• Korean Journal of Occupational Health Nursing
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• v.15 no.2
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• pp.104-114
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• 2006

Purpose: This study was designed to examine the basic data for an effective measure for the caregiver's burden and adaptation of industrial accident patient. Method: The data were computerized by the SPSS/pc for Window. Results: 1) The burden felt by the caregiver of the patients who were in hospital was more than 'average', and objective burden was higher than subjective one. 2) The adaptation felt by the caregiver was more than 'average'. 3) The objective burden of the caregiver based on the general characteristics varied in the relationship between the caregiver and the patient, the level of education of the caregiver, the age of the caregiver, nursing period, nursing time per day, and so forth. The subjective burden was significantly related to the relationship between the caregiver and the patient, the level of education of the caregiver, the age of the caregiver, nursing period, nursing time per day, and the religion. 4) The adaptation of the caregiver based on the general characteristics varied in monthly income and nursing period. 5) The relationship between the burden and adaptation of the caregiver were reverse. Conclusion: Even though the caregiver have high burden, they positively adaptation it.

• 한국노년학
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• v.38 no.3
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• pp.501-519
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• 2018

The purpose of this study was to explore perception about shared decision making of family caregivers of patients with early dementia (PWED). This study was conducted with a sample of 12 family caregivers (mean age = $71.4{\pm}10.4$) of PWED from three dementia safety centers in Seoul. In-depth interviews were done for each participant about shared decision making and data were analyzed using qualitative content analysis. Six categories and 17 sub-categories identified for participants' perception about shared decision making: means to facilitate communication with patients with dementia, means to secure autonomy of patients, opportunity to facilitate treatment, cause of increasing family caregivers' burden, cause of worsening relationship with patients, and option for choices depending on priority change. The findings of this study can provide a knowledge basis for health care professionals and policy makers to understand how family caregivers of PWED think about shared decision making. It would be of great value to develop educational programs and practical guidelines about shared decision making for PWED and their family, which may contribute to respecting PWED's self-determination right as well as reducing burden of their family.

• Journal of Hospice and Palliative Care
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• v.11 no.1
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• pp.30-41
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• 2008

Purpose: This study was designed to investigate various role changes of nurses who have cared both medical cases and hospice patients and what they experienced. Methods: Focus group interviews were done 3 times and participants were 12 nurses who have worked in the hospice unit of medical ward. Results: Role changes in 4 areas such as holistic care, end-of-life care, care fur rare givers, and coordination of hospice team were reported by the participants. What they felt were as follows : fear, confusion, maturation, increasingly labor, regret, accomplishment, sympathy and depression. Conclusion: Although hospice care in general medical ward added extra tasks, it helped clinical nurses recover professional identity and led to growth of nursing by acquiring new knowledge and skill in hospice care.

• Korean Journal of Social Welfare Studies
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• v.40 no.2
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• pp.123-143
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• 2009

To investigate the reliability, validity of posttraumatic growth among Korean cancer caregiver, 295 participants were asked to complete a Korean posttraumatic growth inventory, translated from the Posttraumatic Growth Inventory (PTGI; J Trauma Stress 1996; 9: 455.471), together with the Caregiver burden scale, life style interruption scale, economic burden scale and positive adaptation scale, social support scale and questions about religious and demographic factors. Cronbach's alpha was 0.95 for the K-PTGI, indicating sufficient internal consistencies. Construct and Criterion validity were also supported. K-PTGI appeared to be a sound measure for the experience of posttraumatic growth in cancer caregivers and this study result will be able to contribute to facilitate future research.

• Korean Journal of Adult Nursing
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• v.18 no.3
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• pp.457-467
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• 2006

Purpose: The purpose of this study was to identify the main factors influencing family functioning of caregivers in families with stroke. Method: A Convenient sample of 173 primary family caregivers who take care of a stroke patient at an Oriental medicine hospital in Jeonbuk. Interviews were done with a standardized questionnaire including family functioning by nurses. Results: In Pearson's correlation analysis, the influencing factors related to family functioning were ADL(p=.017), level of paralysis(p=.019) as stressors, Quality of relation(p=.000) as situational variables, and family caregivers' burden(p=.000). Stepwise multiple regression analysis showed 29.9% of the variance family functioning was significantly accounted for by the quality of relationship between stroke patient and caregiver(26.8%), and caregiver burden(3.1%). Conclusions: Findings indicate that families of stroke patients need family-focused nursing intervention as supported care to improve the relationship between patient and primary caregiver and relieve caregiver burden by culturally tailoring to Korean.

• 재활복지
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• v.18 no.4
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• pp.95-117
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• 2014

This study aims to examine the effects of personal assistance services(physical activity support, homemaking activity support, social activity support) on caregiver burden and determine whether family resilience(family belief system, family cohesion, interaction) has a moderating effect between personal assistance services and caregiver burden, thereby presenting a reference data which can be used to seek a practical measure for handicapped welfare. This study was conducted on 200 primary caregivers with disabled family members of rank 1 or 2 in east, west, south, and north Gyeonggi-do using personal assistance services. Data was collected in 2013 from April 1 to May 15, and was analyzed using the SPSS 19.0 statistics program in which a moderated multiple regression analysis based on exploratory factor analysis, confirmatory factor analysis, and hierarchical regression analysis was performed. The primary conclusions of this study were as follows; First, the use of physical activity support was showed to have a positive effect in reducing family burden related to disabled care. Second, personal assistance services exhibit significant moderator effects related to family burden in family belief systems and family cohesion.

