• Title/Summary/Keyword: Child with cancer

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Health-Care Providers' Perspectives towards Childhood Cancer Treatment in Kenya

  • Njuguna, F;Burgt, RHM van der;Seijffert, A;Musimbi, J;Langat, S;Skiles, J;Sitaresmi, MN;Ven, PM van de;Kaspers, GJL;Mostert, S
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.9
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    • pp.4445-4450
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    • 2016
  • Background: This study explored perspectives of health-care providers on childhood cancer treatment in Kenya. Materials and Methods: A self-administered questionnaire was completed by 104 health-care providers in January and February 2013. Results: Seventy six percent of the health-care providers believed cancer to be curable. More doctors than other health-care providers had this positive opinion (p=0.037). The majority of health-care providers (92%) believed that most children with cancer will not be able to finish their treatment due to financial difficulties. They considered that prosperous highly-educated parents adhere better with treatment (88%) and that doctors adhere better with treatment for prosperous highly-educated parents (79%). According to 74% of health-care providers, quality of care is better for prosperous highly-educated parents (74%). Most health-care providers reported giving more explanation (71%), work with greater accuracy (70%) and use less difficult vocabulary (55%) to prosperous more educated families. Only 34% of health-care providers reported they feel more empathy towards patients from prosperous families. Reasons for non-adherence with the protocol according to health-care providers are: family refuses drugs (85%), inadequate supply of drugs at pharmacy (79%), child looks ill (75%), and financial difficulties of parents (69%). Conclusions: Health-care providers' health beliefs and attitudes differ for patients with families having high versus low socio-economic backgrounds.

Childhood Cancer Survivor's Services Needs for the Better Quality of Life (소아암 완치자의 삶의 질 향상을 위한 서비스 욕구)

  • Kim, Min-Ah;Yi, Jae-Hee
    • Child Health Nursing Research
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    • v.18 no.1
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    • pp.19-28
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    • 2012
  • Purpose: The study aimed to identity specific needs for services and programs to help childhood cancer survivors adjust and adapt to life after treatment. Methods: In-depth interviews were conducted with 31 childhood cancer survivors, diagnosed with cancer before the age of 18 and currently between 15 and 39 years of age. Each survivor had completed his/her cancer treatment. Results: The participating cancer survivors reported needs for services related to psychological counseling, schooling and learning, social skills, mentorship, integrated health management, self support activities, families of survivors, and public recognition and awareness. Conclusion: The results of the study indicate a need to better understand childhood cancer survivors, provides a basis for developing various services and programs to improve the quality of life among childhood cancer patients, survivors, and their families, and supports the importance of psychosocial adjustment.

Effects of Family Value on Family Adaptation in Family Who has a Child with Cancer (가족 가치관이 암환아 가족의 적응에 미치는 영향)

  • Park In-Sook;Tak Young-Ran;Lee Jung-Aee
    • Child Health Nursing Research
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    • v.7 no.4
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    • pp.494-510
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    • 2001
  • As a family respond to any stressful situation as a whole system, cancer diagnosis of a child, as a serious life event, could be emotional shock to destroy homeostasis of the family system. A family has a resilient capacity to adjust and adapt to stressful events. Previous studies have been focused on family stress and adaptation, but little attention has been given to family value as one of resilient factors. The data for model testing were collected from July 18, 2000 to August 30, 2000 and the analysis included 309 parents of children who are diagnosed as cancer, 18 or less years of age, and treated either hospitalized or at the outpatient clinics. The data analysis utilized SAS 6.12 and LISREL 8 for descriptive statistics, correlation, cluster analysis, factor analysis, and LISREL. The study findings are as follows. 1) Monthly income (γ=-0.28, t=-5.81) was the most important factor to explain family strain along with family support (γ=-0.11, t=-2.43), severity of children's illness (γ=0.26, t=5.22), and family stressor (γ=0.22, t=4.62). All of these factors together explained 40% of variance in family strain. 2) Among general family value, the relationship with the parents (γ=0.28, t=4.89) and relationship with the children (γ=0.20, t=3.60) showed positive effects to family value for cancer children, while relationship with the spouse (γ=-0.19, t=-3.22) and the age of the cancer children (γ=-0.11, t=-2.21) showed negative effects. These predictors together explained 22% of variance in family value for cancer children. 3) Family hardiness was explained mostly by family strain (γ=-0.53, t=-8.65) along with direct negative effects of family persistency and indirect negative effects of severity of children's illness, family stressor, relationship with the spouse, and the children's age. Family value for cancer children was the most important predictor with positive effect (γ=0.44, t=6.76) along with indirect effects of monthly income, relationship with the parents, relationship with the children, support from family and significant others, and confidence with the health professionals. 51% of variance in family hardiness was explained by all of these predictors. 4) The most important predictor for family adaptation was family stressor (γ=-0.50, t=-6.85) with direct and indirect negative effects along with the severity of children's illness (γ=-0.27, t=-5.21). However, family value for cancer children showed compromised total effect (γ=-0.13, t=-1.99) with negative direct effects (γ=-0.28, t=-3.43) and positive indirect effects (γ=0.14, t=3.01). Similarly, confidence with the health professionals also showed compromised total effect (γ=0.09, t=1.99) with positive direct effects and negative indirect effects. Family hardiness showed the biggest positive direct effects while other factors such as monthly income, family stressor, family persistence, support of family and significant others, relationship with the parents, relationship with the children, and relationship with the spouse, and children's age showed indirect effects only. 39% of variance in family adaptation was explained by all of these predictors.

