Browse > Article
http://dx.doi.org/10.22156/CS4SMB.2020.10.08.213

The Effect of Family Cohesion of Down's Syndrome Family on Children's Independent Living: Focused on Mediating Effect : Mediating effect of strengthening family capacity  

Kim, Jung-sun (Social Welfare Administration Graduate School, Hanse University)
Shin, Kyung-an (Dept. of Social Welfare, Dong Seoul University)
Publication Information
Journal of Convergence for Information Technology / v.10, no.8, 2020 , pp. 213-222 More about this Journal
Abstract
This research aimed to verify whether family competency reinforcement had a mediating role on the effect of family cohesion of the Down syndrome family upon the independent life of children with Down syndrome. For the research, 146 families belonged to Down Syndrome Parent Assembly were surveyed and the statistical program SPSS WIN 25.0 was utilized for the data analysis. To verify the mediating effect, Baron and Kenny's causal step strategy was performed. As a result of the study, the higher the family cohesion of the Down syndrome family was, the greater the level of independence of the child was, indicating that the family cohesion had a significant static effect on the independence life. In addition, it was confirmed that the family competency reinforcement played a mediating role between the family cohesion and the children's independent living. Therefore, the results of this research suggested that it might be used as a policy approach and supporting plan for the realization of support for independence of Down syndrome children.
Keywords
Down syndrome; family cohesion; child independence; family competency enhancement; Mediating effect;
Citations & Related Records
Times Cited By KSCI : 1  (Citation Analysis)
연도 인용수 순위
1 W. Cohen. (2005). Medical care of the child with Down syndrome. In M. Butler, F. Meaney, (Eds.) Genetics of developmental disabilities(pp. 223-246), New York: Taylor and Francis Group.
2 F. M. Lai, B. H. Woo, K. H. Tan, J. Huang, S. T. Lee, T. B. Yan, B. H. Tan, S. K. Chew & G. S. Yeo. (2002). Birth prevalence of Down syndrome in Singapore from 1993 to 1998. Singapore Medical Journal, 43(2), 70-76.
3 R. M. Hodapp. (2007). Families of persons with Down syndrome: New perspective, findings, and research and service needs. Mental Retardation and Developmental Disabilities Research Reviews, 13, 279-287. DOI : 10.1002/mrdd.20160.   DOI
4 R. F. Schilling, M. A. Kirkham, W. H. Snow & S. Schinke. (1986). Single mothers with handicapped children: Different from their married counterparts?, Family Relations, 35, 69-77.   DOI
5 H. Y. Sari, G. Baser & J. M. Turan. (2006). Experiences of mothers of children with Down syndrome. Pediatric Nursing, 18(4), 29-32. DOI : 10.7748/paed2006.05.18.4.29.c1024.   DOI
6 M. Van Riper. (2000). Family Variables Associated With Well-Being in Siblings of Children With Down Syndrome. Journal of Family Nursing, 6(3), 267-286. DOI : 10.1177/107484070000600305.   DOI
7 D. J. Fidler, R. M. Hodapp & E. M. Dykens. (2000). Stress in families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. Early Education and Development, 2, 395-406. DOI : 10.1207/s15566935eed1104_2.
8 J. E. Dumas, L. C. Wolf, S. N. Fisman & A. Culligan. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, begavior disorders, and normal development. Exceptionality, 2, 97-110. DOI : 10.1080/09362839109524770.   DOI
9 H. J. Shin & E. S. Jang. (2019). Therapeutic Strategies for Families of Children with Disability, Family and Family Therapy, 27(2), 275-301.
10 E. S. Hong & S. C. Oh(2019). A Development, Implement and Evaluation of Family Camp for Family with a Child with Disabilities, Intellectual Disability Research, 21(3), 1-28.
