• Title/Summary/Keyword: Caregiver Burden

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A Study on the Burden of Family Caregiving with the Mentally Ill and Professional Needs to It (정신질환자 가족의 부담감과 전문적 도움과의 관계연구)

  • 오현주
    • Journal of Korean Academy of Nursing
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    • v.30 no.1
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    • pp.202-212
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    • 2000
  • The purpose of this study was to identify the relationship between the burden of family with the mentally ill and professional needs. Data collection period was from June 29, 1998 to July 30, 1998. The subjects for the study was 134 family members of psychiatric in-patients and out-patients in Taejon and Chungnam. The questionnaire developed by OK-KYUNG YANG to measure the family burden and professional needs was used for this study. The tools used for this study were composed of General characteristics(30 items), family burden(43 items), professional needs(26 items). The data was analyzed by using on SPSSWIN program and included percentage, mean, S.D., t-test, ANOVA and Pearson correlation coefficient. The results of the analysis were as follows; The mean score of family burden was 134.26, which is higer than the mean score of the instrument. The mean score of professional need, the family caregiver who supporting of mentally ill patients, was .48 which is lower than the mean score of the instrument. Family burden was statistically correlated with professional needs(${\gamma}$=.6139, P<.001). There were statistically differences in family burden for respondent's relation, location of living, most care money giver, substant care money giver. There were statistically significant difference in professional need for family age, marriage status, substant care money giver, information status. The conclusion that can be drawn from this study is that addressing professional needs would contribute to reduce burden of the family caregivers with mentally ill. Therefore, Nursing interventions are needed to reduce family burden.

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Factors Affecting Family Caregivers' Burden and Depression in Home-based Long-Term Care Service under the Long-Term Care Insurance System

  • Lee, Hung Sa;Kim, Chunmi
    • Research in Community and Public Health Nursing
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    • v.29 no.4
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    • pp.530-538
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    • 2018
  • Purpose: This study tried to identify changes in family burden after the introduction of the long-term care insurance and to examine the factors influencing subjective and objective caring burden and depression of family caregivers of elders receiving home-based long-term care. Methods: Data were collected from 203 family caregivers of elders from August 1 to 31, 2015 using questionnaires. They were analyzed in descriptive statistics, t test, ANOVA test, and multiple regression analysis. Results: The mean score of depression was 7.24, which suggested mild depression level. The subjective family burden was 2.71 and the objective burden 3.04. The factors affecting depression included subjective burden (t=5.08, p<.001), objective burden (t=2.80, p=.006), time of elderly care per day (t=-3.61, p< .001), caregiving duration (t=3.33, p=.001), age (t=3.13, p=.002), family relationship (t=2.48, p=.014), and economic status (t=1.99, p=.047). Conclusion: The family burden was most important influencing factor on caregiver's depression. Therefore, services and supports to alleviate caregivers' burden in the home-based care should be added to long-term care.

Effects of Tailored Occupational Activity Program applied to Patients with Dementia and Their Caregiver in Community (지역사회에 거주하는 치매환자와 보호자에게 적용한 맞춤형 작업 활동 프로그램의 효과)

  • Hwang, Yun-Jung;Lee, Kamg Sook;Lim, Hyun-Kook;Kim, Dai Jin;Jeong, Won-Mee
    • 한국노년학
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    • v.31 no.1
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    • pp.129-141
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    • 2011
  • This study aims to find out effects of a tailored occupational activity program(TOAP) on the activities of daily living(ADL), cognitive function, depressive mood, and caregiver burden, who live in the community. Method : From October 2009 to May 2010, the TOAP was applied to 15 dementia patients and 15 of their caregivers, who was visitors of the Y-city Center for Managing Dementia in Gyunggi-do. The TOAP was designed for habituating patients and caregivers to the techniques acquired through goal activities and task and making it capable of being routinized regularly. The TOAP was applied to dementia patients and their cvaregivers twice a week for 7 weeks(one-time home visit, one-time phone inspection), a total of 14 times. Results: Significant differences among pre-test and post-test were found in the AMPS motor skills(1.10±1.14 and 1.34±1.2 respectively) scores, AMPS process skills(0.32±0.55 and 0.77±0.66 respectively) scores, ACL(3.86±0.65 and 4.17±0.64 respectively) scores, MMSE-KC(17.33±4.6 and 19.33±4.97 respectively) scores, GDS(11.73±6.87 and 8.53±7.09 respectively) scores, and caregiver burden(31.80±20.06 and 26.13±18.07 respectively) scores(p<0.05). A significant effect was confirmed from the TOAP which ADL, cognitive function, reduced patient's depression and caregiver burden(p<0.05). Conclusion: From the above results that a TOAP has an effect on the improvement of the ability to ADL, cognitive function and reduced depression and caregiver burden of dementia patients living in community. The present author hopes that, in the future, more diverse community based on tailored occupational activity programs will be developed to improve the functions of dementia patients living in community.