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The Relationships of Knowledge, Attitudes about Cancer and Health Behavior for Cancer Prevention in High School Students (일 지역 고등학생의 암에 대한 지식, 태도 및 암 예방 건강행위)

  • Kim, Young-Sook
    • Child Health Nursing Research
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    • v.16 no.2
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    • pp.102-111
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    • 2010
  • Purpose: This study was conducted to identify high school students' knowledge and attitude about cancer, and to examine the relation between these variables. Methods: The participants were 811 students from 8 high schools in U city. The data were analyzed using Pearson correlation coefficients, ANOVA and Duncan test with SPSS/WIN 12.0. Results: The score for participants' knowledge about cancer was 18.88 out of a possible 30, and their score for attitude towards cancer was 34.74 points of a possible 50. There were significant differences in knowledge about cancer according to gender, religion, school grades and worries about cancer. The attitude towards cancer showed significant differences according to worries about cancer and family atmosphere. The health behaviors were also statistically affected by factors like whether one smoked or not, health condition and harmony of family life. There was a significant positive correlation between attitude towards cancer and health behavior for cancer prevention. Attitude towards cancer and health behavior for cancer prevention showed a positive correlation with knowledge about cancer. Conclusion: The results of this study indicate that the development of an appropriate attitude towards cancer by high school students should lead to the practice of health behavior to prevent cancer. This development could be enhanced with structured and on-going education about cancer.

Perceived Social Support as a Predictor on Adaptation of Family Who has a Child with Pediatric Cancer (소아암 환아 가족이 인지한 사회적 지지가 적응에 미치는 영향)

  • Tak Young-Ran;Yun E-Hwa;Chon Young-Shin;An Ji-Yeon
    • Child Health Nursing Research
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    • v.9 no.1
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    • pp.9-17
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    • 2003
  • Families of children with cancer face many illness-related demands. The perceived social support is a critical resource for the family adaptation process. And the patterns of family adaptation to childhood cancer varies as characteristics of disease, which is prognosis, the influence of cognition function, and treatment process. The conceptual definition of social support is not unidimensional. However, most studies focus on general aspect of mediating effects on adaptation. Diverse dimensions of perceived social support should be considered in its effectiveness for intervention. Therefore, this study was undertaken to determine whether family's perceived social support influences the family adaptation of family with pediatric cancer and what dimension influences mostly in family adaptation as the characteristics of disease in the family of children with cancer. The subject was consisted of 102 families with pediatric cancer who had been diagnosed as leukemia or brain tumor last 2 years. Those families had participated in the education program or meetings for family who have with pediatric cancer children. The measurement for this study were Personal Resource Questionnaire (PRQ) Part-Ⅱ developed by Brandt and Weinert to measure parents' perceived social support, and the McCubbin's Coping Health Inventory for Parents (CHIP) to measure family coping. The results of this study can be summarized as follows; Regression analysis showed that perceived social support has effect on family adaptation with β=.43, p<.01. In the group of family of child with leukemia, social support as general has effect on adaptation (β=.40, p<.01) and specially, social support perceived as intimacy was strongly effect on family adaptation. And In the group of brain tumor, Social support has effect on adaptation(β=.46, p<.01) and among the social support domains, the self esteem dimension was most predictable to family adaptation. In conclusion, the perceived social support is a predictor on family adaptation and useful vehicle to help family who has child with pediatric cancer. An important clinical implication is that specified support program for intervention may be useful and critical for the family who has diverse pediatric conditions of childhood cancer. Further studies should stress the effects of family support for clinical intervention and is needed with diverse stage of development and pediatric conditions.

