1 |
Sin J, Murrells T, Spain D, Norman I, Henderson C. Wellbeing, mental health knowledge and caregiving experiences of siblings of people with psychosis, compared to their peers and parents: An exploratory study. Social Psychiatry and Psychiatric Epidemiology. 2016;51(9):1247-1255. https://doi.org/10.1007/s00127-016-1222-7
DOI
|
2 |
Orgeta V, Lo Sterzo E, Orrell M. Assessing mental well-being in family carers of people with dementia using the Warwick-Edinburgh Mental Well-Being Scale. International Psychogeriatrics. 2013;25(9):1443-1451. https://doi.org/10.1017/S1041610213000835
DOI
|
3 |
Ellis KR, Janevic MR, Kershaw T, Caldwell CH, Janz NK, Northouse L. Meaning-based coping, chronic conditions and quality of life in advanced cancer & caregiving. Psycho-Oncology. 2017;26(9):1316-1323. https://doi.org/10.1002/pon.4146
DOI
|
4 |
Cheng ST, Mak EPM, Fung HH, Kwok T, Lee DT, Lam LC. Benefit-finding and effect on caregiver depression: A double-blind randomized controlled trial. Journal of Consulting and Clinical Psychology. 2017;85(5):521-529. https://doi.org/10.1037/ccp0000176
DOI
|
5 |
van der Spek N, Vos J, van Uden-Kraan CF, Breitbart W, Cuijpers P, Holtmaat K, et al. Efficacy of meaning-centered group psychotherapy for cancer survivors: a randomized controlled trial. Psychological Medicine. 2017;47(11):1990-2001. https://doi.org/10.1017/S0033291717000447
DOI
|
6 |
Ray RA, Street AF. Caregiver bodywork: Family members' experiences of caring for a person with motor neurone disease. Journal of Advanced Nursing. 2006;56(1):35-43. https://doi.org/10.1111/j.1365-2648.2006.03977.x
DOI
|
7 |
Kim MS, Shin HI, Min Y, Kim JY, Kim JS. Correlation between severe ALS patient-caregiver couples' characteristics and caregivers' health related quality of life. Journal of Korean Academy of Nursing. 2011;41(3):354-363. https://doi.org/10.4040/jkan.2011.41.3.354
DOI
|
8 |
Hwang MS, Lee MK, Song JR. The factors affecting burdens and quality of life of the family caregivers of patients with rare and incurable diseases using home ventilators. Korean Journal of Adult Nursing. 2014;26(2):191-202. https://doi.org/10.7475/kjan.2014.26.2.191
DOI
|
9 |
Park KH, Kim HY, Nam YH, Kim JH, Joo IS, Sung JJ, et al. Preliminary study on clinical characteristics and caregivers' burden of Korean patients with amyotrophic lateral sclerosis; survey based on database of Korea ALS Association. Journal of the Korean Neurological Association. 2006;24(3):252-259.
|
10 |
Nolan MT, Kub J, Hughes MT, Terry PB, Astrow AB, Carbo CA, et al. Family health care decision making and self-efficacy with patients with ALS at the end of life. Palliative & Supportive Care. 2008;6(3):273-280. https://doi.org/10.1017/S1478951508000412
DOI
|
11 |
Rabkin JG, Albert SM, Rowland LP, Mitsumoto H. How common is depression among ALS caregivers? A longitudinal study. Amyotrophic Lateral Sclerosis. 2009;10(5-6):448-455. https://doi.org/10.3109/17482960802459889
DOI
|
12 |
World Health Organization (WHO). Mental health: A state of well-being [Internet]. Geneva: WHO; c2014 [cited 2017 Dec 28]. Available from: http://www.who.int/features/factfiles/mental_health/en/.
