Strategies of Cancer Registry against Protecting Personal Health Data
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Park, Bum-Jung
(Department of Otothinolaryngology-Head and Neck Surgery, College of Medicine, Hallym University)
Joo, Hyung-Rho (Department of Otothinolaryngology-Head and Neck Surgery, College of Medicine, Hallym University) Park, Il-Seok (Department of Otothinolaryngology-Head and Neck Surgery, College of Medicine, Hallym University) Kim, Jin-Whan (Department of Otothinolaryngology-Head and Neck Surgery, College of Medicine, Hallym University) Rho, Young-Soo (Department of Otothinolaryngology-Head and Neck Surgery, College of Medicine, Hallym University) |
1 | Micheli A, Coebergh JW, Massimiliani E, et al: European health systems and cancer care. Ann Oncol. 2003;14:41-60 DOI ScienceOn |
2 | 통계청. 2003 사망원인통계연보 |
3 | Health Insurance Portability and Accountability Act of 1996. Pub. L. No. 104-191, 110 Stat 1936, 1996 |
4 | Dodek DY, Dodek A: From Hippocrates to facsimile: Protecting patient confidentiality is more difficult and more important than ever before. Can Med Assoc J. 1997;156:847-852 |
5 | Coleman MP, Gatta G, Verdecchia A, et al: EUROCARE-3 summary: Cancer survival in Europe at the end of the 20th century. Ann Oncol. 2003;14:128-149 DOI ScienceOn |
6 | Organisation for Economic Co-operation and Development: OECD guidelines on the protection of privacy and transborder flows of personal data. available at: http://www.oecd.org/documentprint /0,2744, en_2649_201185_1815186_1_1_1_1,00.html |
7 | SEER's training web site: available at:http://training.seer.cancer. gov/module_cancer_registration/unit1_registry_registration.html |
8 | Verity C, Nicoll A: Consent, confidentiality, and the threat to public health surveillance. BMJ. 2002;18:1210-1213 |
9 | Vates JR, Hetrick JLR, Lavin KL, Sharma GK, Wagner RL, Johnson JT: Protecting medical record information: Start your research registries today. Laryngoscope. 2005;115:441-444 DOI ScienceOn |
10 | Swan J, Wingo P, Clive R, et al: Cancer surveillance in the U.S. Cancer. 1998;83:1282-1291 DOI ScienceOn |
11 | Hussong SJ: Medical records and your privacy: Developing federal legislation to protect patient privacy rights. AJLM. 2000;26:453-474 |
12 | Ingelfinger JR, Drazen JM: Registry research and medical privacy. N Engl J Med. 2004;350:1452-1453 DOI ScienceOn |
13 | Pace WD, Staton EW, Hocomb S: Practice-based research network studies in the age of HIPAA. Ann Fam Med. 2005;3:38-45 DOI ScienceOn |
14 | Chertow GM, Pascual MT, Soroko S, et al: Reasons for non-enrollment in a cohort study of ARF: The program to improve care in acute renal disease(PICARD) experience and implications for a clinical trials network. Am J Kidney Dis. 2003;45:507-512 |
15 | Tu JV, Willison DJ, Silver FL, et al: Impracticability of informed consent in the registry of the Canadian stroke network. N Engl J Med. 2004;350:1414-1421 DOI ScienceOn |
16 | Gavin AT, Fitzpatrick D, Middleton RJ, Coleman MP: Patients' denial of disease may pose difficulty for achieving informed consent. BMJ. 2002;324:974 DOI |
17 | European network of cancer registries: Newsflash. 2005 March. available at: http://www.encr.com.fr/flash14_en.pdf |
18 | Paterson ICM: Consent to cancer registration-an unnecessary burden. BMJ. 2001;322:1130 |
19 | European standards on confidentiality and privacy in healthcare among vulnerable patients populations |
20 | Gunn PP, Fremont AM, Bottrell M, Shugarman LR, Galegher J, Bikson T: The health insurance portability and accountability act privacy rule, A practical guide for researchers. Medical Care. 2004;42:321-327 DOI ScienceOn |
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