• Child Health Nursing Research
• /
• v.19 no.1
• /
• pp.21-28
• /
• 2013

Purpose: This study was done to provide basic data for developing nursing interventions to enhance quality of life of pediatric patients with cancer (children and adolescents) by examining the quality of life and related factors. Methods: Participants were 134; 67 pediatric patients and 67 parents. The PedsQL$^{TM}$ 3.0 Cancer Module was employed to measure quality of life in the participants. The related factors included general and clinical characteristics of the participants. Results: Mean score for quality of life in the patients was 75.07, and mean score for patient quality of life as perceived by their parents was 64.40. Among the quality of life subscales, treatment anxiety had the highest score whereas nausea had the lowest score. Mean score in adolescent patients (13-18 years of age) was 71.62, lower than the 78.04 for child patients (8-12 years of age). Regarding general and clinical characteristics of the participants, there were no significant differences in the scores. Conclusion: The results indicate that there is difference in perception of quality of life between patients and their parents, and between children and adolescents and these differences should be taken into account when planning and providing nursing care.

• The Journal of Korean Academy of Sensory Integration
• /
• v.18 no.1
• /
• pp.1-12
• /
• 2020

Objective : In this study, we are going to check the impact of the daily performance of a child with developmental disabilities on the parent's burden and quality of life. Methods : 120 parents of children with developmental disabilities were targeted in Chungcheong and Jeolla provinces. To measure the daily performance ability of children with developmental disabilities, we used evaluative Pediatric Evaluation of Disability Inventory and The burden of parents was measured by Family Burden Questionnaire and the quality of life by Beach Center Family Quality of Life Scale. Based on the data collected, independent t-test, one-way anova, Pearson correlation analysis and regression analysis were conducted to check the impact of a child's daily performance ability of developmental disability on the parent's burden and quality of life. Results : The daily performance ability of a children with developmental disabilities showed a negative correlation with the burden of the parents and a positive correlation with the quality of life. The hygiene and bowel & bladder control of children with developmental disabilities had an important influence on parent's burden, while hygiene, toileting, and bowel & bladder control of children with developmental disabilities had a significant effect on their parent's quality of life. Conclusion : It has been shown that the daily performance ability of a children with developmental disabilities has a major influence on parent's burden and quality of life. In order to reduce the burden and improve quality of life, therapeutic intervention, education and interview programs for daily life of children with developmental disabilities need to be carried out systematically by occupational therapists.

• Korean Journal of Psychosomatic Medicine
• /
• v.11 no.2
• /
• pp.159-169
• /
• 2003

Objectives: The object of this study was to compare between perceived stress, coping strategies and quality of life between parents of childhood cancer and normal controls. Methods: Global assessment of recent stress(GARS) scale and symptom checklist-90-revised (SCL-90-R) were used to measure perception for stressors and stress responses(psychopathology). Coping scale and Smithklein Beecham quality of life scale were used to measure coping strategies and quality of life. Results: Scores of perceived stress related to interpersonal, changes in relationship, sickness or illness, financial, unusual happenings on the GARS scale were significantly higher in parents of childhood cancer than normal controls. Scores of the SCL-90-R, somatization, depression, anxiety, hostility subscale were also significantly higher in parents of childhood cancer than normal controls. Scores of self control and positive reappraisal were significantly higher in parents of childhood cancer than normal controls. Parents of childhood cancer scored significantly lower in quality of life than normal controls. Scores of depression were also significantly higher in parents of children diagnosed as acute lymphocytic leukemia(ALL) than those as acute nonlymphocytic leukemia(ANLL). Conclusions: The results suggest that patients with parents of childhood cancer were likely to have higher levels of perceived stressor and psychopathology and lower quality of life than normal controls.

