• Title/Summary/Keyword: End-of-life Care

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Adaptation Experience among Hemodialysis of Women with End-Stage Renal Disease (여성 말기신부전 환자의 혈액투석 적응경험)

  • Park, Eui-Jung;Kim, Young-Hae;Son, Hyun-Mi
    • Korean Journal of Adult Nursing
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    • v.27 no.5
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    • pp.493-504
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    • 2015
  • Purpose: This study was a qualitative study to explore and understand the adaptation experiences of hemodialysis among women with End-Stage Renal Disease (ESRD) and to develop a substantive theory using the grounded theory method. Methods: Participants were 15 female patients who underwent hemodialysis for ESRD treatment from three general hospitals. The data were collected through in-depth individual interviews. Results: The adaptation experience of participants was emerged as a process of taking care and enduring. There were four adaptation stages as a negative, despair, receptive, and maintenance period in reference to hemodialysis. The causal conditions were a vague expectations of recovery and refusal to undergo hemodialysis. The core phenomenon was that of confinement to dialysis machine. The contextual conditions for this phenomenon were the loss of femininity. They used action/interaction strategies such as transition their life with a focus on hemodialysis, seeking information, and learning how to take care of their body. Through this process, they had a strong will to live or had sustained their life. Conclusion: These results indicate that there is a need for nurses to understand the different steps of adaptation experiences of the given patient population. It is necessary for nurses to support them to lead their life as much normal as possible and improve the adaptation experience of ESRD.

The Effects of the Pilot Program in Standard Curriculum of Hospice and Palliative Care Education (호스피스.완화의료 표준교육 프로그램 시범교육의 효과)

  • Kang, Jin-A;Yoo, Yang-Sook;Park, Jean-No;Kim, Won-Chul;Nam, Eun-Jeoung;Koh, Soo-Jin;Rhee, Young-Sun;Huh, Jung-Sik;Choi, Sung-Eun;Kim, Jung-Lee;Shin, Dong-Wook
    • Journal of Hospice and Palliative Care
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    • v.11 no.4
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    • pp.206-212
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    • 2008
  • Purpose: To evaluate the effectiveness of pilot program on standard curriculum of hospice palliative care education; a basic training program for physician, nurse, social worker and clergies at hospice institute. Methods: To develop an educational program, we used the Education in Palliative and End-of-life Care (EPEC) program as a paradigm and modified it to be suited in our situation: The standard curriculum consists of 19 modules, and it is designed to be applied to the teaching methods, including lecture, interactive lecture, small group discussions, and role play. To verify its contents and teaching methods, we implemented a pilot program which consisted of 3 modules, using various teaching methods; trigger video tapes, interactive lecture, small group discussions, and role play. Results: Overwhelming majority were satisfied with the teaching methods and learner-centered methods, and agreed that the contents were clinically relevant to the care of dying patients. They also indicated that their attitudes would likely change as a result of the education. Conclusion: The effects of the pilot program on standard curriculum of hospice and palliative care are very positive and has broader implications for improving hospice palliative care education. For successful implementation of the program, trainers must also be prepared to teach effectively. Also it must be accompanied with train-the trainer program.

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The Study of Meaning in Euthanasia and Hospiece Nursing among Nurses (간호사의 안락사와 임종 간호에 대한 의미분석)

  • Kim Ae-Kyung;Park Gye-Sun
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.7 no.3
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    • pp.379-390
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    • 2000
  • Euthanasia have received considerable attention recentely in medical literature, public discussion, and proposed state legislation. Almost all the discussion in this area has focused on the role of physicians. However, nurse may be in special position to understand the wishes of patients and to act on this understanding. Purpose of this study is to identity the meaning of euthanasia in terminal ill patients on the nurses' veiw. Forcused interveiw design was used to data collection The data were analyzed by semantic analysis, and analysis of the data resulted in identification of 14 categories representing the meaning of euthanasia. 1. The meaning of supported euthanasia is 'free of suffering', 'difficulty of economic status', 'right of patient and family', 'dignity of death', 'organ transplant', 'social legislation'. 2. The meaning of opposited euthanasia is 'artificial death', 'value of life', 'uncertainity', 'guilt feeling' 3. The meaning of care in terminalily ill patients is 'avoidance', 'powerlessness'. 'apathy'. 'passive attitude'. The policy debate about professional roles in action that end of lives of patients must be extended nurses. Nurses must take an active role in discussion and definition of acceptable practice at the end of life.

