Browse > Article
http://dx.doi.org/10.3345/kjp.2013.56.8.323

Clinical approach to quality of life in children with end-stage renal disease  

Cho, Min Hyun (Department of Pediatrics, Kyungpook National University Medical Center)
Publication Information
Clinical and Experimental Pediatrics / v.56, no.8, 2013 , pp. 323-326 More about this Journal
Abstract
Quality of life in addition to various medical problems in children with end-stage renal disease (ESRD) should be objectively assessed to accomplish normal growth and development during childhood. However, unfortunately, studies of quality of life (QoL) in children with ESRD have been not popular yet and there are only fewer suitable assessment tools compared with adults. Recently, disease-specific modules to evaluate QoL in children with chronic disease such as ESRD have been developed. This review was made to introduce these QoL instruments for children and help the clinical application of them.
Keywords
Quality of life; Child; End-stage renal disease;
Citations & Related Records
Times Cited By KSCI : 1  (Citation Analysis)
연도 인용수 순위
1 Goldstein SL, Graham N, Warady BA, Seikaly M, McDonald R, Burwinkle TM, et al. Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL). Am J Kidney Dis 2008;51:285-97.   DOI
2 Baum M. Overview of chronic kidney disease in children. Curr Opin Pediatr 2010;22:158-60.   DOI
3 Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993;118:622-9.   DOI
4 Spilker B. Standardisation of quality of life trials: an industry perspective. Pharmacoeconomics 1992;1:73-5.   DOI
5 Spilker B, Molinek FR Jr, Johnston KA, Simpson RL Jr, Tilson HH. Quality of life bibliography and indexes. Med Care 1990;28(12 Suppl):DS1-77.
6 Kurtin PS, Landgraf JM, Abetz L. Patient-based health status measurements in pediatric dialysis: expanding the assessment of outcome. Am J Kidney Dis 1994;24:376-82.   DOI
7 Evans RW, Manninen DL, Garrison LP Jr, Hart LG, Blagg CR, Gutman RA, et al. The quality of life of patients with end-stage renal disease. N Engl J Med 1985;312:553-9.   DOI
8 Wu AW, Fink NE, Cagney KA, Bass EB, Rubin HR, Meyer KB, et al. Developing a health-related quality-of-life measure for end-stage renal disease: The CHOICE Health Experience Questionnaire. Am J Kidney Dis 2001;37:11-21.
9 National Kidney Foundation. K/DOQI clinical practice guidelines for chronic kidney disease: evaluation, classification, and stratification. Am J Kidney Dis 2002;39(2 Suppl 1):S1-266.
10 Park HC, Lee H, Lee JP, Kim DK, Oh KH, Joo KW, et al. Lower residual renal function is a risk factor for depression and impaired healthrelated quality of life in Korean peritoneal dialysis patients. J Korean Med Sci 2012;27:64-71.   DOI
11 Asmussen L, Olson LM, Grant EN, Landgraf JM, Fagan J, Weiss KB. Use of the child health questionnaire in a sample of moderate and low-income inner-city children with asthma. Am J Respir Crit Care Med 2000;162(4 Pt 1):1215-21.   DOI
12 Starfield B, Riley AW, Green BF, Ensminger ME, Ryan SA, Kelleher K, et al. The adolescent child health and illness profile. A populationbased measure of health. Med Care 1995;33:553-66.   DOI
13 Starfield B, Robertson J, Riley AW. Social class gradients and health in childhood. Ambul Pediatr 2002;2:238-46.   DOI
14 Wasson JH, Kairys SW, Nelson EC, Kalishman N, Baribeau P. A short survey for assessing health and social problems of adolescents. Dartmouth Primary Care Cooperative Information Project (The COOP). J Fam Pract 1994;38:489-94.
15 Sparrow SS, Cicchetti DV. Diagnostic uses of the Vineland Adaptive Behavior Scales. J Pediatr Psychol 1985;10:215-25.   DOI
16 Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001;39:800-12.   DOI
17 Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002;94:2090-106.   DOI
18 Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med 2004;27:297-318.   DOI
19 Varni JW, Burwinkle TM, Szer IS. The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol 2004;31:2494-500.
20 Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/ severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes 2007;5:43.   DOI
21 Park KS, Hwang YJ, Cho MH, Ko CW, Ha IS, Kang HG, et al. Quality of life in children with end-stage renal disease based on a PedsQL ESRD module. Pediatr Nephrol 2012;27:2293-300.   DOI
22 Morton MJ, Reynolds JM, Garralda ME, Postlethwaite RJ, Goh D. Psychiatric adjustment in end-stage renal disease: a follow up study of former paediatric patients. J Psychosom Res 1994;38:293-303.   DOI
23 Furth SL, Gerson AC, Neu AM, Fivush BA. The impact of dialysis and transplantation on children. Adv Ren Replace Ther 2001;8: 206-13.   DOI
24 Roscoe JM, Smith LF, Williams EA, Stein M, Morton AR, Balfe JW, et al. Medical and social outcome in adolescents with end-stage renal failure. Kidney Int 1991;40:948-53.   DOI
25 Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW. Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol 2006;21:846-50.   DOI
26 Marciano RC, Soares CM, Diniz JS, Lima EM, Silva JM, Canhestro MR, et al. Behavioral disorders and low quality of life in children and adolescents with chronic kidney disease. Pediatr Nephrol 2011; 26:281-90.   DOI
27 Anthony SJ, Hebert D, Todd L, Korus M, Langlois V, Pool R, et al. Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatr Transplant 2010;14: 249-56.   DOI
28 McKenna AM, Keating LE, Vigneux A, Stevens S, Williams A, Geary DF. Quality of life in children with chronic kidney diseasepatient and caregiver assessments. Nephrol Dial Transplant 2006; 21:1899-905.   DOI
29 Goldstein SL, Rosburg NM, Warady BA, Seikaly M, McDonald R, Limbers C, et al. Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis. Pediatr Nephrol 2009;24:1553-60.   DOI
30 Buyan N, Turkmen MA, Bilge I, Baskin E, Haberal M, Bilginer Y, et al. Quality of life in children with chronic kidney disease (with child and parent assessments). Pediatr Nephrol 2010;25:1487-96.   DOI
31 Eiam-Ong S, Sitprija V. Comorbidities in patients with end-stage renal disease in developing countries. Artif Organs 2002;26:753-6.   DOI
32 Khan IH. Comorbidity: the major challenge for survival and quality of life in end-stage renal disease. Nephrol Dial Transplant 1998;13 Suppl 1:76-9.