• 가정간호학회지
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• 제8권2호
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• pp.135-147
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• 2001

The aim of this descriptive study was to identify the impact of chronic illness on children and their families. Mothers of 177 children with chronic disease were recruited from aged one to 17 years hospitalizing the pediatric nursing unit at one university hospital. 28 questions. a self-complete maternal questionnaire developed by researchers based on literatures and 'The Impact of Childhood Illness Scale' (Hoare & Russell, 1995) assess four aspects of the child's and family's lifestyle with two dimensions for each question. the frequency of the problem and its importance of concern that it cause. In the data analysis. Pearson correlation coefficients and analysis of variance were used to test any association and a statistical comparisons. between individual variables and the impact on child's and family's lifestyle. The results were as follows: 1) There were the higher mean scores on the importance dimension than on the frequency dimension on total impact on child's and family's lifestyle. On the importance dimension. mothers had much higher levels of concern about impact on child's development and adjustment among subscales. On the frequency dimension, mothers had much higher levels of concern about impact on the family daily living on subscales. 2) The impact on child's and family's lifestyle related on individual variables were: (1) On the importance dimension. there was statistically significant low in the impact on child's development and adjustment among subscales in older parent group compared with it of younger parent group. (2) On the frequency dimension. there were statistically significant high in the impact on child's development and adjustment among subscales in the children with leukemia or cancer compared with it of the other children who had another chronic illnesses. And there were statistically significant high in the impact on child's development and adjustment among subscales in less than high school educated mothers compared with it of mothers who was educated college level. (3) On the frequency dimension. There were statistically significant high in the impact on family's daily living among subscales and total impact on child's and family's lifestyle in female children. (4) There was positive correlation between impact on parents daily living and frequency of child's hospitalization on the frequency dimension. but there was negative correlation between the two variables on the importance dimension. (5) There was positive correlation between impact of chronic illness and its treatment and duration of child's hospitalization on the frequency dimension. In conclusion. these results were reflected by the high level of concerns about impact on child's development and adjustment although mothers had frequently responded about the impact on the family daily living. We suggest consistent intervening program that help the family empowering to make children live with and adjust to their chronic illnesses from the point of diagnosis and after discharge from the hospital. We also suggest these results can be utilized as a useful data in the practice of home health nursing for children who have chronic illnesses and their families.

• 근관절건강학회지
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• 제6권1호
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• pp.85-99
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• 1999

Chronic disease such as rheumatoid arthritis is believed to induce a significant psychosocial stressors. The concept of illness intrusiveness-illness induced life style disruptions-was hypothesized to affect psychosocial status. And demographic, socioeconomic, disease and social characteristics were hypotehsized to affect illness intrusiveness. Hierarchial multiple regression analyses were used. As a result, among the demographic factors gender was identified as contributor to directly increase the psychosocial stress and education level was identified to affect the psychosocial stress through illness intrusiveness. Among socioeconomic factors, the burden about the cost of medical treatment was found to indirectly affect the psychosocial stress through the illness intrusiveness. Also income and job were found to affect directly the psychosocial status. Among the disease characteristics, only the pain level was identified to increase the psychosocial stress through the illness intrusiveness. Among the social characteristics, perceived social support is identified to increase the psychosocial stress through the illness intrusiveness. Based upon these results, some suggestions were made for minimizing illness intrusiveness in rheumatoid arthritis and future research.

• 한국가족복지학
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• 제57호
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• pp.99-124
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• 2017

본 연구는 정신질환자의 가장 기본적인 보호체계인 가족의 기능에 대한 기존연구가 정신질환의 발병 단계(초기, 만성)에 대한 고려 없이 진행된 한계를 극복하고자 발병초기 정신질환자가족과 만성 정신질환자 가족의 가족기능이 차이가 있는지, 각 그룹의 가족기능에 영향을 미치는 요인이 무엇인지에 대해 살펴보는 것을 목적으로 하였다. 부산지역 정신보건 서비스 이용 정신질환자 628명을 대상으로 분석한 결과 발병초기 정신질환자의 가족기능보다 만성 정신질환자 가족기능이 더 높게 나타났다. 발병초기 정신질환자의 경우 가족기능 괴리감이 가족기능에 영향을 미치는 요인으로 확인되었다. 반면, 만성 정신질환자의 경우 일상생활수행능력, 주보호자의 건강상태, 가족기능 괴리감, 지역사회지지가 가족기능에 영향을 미치는 요인으로확인되어 두 그룹의 영향요인이 다름을 확인할 수 있었다. 이러한 연구결과를 바탕으로 실천현장에서 고려 할 수 있는 발병초기와 만성 정신질환자의 가족기능을 향상시키기 위한 차별적방법을 제언하였다.