• The Journal of Korean Academy of Sensory Integration
• /
• v.20 no.2
• /
• pp.22-35
• /
• 2022

Objective : This study was conducted to investigate the stress, anxiety, depression, and quality of life that parents of children with disabilities have according to their general characteristics and determine the correlation between stress, anxiety, depression, and quality of life. Methods : The subjects were 242 parents of children with disabilities under the age of 13 receiving treatment at rehabilitation centers for the disabled, rehabilitation hospitals, and child development centers located in D, B, and U metropolitan cities. Results : According to the result of analyzing the correlation between stress, anxiety, and depression that the parents of children with disabilities felt and the quality of their lives, the quality of their lives correlated negative with their stress, anxiety, and depression. In the case of the results according to the parents' general characteristics, stress showed a significant difference depending on the education level, monthly income, and anxiety showed a significant difference depending on child rearing time, occupation, and public transportation. Additionally, depression and the quality of life had a significant difference depending on child rearing time, education level, occupation, and monthly income. Conclusion : The results of this study identified the importance of the mental health of the parents of children with disabilities and the correlation between their mental health and quality of life. Social distancing and quarantine rules that children with disabilities must follow have limited their opportunities to receive education and treatment, so the influence of stress, anxiety, depression that the parents of children with disabilities who should continue to take care of their children should be considered. Based on these results, it is necessary to develop support services for the parents of children with disabilities for enhancement in their mental health in preparation for other disasters in the future.

• Clinical and Experimental Pediatrics
• /
• v.52 no.9
• /
• pp.1005-1014
• /
• 2009

Purpose:Epilepsy of child may cause high level of psychosocial difficulties for parents including stigmatization and stress and therefore worsen their quality of life (QOL). The purpose of this study was to evaluate the mediating effect of perceived stigma against epilepsy on QOL among parents with epileptic child. Methods:Two hundred and sixty parents of epileptic child recruited from five separated university hospital child neurology clinics specializing in epilepsy completed a demographic questionnaire, a medical questionnaire, a perceived stigma questionnaire and the Ro's Quality of Life Inventory, a popular tool for evaluating QOL of adults in Korea which is composed of 6 domains and 47 questions. Data was analyzed with SPSS 14.0 program using frequency analysis and descriptive analysis and with AMOS 7.0 program using Structural Equation Model (SEM) analysis. Results:The level of parents' QOL was relatively fair. SEM analysis on the quality of life level of parents showed that all variables (especially having religion, the monthly income, employment state, age of child, the leisure time, the perceived stigma level against epilepsy, and seizure frequency) directly affect the quality of life level of parents and that disease-related variables also affect the quality of life level of parents indirectly through the mediating factor (the perceived stigma), where the indirect effect is large with the existence of combined disabilities. The total effect on the quality of life level of parents is large with the existence of combined disabilities, the perceived stigma level, the leisure time, having religion, and the monthly income. Conclusion:The results of this study indicated that many factors including parents' perceived stigma may affect the quality of life of parents with epileptic children directly, and that some disease-related factors may affect indirectly through a mediating factor, the perceived stigma. Multidisciplinary collaboration would be imperative for their welfare.

• Korean Journal of Social Welfare
• /
• v.58 no.1
• /
• pp.265-290
• /
• 2006

The purposes of this study are: First, to investigate how the juvenile delinquents in the juvenile justice process evaluate their quality of life. Second, to examining which factors influence their quality of life. To accomplish these purposes, this study used sample of 570 juvenile delinquents in Seoul, Busan, Daejeon who are in the process of the juvenile justice and used the Korean Version of WHOQOL-BREF (brief version of WHO quality of life measure). To examine this purpose, Mean, standard deviation, t-test, One way ANOVA, multiple regression were conducted. The results are as follows: 1) juvenile delinquent in the process of the juvenile justice have complex problems and needs, and their quality of life are lower than the civil in the psychological, social relations, environment domain. 2) The factors influencing their quality of life in the general domain are stigma by parent, violent, undemocratic treatment in the process of the juvenile justice, family income level. But the factors of each domain of quality of life differ to some extent. Statistically significant factors of physical health domain are violent, undemocratic treatment in the process of the juvenile justice, first arrest time, stigma by others, sex, juvenile justice process. Significant factors of psychological health domain are delinquency frequency, stigma by parent, stigma by others, first arrest time, family income level, sex. Significant factors of social relations domain are first arrest time, stigma by parent, delinquency frequency, family income level, stigma by friend. Environment is significantly influenced by family income level, stigma by parent, sex, delinquency frequency, juvenile justice process.

