• Journal of the Korea Academia-Industrial cooperation Society
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• v.16 no.6
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• pp.3954-3962
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• 2015

Purpose: The purpose of this study was to examine the burden and quality of life among family caregivers of terminal cancer patients and the relationship of these variables. Methods: Data were collected from 80 family caregivers and analyzed using SPSS 19.0 program. Results: Burden was found to have significant relationships with age, marriage, relations with patients, living together with patients and medical expense burden(p<.05). Quality of life was found to have significant differences according to age, marriage, educational background, relations with patients and living together with patients(p<.05). Burden and quality of life showed a negative correlation(r=-.538, p<.001). Conclusion: These results suggest that more attentions and interventions such as support programs should be given to family caregivers of terminal cancer patients, which can decrease the burden of family caregivers to enhance their quality of life.

• Asian Oncology Nursing
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• v.5 no.1
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• pp.40-51
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• 2005

The purpose of this study was to explore the relationship between burden and burnout of the family care-givers for caring of terminal patients with cancer. A total of 99 convenience sample was recruited form hospitals. The data were collected by a direct interview with Questionnaire about family burden and burnout. The mean score of burnout of main care-givers was 2.98, and the mean score of burden was 3.03. The care-givers' burnout was significantly different by age, sex, job, duration of treatment, level of acceptance on the stage of death, and ability of daily living activities. The family care-givers' burden was significantly different by the jobs, complication of patients, level of acceptance on the stage of death, and ability of daily living activities. In conclusions, the burnout of family care-givers was highly and positively correlated with the burden.

• Research in Community and Public Health Nursing
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• v.25 no.2
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• pp.137-145
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• 2014

Purpose: This study was conducted to evaluate the effect of a social support program on family caregivers' role strain in elderly long-term home care. Methods: The research adopted a non-equivalent control group pretest-posttest design. The number of participants was 25 in the experimental group and 25 in the control group sampled among family caregivers in elderly long-term home care. The experimental group participated in a 10-session social support program, which consisted of physical, emotional, informational, and material support. The effect of the program was evaluated by measuring family caregivers' role strain. Results: The experimental group showed a significant decrease in family caregivers' role strain in elderly long-term home care. Conclusion: The result suggests that the social support program was effective in decreasing family caregivers' role strain in elderly long-term home care. There is a need to develop more effective and systematicsocial support programsfor family caregivers of elderly long-term home care.

• Korean Journal of Occupational Health Nursing
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• v.15 no.2
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• pp.104-114
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• 2006

Purpose: This study was designed to examine the basic data for an effective measure for the caregiver's burden and adaptation of industrial accident patient. Method: The data were computerized by the SPSS/pc for Window. Results: 1) The burden felt by the caregiver of the patients who were in hospital was more than 'average', and objective burden was higher than subjective one. 2) The adaptation felt by the caregiver was more than 'average'. 3) The objective burden of the caregiver based on the general characteristics varied in the relationship between the caregiver and the patient, the level of education of the caregiver, the age of the caregiver, nursing period, nursing time per day, and so forth. The subjective burden was significantly related to the relationship between the caregiver and the patient, the level of education of the caregiver, the age of the caregiver, nursing period, nursing time per day, and the religion. 4) The adaptation of the caregiver based on the general characteristics varied in monthly income and nursing period. 5) The relationship between the burden and adaptation of the caregiver were reverse. Conclusion: Even though the caregiver have high burden, they positively adaptation it.

• Korean Journal of Social Welfare
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• v.61 no.2
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• pp.325-348
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• 2009