11 L. A. King, C. K. Scollon, C. Ramsey & T. Williams. (2006). Stories of life transition: Subjective well-being and ego development in parents of children with Down syndrome. Journal of Research in Personality, 34, 509-536. DOI : 10.1006/jrpe.2000.2285.   DOI
12 Y. D. Kim. & S. K. Park. (2008). Differences on Self-determination Experiences of the Intellectually Disabled People according to Livings in the Different Types of Residential Homes. Korean journal of social welfare, 60(4), 79-103.   DOI
13 N. M. Crewe. and I. K. Zola. (2001). Independent living for physically disabled people. Lincoln:iUniverse.com.
14 Y. D. Kim. (2018). Community Care, What to do?, Participatory Solidarity Social Welfare Committee, Monthly Welfare Trend, 238, 5-10.
15 Y. D. Kim. (2013). The Effect of Disability Attitude on the Independent Living of the Severe Disabled at Home: Focusing on the Mediating Effect of Empowerment and Moderating Effect of Family Relationship. Doctoral dissertation, Department of Social Welfare Graduate School of Cheongju University, Cheongju.
16 H. K. Oh, E. Y. Baek & M. S. Um. (2001). Basic research for development of a self-reliant living practice model for persons with mental retardation, Rehabilitation Foundation Thesis Collection, 9, 3-78.
17 S. T. Park. (2010). The Study about the Factors that Influence the Independent Living of People with Intellectual Disabilities in Group Home, Disability & Employment, 20(4), 323-354.   DOI
18 S. H. Shin, Y. H. Kim & S. T. Park. (2006). Effects of Community Mental Health Service on the Family Support and Quality of Life of Persons with Serious Mental Illness. Korean Public Health Research, 32(2), 113-119.
19 S. Y. Kim. (1997). Family burden and social support to care for stroke patients. Master dissertation. Yonsei University, Seoul.
20 Y. J. Kim. (2017). The Effect of Children's Family forgiveness and Family cohesion on Conflict Resolution Strategies in Peer Relationship, Master dissertation, Hanyang University, Seoul.
21 J. H. Hong. (2018). The Efects of Transiton Suport Program for Students and Familes on Self-determination, Carer Decision-Making Self-Eficacy and Family Empowerment in High Schol Students with Developmental Disabilties and Their Familes, Doctoral dissertation, Ewha Womans University, Seoul.
22 S. W. Hwang & S. T. Park. (2012). Factors Influencing Independent Life of Independent Life Education in People with Intellectual Disabilities-Focused on the Mediating Effects of the Right of Self-Determination, Journal of Intellectual Disabilities, 14(4), 311-340. DOI : 10.1111/jir.12305.
23 H. K. Choi. (2015). Adaptation in Families of Children with Down Syndrome: A Mixed-methods Design, J Korean Acad Nurs, 45(4), 501-512. DOI : 10.4040/jkan.2015.45.4.501.   DOI
24 E. K. Choi. (2009). Resilience of Families with Children with Down Syndrome. Doctoral dissertation. The Graduate School Yonsei University, Seoul.
25 Y. H. Nam & I. S. Chae. (2008). A study on factors affecting independence of severely disabled people using meta-analysis, Welfare Administration, 18(2), 179-198.
26 K. R. Jung. (2009). A Qualitative Study on the Parenting Experiences of Parents with Down Syndrome Children. Master dissertation. Korea National University of Education, Seoul.
27 J. Y. Lee. (2015). A Case Study of Dance Performance by Students with Down Syndrome and Teachers- Phenomenological Understanding of Aesthetic Experience, Philosophy of Movement : Journal of Korean Philosophic Society for Sport and Dance 2015, 23(1), 155-174.
28 C. H. Lee & H. S. Jo. (2012). Family Cohesion with and without Siblings with Developmental Disabilities, The Effect of Family Adaptation on the Involuntary Vocational Values of Adolescent Siblings, Korean Family Management Association Conference, 393-393.
29 S. K. Park. (2016). The present condition and tasks of deinstitutionalization of the people with disabilities in Korea, Intellectual Disability Research, 18(1), 205-234.
30 S. K. Park, N. R. Lim & S. W. Lee. (2019). Developing a "Supported housing program for individuals" for the independent living of the developmental disabled living in residential facilities: applying Living lab mod, Korean Society for the Disabled, 46(46), 59-92.