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http://dx.doi.org/10.4094/chnr.2015.21.4.331

Differences in Life Transition Process of Parents Caring for Children with Autism: Based on the Socio-Demographic Characteristics  

Lee, Ae Ran (Department of Nursing, Wonkwang Health Science University)
Hong, Sun Woo (Department of Emergency Medical Services, Daejeon University)
Publication Information
Child Health Nursing Research / v.21, no.4, 2015 , pp. 331-338 More about this Journal
Abstract
Purpose: This study was done to identify differences in the life transition process of parents caring for children with autism according to parents' socio-demographic characteristics. Methods: Participants were 194 parents caring for children with autism. Data were collected from December 2013 to February 2014 through self-report questionnaires, and analyzed using descriptive statistics, t-test, ANOVA with SPSS/WIN 20.0. Results: Mean scores for despairing or accepting phases were higher than those for denying or wandering phases in the life transition process. According to parents' gender, educational level, and job, there were some significant differences in the denying and wandering phases. Differences in denying phase by education (p=.033), job (p=.004) were significant. Respondents with higher educational level, and having a job showed a lower level of denying than other respondents. Wandering phase differed significantly by gender (p=.009) and job (p=.001). Mothers and those who did not have a job showed a higher level of wandering than fathers and those who had a job. However, there was no difference in the despairing or accepting phases. Conclusion: The life transition phase of parents with autistic children needs to be assessed to provide differentiated and intensive support program and help them move to the accepting phase.
Keywords
Autistic disorder; Parents; Life; Transition;
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Times Cited By KSCI : 3  (Citation Analysis)
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1 Hankins JS. Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation. Issues in Comprehensive Pediatric Nursing. 2012;35(1):24-44. http://dx.doi.org/10.3109/01460862.2012.646479   DOI
2 Lee AR, Kim JS. Mother's perception about the health state of disabled children and caring behaviors for their children. Journal of the Korean Society of Maternal and Child Health. 2009:13(1):24-37.   DOI
3 Govindshenoy M, Spencer N. Abuse of the disabled child: A systematic review of population-based studies. Child: Care, Health and development. 2006;33(5):552-558. http://dx.doi.org/10.1111/j.1365-2214.2006.00693.x   DOI
4 Wei X, Yu JW. The concurrent and longitudinal effects of children disability types and health on family experiences. Maternal Child Health Journal. 2012;16(1):100-108. http://dx.doi.org/10.1007/s10995-010-0711-7   DOI
5 Gray DW. Coping over time: The parents of children with autism. Journal of Intellectual Disability Research. 2006;50(12):970-976. http://dx.doi.org/10.1111/j.1365-2788.2006.00933.x   DOI
6 Altiere MJ, Kluge S. Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability. 2009;34(2):142-152. http://dx.doi.org/10.1080/13668250902845202   DOI
7 Meleis AI, Sawyer LM, Im EO, Messias DKF, Schumacher. Experiencing transitions: An emerging middle-range theory. Advanced Nursing Science. 2000;23(1);12-28.
8 Hughes C, Carter EW. Transition supports: Equipping youth for adult life. Journal of Vocational Rehabilitation. 2011;35(3):177-180. http://dx.doi.org/10.3233/JVR-2011-0567
9 Hare DJ, Pratt C, Burton M, Bromley J, Emerson E. The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism. 2004;8(4):425-444. http://dx.doi.org/10.1177/1362361304047225   DOI
10 Koenig K. Shana Nichols, Gina Marie Moravcik, Samara Pulver Tetenbaum: Girls growing up on the autism spectrum: what parents and professionals should know about the pre-teen and teenage years. Journal of Autism Development Disorder. 2010;40(8):1042-1043. http://dx.doi.org/10.1007/s10803-009-0856-7   DOI
11 Jones L, Totsika V, Hastings RP, Petalas MA. Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism Development Disorder. 2013;43(9):2090-2098. http://dx.doi.org/10.1007/s10803-012-1756-9   DOI
12 Kheir N, Ghoneim O, Sandridge AL, Al-Ismail M, Hayder S, Al-Rawi F. Quality of life of caregivers of children with autism in Qatar. Autism. 2012;16(3):293-298. http://dx.doi.org/10.1177/1362361311433648   DOI
13 Davis NO, Carter AS. Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism Development Disorder. 2008;38(7):1278-1291. http://dx.doi.org/10.1007/s10803-007-0512-z   DOI
14 Donaldson SO, Elder JH, Self EH, Christie MB. Fathers' perceptions of their roles during in-home training for children with autism. Journal of Child and Adolescent Psychiatric Nursing. 2011;24(4):200-207. http://dx.doi.org/10.1111/j.1744-6171.2011.00300.x   DOI
15 Chamax B, Bonniau B, Oudaya L, Ehrenberg A. The autism diagnostic experiences of French parents. Autism. 2011;15(1):83-97. http://dx.doi.org/10.1177/1362361309354756   DOI
16 Statistics Korea. 2014 registered disabled persons data [Internet]. Daejeon: Statistics Korea; 2015 [cited 2015 August 1]. Available from: http://www.index.go.kr/potal/main/EachDtlPageDetail.do?idx_cd=2768.