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A Time Study of Nursing Activities by Home Care Nurses for Non-Cancer Terminal Patients (가정전문간호사의 비암성 말기환자 간호행위 시간 분석)

  • Lee, Hanul;Lee, Jong-Eun
    • Journal of Home Health Care Nursing
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    • v.26 no.2
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    • pp.180-188
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    • 2019
  • Purpose: To investigate the duration of each nursing activity performed by home care nurses for non-cancer patients and the relationship between patients' palliative prognostic index (PPI) and duration of each nursing activity. Methods: Nursing activities performed for six non-cancer terminal patients were timed using a stopwatch, and 18 parameters were measured by visiting each patient thrice. The mean and standard deviations of duration for each category of nursing activities were computed. The relationship between category-specific duration of nursing activities and PPI was analyzed with Spearman's correlation and multiple regression analysis. Results: Among nursing activities, the highest greatest duration of time was spent on traffic time (11.91 min), followed by urinary catheter management (10.65 min) and insertion and management of nasogastric tube (9.03 min). In terms of nursing categories, after excluding movement time, the greatest duration of time was spent on excretion care (5.48 min), nutrition care (5.40 min), and medication (3.82 min). PPI correlated with hygiene care, excretion care, and patient and information management. Multiple regression analysis revealed that PPI increased with increasing duration of hygiene care. Conclusion: These study findings provide grounds for the increased nursing time of hygiene care for people reaching the end of life.

Terminal Care in Nursing Homes (일 지역 요양시설의 임종돌봄서비스)

  • Kim, Jung Hee;Mun, Kyung Sook;Shin, Bok Soon;Jang, Eun A
    • Journal of Home Health Care Nursing
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    • v.22 no.2
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    • pp.216-227
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    • 2015
  • Purpose: This study aimed at understanding terminal care provided in nursing homes. Method: An interview survey with staff in charge of terminal care was conducted in 97 nursing homes using questionnaires. The questionnaire was reviewed by 3 experts and pretested at 5 facilities. Data were analyzed using descriptive statistics, chi-square test, and Fisher's exact test. Result: Dyspnea was the most prevalent symptom predicting death. The most prevalent services were vital sign check for physical care, providing services by talking despite an unconscious state for psychosocial care, and respecting the faith of the elder for spiritual care. Employment of a registered nurse showed a significant difference in tube feeding (p=.035), analgesic administration (p=.022), informing the elder of end-of-life state (p=.020), helping an elderly person say good-byes through a visit with friends and acquaintances (p=.023), and helping express feelings related to death (p=.002). Lack of service was noticed for elderly resident, family, and staff after death of an elder. Problems related to terminal care were indifference of family members, difficulty in obtaining medical prescription, difficulty in predicting death, and so forth. Conclusion: Terminal care must be improved by making specific guidelines and it must become a part of nursing home evaluation.

Korean Nurses' Attitude towards Advance Directives and End of Life Decision Making (생의 말기치료 결정과 사전의사결정에 대한 간호사의 태도조사)

  • Kim, Mi-Young;Kim, Keum-Soon
    • Journal of Korean Critical Care Nursing
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    • v.3 no.2
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    • pp.77-90
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    • 2010
  • Purpose: The aim of this study is to carry out research on nurses regarding end of life decision and advance directives (ADs) and their attitude, experience and confidence towards them in order to define the role of nurses. Methods: In this research, questionnaire was distributed and data were collected and analyzed after receiving a written consent from 332 nurses. The survey was conducted from the $14^{th}$ to $30^{th}$ of September, 2009. The instrument used for conducting the study was revised version of KAESAD (The Knowledge, Attitudinal, Experiential Survey on Advance Directives). Results: We have come to a conclusion that nurses have positive attitude towards ADs. However, they hardly had any experience regarding them which leads to low confidence in assisting preparing ADs. Also, attitude towards ADs had no correlation with experience and confidence. Conclusion: In order to bring about the confidence level from positive attitude that nurses have, there needs to be a systematic change in nursing education. For that, it requires an education system that emphasizes the role of nurses which incorporates Korean culture and characteristics regarding death issue.

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Knowledge, Confidence, and Learning Needs Regarding Advance Directives among Hospital Nurses (상급종합병원 간호사의 사전연명의료의향서에 대한 지식, 자신감 및 교육요구도)

  • Jang, Nan-Soon;Park, Hae-Sook;Kim, Mi-Ra;Lee, Joo-Yeon;Cho, Yeo-Won;Kim, Kyoung-Mi;Son, Youn-Jung
    • Journal of Korean Critical Care Nursing
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    • v.11 no.1
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    • pp.35-45
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    • 2018
  • Purpose : Nurses' knowledge regarding advance directives may affect their administration of and confidence towards end of life care. This study aimed to describe the relationships of knowledge, confidence, and learning needs with advance directives among hospital nurses. Method : This cross-sectional study was performed at a tertiary university hospital in Seoul between September 25 and October 14, 2017. Convenience sampling was used to recruit nurses who provided bedside care and had at least 1 year of clinical experience. We used a validated self-report questionnaire. Results : The mean score of knowledge, confidence and learning needs were $5.00{\pm}1.73$, $29.81{\pm}7.52$, and $64.54{\pm}8.48$ respectively. Hospital nurses' knowledge, confidence and learning needs were significantly different according to age, job position, educational level and perceived advance directives. Knowledge regarding advance directives was significantly associated with confidence (r = .27, p < .001) and learning needs (r = .16, p = .005). Conclusion : Knowledge regarding advance directives was relatively low compared to the findings of previous studies. Therefore, nurses should be knowledgeable and encouraged to initiate advance directives. It is necessary to develop a standardized educational program regarding advance directives based on Korean cultures.