This study intends to investigate the main and mediating effects which caregiving appraisal and positive reappraisal exert on quality of life (QOL) of primary family caregivers of cancer patient considering the relationship with social support. The processes of this study areas follows. First, the variables which research model were chosen on the basis of stress-appraisal-coping theory through reviews of the previous studies. Second, a survey was conducted upon 295 primary caregiver of patient with cancer at National Cancer Center. Collected data were analyzed by SPSS 12.0 and SEM (Structural Equation Modeling) method using AMOS 5.0. The summary of the result is as follows. First, the entire model including measurement and structural model shows sufficient fit index of CFI(.951), TLI(.940) and RMSEA(.062). Second, the results of analysis of direct effects among variables are as follows. The 'Social support' has statistically significant direct effect on the 'feeling of burden' and 'growth'. The 'feeling of burden' has statistically significant direct effect on the 'growth' and 'QOL-mental and physical'. The 'growth' has statistically significant direct effect on the 'QOL-mental'. Third, the results of analysis of mediating effects of the 'social support and QOL' and 'feeling of burden and QOL' are as follows. The effects of 'social support' on 'QOL-mental' are significantly mediated by the 'feeling of burden' and 'growth'. The effects of 'social support' on 'QOL-physical' are significantly mediated by the 'feeling of burden'. The effects of 'feeling of burden' on 'QOL-mental' are significantly mediated by 'growth'. Through this research, these implications in social work study and practice are found: (1) this study extended the scope of study in the caregiver's health area from negative sides into positive ones by using growth variables as positive reappraisalof caregiving in research model, which has not been tried on the Korean family caregivers of the cancer patient. (2) The effects of positive reappraisal on QOL-mental can provide a foundational necessity for social workers to help family caregivers find positive meaning in their caregiving experience. This approach of social work practice will improve QOL of family caregivers. (3) This study present a framework including social support, negative appraisal, positive reappraisal, and QOL variables available to social work practice and explaining affective relationships among these variables in various aspects.

• Journal of Korean Academy of Nursing
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• v.31 no.2
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• pp.315-327
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• 2001

This was a descriptive study clarifying the factors affecting family caregivers' sense of well-being. This study was conducted with 131 caregivers using structured self-reporting questionnaires and directly interviewing adult patients who had been under treatment in two general hospitals. The hospitals were located in M city from Aug. 10, 2000 until Sep. 2, 2000. The collected data were analyzed using SAS PC+ program, and the data were tested using descriptive statistics, t-tests, ANOVA, Pearson's Correlation Coefficient, and Stepwise Multiple Regression. The results of this study are as follows; 1) The variables affecting the caregivers' sense of burden were age (F=3.76, p=.0063), education level (F=4.67, p=.0015), monthly income (F=2.49, p=.0466), amount of assistance provided (F=4.19, p=.0037), and the relationship with patient before disease (F=9.49, p=.0001). 2) The variables affecting caregivers' sense of well-being were age (F=9.54, p=.0001), residing with patient (t=11.38, p=.0010), the period of caregiving (F=10.52, p= .0001), education level (F= 2.79, p=.0290), monthly income (F=3.04, p=.0196), and relationship with patient before disease (F= 10.51, p=.0001). Also, all of the variables which showed statistical significance. 3) In viewing the relationship between activities of daily living (ADL) and the senses of burden and well-being, a negative relation- ship between activities of daily living (ADL) and a sense of burden was found (r=-.640, p=.000). However, the relationship between activities of daily living (ADL) and a sense of well-being had a positive correlation (r= .232, p=.008). Also the relationship between the sense of burden and the sense of well-being was revealed to have a negative correlation (r=-.614, p=.000). 4) A sense of burden was the most important indicator to the well-being of the caregivers who took care of stroke patients (R2 =.36). In addition to this, living with the patient (45%), activities of daily living (51%), relationship with patient before disease (53%), and the family's monthly income accounted for 56% of the sense of well-being of the caregivers.

• 한국노년학
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• v.38 no.3
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• pp.501-519
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• 2018

The purpose of this study was to explore perception about shared decision making of family caregivers of patients with early dementia (PWED). This study was conducted with a sample of 12 family caregivers (mean age = $71.4{\pm}10.4$) of PWED from three dementia safety centers in Seoul. In-depth interviews were done for each participant about shared decision making and data were analyzed using qualitative content analysis. Six categories and 17 sub-categories identified for participants' perception about shared decision making: means to facilitate communication with patients with dementia, means to secure autonomy of patients, opportunity to facilitate treatment, cause of increasing family caregivers' burden, cause of worsening relationship with patients, and option for choices depending on priority change. The findings of this study can provide a knowledge basis for health care professionals and policy makers to understand how family caregivers of PWED think about shared decision making. It would be of great value to develop educational programs and practical guidelines about shared decision making for PWED and their family, which may contribute to respecting PWED's self-determination right as well as reducing burden of their family.

