed by matching cancer case in the Health Information System (HIS) and state pathology records with those in NCR. Data quality was measured through case finding and re-abstracting of medical records by independent auditors. The re-abstracting portion comprised 15 data items. Self-administered questionnaires were used to assess simplicity and acceptability. Timeliness was measured from date of diagnosis to date of notification received and data dissemination. Results: Of 4613 cancer cases reported in HIS, 83.3% were matched with cancer registry. In the state pathology centre, 99.8% was notified to registry. Duplication of notification was 3%. Data completeness calculated for 104 samples was 63.4%. Registrars perceived simplicity in coding diagnosis as moderate. Notification process was moderately acceptable. Median duration of interval 1 was 5.7 months. Conclusions: The performances of registry's attributes are fairly positive in terms of simplicity, case reporting sensitivity, and predictive value positive. It is moderately acceptable, data completeness and inflexible. The usefulness of registry is the area of concern to achieve registry objectives. Timeliness of reporting is within international standard, whereas timeliness to data dissemination was longer up to 4 years. Integration between existing HIS and national registration department will improve data quality.

• 한국인구학
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• 제31권3호
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• pp.27-55
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• 2008

이 글은 노무현 정부 5년(2003.3-2008.2)(이하 <참여정부>)동안 이루어졌던 가족정책의 내용을 해당 가족관련법을 중심으로 살펴보고 그 성격을 진단해 보는데 목적이 있다. '여성이 행복한 나라'를 만들기위하여 <참여정부>는 과거 어느 정권보다 가족정책에 적극적인 관심을 보였고 급변하는 가족현실에 대한 대응책을 강구한 정권이기도 하였다. 논의의 편의상, <참여정부> 때에 입안.제정되었던 3개 가족정책법 -"호주제" 폐지 및 "가족관계등록부" 도입(2008.1), "건강가정기본법" 실시(2005.1), 그리고 "다문화가족지원법" 실시 (2008.9)- 을 중심으로 이들 법의 내용 소개 및 평가를 가하였다. 이러한 작업에 기반하여 <참여정부> 기의 가족정책의 가능성과 한계를 지적하였다. 나름대로의 시행착오나 보완사항이 지적되고는 있으나, 우리사회에 양성평등적 개인주의 삶의 양식이 제도적으로 보장되는데 기여한 "가족관계등록부"의 도입이 이루어졌다. 또한, 저출산 고령화 추세 및 가족불안정성에의 대응책으로서 최초의 가족단위 기본법인 "건강가정기본법"의 설정이 있었다. 그리고 다문화 다중정체성이 필요하게 된 시대적 분위기의 반영책으로서 결혼이민자의 법적 지위를 인정한 "다문화가족지원법"의 실시가 그것이다. 이렇듯 과거 어느 정권 보다 전향적이고 적극적인 양성평등지향의, 최초의 가족단위 기본법 제정, 그리고 미래 다문화사회를 위한 가족법의 입안과 집행을 시도했다고 평가할 수 있을 것이다.

• Asian Pacific Journal of Cancer Prevention
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• 제14권3호
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• pp.2141-2146
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• 2013

Cervical cancer is the third most common form of cancer that strikes Malaysian women. The National Cancer Registry in 2006 and 2007 reported that the age standardized incidence (ASR) of cervical cancer was 12.2 and 7.8 per 100,000 women, respectively. The cumulative risk of developing cervical cancer for a Malaysian woman is 0.9 for 74 years. Among all ethnic groups, the Chinese experienced the highest incidence rate in 2006, followed by Indians and Malays. The percentage cervical cancer detected at stage I and II was 55% (stage I: 21.0%, stage II: 34.0%, stage III: 26.0% and stage IV: 19.0%). Data from Ministry of Health Malaysia (2006) showed a 58.9% estimated coverage of pap smear screening conducted among those aged 30-49 years. Only a small percentage of women aged 50-59 and 50-65 years old were screened, 14% and 13.8% coverage, respectively. Incidence of cervical cancer was highest (71.6%) among those in the 60-65 age group (MOH, 2003). Currently, there is no organized population-based screening program available for the whole of Malaysia. A pilot project was initiated in 2006, to move from opportunistic cervical screening of women who attend antenatal and postnatal visits to a population based approach to be able to monitor the women through the screening pathway and encourage women at highest risk to be screened. The project was modelled on the screening program in Australia with some modifications to suit the Malaysian setting. Substantial challenges have been identified, particularly in relation to information systems for call and recall of women, as well as laboratory reporting and quality assurance. A cost-effective locally-specific approach to organized screening, that will provide the infrastructure for increasing participation in the cervical cancer screening program, is urgently required.