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Lived Experiences of Life World for Adolescents with Epilepsy  

Park, Yeong-Sook (College of Nursing, Keimyung University)
Jeong, Eun-Nam (Sam Goe High School)
Yang, Jin-Hyang (Department of Nursing, Inje University)
Publication Information
Journal of Korean Academy of Fundamentals of Nursing / v.18, no.1, 2011 , pp. 6-18 More about this Journal
Abstract
Purpose: This study was done to explore the meaning and nature of life world for adolescents with epilepsy. The hermeneutic phenomenological method which was developed by van Manen was used. Methods: Participants were four boys and five girls, ages 13 to 18 being seen in a neurology outpatient department. Data were collected from iterative work with in-depth interviews from during the period from February to September, 2010. Contents of the interviews were tape-recorded with participant consent. Results: Essential themes that fit into the context of the 4 existential grounds of body, time, space and other people were: an illness that makes a hurt in one's heart rather than one's body, a change in the body that is not controllable, a future like thick fog, everyday life trapped in illness, a change of relationships, learning how to live with an illness. Conclusion: Findings reveal the life world of the adolescents is affected to varying degrees by the epilepsy. It is important for nurses to identify and address developmental issues and effects of the illness and to support reorientation in a disintegrated life situation. The result of this study will provide nurses with insights into these experiences and should help promote empathetic care.
Keywords
Chronic Disease; Epilepsy; Adolescent; Life Experiences; Qualitative Research;
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1 Meadows, L. M., & Morse, J. M. (2001). Constructing evidence within the qualitative project. In J. M. Morse., J. M. Swansen., & A. J. Kuzel. (Eds.), The nature of qualitative evidence (pp. 187-200). Thousand Oaks, CA: Sage.
2 Moon, S. M. (2005). Psychosocial adjustment process in adolescents with epilepsy. Journal of Korean Academy of Nursing, 35, 16-26.
3 Morse, J. M., & Field, P. A. (1997). Qualitative research methods for health professionals. (K. R. Shin, Trans.). Seoul: Ewha Womans University Press. (Original Work published 1995)
4 Park, M. J. (2010). Drug compliance of pediatric patients with epilepsy. Unpublished master's thesis. Gachon University of Medicine and Science, Incheon.
5 Rafael, F., Houinato, D., Nubukpo, P., Dubreuil, C. M., Tran, D. S., Odermatt, P., et al. (2010). Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin, Epilepsia, 51, 1061-1068.   DOI   ScienceOn
6 Ridsdale, L., Kwan, I., & Morgan, M. (2003). How can a nurse intervention help people with newly diagnosed epilepsy? A qualitative study of patients' views. Seizure, 12, 69-73.   DOI   ScienceOn
7 Unger, W. R., & Buelow, J. M. (2009). Hybrid concept analysis of self-management in adults newly diagnosed with epilepsy, Epilepsy & Behavior. 14, 89-95.   DOI   ScienceOn
8 van Manen, M. (1997). Researching lived experience (2nd ed.). Cobourg Ontario: The Althouse Press.
9 Webster's Ninth Collegiate Dictionary. (1988). Webster's Ninth Collegiate Dictionary. Springfield, MA: Merriam-Webster Inc.
10 Yoo, J. H. (2003). Life, vacant or filled with something and shaking. Seoul: Hyundae Munhak Co.
11 Kim, S E., Suh, H. A., Yum, M. S., You, S. J., Kim, D. S., Yoo, H. I., et al. (2006). Clinical factors affecting quality of life in children with epilepsy. Journal of the Korean Child Neurology Society, 14, 295-302.
12 Kim, S. (2003). Dogfight. Seoul: Munhakdongne Publishing Co.
13 Korean Neurological Association. (2007). Neurology, Seoul: Koonja Publishing Co.
14 Kwon, J. Y. (2000). International Practical Chinese Characters by the Picture and Explanation. Seoul: Sujiseolim.
15 Kyngäs, H. (2003). Patient education: perspective of adolescents with a chronic disease. Journal of Clinical Nursing, 12, 744-751.   DOI   ScienceOn
16 Lee, G. H. (2004). Sorrow of novel. Seoul: Hyundae Munhak Co.
17 Lee, K. W. (2005). Textbook of Neurology. Seoul: E Public.
18 McCorry, D., Marson, T., & Jacoby, A. (2009). Understanding routine antiepileptic drug decisions: a qualitative analysis of patients' accounts of hospital consultations, Epilepsy & Behavior, 14, 210-214.   DOI   ScienceOn
19 McEwan, M. J., Espie, C. A., Metcalfe, J., Brodie, M. J., & Wilson, M. T. (2004). Quality of life and psychosocial development in adolescents with epilepsy: A qualitative investigation using focus group methods. Seizure, 13, 15-31.   DOI   ScienceOn
20 McNelis, A. M., Buelow, J., Myers, J., & Johnson, E. A. (2007). Concerns and needs of children with epilepsy and their parents. Clinical Nurse Specialist, 21, 195-202.   DOI   ScienceOn
21 Austin, J. K., Dunn, D. W., Perkins, S. M., & Shen, J. (2006). Youth with epilepsy: development of a model of children's attitudes toward their condition. Children's Health Care, 35, 123-140.   DOI   ScienceOn
22 Beresford, B. A., & Sloper, P. (2003). Chronically ill adolescents' experiences of communicating with doctors: a qualitative study. Journal of Adolescent Health, 33, 172-179.   DOI   ScienceOn
23 Buck, D., Smith, M., Appleton, R., Baker, G. A., & Jacoby, A.(2007). The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale. Epilepsy & Behavior, 10, 38-43.   DOI   ScienceOn
24 Dictionary.com. (2010). Online Etymology Dictionary. Retrieved November 03, 2010, from http://dictionary.reference.com/browse/epilepsy
25 Doosandonga Editorial Board. (2007). Dong-A New Korean Dictionary. Seoul: Dong-A Publishing & Printing.
26 Elliott, I. M., Lach, L., & Smith, M. L. (2005). I just want to be normal: a qualitative study exploring how children and adolescents view the impact of intractable epilepsy on their quality of life. Epilepsy & behavior, 7, 664-678.   DOI   ScienceOn
27 Admi, H., & Shaham, B. (2007). Living with epilepsy: ordinary people coping with extraordinary situations. Qualitative Health Research, 17, 1178-1187.   DOI   ScienceOn
28 Faircloth, C. A. (1998). Epilepsies, identities, and difference: horizons of meaning for individuals with an epilepsy. Qualitative Heath Research, 8, 602-617.   DOI   ScienceOn
29 Ismail, H., Wright, J., Rhodes, P., Small, N., & Jacoby, A. (2005). South Asians and epilepsy: exploring health experiences, needs and beliefs of communities in the north of England. Seizure, 14, 497-503.   DOI   ScienceOn
30 Jeong. Y. M. (2002). Destructive drive. Seoul: Munhakdongne Publishing Co.