• Korean Journal of Adult Nursing
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• v.12 no.3
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• pp.384-395
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• 2000

This study examined burdens of primary family caregivers, and family functioning of patients with cancer. In addition, the relationship between two concepts was assessed to develop nursing intervention to reduce the burdens of caregiving, and to improve family functioning. Ninety-two primary family caregivers of patients with cancer at a general hospital in Seoul participated in this study. The patients with cancer aged from 19 to 84 years with a mean age of 51 years, and sixty-one percent were male. About 30 percent of the patients suffered liver and billiary tract cancer. Fifty-six percent of the primary family caregivers were spouses of the patients and 70.7 percent were women. Primary family caregivers' burdens were assessed by the Burden Scale originally developed by Zarit (1980) and Novak & Guest(1989) and modified by Jang (1995) for use in Korea. The instrument consists of six subscales: time-dependent burden, developmental burden, physical burden, emotional burden, social burden, and financial burden. Family functioning was assessed by the Family APGAR developed by Smilkstein(1978). The results were as follows: 1. The average burden score was 86.1, indicating a moderate level of burden. The time-dependent burden scored highest followed by developmental, physical, social, financial, and emotional burdens. The mean score of family APGAR was 9.71; among subjects 82.6% were included in dysfunctional families. 2. Of the characteristics of patients, age, gender, number of admissions, and job were found to be associated with the level of burden. There was no significant difference between patient characteristics and family functioning. Of the characteristics of primary family caregivers, caregiver's perception of patient prognosis was significantly related to the level of burden, and family functioning. Caregiver's sex and age were also related to family functioning. The quality of relationship between a patient and a caregiver was significant situational factors affecting the level of burden, and family functioning. In addition, the income of family, and help from other family members were related to the level of burden. Given the results, it is essential to develop nursing intervention to reduce burden and to improve family functioning, such as support groups.

• Proceedings of the KAIS Fall Conference
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• 2009.12a
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• pp.934-936
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• 2009

This study was to identify the correlation between the degree of burden, stress and social support of family caregivers in ICU patient. The subjects were 146 family care givers observed at a general hospital at D city. The level of stress that family caregivers experience the average points of 2.18, which is considered less than average. The level of burden that average point of 2.51. Points for level of subjective feeling ranged from 1.74 to 3.90. The average point of 3.03 is higher than that for objectively recognized feeling. The points for social support that average point of 3.03 for social support proves that families feel positive about the social support they are receiving. The level of stress which shows that the lower the income, the higher the stress. The effect on stress shows significance in subjective feelings of burden, social support, and employment, indicating that they have correlations with stress. Both the feeling of burden and social support have an impact upon the stress that patient families experience.

• Korean Journal of Family Social Work
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• no.62
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• pp.71-102
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• 2018

The purpose of this study is to enrich our understanding of the family utilizing childcare by grandmothers and the elderly women by examining the experience of grandmothers who refused to support raising their grandchildren. The researcher focused on grandmothers who have been in charge of caring the family in the main and tried to explore the reasons for their decision not to take care of their grandchildren. For the purpose, Research participants were seven elderly women who have refused raising of their grand-children. Data were collected by in-depth interview and analyzed based on the phenomenological method. As results, it turned out that the elderly women refused caring of their grandchildren due to the burden of parenting and the rejection of an extended mother role, and the fear of family conflicts, but they felt sorry about their refusal of a request for caring support from their adult children. Second. these decisions caused various dynamics of the family members, and they were experiencing psychological difficulties. Third, elderly women perceived raising of grandchildren as a task of adult children or a problem for which the society should be accountable, and felt that the family and the society have shifted the responsibility to them. This research result confirms that a new generation of the elderly women have emerged who have different viewpoints on caregiving. It also presents a necessity to reflect the viewpoints of elderly who are mainly concerned when establishing a policy of caregiving. Based on this finding, this study also presents implications regarding support for family utilizing childcare by grandmothers and support for the elderly women.