• 간호행정학회지
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• 제10권3호
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• pp.375-386
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• 2004

The purpose of this study was to identify the present use of caregiver services, to evaluate the degree of satisfaction with the services according to type of caregiver service, private or public, and to provide data for the development of a plan which will provide good quality service with less economic and psychological burden to the patients and their families. Survey data were collected from 130 patients in 4 general hospitals in Seoul, and their families. Data were collected during April, 2004, using a questionnaire which included the patient satisfaction scale developed by Jun (2001). Data were analyzed using frequencies, percentages, means and standard deviations, $X^2$ analysis, t-test. The SPSS computer program was used to facilitate analysis. The results of this study are summarized as follows; The total score for satisfaction was high for both groups. For the private caregiver group it was $52.38{\pm}11.08$, and for the public caregiver group, $58.14{\pm}9.64$. This difference was significant(t=-3.391, p=.001). In all of areas, the scores for satisfaction of the public caregiver service group were higher than private caregiver service group, ie. caregivers' attitude, role, confidence, performance, and service charge, and all the differences were significant. In conclusion, it was found that long-term hospitalization of older patients with high dependence resulted in more caregiver service. There were more severe patients in the public caregiver group, but the service charges, additional costs and paid holidays were less. Based on these results, patients and their families were significantly more satisfied with public caregiver service because it was not only less expensive but also had a high quality of service. Thus, caregiver services should be systemized so that patients and their families will get the best quality caregiver service

• Asian Pacific Journal of Cancer Prevention
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• 제14권1호
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• pp.373-379
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• 2013

Background: Although caregiving to patients with terminal illness is known to be a stressful burden to family members, little attention has been focused on work-related problems. We aimed to investigate employment status and work-related difficulties of family caregivers of terminal cancer patients, comparing with the general population. Methods: Using structured questionnaires, we assessed family caregivers of 481 cancer patients determined by physicians to be terminally ill, from 11 university hospitals and the National Cancer Center in Korea. Results: Among 381 family caregivers of terminal cancer patients (response rate, 87.6%), 169 (43.9%) were not working before cancer diagnosis, but currently 233 (63.7%) were not working. Compared with the general population (36.5%), the percentage of not working among the family caregivers was higher (OR=2.39; 95%CI=1.73-3.29). A major reason for not working was to provide assistance to the patients (71.6%). 40.6% of those who continued working and 32.3% of those who not working family members reported extreme fatigue. Caregivers of old age, those who were female, those with a lower household income, and those caring for patients with a low performance status were not working at a more significant rate. Conclusion: Family caregivers of terminal cancer patients suffer job loss and severe work-related difficulties, probably due to caregiving itself and to fatigue. We need to develop supportive programs to overcome the burden of caregivers of the terminally ill.

• 한국산학기술학회논문지
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• 제17권2호
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• pp.188-201
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• 2016

본 연구의 목적은 재활전문병원에 입원중인 뇌졸중 환자 주 돌봄 제공자의 스트레스 영향요인을 파악하기 위하여 시도된 설명적 상관관계 연구이다. B시에 소재한 3개의 재활전문병원 주 돌봄 제공자 200명에 대한 자료를 2015년 9월 1일부터 9월 30일까지 수집하여 SPSS Win 18.0 프로그램을 이용하여 분석하였다. 연구도구는 Connor-Davidson Resilience Scale, Caregiving Mastery Subscale, MOS(Medical Outcomes Study), Burden Interview(BI)를 사용하여 측정하였다. 스트레스에 가장 큰 영향을 미치는 요인은 사회적지지로 전체의 9.3%의 설명력을 보였고, 다음으로 환자를 돌봄 기간, 종교 유무, 경제적 상태, 주 돌봄 제공자 연령, 회복 탄력성, 주 돌봄 제공자 건강상태, 환자 의식상태, 환자연령을 포함하여 주 돌봄 제공자의 스트레스는 총 30%의 설명력을 나타냈다. 따라서 이러한 결과를 바탕으로 재활전문병원에 입원중인 주 돌봄 제공자의 스트레스를 감소시킬 수 있는 사회적지지 프로그램의 개발이 필요하며, 스트레스에 영향을 준 제 특성요인들을 고려하여 스트레스 중재프로그램을 개발할 필요가 있을 것이다.