Evaluation of Service Quality in Aged Care Facilities : A Focus Group Study (노인장기요양시설 서비스의 질 평가 탐색 : 포커스 그룹 연구)

  • Lee, JungSuk;Lee, Yong-Mi;Hwang, RahIl
    • Journal of Korean Public Health Nursing
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    • v.31 no.1
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    • pp.19-33
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    • 2017
  • Purpose: This study was conducted to explore the meaning and contents of high-quality aged care facilities and provide basic data for evaluation of service quality in such facilities. Methods: The focus group interviews and participants consisted of two user groups, for a total of 16 family caregivers of the elderly living in facilities and four service provider groups, for a total of 26 chief managers and caregivers working in aged care facilities. All interviews were recorded and transcribed as they occurred. Content analysis was used and debriefing notes were referred to in order to analyze the data. Results: Four themes of a high-quality aged care facility emerged from the analysis; 1) a place to rest for comfortable later years; 2) systematic value-based management; 3) providing professional care; 4) comprehensive service provision in response to diverse needs. Conclusion: The findings of the study showed the importance of client centered care and ethical mindset of providers, which had not been included in the existing quality evaluation programs. Based on these results, medical treatments, end-of-life care and more comprehensive and extended services including family care need to be provided in facilities to ensure good quality aged care.

Quality Indicators of End-of-Life Cancer Care from the Family Members' Perspective in Korea (호스피스 임상 질 지표에 대한 보호자의 동의정도와 이와 관련된 인자)

  • Kim, Hyo-Min;Youn, Chang-Ho;Ko, Hae-Jin
    • Journal of Hospice and Palliative Care
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    • v.14 no.2
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    • pp.101-109
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    • 2011
  • Purpose: The Assessing Care Of Vulnerable Elders project has developed indicators for the quality of the end-of-life (EOL) care. However, family members of cancer patients may have a different view on the quality indicators (QIs) established by health care experts. We evaluated the QIs from the family members' perspective. Methods: The information used in this study was gathered by surveying family members of cancer patients who were admitted to the inpatient hospice ward in Korea. A cross-sectional anonymous questionnaire was distributed to 120 potential respondents from July to October 2009. We included 69 responses in this study (effective response rate, 57.5%). Statistical analysis was performed by using SPSS for Win ver. 14.0, with independent t-test and Pearson's chi-square test. Results: Among QIs for good hospice care, families agreed the most on "Medical examination by the palliative care team or specialist" (88.4%) and "Dying in the family's presence" (88.4%). They agreed the least on "Discussing cardiopulmonary resuscitation with patients" (15.9%). Among QIs for bad hospice care, "Occurrence of fall or pressure ulcer are undesirable" showed the highest agreement rate (94.2%). The lowest agreement rate was 11.6% on "Dying in the hospital is undesirable." In addition, women, patients who were aware of their prognoses, and people with a high socioeconomic status tended to agree more on the QIs. Conclusion: Patients' families did not agree on some of the QIs recommended by previous studies. Family members' characteristics were related to their opinions on QIs.

The Impact of Death Anxiety and Personal Meanings of Death on the Attitude of Dignified Death among Korean Mid-life and the Elderly : Mediating Effect of Family Communication Process (중.노년의 죽음불안과 죽음의 개인적 의미가 품위 있는 죽음 태도에 미치는 영향 : 가족의사소통의 매개역할 검증)

  • Jo, Kae-Hwa;Lee, Hyun-Ji
    • Korean Journal of Adult Nursing
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    • v.23 no.5
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    • pp.482-493
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    • 2011
  • Purpose: This study was conducted to compare and identify the mediating effect of family communication in the impact of death anxiety and personal meanings of death on the attitude of dignified death near the end-of-life among Korean mid-life and old people. Methods: A cross-sectional study was conducted with 287 mid-life and old people in Seoul, Busan, and Daegu City. Data were collected through self-report questionnaires which were standardized instruments from November 2010 to March 2011. Data were analyzed by using SPSS/WIN 14. Results: The results of the study indicated that there were statistically significant differences in level of death anxiety, personal meaning of death, and the dignified death between mid-age and old-age people. In addition, family communication had full mediating effects among the mid-age, while it had partial mediating effects among the old-age in the relationships between death anxiety, personal meaning of death, and the attitude of dignified death. Conclusion: Based on the findings of the study, implications for the intervention of the dignified death and preferences for care near the end-of-life among mid-life and old people and recommendations of further study were provided.