• 정신신체의학
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• 제26권2호
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• pp.145-151
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• 2018

연구목적 만성정신질환자들의 회복 및 사회적 복귀를 돕기 위해 주거시설 서비스가 제공되고 있지만, 집단적인 보호방식 및 획일화된 훈련 등으로 인해 문제가 되고 있다. 이에 주거훈련시설에 대한 연구 참여자들의 기대 및 욕구를 알아보기 위해 조사 연구가 이루어졌다. 방 법 안산 지역 내 정신보건 기관을 이용하는 만성정신질환자 139명을 대상으로, 설문을 통해 인구사회적 특성, 자립의지, 원하는 주거 시설 형태 및 주거 서비스에 대해 조사하였다. 결 과 과반수이상이 자립에 대한 욕구를 보였으며, 이를 위해 일자리 지원을 가장 필요로 했다. 주거 시설 이용에 대해서는 긍정적인 태도를 보였으며, 일상생활 및 사회기술 훈련이 필요하다고 하였다. 시설형태는 주간재활방식을 선호했고, 주중에는 공동생활을 하다가 주말에는 집으로 귀가하는 운영방식을 원했다. 결 론 주거훈련시설 참여와 관련하여 실제 이용자들의 욕구가 실질적인 치료 및 재활프로그램에 반영될 수 있도록, 주거훈련시설 및 재활서비스의 개선이 필요하겠다.

• 한국아동복지학
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• 제27호
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• pp.95-120
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• 2008

본 연구는 가족탄력성 이론에 근거하여 만성질환아 가족의 스트레스와 가족적응의 관계에서 가족탄력성은 어떤 경로를 통해 어떻게 가족적응에 영향을 미치는지를 살펴보고 이를 통해 만성질환아 가족의 적응력 향상을 위한 사회사업개입시 도움이 될 수 있는 실증적인 지식을 얻고자 하는 목적으로 이루어졌다. 본 연구의 조사대상자들은 부산광역시, 울산광역시, 그리고 경상북도지역에 소재하고 있는 대학병원 및 종합병원에서 만성질환으로 진단 받고 3개월 이상 치료중인 0세~15세의 만성질환아 가족들이다. 연구의 분석방법은 구조방정식 모형을 사용하였다. 연구결과를 요약하면 다음과 같다. 만성질환아 가족의 스트레스는 가족적응에 직접적인 영향을 미치지 않고 가족탄력요인을 통하여 간접적으로 영향을 미치는 것으로 나타났다. 따라서 만성질환아 가족의 적응력을 향상시키기 위해서는 가족스트레스를 감소시키는데 초점을 맞추기 보다는 강점 관점에 근거하여 가족의 탄력성을 향상시키기 위한 프로그램을 제공하는 것이 필요할 것이다. 이러한 연구 결과에 근거하여 만성질환아 가족의 탄력성 강화를 위한 개입전략을 제시하였다.

• 지역사회간호학회지
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• 제32권4호
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• pp.415-429
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• 2021

Purpose: The purpose of this study was to develop the Self-Care Non-adherence Risk Assessment Scale (SCNRAS) for patients with chronic illness in South Korea. Methods: This study was conducted from April to July, 2020 and utilized a convenience sampling method to recruit 336 patients with chronic illness from three hospitals located in South Korea. The content, factorial structure, item-convergent/discriminant validity, convergent validity, internal consistency reliability, and test-retest reliability of the scale were evaluated. The data were analyzed using exploratory and confirmatory factor analyses, Pearson's correlation coefficient, Cronbach's α, and intra-class correlation coefficient. Results: The exploratory and confirmatory factor analyses yielded six-factors. Convergent validity was demonstrated using measures of defining issues. Internal consistency reliability and test-retest reliability were found to be acceptable, as indicated by a Cronbach's α of .65~.81 and an intra-class correlation coefficient of .93~.98. The Self-Care Non-adherence Risk Assessment Scale for patients with chronic illness is a new instrument that comprehensively measures the knowledge, skill, physical function status, access to health care, social support, motivation, and confidence. It comprises 18 items scored on a 5-point Likert scale. The validity and reliability of the scale were verified. Conclusion: The scale developed through this study is expected to screen those who need nursing intervention early by predicting the self-care non-adherence risk group.

