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Establishment and Perspective of the Korean ALS Registry  

Sohn, Eun-Hee (Department of Neurology, Chungnam University Hospital)
Kim, Byung-Jo (Department of Neurology, Korea University College of Medicine)
Kim, Jong-Kuk (Department of Neurology, Dong-a University Postgraduate Medical School)
Bae, Jong-Seok (Department of Neurology, Inje University College of Medicine, Busan Paik Hospital)
Baek, Won-Ki (Department of Neurology, Hanyang University College of Medicine)
Suh, Bum-Chun (Department of Neurology, Kangbuk Samsung Hospital)
Sung, Jung-Joon (Department of Neurology, Seoul National University College of Medicine)
Ahn, Suk-Won (Department of Neurology, Chung-Ang University College of Medicine)
Cho, Joong-Yang (Department of Neurology, Inje University College of Medicine)
Hong, Yoon-Ho (Department of Neurology, Seoul National University College of Medicine)
The Korean ALS/MND Research Group, The Korean ALS/MND Research Group (The Korean ALS/MND Research Group)
Publication Information
Annals of Clinical Neurophysiology / v.13, no.2, 2011 , pp. 71-79 More about this Journal
Abstract
Geographical differences in the incidence of amyotrophic lateral sclerosis (ALS) have been reported, and there are still many unresolved problems. The incidence as well as epidemiologic data of ALS is not known in Korea. Web-based multicenter registry of ALS, the Korean ALS registry, was established at January, 2011. The aim of "the Korean ALS registry" is the following: (1) to establish a database for the prospective collection of epidemiological information; (2) to assess the incidence and prevalence; (3) to find the temporal and geographic trends in the disease; (4) to define the full clinical spectrum of the disease; (5) to develop treatment guideline based on the database.
Keywords
Amyotrophic lateral sclerosis; Registry; Multicenter;
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