Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test |
Moon, Yi Ji
(Department of Social Welfare, Sungkyunkwan University)
Lee, Jung (Integrative Care Hub, Seoul National University Children's Hospital) Choo, In Sil (Integrative Care Hub, Seoul National University Children's Hospital) Kang, Sung Han (Department of Pediatrics, University of Ulsan College of Medicine, Asan Medical Center Children's Hospital) Kim, Cho Hee (College of Nursing, Seoul National University) Song, In Gyu (Department of Pediatrics, Severance Children's Hospital, Yonsei University College of Medicine) Kim, Min Sun (Integrative Care Hub, Seoul National University Children's Hospital) |
1 | Palazzi DL, Lorin MI, Turner TL, Ward MA, Cabrera AG. Communicating with pediatric patients and their families: the Texas Children's Hospital guide for physicians, nurses and other healthcare professionals. Houston, TX;Texas Children's Hospital:c 2015. |
2 | Aging With Dignity, Inc. Voicing my choices [Internet]. Tallahassee, FL: Aging With Dignity; 2016 [cited 2019 Jan 24]. Available fromhttps://agingwithdignity.org/shop/productdetails/voicingmychoices. |
3 | National Institutes of Health. This is my world [Internet]. Bethesda, Md.: U.S. Dept. of Health, Education, and Welfare, Public Health Service, National Institutes of Health; 2019 [cited 2019 Jan 24]. Available fromhttps://ccr.cancer.gov/sites/default/files/this_is_my_world_web_508. pdf. |
4 | Aging With Dignity, Inc. Five wishes [Internet]. Tallahassee, FL: Aging With Dignity; 2019 [cited 2019 Jan 24]. Available from https://fivewishes.org/docs/default-source/Samples/five-wishes-sample.pdf. |
5 | Friedman N. Providing pediatric patients with a voice: understanding how children want to live before they die [Internet]. New York: Bank Street College of Education; 2016 [cited 2016 May 1]. Available from: https://educate.bankstreet.edu/independent-studies/21. |
6 | Yu J, Song IG, Kim CH, Moon YJ, Shin HY, Kim MS. Perceptions of pediatric palliative care among physicians who care for pediatric patients in South Korea. J Palliat Med 2020;23:346-52. DOI |
7 | Durall A, Zurakowski D, Wolfe J. Barriers to conducting advance care discussions for children with life-threatening conditions. Pediatrics 2012;129:e975-82. |
8 | Yin RK. Case study research: design and methods. 5th ed. Thousand Oaks, CA:Sage publications;2014. |
9 | Thomas DR. A general inductive approach for analyzing qualitative evaluation data. Am J Eval 2006;27:237-46. DOI |
10 | Borg WR, Gall MD. Educational research: an introduction. New York:Longman;c1983. |
11 | Further reading and resources [Internet]. Parkville, Vic.: The Royal Children's Hospital Melbourne; 2016 [cited 2016 April 11]. Available from: https://www.rch.org.au/studentorientation/Further_reading_and_resources/#differences-between-children-adolescents-and-adults. |
12 | Hilden JM, Himelstein BP, Freyer DR, Friebert S, Kane JR. End-of-life care: special issues in pediatric oncology. In: Foley KM, Gelband H, eds. Improving palliative care for cancer.Washington, D.C.:National Academy Press;2001. p. 161-98. |
13 | Dreamseeds: This is my world, Korean version [Internet]. Seoul: Seoul National University Children's Hospital; 2019 [cited 2020 Apr 11]. Available from http://dreamseeds.co.kr/bbs/board.php?bo_table=m03_01&wr_id=43&sca=%EB%B0%9C%EA%B0%84%EC%9E%90%E B%A3%8C. |
14 | Ettinger AS. Children's Health, the Nation's Wealth: assessing and improving child health. Environ Health Perspect 2004;112:A844. |
15 | Pinkerton R, Donovan L, Herbert A. Palliative care in adolescents and young adults with cancer - Why do adolescents need special attention? Cancer J 2018;24:336-41. DOI |
16 | Moon YJ, Shin HY, Kim MS, Song IG, Kim CH, Yu J, et al. Palliative care practitioners' perception toward pediatric palliative care in the Republic of Korea. Korean J Hosp Palliat Care 2019;22:39-47. DOI |
17 | Lyon ME, Jacobs S, Briggs L, Cheng YI, Wang J. A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: anxiety, depression, quality of life, advance directives, spirituality. J Adolesc Health 2014;54:710-7. DOI |
18 | Lotz JD, Jox RJ, Borasio GD, Fuhrer M. Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study. Palliat Med 2015;29:212-22. DOI |
19 | Spicer S, Macdonald ME, Davies D, Vadeboncoeur C, Siden H. Introducing a lexicon of terms for paediatric palliative care. Paediatr Child Health 2015;20:155-6. DOI |
20 | Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 2010;340:c1345. DOI |
21 | Jung KW, Won YJ, Kong HJ, Oh CM, Cho H, Lee DH, et al. Cancer statistics in Korea: incidence, mortality, survival, and prevalence in 2012. Cancer Res Treat 2015;47:127-41. DOI |
22 | Kim MS, Lim NG, Kim HJ, Kim C, Lee JY. Pediatric deaths attributed to complex chronic conditions over 10 years in Korea: evidence for the need to provide pediatric palliative care. J Korean Med Sci 2018;33:1-13. DOI |
23 | Jacobs S, Perez J, Cheng YI, Sill A, Wang J, Lyon ME. Adolescent end of life preferences and congruence with their parents' preferences: results of a survey of adolescents with cancer. Pediatr Blood Cancer 2015;62:710-4. DOI |
24 | Lotz JD, Jox RJ, Borasio GD, Fuhrer M. Pediatric advance care planning: a systematic review. Pediatrics 2013;131:e873-80. DOI |
25 | Fraser J, Harris N, Berringer AJ, Prescott Hm, Finlay F. Advanced care planning in children with life-limiting conditions-the Wishes Document. Arch Dis Child 2010;95:79-82. DOI |
26 | Sisk BA, Canavera K, Sharma A, Baker JN, Johnson LM. Ethical issues in the care of adolescent and young adult oncology patients. Pediatr Blood Cancer 2019;66:e27608. DOI |
27 | Roth KE, Lyon ME. Chapter 22. Advance care planning for adult and pediatric cancer patients. In: Berger A, Hinds PS, Puchalski CM, eds. Handbook of supportive oncology and palliative care: whole-person and value-based care. New York: Springer Publishing Company; 2019. |
![]() |