• 한국사회복지학
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• 제56권2호
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• pp.285-310
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• 2004

본 연구는 치매노인과 뇌졸중노인 가족부양자를 대상으로 집단차원의 교육/훈련프로그램을 실시한 후 개입의 효과성을 검토한 것이다. 연구내용은 프로그램 참여를 통한 개입의 효과성을 살펴보는 것으로, 사전사후검증의 타당성을 높이기 위해 유사 전-후 실험 통제집단 연구설계를 이용하였다. 사전사후검증을 모두 마친 가족들은 42명인데, 그 중 실험집단 17명, 통제집단 25명이었다. 개입의 효과성을 파악하기 위해 부양부담 척도와 주관적 삶의 질 척도를 사용하였다. 분석결과 프로그램에 참여했던 가족들은 개입 이후로 부양부담은 유의미한 수준에서 차이가 나타나지 않았지만, 주관적 삶의 질은 차이가 나타났다. 대상노인의 특성별로 분석한 결과를 보면, 치매노인, 노인의 상병기간이 짧을수록, 장애정도가 낮을수록 가족부양자의 삶의 질이 더 높아지는 경향을 나타냈다. 또한 가족의 특성별로는 남성, 고학력, 젊은 부양자일수록 삶의 질이 더 높아지는 경향이었다. 추가적으로 본 연구에서 효과성을 전제로 할 때 우선적인 개입이 필요한 취약한 가족부양자 집단을 확인하였고, 프로그램은 가족의 특성별로 특화하여 실시하는 것이 바람직하다는 점도 알 수 있었다.

• 한국사회정책
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• 제23권1호
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• pp.227-256
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• 2016

본 연구는 노인 재가서비스의 확대가 노인을 돌보는 가족 구성원의 생활시간에 미친 효과를 분석하였다. 고령화와 가족구조의 변화 등으로 노인에 대한 가족의 돌봄부담이 가중되면서 공적 노인돌봄서비스를 확대해야 한다는 사회적 공감대가 형성되었고, 2000년대 이후부터 관련 제도가 본격화되었다. 본 연구에서는 가족의 노인돌봄 부담을 구성원이 직접 노인을 돌보는 부분과 이로 인해 노동이나 가사, 여가 등의 다른 주요 생활에 제약을 받는 부분으로 구분하고, 노인 재가서비스의 확대로 이러한 부담이 감소하였는지를 확인하였다. 분석자료는 통계청의 생활시간자료를 이용하였으며, 제도 확대의 효과는 건강이 취약한 노인을 돌보는 중하위 소득수준의 가구를 처치집단으로 삼아서 비교적 건강한 노인을 돌보는 가구 및 고소득 가구와의 비교를 통해 제도 효과를 추정하는 삼중차이(DDD) 방법을 통해 확인하였다. 분석결과, 노인 재가서비스의 확대는 노인을 돌보는 가족 구성원의 노인돌봄 시간을 감소시켰다. 이는 제도 확대의 목적과 부합하는 결과이지만, 돌봄 시간의 감소 정도가 크지 않았고, 여성 가구원에게만 그러한 효과가 관측되었다는 점에서 한계도 드러났다. 또한 노인돌봄 시간이 감소한 여성 가구원의 경우에도, 가사, 노동, 여가, 비노인돌봄 및 개인유지 등의 다른 생활시간 범주에서는 유의미한 변화를 보이지 않았다. 가족의 노인돌봄 부담을 실질적으로 줄이기 위해서는 공적돌봄의 대체효과를 높이기 위한 노력이 더 필요해 보인다.

• Asian Pacific Journal of Cancer Prevention
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• 제15권10호
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• pp.4181-4185
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• 2014

Background: The aim of this study was to describe the characteristics of male spouse caregivers of breast cancer patients in China, assess their quality of life (QOL), and investigate the influencing factors. Materials and Methods: A total of 243 breast cancer patient-spouse caregiver dyads were recruited from four hospitals in Shanxi and Anhui province of China. A cross-sectional design was applied to collect data and the Chinese version of the Medical Outcomes Study 36-item Short Form (SF-36) was used to measure caregivers' QOL, and the Chinese version of M.D. Anderson Symptom Inventory (MDASI-C) was applied to measure patient symptom severity and interference. Pearson's correlation was used to examine the correlations between caregiver burden and QOL. The multiple regression analysis was used to determine the most predictive factors influencing QOL. Results: The scores of all SF-36 scales were above 50.0, which were much lower than that of general mainland Chinese males. Mental QOL was significantly worse than physical QOL. Spouses demographic characteristics, caregiving-related variables and patient symptoms were related to spouse QOL. Caregiver burden has a negative relationship with QOL. Conclusions: A decrease in life events and patient symptoms, as well as increase in spouse sleeping time and family income, ought to improve QOL.