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Healthy lifestyles in childhood cancer survivors in South Korea: a comparison between reports from children and their parents

  • Kang, Kyung-Ah;Kim, Shin-Jeong;Song, Inhye
    • Child Health Nursing Research
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    • v.28 no.3
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    • pp.208-217
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    • 2022
  • Purpose: This study investigated childhood cancer survivors' behavior related to a healthy lifestyle during their survival period by comparing reports between childhood cancer survivors and their parents. Methods: In this comparative descriptive study, a survey was conducted with a 33-item questionnaire and one open-ended question about areas for improvement. The participants comprised 69 childhood cancer survivors and 69 of their parents, for a total of 138. Results: The total mean healthy lifestyle score, on a 4-point Likert scale, reported by childhood cancer survivors was 2.97, while that reported by their parents was 3.03. No significant differences in children's healthy lifestyles were found between childhood cancer survivors' and their parents' reports (t=0.86, p=.390). For the open-ended question, the main keywords based on the results of degree and eigenvector centrality were "exercise", "unbalanced diet", and "food". These keywords were present in both the children's and parents' responses. Conclusion: Obtaining information on childhood cancer survivors' healthy lifestyles based on reports from themselves and their parents provides meaningful insights into the improvement of health care management. The results of this study may be used to develop and plan healthy lifestyle standards to meet childhood cancer survivors' needs.

The Experience of Siblings of children with Cancer (암환아 형제자매의 경험)

  • Cheon Na Young
    • Child Health Nursing Research
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    • v.4 no.2
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    • pp.294-304
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    • 1998
  • Illness is a situational crisis which affects entire family members. Children have different experiences and responses when their sibling has a cancer. there are many studies on sibling experiences to childhood cancer which have many problems in the USA. The main purpose of this study is to describe sibling experiences to childhood cancer accurately and coprehensively by collecting data from sibling to provide the data to develop nursing interventions for the families with childhood cancer. The data was collected from October 1 to November 6, 1995. A total of ten siblings with childhood cancer were interviewed. The meaningful contents were classified and categorized to four areas. Theses areas include knowledge and perception related to illness, changes in family life, changes in school life, and siblings' marturation. The results of this study were as follows 1. Knowledge and perception related to childhood cancer : Children had limited knowledge about illness and expressed the desire to tow more about sibling's illness. 2. Changes in family and school life : Children expressed loneness, emptiness, sadness, depression about seperation with the mother and sibling, family mood change, leisure activities and financial difficulites. Many children reported that their school performance had suffered since sibling's illness. 3. Maturation of children : Some positive outcoms related to having a sibling with a cancer are maturation, increased affection for the sibling, empathy for their parents. The results of this study indicate that it is important to develop comprehensive nursing intervention programs for the families with a childhood cancer.

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Lack of Association Between the CYP1A1 Ile462Val Polymorphism and Endometrial Cancer Risk: a Meta-analysis

  • Wang, Xi-Wen;Zhong, Tian-Yu;Xiong, Yun-Hui;Lin, Hai-Bo;Liu, Qing-Yi
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.8
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    • pp.3717-3721
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    • 2012
  • Purpose: Any association between the CYP1A1 Ile462Val polymorphism and endometrial cancer risk remains inconclusive. For a more precise estimate, we performed the present meta-analysis. Methods: PUBMED, OVID and EMBASE were searched for the studies which met inclusion criteria. Data in all eligible studies were evaluated and extracted by two authors independently. The meta-analysis estimated pooled odds ratio (OR) with 95% confidence interval (CI) for endometrial cancer risk attributable to the CYP1A1 Ile462Val polymorphism. Results: A total of 7 studies were included in this meta-analysis. The results indicated no association between endometrial cancer risk and the CYP1A1 Ile462Val polymorphism (for Val vs Ile allele model [OR 1.09, 95% CI 0.73-1.62]; for Val.Val vs Ile.Ile genotype model [OR 1.54, 95% CI 0.56-4.23]; for (Ile.Val + Val.Val) vs Ile.Ile genotpye model [OR 1.08, 95% CI 0.71-1.63]; for Val.Val vs (Ile.Ile + Ile.Val) genotype model [OR 1.46, 95% CI 0.53-4.04]). Conclusions: This meta-analysis suggests that there is no association between endometrial cancer risk and the CYP1A1 Ile462Val polymorphism.