A Study of Care Burden, Burnout, and Quality of Life among Family Caregivers for the Elderly (노인 주 부양자의 부양부담감, 소진감 및 삶의 질에 대한 연구)

  • Joo, Kyung-Bock;Kim, Kwuy-Bun
    • Women's Health Nursing
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    • v.14 no.4
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    • pp.278-289
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    • 2008
  • Purpose: This study was a survey to provide basic data about nursing interventions for improving the quality of life among family caregivers for the elderly by examining their care burden, burnout, and quality of life, and by confirming the correlation between each of them. Method: The subjects were 215 people in Seoul and Gyeonggi Province who understood the purpose of this study and participated voluntarily from April 1 to June 4, 2007. Data was analyzed by the SAS program. Result: 1. Concerning primary caregivers of the elderly, it was found that their care burden was slightly high, burnout was high and quality of life was good on the whole. 2. When it comes to the correlation among care burden, burnout, and quality of life among family caregivers, it was found that burnout increases in proportion to care burden, quality of life decreases as care burden increases, and bigger burnout leads to a lower quality of life. Conclusion: The quality of life among primary caregivers should be improved by reducing their care burden and burnout. Thereby, a priority might be considered for admission to nearby, comfortable nursing homes or failing that, home visiting services, rather than family support in the home.

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Role and Role Burden of Caregivers with Hospitalized Children (입원아동 보호자의 역할과 역할부담감)

  • Jeong, Eun;Kwon, In Soo
    • Korean Parent-Child Health Journal
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    • v.18 no.1
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    • pp.28-38
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    • 2015
  • Purpose: This study was conducted to identify the role and role burden of caregivers with hospitalized children. Methods: The participants included 149 main caregivers from two pediatric hospitals whose children have been hospitalized for at least 2 days at children's hospital. The data were collected from August 1 to september 30, 2013 using self-report questionnaires of checklist type for caregivers' role and Likert scale for role burden. Results: Role for hospitalized children showed that personal hygiene was the highest, and consultation with nurses and doctors was the lowest in total frequency per day. Of the role for the caregivers themselves and family, personal hygiene was the highest, and home management was the lowest. The degree of role burden perceived by hospitalized children's caregivers was the slightly high. Of the categories, emotional burden was the highest and dependent burden was the lowest. There were differences by caregivers' age, children's age, and children's health status. Conclusion: The caregivers performed various roles, especially more frequently on personal hygiene and nutrition for their hospitalized children and themselves and family, and had slightly high role burden. These results may contribute to develop nursing interventions that can help adapt on hospitalization of children and their caregivers.

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Factors Influencing the Burden Felt by Main Family Caregivers of Elderly Patients with Brain and Spinal Diseases (뇌.척추질환 노인 환자 주 가족수발자의 부담감에 영향을 미치는 요인)

  • Park, Hee-Kyung;Park, Kyung-Min
    • Research in Community and Public Health Nursing
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    • v.22 no.4
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    • pp.389-398
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    • 2011
  • Purpose: This study of this study was to identify factors influencing the burden of main family caregivers who take care of elderly patients with brain and spinal diseases. Methods: This was conducted as descriptive research and data were collected from 255 main family caregivers who were taking care of elderly patients with brain and spinal diseases from 4 hospitals in Daegu and Gyeongbuk Province. Stepwise-multiple regression was used to identify the influencing factors of burden felt. Results: As the score of burden felt by the main family, economic, social, physical, interdependent and emotional burdens were high in order. Factors influencing burden felt by main family care givers taking care of elderly patients with brain and spinal diseases were changed relation with patient after hospitalization, daily life ability, marital status, education and family caregiver's personality (explanatory power of 24.6%). Family caregivers felt a heavier burden when their relation with the patient was changed negatively or when the patient's activity of daily living was low. Conclusion: Based on these results, we need to develop coping measures and interventional programs for reducing the burden felt by the main family caregivers of elderly patients with brain and spinal diseases.

