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http://dx.doi.org/10.7466/JKHMA.2016.34.4.89

Life History Research on the Developmental Process of Mothers Rearing Children with Down Syndrome  

Kang, Eun Shin (Department of Family Environment and Welfare, Chonnam National University)
Kim, Kyeong Shin (Department of Family Environment and Welfare, Chonnam National University)
Publication Information
Journal of Families and Better Life / v.34, no.4, 2016 , pp. 89-109 More about this Journal
Abstract
The purposes of this study were to analyze and understand the life of mothers rearing children with Down syndrome and to present basic data for overcoming the difficulties of those families. For these purposes, this study made use of the phenomenological analysis and approach with a qualitative research method. The subjects of this study are 4 mothers rearing children with Down syndrome who are beyond school age. The results were as follows. First, the reason why mothers with Down syndrome children went through psychological shock and horror was the social stigma due to the unusual appearance of children with Down syndrome. Second, the isolation with in the public education system was disclosed as a factor causing much sorrow and pain. Through this, we can recognize the importance of ensuring the equal right to receive education of children with Down syndrome. Third, the period which the mother experienced most shock and confusion was right after finding out about the disability that her child has. So, we can identify the importance of early intervention providing psychotherapy and rearing service to the parents. Fourth, the crucial factor that relieved pain and pressure from mothers was social support including family. Therefore, the social support system for mothers with Down syndrome children has to be developed and strengthened. Fifth, the crucial factor that made mother grow up during rearing experience was the reestablishment of cognition about the desired role of mothers. Through this, we can identify the importance of the mental transition process to independent thinking.
Keywords
child with Down syndrome; rearing experience; life history research;
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