1 |
Centers for Disease Control and Prevention. Data and statistics on congenital heart defects [Internet]. Atlanta: Centers for Disease Control and Prevention; 2019 [cited 2019 December 06]. Available from: https://www.cdc.gov/ncbddd/heartdefects/data.html
|
2 |
The Korea heart Foundation. 2018 Current status of cardiovascular disease surgery in South Korea [Internet]. Seoul: The Korea heart Foundation; 2019 [cited 2019 November 12]. Available from: http://www.heart.or.kr/korean/board/board_renew.php
|
3 |
Flocco SF, Lillo A, Dellafiore F, Goossens E. Congenital heart disease: The nursing care handbook. Switzerland: Springer International Publishing; 2019. https://doi.org/10.1007/978-3-319-78423-6
|
4 |
Azhar AS, AlShammasi ZH, Higgi RE. The impact of congenital heart diseases on the quality of life of patients and their families in Saudi Arabia: Biological, psychological, and social dimensions. Saudi Medical Journal. 2016;37(4):392-402. https://doi.org/10.15537/smj.2016.4.13626
DOI
|
5 |
Bertoletti J, Marx GC, Junior SPH, Pellanda LC. Quality of life and congenital heart disease in childhood and adolescence. Arquivos Brasileiros de Cardiologia. 2014;102(2):192-198. https://doi.org/10.5935/abc.20130244
|
6 |
Kim KN. Factors affecting adaptation in parents of newborn with congenital heart disease. The Korean Journal of Health Service Management. 2013;7(3):111-123. https://doi.org/10.1281/kshsm.2013.7.3.11
DOI
|
7 |
Son HM, Je M, Sohn YS. Quality evaluation of online health information related to young child. Child Health Nursing Research. 2018;24(1):91-100. https://doi.org/110.4094/chnr.2018.24.1.91
DOI
|
8 |
Davies S, Hall D. "Contact a family": Professionals and parents in partnership. Archives of Disease in Childhood. 2005;90(10):1053-1057. https://doi.org/10.1136/adc.2004.070706
DOI
|
9 |
Latal B. Neurodevelopmental outcomes of the child with congenital heart disease. Clinics in Perinatology. 2016;43(1):173-185. https://doi.org/10.1016/j.clp.2015.11.012
DOI
|
10 |
Marino BS. New concepts in predicting, evaluating, and managing neurodevelopmental outcomes in children with congenital heart disease. Current Opinion in Pediatrics. 2013;25(5):574-578. https://doi.org/10.1097/MOP.0b013e328365342e
DOI
|
11 |
Tremblay M, Leblanc A, Carson V, Choquette L, Connor Gorber S, Dillman, et al. Canadian physical activity guidelines for the early years (aged 0-4 years). Applied Physiology, Nutrition, and Metabolism. 2012;37(2):345-369. https://doi.org/10.1139/h2012-018
DOI
|
12 |
Longmuir P, Brothers J, de Ferranti S, Hayman L, Van Hare G, Matherne G, et al. Promotion of physical activity for children and adults with congenital heart disease: A scientific statement from the American Heart Association. Circulation. 2013;127(21):2147-2159. https://doi.org/10.1161/CIR.0b013e318293688f
DOI
|
13 |
Gaskin KL, Barron DJ, Daniels A. Parents' preparedness for their infants' discharge following first-stage cardiac surgery: Development of a parental early warning tool. Cardiology in the Young. 2016;26(7):1414-1424. https://doi.org/10.1017/S1047951116001062
DOI
|
14 |
Staveski SL, Parveen VP, Madathil SB, Kools S, Franck LS. Parent education discharge instruction program for care of children at home after cardiac surgery in Southern India. Cardiology in the Young. 2016;26(6):1213-1220. https://doi.org/10.1017/S1047951115002462
DOI
|
15 |
Wray J, Maynard L. The needs of families of children with heart disease. Journal of Developmental and Behavioral Pediatrics. 2006; 27(1):11-17. https://doi.org/10.1097/00004703-200602000-00002
DOI
|
16 |
Woolf-King SE, Anger A, Arnold EA, Weiss SJ, Teitel D. Mental health among parents of children with critical congenital heart defects: A systematic review. Journal of American Heart Association. 2019;6(2):e004862. https://doi.org/10.1161/JAHA.116.004862
DOI
|
17 |
Nieves JA, Uzark K, Rudd NA, Strawn J, Schmelzer A, Dobrolet N. Interstage home monitoring after newborn first-stage palliation for hypoplastic left heart syndrome: Family education strategies. Critical Care Nurse. 2017;37(2):72-88. https://doi.org/10.4037/ccn2017763
|
18 |
Tregay J, Brown KL, Crowe S, Bull C, Knowles RL, Smith L, et al. Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: A qualitative study. Archives of Disease in Childhood. 2016;101(10):902-908. https://doi.org/10.1136/archdischild-2014-308092
DOI
|
19 |
Moon JR. A correlation study regarding knowledge, stress and coping of parents of patients with congenital heart disease [master's thesis]. Seoul: Hanyang University; 2000. p. 1-64.
|
20 |
Lee KJ, Jo HS. Descriptive study on the development of educational program for mothers with children who have had open heart surgery in congenital heart disease. The Korean Journal of Rehabilitation Nursing. 2001;4(1):73-83.
|
21 |
Park JY. Development of educational material for parents of children with CHD [master's thesis]. Seoul: Yonsei University; 2005. p.1-116.
|
22 |
Lee S, Yoo IY. Personal resource and parenting stress of mothers of children with congenital heart disease. Journal of Korean Academy of Child Health Nursing. 2007;13(1):73-80.
|
23 |
Youn MS. The experience of the mothers about powerlessness of children with congenital heart disease [master's thesis]. Seoul: Chung-Ang University; 2001. p. 1-89.
|
24 |
Hartman D, Medoff-Cooper B. Transition to home after neonatal surgery for congenital heart disease. The American Journal of Maternal/Child Nursing. 2012;37(2):95-100. https://doi.org/10.1097/NMC.0b013e318241dac1
DOI
|
25 |
Stinson J, McKeever P. Mothers' information needs related to caring for infants at home following cardiac surgery. Journal of Pediatric Nursing. 1995;10(1):48-57. https://doi.org/10.1016/S0882-5963(05)80098-3
DOI
|
26 |
March S. Parents' perceptions during the transition to home for their child with a congenital heart defect: How can we support families of children with hypoplastic left heart syndrome? Journal for Specialists in Pediatric Nursing. 2017;22(3):e12185. https://doi.org/10.1111/jspn.12185
DOI
|
27 |
Sandelowski M. Whatever happened to qualitative description? Research in Nursing and Health. 2000;23(4):334-340. https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
DOI
|
28 |
Elo S, Kyngas A. The qualitative content analysis process. Journal of Advanced Nursing. 2008;62(1):107-115. https://doi.org/10.1111/j.1365-2648.2007.04569.x
DOI
|
29 |
Svavarsdottir EK, McCubbin M. Parenthood transition for parents of an infant diagnosed with a congenital heart condition. Journal of Pediatric Nursing. 1996;11(4):207-216. https://doi.org/10.1016/S0882-5963(96)80093-5
DOI
|