Burden and Quality of Life in Caregivers of Patients with Rare and Incurable Disease (재가 희귀.난치성질환 돌봄 제공자의 부담감과 삶의 질)

  • Choi, Kyung-Ja;Baek, Hee-Chong
    • Research in Community and Public Health Nursing
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    • v.17 no.3
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    • pp.364-375
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    • 2006
  • Purpose: The purpose of the study was to investigate burden and the qualify of life in caregivers who are taking care of home-based rare and incurable disease patients. Methods: The subjects of this study were 300 caregivers of rare and incurable disease patients registered at five health centers in Seoul. A survey was conducted by mail and visit in person during the period from the 25th of March to the 12th of May 2005. Collected data were analyzed through t-test, ANOVA, Pearson's correlation coefficient. Result: The mean burden of caregivers was 3.42, and the mean qualify of life of caregivers was 2.71. Burden and QoL showed significant differences according to caregivers' characteristics such as sender, age, relation to the patient, academic qualification, religion, occupation, monthly household income and perceived health condition. Caregivers' burden was in an inverse correlation with their quality of life. Conclusions: According to the results of this study, rare and incurable disease caregivers' burden and their quality of life were in a significant correlation with each other. In order to improve caregivers' quality of life by reducing their burden, we need to reestablish comprehensive policies for rare and incurable disease management including nursing intervention strategies for caregivers.

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The Influence of Culture on the Experiences of Korean, Korean American, and Caucasian-American Family Caregivers of Frail Older Adults: A Literature Review

  • Kong, Eun-Hi
    • Journal of Korean Academy of Nursing
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    • v.37 no.2
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    • pp.213-220
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    • 2007
  • Purpose. The purpose of this review is to explore cultural influences on the experiences of Korean, Korean American, and Caucasian American family caregivers caring for frail older adults in terms of the selection of a primary caregiver, caregiving motivation, support/help-seeking, and negative emotional responses (depression and burden). Methods. Seven electronic databases were searched to retrieve studies from 1966 to 2005. Thirty-two studies were identified. Results. This review supported cultural influences on the selection of primary caregiver, caregiving motivation, and support/help-seeking among the three caregiver groups. In Korean caregivers, the major primary caregivers were daughters-in-law while among Korean American and Caucasian American caregivers, the major primary caregivers were daughters or spouses. As a major caregiving motivation, Caucasian American care¬givers reported filial affection while Korean caregivers and Korean American caregivers reported filial obligation. Korean caregivers reported higher extended family support, while Caucasian American caregivers reported higher utilization of formal support. Korean caregivers showed the highest levels of depression followed by Korean American caregivers and Caucasian American caregivers. Conclusion. In order to develop culturally appropriate interventions and policies, more research is needed to further explain these differences among the three groups, especially regarding support/help-seeking and negative emotional responses.

Health-Related Quality of Life among Women Caregivers of Older Adults with Dementia (치매노인을 부양하는 여성의 건강관련 삶의 질)

  • Kim, Myoung Soo;Kim, Dong-Hee;Kim, Jung Soon;Park, Kyung Yeon;Park, Nam Hee
    • Korean Journal of Adult Nursing
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    • v.19 no.1
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    • pp.24-34
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    • 2007
  • Purpose: The objective of this study was to define the predictors of health related quality of life(HRQoL) of women caregivers of the demented elderly patients. Methods: The subjects of this study were 140 pairs of patients with dementia and their caregivers. The characteristics of dementia patients and caregivers, Barthel index and SF-36 were measured in this study. T-test, ANOVA, Pearson correlation coefficient, and stepwise multiple regression were used for data analysis. Results: The health related quality of life(HRQoL) score of women caregivers was $288.35{\pm}66.10$ for norm based scoring. HRQoL of women caregivers was correlated with patients' ADL, severity of dementia, caregivers' age, burden, and family support. The major factors that affected the physical components of women caregivers of patients with dementia was the age of the caregiver, burden, and ADL which explained 36.0% of HRQoL. The main predictors of women caregivers' emotional state was the caregiver's burden. Conclusion: Patients' support systems must be implemented to improve the physical HRQoL of caregivers. A caregivers' burden relief program needs to be prepared to increase their emotional HRQoL and further studies and efforts will be needed to evaluate those effects.

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Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

  • Turkoglu, Nihan;Kilic, Dilek
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.8
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    • pp.4141-4145
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    • 2012
  • In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was $36.6{\pm}11.2$; and their score mean of CQOLC was $81.4{\pm}17.3$. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.