|
13 |
Kim S, Jung HY, Na KS, Lee SI, Kim SG, Lee AR, et al. A validation study of the Korean version of warwick-edinburgh mental well-being scale. Journal of Korean Neuropsychiatric Association. 2014;53(4):237-245. https://doi.org/10.4306/jknpa.2014.53.4.237
DOI
|
14 |
Boerner K, Mock SE. Impact of patient suffering on caregiver well-being: The case of amyotrophic lateral sclerosis patients and their caregivers. Psychology, Health & Medicine. 2012;17(4):457-466. https://doi.org/10.1080/13548506.2011.613942
DOI
|
15 |
Shieh SC, Tung HS, Liang SY. Social support as influencing primary family caregiver burden in Taiwanese patients with colorectal cancer. Journal of Nursing Scholarship. 2012;44(3): 223-231. https://doi.org/10.1111/j.1547-5069.2012.01453.x
DOI
|
16 |
Lou VW, Lau BHP, Cheung KSL. Positive aspects of caregiving (PAC): Scale validation among Chinese dementia caregivers (CG). Archives of Gerontology and Geriatrics. 2015;60(2): 299-306. https://doi.org/10.1016/j.archger.2014.10.019
DOI
|
17 |
Lloyd J, Patterson T, Muers J. The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia (London). 2016;15(6):1534-1561. https://doi.org/10.1177/1471301214564792
DOI
|
18 |
Cipolletta S, Amicucci L. The family experience of living with a person with amyotrophic lateral sclerosis: A qualitative study. International Journal of Psychology. 2015;50(4):288-294. https://doi.org/10.1002/ijop.12085
DOI
|
19 |
Wittenberg-Lyles E, Washington K, Demiris G, Oliver DP, Shaunfield S. Understanding social support burden among family caregivers. Health Communication. 2014;29(9):901-910. https://doi.org/10.1080/10410236.2013.815111
DOI
|
20 |
Qutub K, Lacomis D, Albert SM, Feingold E. Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 2014;15(3-4):292-297. https://doi.org/10.3109/21678421.2014.886699
DOI
|
21 |
Wethington E, Glanz K, Schwartz MD. Stress, coping, and health behavior. In: Glanz K, Rimer BK, Viswanath K, editors. Health Behavior: Theory, Research, and Practice. 5th ed. San Francisco (CA): Jossey-Bass; 2015. p. 223-242.
|
22 |
Park CL, Folkman S. Meaning in the context of stress and coping. Review of General Psychology. 1997;1(2):115-144. https://doi.org/10.1037/1089-2680.1.2.115
DOI
|
23 |
Kim HY, Park KH, Koh SH, Lee SC, Nam YH, Kim J, et al. Korean version of amyotrophic lateral sclerosis functional rating scale-revised: A pilot study on the reliability and validity. Journal of the Korean Neurological Association. 2007;25(2): 149-154.
|
24 |
Oh J, An JW, Oh KW, Oh SI, Kim JA, Kim SH, et al. Depression and caregiving burden in families of patients with amyotrophic lateral sclerosis. Journal of Korean Academy of Nursing. 2015;45(2):202-210. https://doi.org/10.4040/jkan.2015.45.2.202
DOI
|
25 |
Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders. 2000;1(5):293-299. https://doi.org/10.1080/146608200300079536
DOI
|
26 |
Faul F, Erdfelder E, Buchner A, Lang AG. Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods. 2009;41(4):1149-1160. https://doi.org/10.3758/BRM.41.4.1149
DOI
|
27 |
Kim HJ, Choi KH, Kim SH, Cummings JL, Yang DW. Validation study of the Korean version of the brief clinical form of the neuropsychiatric inventory. Dementia and Geriatric Cognitive Disorders Extra. 2016;6(2):214-221. https://doi.org/10.1159/000445828
DOI
|
28 |
Shin JS, Lee YB. The effects of social supports on psychosocial well-being of the unemployed. Korean Journal of Social Welfare. 1999;37:241-269.
|
29 |
Tarlow BJ, Wisniewski SR, Belle SH, Rubert M, Ory MG, Gallagher-Thompson D. Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for alzheimer's caregiving. Research on Aging. 2004; 26(4):429-453. https://doi.org/10.1177/0164027504264493
DOI
|
30 |
Tramonti F, Bongioanni P, Leotta R, Puppi I, Rossi B. Age, gender, kinship and caregiver burden in amyotrophic lateral sclerosis. Psychology, Health & Medicine. 2015;20(1):41-46. https://doi.org/10.1080/13548506.2014.892627
DOI
|