• 성인간호학회지
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• 제16권2호
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• pp.288-296
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• 2004

Purpose: Illness intrusiveness (illness induced lifestyle disruption) by symptoms was investigated in 439 patients with rheumatoid arthritis. Method: The cross-sectional and retrospective survey design was used. Fatigue, disability, pain, and depression were considered as symptoms of rheumatoid arthritis. Result: Patients were reported to perceive more illness intrusiveness than other chronic disease patients such as end stage renal disease, bipolar disorder, and peritoneal dialysis patients. They were especially intrusive into work, health, and active recreation domains. Stepwise regression analysis identified four variables counting for 26% of illness intrusiveness variances: fatigue, disability, marital status, and depression. All of the symptoms except pain were found to significantly predict illness intrusiveness. Fatigue explained 16% of illness intrusiveness variances. Conclusion: Fatigue and depression usually overlooked by health professionals must be carefully assessed and managed to reduce perceived illness for rheumatoid arthritis patients.

• 한국엔터테인먼트산업학회논문지
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• 제13권5호
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• pp.273-280
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• 2019

본 연구는 만성질환 여성 노인의 삶의 만족도 영향요인을 파악하여 삶의 만족도를 증진하기 위한 기초자료를 제공하고자 시도되었다. 제6차 국민노후보장패널 만 65세 이상 만성질환 여성 노인 1,846명을 연구 대상으로 하였다. 일반적 특성에 따른 삶의 만족도, IADL, 대인관계를 알아보기 위하여 기술통계, t-test, ANOVA를 사용하였고, 삶의 만족도에 미치는 영향요인을 알아보기 위하여 위계적 다중회귀 분석을 이용하였다. 연구 결과 만성질환 여성 노인은 나이가 어릴수록, 배우자가 있는 경우, 교육 수준이 증가할수록, 적절한 수면, 규칙적 운동, 정기 검진을 실천하는 경우 삶의 만족도가 높았다. 삶의 만족도에 수면(β=.11, p<.001), 운동(β=.07, p<.001), 월 소득(β=.13, p<.001), IADL(β=-.05, p<.001), 대인관계(β=.38, p<.001)가 유의미한 영향을 주었으며, 그 설명력은 27%이었다. 따라서 만성질환 여성 노인의 삶의 만족도를 향상하기 위하여 적절한 수면, 운동, IADL, 대인관계를 증가시키는 중재가 필요로 할 것이다.

• Journal of Preventive Medicine and Public Health
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• 제43권5호
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• pp.369-376
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• 2010

Objectives: The purpose of this study was to examine the associations of current body weight and body mass index (BMI) at age three and birth weight in developing chronic respiratory illness in childhood and identify possible interaction underlying its mechanism. Methods: The study was carried out with 422 children who were enrolled in a hospital-based birth cohort. Birth related anthropometric data were collected at birth. At age 3 years, the presence of respiratory symptoms was evaluated by using the Korean version of core questionnaire for wheezing and asthma from the International Study of Asthma and Allergies in Childhood (ISAAC). Physical examination was carried out to measure the child's weight and height. Results: Children in the lowest birth weight tertile (aOR = 3.97, 95% CI = 0.94-16.68) or highest BMI tertile (aOR = 3.68, 95% CI = 1.24-10.95) at three years of age were at an increased risk of chronic respiratory illness. Children who were initially in the lowest birth weight tertile but now belong in the highest weight tertile had higher risk of chronic respiratory illness compared to those who had remained in the middle tertile (OR=16.35, 95% CI=1.66-160.57). Conclusions: Children with lower birth weight or higher BMI were at an increased risk of chronic respiratory illness. In addition, children who were initially in the lowest birth weight tertile but are now in the highest weight tertile had higher risk of chronic respiratory illness compared to those who remained in the middle tertile.

• 한국사회복지학
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• 제57권2호
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• pp.71-92
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• 2005

본 연구에서는 2003년 12월 현재 고혈압, 관절염, 당뇨병, 뇌졸중 등의 만성질환을 가진 성인 의료급여 1종 수급권자(N=221)들을 대상으로 그들이 지각하는 사회적 지원과 삶의 질 정도, 그리고 사회적 지원이 삶의 질에 미치는 영향을 검토하였다. 조사 대상자는 국민건강보험공단의 전국자료를 토대로 성, 연령, 질환명 및 거주지역 등을 고려한 층화표집방법에 의하여 선정하였으며, 분석에는 기술통계와 회귀분석 등이 포함되었다. 연구결과, 이들이 지각하는 사회적 지원과 삶의 질은 매우 낮은 것으로 나타났으며, 약간의 질환별, 거주지역별 차이가 발견되었다. 그리고 사회적 지원은 삶의 질에 긍정적인 영향을 미치는 것으로 나타났으며, 특히 가족에 의한 정서적 도움이 유효한 변인으로 나타났다. 그리고 두 변인의 관계는 성별, 질환별, 거주지역별로 차이가 있는 것으로 나타났다. 본 연구는 만성질환을 가진 의료급여 1종 수급권자의 사회적 지원과 삶의 질 향상을 추구하기 위한 이론적 근거로 활용될 수 있다.