17 Lee AR, Hong SW, Kim JS, Ju SJ. Life transition of mothers of children with autism. Journal of Korean Academy of Nursing. 2010;40(6):808-819. http://dx.doi.org/10.4040/jkan.2010.40.6.808   DOI
18 Hall HR, Graff JC. Maladaptive behaviors of children with autism: Parent support, stress, and coping. Issues in Comprehensive Pediatric Nursing. 2012;35(34):194-214. http://dx.doi.org/10.3109/01460862.2012.734210   DOI
19 Solomon AH, Chung B. Understanding autism: How family therapists can support parents of children with autism spectrum disorders. Family Process. 2012;51(2):250-264.   DOI
20 Browska DA, Pisula E. Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research. 2010;54(3):266-280. http://dx.doi.org/10.1111/j.1365-2788.2010.01258.x   DOI
21 Hayes SA, Watson SL. The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism Development Disorder. 2013;43(3):629-642. http://dx.doi.org/10.1007/s10803-012-1604-y   DOI
22 Higgins DJ, Bailey SR, Pearce JC. Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism. 2005;9(2):125-137. http://dx.doi.org/10.1177/1362361305051403   DOI
23 Wong MG, Heriot SA. Vicarious futurity in autism and childhood dementia. Journal of Autism Development Disorder. 2007;37(10):1833-1841. http://dx.doi.org/10.1007/s10803-006-0317-5   DOI
24 Lee AR, Hong SW, Ju SJ. Development of a scale to measure life transition process in parents of children with autism. Journal of Korean Academy of Nursing. 2012:42(6):861-869. http://dx.doi.org/10.4040/jkan.2012.42.6.861   DOI
25 Lee AR, Hong SW, Ju SJ. Construct validity of the life transition scale for parents who have children with autism. Journal of Korean Academy of Nursing. 2014;44(5):563-572. http://dx.doi.org/10.4040/jkan.2014.44.5.563   DOI
26 Nelson AM. A Metasynthesis: Mothering other-than-normal children. Qualitative Health Research. 2002;12(4):515-530. http://dx.doi.org/10.1177/104973202129120043   DOI
27 Lassetter JH, Mandleco BL, Roper SO. Family photographs: Expressions of parents raising children with disabilities. Qualitative Health Research. 2007;17(4):456-467. http://dx.doi.org/10.1177/1049732306298804   DOI
28 Dale E, Jahoda A, Knott F. Mothers' attributions following their child's diagnosis of autistic spectrum disorder: Exploring links with maternal levels of stress, depression and expectations about their child's future. Autism. 2006;10(5):463-479. http://dx.doi.org/10.1177/1362361306066600   DOI
29 Yildirim A, Hacihasanoglu A, Karakurt P. Effects of a nursing intervention program on the depression and perception of family functioning of mothers with intellectually disabled children. Journal of Clinical Nursing. 2012;22(1-2):251-261. http://dx.doi.org/10.1111/j.1365-2702.2012.04280.x   DOI
30 Humphrey N, Lewis S. Make me normal: The views and experiences of pupils on the autistic spectrum in mainstream secondary schools. Autism. 2008;12(1):23-46. http://dx.doi.org/10.1177/1362361307085267   DOI