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http://dx.doi.org/10.4040/jkan.2018.48.4.454

Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis  

Chu, Hyeon Sik (College of Nursing, Hanyang University)
Tak, Young Ran (College of Nursing, Hanyang University)
Kim, Seung Hyun (Cell Therapy Center for Neurological Disorders, Hanyang University Hospital)
Publication Information
Journal of Korean Academy of Nursing / v.48, no.4, 2018 , pp. 454-464 More about this Journal
Abstract
Purpose: The purpose of this study was to identify factors influencing psychosocial well-being in family caregivers of patients with amyotrophic lateral sclerosis (ALS). Methods: A descriptive correlational design was used. The transactional model of stress and coping was used to investigate the psychosocial well-being of 137 family caregivers of patients with ALS. Data were collected through self-reported questionnaires from January to November 2016. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 21.0 program. Results: The regression model had an adjusted $R^2$ of .49, which indicated that meaning-focused coping, social support, ALS patient-family caregiver relationship (especially a spousal relationship), and tracheostomy were significant predictors of caregivers' psychosocial well-being. Conclusion: Meaning-focused coping and social support significantly influenced caregivers' psychosocial well-being. Therefore, interventions to improve caregivers' psychosocial well-being must focus on increasing meaning-focused coping and social support resources.
Keywords
Amyotrophic lateral sclerosis; Family caregivers; Psychological adaptation; Social adjustment;
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