• Korean Journal of Adult Nursing
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• v.12 no.3
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• pp.384-395
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• 2000

This study examined burdens of primary family caregivers, and family functioning of patients with cancer. In addition, the relationship between two concepts was assessed to develop nursing intervention to reduce the burdens of caregiving, and to improve family functioning. Ninety-two primary family caregivers of patients with cancer at a general hospital in Seoul participated in this study. The patients with cancer aged from 19 to 84 years with a mean age of 51 years, and sixty-one percent were male. About 30 percent of the patients suffered liver and billiary tract cancer. Fifty-six percent of the primary family caregivers were spouses of the patients and 70.7 percent were women. Primary family caregivers' burdens were assessed by the Burden Scale originally developed by Zarit (1980) and Novak & Guest(1989) and modified by Jang (1995) for use in Korea. The instrument consists of six subscales: time-dependent burden, developmental burden, physical burden, emotional burden, social burden, and financial burden. Family functioning was assessed by the Family APGAR developed by Smilkstein(1978). The results were as follows: 1. The average burden score was 86.1, indicating a moderate level of burden. The time-dependent burden scored highest followed by developmental, physical, social, financial, and emotional burdens. The mean score of family APGAR was 9.71; among subjects 82.6% were included in dysfunctional families. 2. Of the characteristics of patients, age, gender, number of admissions, and job were found to be associated with the level of burden. There was no significant difference between patient characteristics and family functioning. Of the characteristics of primary family caregivers, caregiver's perception of patient prognosis was significantly related to the level of burden, and family functioning. Caregiver's sex and age were also related to family functioning. The quality of relationship between a patient and a caregiver was significant situational factors affecting the level of burden, and family functioning. In addition, the income of family, and help from other family members were related to the level of burden. Given the results, it is essential to develop nursing intervention to reduce burden and to improve family functioning, such as support groups.

• The Journal of the Korea Contents Association
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• v.17 no.11
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• pp.229-241
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• 2017

The purpose of this study is to examine the Influence of burden of care for families of the mentally disabled on the quality of life and the moderating effect of family resilience and social support. This study carried out a survey of 102 families of the mentally disabled registered in the mental health centers and social rehabilitation facilities in Seoul, Gyeonggi and Incheon areas. As a result, first, the burden of caring for families of the mentally disabled has a negative impact on the quality of life. Second, family resilience has a moderating effect on the relationship between the burden of care and the quality of life of families of the mentally disabled. The subscales of family resilience were all buffered. Finally, social support has proved to be moderating in the relationship between the burden of care and the quality of life. Based on the results of this study, it was suggested that the need for providing information for improving the resilience of the family is needed, and the institutional support to mitigate the economic burden of the mental disabled family's social support network is needed.

• Journal of Industrial Convergence
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• v.19 no.3
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• pp.97-105
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• 2021

The purpose of this study was to determine the effect of family cohesion and burden of support on life satisfaction of disabled families and ultimately support the satisfied life of disabled families. The study investigated the factors that influence the life satisfaction of the disabled family through a questionnaire survey as a disabled family caring for a disabled family. As a result of the study, life satisfaction of families with disabilities was as low as 2.278 on a 5-point scale, and the burden of support was 3.432, indicating that they felt a relatively high burden of support. However, family cohesion was relatively good at 3.664, showing that support to lower the burden of support was needed to increase life satisfaction. Based on these findings, the researcher makes the following suggestions to increase the life satisfaction of disabled families. First, the need for support to alleviate the burden of caregivers for the disabled. Second, expanding support for people with disabilities receiving care. Third, there is a need to strengthen support for families with disabilities. However, as this study was conducted centered on Gyeonggi-do, there is a need for follow-up research as the study has limitations.

• The Monthly Diabetes
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• s.287
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• pp.49-51
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• 2013

최근 만성콩팥병 환자의 생존율이 증가하였고, 환자들도 정상적인 삶을 살고자 하는 요구가 증가되면서 삶의 질에 대한 관심이 고조되고 있다. 그러나 만성콩팥병 환자의 투병생활은 질병자체의 고통 뿐 아니라 지속적인 검사, 치료 그리고 잦은 입 퇴원으로 경제적인 부담감, 완치가 아닌 기계에 의존한 생명 연장의 수단이기 때문에 죽음에 대한 불안과 위협, 가정 내역할과 책임의 변화로 가족갈등의 심화, 신체상의 변화로 원활한 대인관계 어려움, 사회적 고립 및 삶에 대한 의미상실 등을 초래할 수 있다. 이렇듯 만성콩팥병 환자는 여러 어려움을 직면하게 되는데 이를 구체적으로 살펴보고자 한다.