Do Saudi Nurses in Primary Health Care Centres have Breast Cancer Knowledge to Promote Breast Cancer Awareness?

  • Yousuf, Shadia Abdullah;Al Amoudi, Samia Mohammed;Nicolas, Wafa;Banjar, Hasna Erfan;Salem, Safaa Mohammed
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.9
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    • pp.4459-4464
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    • 2012
  • Background: Breast cancer is one of the leading causes of death among cancer patients in Saudi Arabia. It is known that nurses play a key role in promoting breast cancer awareness among women in any society. Nurses in primary health care centres (PHCC) have more direct contact with general population. This study aimed to investigate nurse knowledge of breast cancer and practice of early screening in PHCC in Jeddah city. Methods: A cross-sectional study was conducted using a self-administered questionnaire to assess the general knowledge of breast cancer, risk factors, and practice of 210 PHCC nurses. Data were analysed using SPSS v.16. Results: The mean age of the PHCC Nurses was 36.9 (SD ${\pm}8.6$). Only 11% percent scored <50% of the total score for general epidemiological knowledge on breast cancer, about 35% scored <50% of the total score for breast cancer risk factors. Sixty seven percent scored >75% of the total score on breast cancer signs. Majority of nurses 62.8% practiced BSE, but only 4% practiced regularly every month. Some 28% practiced once per year. About 81% of the nurses had not had a clinical breast examination and only 14% had had a mammography. The results of the study failed to show any correlation between the knowledge scores with age, education, year of experience, family history of BC and marital status of the nurses. Conclusion:The results from the study reflect that there is a need to provide continuing nursing education programmes for PHCC nurses to improve their breast cancer knowledge and practice.

Relationships of Family Value, Vamily Hardiness and Hamily Adaptation in Family who has a Child with Cancer (암환아 가족의 가치관, 강인성과 적응과의 관계)

  • Park In-Sook
    • Child Health Nursing Research
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    • v.7 no.2
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    • pp.179-190
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    • 2001
  • The purposes of the study were to develop an instrument for family value and to identify the relationships of family value, family hardiness, and family adaptation by appling the family value scale to family with cancer children. The study was conducted in three phases. 1) A survey was conducted from July 20 to August 20, 1999 and 18 items of general family value scale was modified from the data of 153 fathers and 164 mothers. 2) In-depth interviews were made with 29 parents of cancer children from April 20, 1998 to May 20, 1999 to develop family value scale with cancer children, and 12 statements were developed. 3) The final survey was conducted from July 18, 2000 to August 30, 2000 and the data from 309 parents of children who are diagnosed as cancer, 18 or less years of age, and treated either hospitalized or at the outpatient clinics were analyzed to identify the relationships of the concepts. The data analysis utilized SAS 6.12 and LISREL 8 for descriptive statistics, correlation, and Regression for path analysis. The study findings are as follows. The psychometric testing of general family value scale was Cronbach's alpha = 0.78. The reliability of the family value scale with cancer children showed the reliability as Cronbach's alpha = 0.73. Demographic characteristics showing significant correlations were cancer children's age, period of illness, period after completing treatment, mother's age, mother's education level, monthly income, payment type, confidence with health professional, and severity of children's illness. The correlation coefficients among major variables showed that family stressor was positively related with family strains(r=0.33, p<.001), and negatively related with family hardiness(r=-0.21, p<.001). Family strains was negatively related with family hardiness(r= -0.41, p<.001) and family adaptation(r=-0.46, p<.001). Correlations of family hardiness was positive with family value with cancer children(r=-0.31, p<.001), and negative with general family value(r=-0.16, p<.01). Family hardiness was positively related with family adaptation(r=0.35, p<.001). The causal relationship between study variables showed that family strains predicts general family value(γ=0.12, t=2.02), family value with cancer children predicts family hardiness(γ=0.31, t=6.30), family strains predicts family hardiness(γ=-0.40, t=-7.70), family value with cancer children predicts family adaptation(γ=-0.23, t=-4.11), and family hardiness predicts family adaptation(γ=0.43, t=7.78).

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