• 지역사회간호학회지
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• 제19권2호
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• pp.205-215
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• 2008

Purpose: This study was to compare the effects of individual and group intervention programs on the demented elderly and their families. Methods: The programs were applied to two groups, one by home visiting and the other by group intervention. The groups were composed of 14 elders and 12 elders, respectively, with their families. The programs were applied twice a week, ninety minutes per session for four weeks. Programs consisted of cognitive therapy, music and art therapy, and massage for the demented elderly, education on dementia, cognitive-behavioral intervention for problematic behavior, methods to lessen stress, and counselling for the families. Results: AER, problematic behavior, QOL of pts and QOL, caregiving burden, and relationship with the pts of caregivers were improved after each program but not significantly except QOL of pts (Z=-3.37, p=.00) in the group intervention. When the two interventions were compared with each other, the group intervention program was more effective than the home visiting program in all variables but not significantly except QOL of pts (U=32.00, p=.00). Conclusion: In summary, both the individual and group intervention programs were helpful to both pts and families, and even though there was no statistically significant difference between the two intervention programs except in QOL of pts, the group intervention was more effective.

• 대한간호학회지
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• 제31권6호
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• pp.1077-1087
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• 2001

The purpose of this study was to analyze the effects of respite care. The analysis was conducted by reviewing published intervention studies on the effects of formal respite care for caregivers of dementia patients, patients with dementia, and the prevented or delayed rate of institutionalization of the patients. Method: Two computerized databases (MEDLINE, CINAHL) were searched to find respite care-related articles published from the year of 1981 to 2000. A total of 49 published articles were identified. Of them, nine studies, which met for the inclusion criteria of this study, were included. Results: Results revealed that there was little evidence of the effect of respite care on, not only caregivers' burden, stress, depression and well-being, but also the rate of institutionalization of the patients. It was noteworthy that dementia patients reported fewer problems in behavior, although cognitive functioning and activity of daily living abilities continued to decline. However, these findings should be carefully interpreted because of methodological problems, such as non-random sampling, non random group assignment, a small sample size, uncontrolled confounding variables, limited period of services, and no specific types of services. Conclusion: It is recommended to conduct intervention studies of respite care being conducted in Korea with the corrections of methodological problems suggested from this study.

• Child Health Nursing Research
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• 제22권4호
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• pp.247-256
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• 2016

Purpose: The purpose of the study was to identify and describe the caregiving difficulties that mothers of children with spina bifida experience from their own perspectives. Methods: A qualitative descriptive study was designed. Data were collected from five mini-focus group interviews and four individual interviews using open-ended questions. Nineteen mothers of children with mild spina bifida participated in the study during 2014-2015. Data were analyzed using qualitative content analysis to identify major difficulties perceived by the mothers. Results: Five domains were identified with 12 subdomains. "Daily routine continence management" describes difficulties arising in bladder and bowel management for the child with spina bifida. "Management of school life of child" deals with difficulties in relation to the school facilities, such as the toilets, as well as teachers and friends. "Relationship with family and neighbors" illustrates problems in relations with their spouse, normal children, relatives and neighbors. "Maintaining physical and psychological health" includes physical and psychological problems of the mothers. "Finance" describes economic burden that the mothers face in the management of child's illness. Conclusion: The findings from this study provide insight into the practical issues related to the management of chronic conditions of children with spina bifida from the mothers' perspectives.

• 한국사회복지학
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• 제66권2호
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• pp.101-125
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• 2014

본 연구는 보육료 지원 확대가 미취학자녀가 있는 중하위소득 가구 여성의 노동, 돌봄, 가사, 여가시간 배분에 미치는 영향을 확인하였다. 2004년과 2009년 통계청 생활시간자료를 이용하여 SUR(Seemingly unrelated regression) 방식을 적용한 삼중차이 토빗분석을 실시한 결과, 보육료 지원 확대는 미취학자녀가 있는 중하위소득 가구 여성의 노동, 돌봄, 가사시간 배분에 영향을 미친 것으로 나타났다. 보육료 지원 확대로 인해 미취학자녀가 있는 중하위소득 가구 여성의 노동시간은 증가하였으며, 돌봄과 가사시간은 감소한 것으로 나타났다. 이는 여성의 경제활동 참여 증진과 자녀양육부담 완화라는 보육료 지원제도의 목표에 부합하는 결과이다. 하지만 그 유의수준이 낮고, 미취학자녀가 있는 여성 전체의 보육료 지원 확대 전후 시간 변화는 여전히 노동(-), 돌봄(+), 가사(+)였다는 점을 고려할 때 보육료 지원 확대가 미취학자녀가 있는 여성의 생활시간 배분에 미치는 영향은 미미할 수 있음을 유추할 수 있다. 이러한 결과를 바탕으로 본 연구는 보육료 지원의 정책효과를 극대화하기 위해서는 보육료 지원 확대와 더불어 보육서비스의 공급구조와 품질관리에 내실을 기하고, 경력단절 예방을 위한 고용정책을 개선할 필요가 있음을 제언하였다.