1 |
Janssens JP, Borel JC, Pepin J. Nocturnal monitoring of home non-invasive ventilation: the contribution of simple tools such as pulse oximetry, capnography, built-in ventilator software and autonomic markers of sleep fragmentation. Thorax. 2011; 66(5):438-45. http://dx.doi.org/10.1136/thx.2010.139782
DOI
|
2 |
Bremer BA, Simone AL, Walsh S, Simmons Z, Felgoise SH. Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity. Annals Behavior of Medicine. 2004;28(2):119-25.
DOI
|
3 |
Karino M, Sato K, Ando T, Ishiguro H, Yoshikawa S, Tsutazawa T, et al. For the seamless care of home ALS patient on a mechanical ventilator the importance of reducing the sputum. Gan To Kagaku Ryoho. 2010;37(Suppl2):213-4.
|
4 |
Imaiso J, Yamauchi T. Caregiver suctioning education for Japanese patients with an invasive home ventilator. Nursing and Health Sciences. 2009;11(4):422-9.
DOI
|
5 |
Tramonti F, Bongioanni P, Di Bernardo C, Davitti S, Rossi B. Quality of life of patients with amyotrophic lateral sclerosis. Psychology, Health & Medicine. 2012;17(5):621-8. http://dx.doi.org/10.1080/13548506.2011.651149
DOI
|
6 |
Boroughs DS, Dougherty J. Multidisciplinary approach to the care of the ventilator -dependent child at home: a case study. Home Health Nurse. 2010;28(1):24-8. http://dx.doi.org/10.1097/01.NHH.0000366793.94399.9b
DOI
|
7 |
Zoccolella S, Beghi E, Palagano G, Fraddosio A, Guerra V, Lepore V, et al. ALS multidisciplinary clinic and survival: results from a population-based study in southern Italy. Jounal of Neurology. 2007;254(8):1107-12.
DOI
|
8 |
Eng D. Management guidelines for motor neuron disease patients on non-invasive ventilation at home. Palliative Medicine. 2006;20(2):69-79.
DOI
|
9 |
Ng L, Khan F, Mathers S. Multidisciplinary care for adults with amytrophic lateral sclerosis or motor neuron disease. The Cochrane Data Base of Systematic Reviews. 2011;4:1-32.
|
10 |
Heffernan C, Jenkinson C, Holmes T, Macleod H, Kinnear W, Oliver D, et al. Management of respiration in MND/ALS patients: an evidence based review. Amyotrophic Lateral Sclerosis. 2006;7:5-15. http://dx.doi.org/10.1080/14660820510043235
DOI
|
11 |
Kim DH, Kang SW, Choi W, Moon JH, Baek JH, Choi SH, et al. A research on the management of ventilatory insufficiency in patients with neuromuscular diseases. Korean Academy of Rehabilitation Medicine. 2010;34(3):347-54.
|
12 |
Kim MH, Kim HS, Park JD. Factors influencing readmission of home ventilator-assisted children. Journal of Korean Academy of Child Health Nursing. 2012;18(1):9-18. http://dx.doi.org/10.4094/jkachn.2012.18.1.9
DOI
|
13 |
Strickland SL, Rubin BK, Drescher GS, Haas CF, O'Malley CA, Volsko TA, et al. AARC Clinical practice guideline: effectiveness of nonpharmacologic airway clearance therapies in hospitalized patients. Respiratory Care. 2013;58(12):2187-93. http://dx.doi.org/10.4187/respcare.02925
DOI
|
14 |
Kim HY, Park KH, Koh SH, Lee SC, Nam JH, Kim JH, et al. Korean version of Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised: a pilot study on the reliability and validity. Journal of the Korean Neurological Association. 2007;25(2):149-54.
|
15 |
Reishtein JL. Relationship between symptoms and functional performance in COPD. Research in Nursing & Health. 2005;28(1):39-47.
DOI
|
16 |
Baker TL. Sleep apnea disorder introduction to sleep and sleep disorder. The Medical Clinics of North America. 1985;69(6):1123-52.
DOI
|
17 |
Oh SM, Min KJ, Park DB. A comparison of normal, depressed and anxious groups: a study on the standardization of The Hospital Anxiety and Depression Scale for Koreans. Journal of the Korean Neuropsychiatric Association. 1999;38(2):289-96.
|
18 |
Spielberger CD. Anxiety as an emotional state. In C.D. Spielberger (Ed.), Anxiety current trends in theory and research. New York: Academic Press; 1972.
|
19 |
Beck AT, Ward CH, Mendelson M, Mock J, Erbaugh J. An inventory for measuring depression. Archives of General Psychiatry. 1961;4:561-71.
DOI
|
20 |
Zigmond AS, Snaith PR. The Hospital Anxiety and Depression Scale. Acta Psychiatric Scandinavia. 1983;67(6):361-70.
DOI
|
21 |
Choi JS, Yeon JH. Ventilator-associated pneumonia with circuit changes every 7 days versus every 14 days. Journal of Korean Academy of Nursing. 2010;40(6):799-807. http://dx.doi.org/10.4040/jkan.2010.40.6.799
DOI
|
22 |
Kim HJ, Yi MS. Anxiety, depression and uncertainty in cancer patients participating in clinical trial of anticancer drugs. Korean Journal of Adults Nursing. 2013;25(1):53-61. http://dx.doi.org/10.7475/kjan.2013.25.1.53
DOI
|
23 |
Bae KR, Kim S. The relationships among social support, hope, anxiety, and depression in patients expecting to receive hematopoietic stem cell transplantation. Korean Journal of Adults Nursing. 2013;28(1):30-42. http://dx.doi.org/10.7475/kjan.2016.28.1.30
DOI
|
24 |
Kim JY, Min YS, Kim MS, Kim JS, Kim HL, Shin HI. A survey of respiratory care in amyotrophic lateral sclerosis patients using non-invasive ventilatory support. Journal of Korean Academy of Rehabilitation Medicine. 2010;34(1):49-53.
|
25 |
Simonds AK. Recent advances in respiratory care for neuromuscular disease. Chest. 2006;130(6):1879-86.
DOI
|
26 |
Korean Center for Disease Control. Help line for medical fee [Internet]. Chungju: CDC; 2014 [cited 2015, October 16]. Available from: http://www.cdc.go.kr/CDC/main.jsp
|
27 |
Shin HI. Survey of ventilator support in patients with rare and incurable disease. Service for scientific research report of KCDC, Seoul: Seoul National University Hospital. 2009 May. Report No.:2008-E00343-00.
|
28 |
King AC. Long-term home mechanical ventilation in the United States. Respiratory Care. 2012;57(6):921-32. http://dx.doi.org/10.4187/respcare.01741
DOI
|
29 |
Hwang MS, Chang SJ. Self-care education experience, self-care performance, and home care service needs of patients with rare and incurable diseases who use a home ventilator. Journal of Korean Academic Society of Home Health Care Nursing. 2013;20(1):5-15.
|
30 |
Heo HS. Choi SM. Quality of life in patients with amyotrophic lateral sclerosis. The Korean Journal of Rehabilitation Nursing. 2013;6(2):122-32.
|