• Korean Journal of Health Psychology
• /
• v.16 no.3
• /
• pp.483-500
• /
• 2011

Since the introductionof modern therapies, more children with cancer have survived their illness. As a result, an interest in the degree of adjustment achieved by cancer survivors has increased. In this study, quality of life and behavior problemsof child and adolescent cancer survivors were compared with those of healthy controls. Also, the patternsof the discrepancy between parent-report and self-report were compared. Childhood cancer survivors aged 8-18 and their mothers were participated in the study. Parent and self report versions of PedQL were administered to assess the quality of life. K-CBCL and K-YSR were further completed to assess internalizing and externalizing behavior problem. Results suggested that cancer survivors generally showed lower quality of life in physical and social domains and more internalizing behavior problem than healthy control group. However, the results were affected by the domain, age group, and informant. The pattern of discrepancy between parent and self report was similar. All parents reported higher levelsof quality of life and lower levels of behavior problems compared to the self reports of their siblings. In assessing internalizing problem behaviors, cancer survivor group showed greater discrepancy than the healthy control group.The implications, limitations, and directions for future research were also discussed.

• Journal of Digital Convergence
• /
• v.14 no.9
• /
• pp.63-72
• /
• 2016

Given that the number of people with developmental disabilities is continuously increasing in Korea, we need to pay attention to the lives of parents who rear the children with developmental disabilities. Accordingly, this study examined the effects of parenting stress on the quality of life in parents of children with developmental disabilities, and moderating effects of information application in the process. This study conducted a survey to 194 parents who rear such children in Chungnam and Chungbuk provinces. This study utilized PASW Statistics 18.0 for analysis, and the study results are as follows. First, it was found that parenting stress was more than average level, and information application was somewhat lower than average level. Quality of life was found to be lower than average level, and the level of relationship with neighborhood and emotional condition was relatively lower than other sub-factors. Second, influential factors of life quality were parenting stress, disability degree, information application, residential area, and disability type. Third, information application was found to have moderating effects on the relationship between parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with developmental disabilities.

• The Journal of the Korea Contents Association
• /
• v.16 no.10
• /
• pp.492-502
• /
• 2016

This study examined the effects of parenting stress on the quality of life in parents of children with disability, and moderating effects of welfare service perception in the process. This study conducted a survey to 327 parents who rear such children in Chungnam, Chungbuk and Daejeon provinces. This study utilized SPSS 18.0 for analysis, and the main results of this study were as follows. First, the level of parenting stress is shown higher level in parents who rear the children with developmental disabilities. The level of welfare service perception and quality of life is shown higher level in parents who rear the children with physical disabilities. Second, common influential factors of life quality were parenting stress, welfare service perception, sex of parents, disability degree and residential area. For parents who rear the children with developmental disabilities, education level of parents and for parents who rear the children with physical disabilities, age of Children show to be influential. Third, welfare service perception is shown to be statistically significant so that moderating effects is found in the relationship between the parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with disabilities.

• 한국노년학
• /
• v.32 no.3
• /
• pp.895-912
• /
• 2012

The authors aimed to identify the patterns of mutual support between aged parents and their adult offsprings and to analyze the demographic and social characteristics of each pattern and the quality of living for the aged parents. The data of the study were drawn from the 2008 Survey of the Living Conditions and Welfare for the Elderly published by the Ministry of the Health and Welfare. The sample of our analysis was 14,843 aged persons with their adult offsprings. A cluster analysis produced four types of mutual support patterns: High mutual supporters, parents as beneficiaries, parents as benefactors, ans low mutual supporters, with parents as benefactors as the most frequent pattern of mutual support. The study showed that the group of high mutual supporters was highest in the quality of life while the group of parents as beneficiaries lowest. This findings imply that the support relationship between old people and their adult offsprings may undergo transformation towards a two-way relation of mutual support.