Browse > Article
http://dx.doi.org/10.4040/jkan.2010.40.3.411

The Life of Adolescent Patients with Complex Congenital Heart Disease  

Lee, Sun-Hee (College of Nursing, Eulji University)
Kim, So-Sun (College of Nursing.The Nursing Policy Research Institute, Yonsei University)
Publication Information
Journal of Korean Academy of Nursing / v.40, no.3, 2010 , pp. 411-422 More about this Journal
Abstract
Purpose: In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea. Methods: After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated. Results: The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life. Conclusion: The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.
Keywords
Adolescent; Congenital heart defect; Grounded theory; Life;
Citations & Related Records
Times Cited By KSCI : 2  (Citation Analysis)
Times Cited By Web Of Science : 0  (Related Records In Web of Science)
연도 인용수 순위
1 Cabinno, M. M. (2001). Health care issues facing adolescents with congenital heart disease. Journal of Pediatric Nursing, 16, 363-370.   DOI   ScienceOn
2 Gutgesell, H. P., Gessner, I. H., Vetter, V. L., Yabek, S. M., & Norton, J. B. Jr. (1986). Recreational and occupational recommendations for young patients with heart disease. A statement for physician by the Committee on congenital cardiac defects of the council on cardiovascular disease in the young, American Heart Association. Circulation, 74, 1195-1198.   DOI   ScienceOn
3 Deanfield, J., Thaulow, E., Warnes, C., Webb, G., Kolbel, F., Hoffman, A., et al. (2003). Management of grown up congenital heart disease. European Heart Journal, 24, 1035-1084.   DOI   ScienceOn
4 Erickson, E. H. (1980), Identity and the life cycle. New York, NY: W. W. Norton & Co.
5 Foster, E., Graham, T. P., Driscoll, D. J., Reid, G. J., Reiss, J. G., Russel, I. A., et al. (2001). Task force 2: Special health care needs of adults with congenital heart disease. Journal of the American College of Cardiology, 37, 1176-1183.   DOI   ScienceOn
6 Swan, L., & Hillis, S. (2000). Exercise prescription in adult with congenital heart disease: A long way to go. Heart, 83, 685-687.   DOI
7 Berghammer, M., Dellborg, M., & Ekman, I. (2006). Young adults experiences of living with congenital heart disease. International Journal of Cardiology, 110, 340-347.   DOI   ScienceOn
8 Branden, N. (1992). The power of self esteem. Deerfield Beach, Health Communication. Inc.
9 Spijkerboer, A. W., Utens, E. M. W. J., De Koning, W. B., Bogers, A. J. J. C., Helbing, W. A., & Verhulst, F. C. (2006). Health related quality of life in children and adolescents after invasive treatment for congenital heart disease. Quality of Life Research, 15, 663-673.   DOI   ScienceOn
10 Strauss, A., & Corbin, J. (1998). Basics of qualitative research techniques and procedures for developing grounded theory (2nd ed.). London: Sage, Publications.
11 Uzark, K., vonBargen Mazza, P., & Messiter, E. (1989). Health education needs of adolescents with congenital heart disease. Journal of Pediatric Health Care, 3, 137-143.   DOI
12 Viner, R. (1999). Transition from paediatric to adult care. Bridging the gaps or passing the buck? Archives of Disease in Childhood, 81, 271-275.   DOI   ScienceOn
13 Lee, H. J. (2001). Congenital heart disease after childhood experience of "grown up congenital heart clinic (GUCH Clinic)". Korean Circulation Journal, 31, 537-541.
14 Lee, C. S. (2000). Influences of home environment, school environment and self-esteem on adolescent's ego-identity in Cheju. Journal of College Education, 2, 109-136.
15 Lee, E. S. (2007). Construction of a structural model about male and female adolescent's alienation, depression, and suicidal thought. Journal of Korean Academy of Nursing, 37, 576-585.   과학기술학회마을
16 Lee, H., Kim, M. H., Jung, J. W., Kim, S. H., & Choi, B. Y. (2001). Prevalence of congenital heart disease from the elementary student heart disease screening program. Korean Journal of Preventive Medicine, 34, 427-436.
17 Masi, G., & Brovedani, P. (1999). Adolescents with congenital heart disease: Psychopathological implications. Adolescence, 34, 185-191.
18 Saunders, C. P., & Roberts, G. J. (1997). Dental attitudes, knowledge, and health practices of parents of children with congenital heart disease. Archives of Disease in Childhood, 76, 539-540.   DOI   ScienceOn
19 Han, S. S., & Kim, K. M. (2006). Influencing factors in self-esteem in adolescents. Journal of Korean Academy of Nursing, 36, 37-44.   과학기술학회마을
20 Guba, E. G., & Lincoln, Y. S. (1981). Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco, CA: Jossey-Bass.
21 Immer, F. F., Althaus, S. M., Berdat, P. A., Saner, H., & Carrel, T. P. (2004). Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases. European Journal of Cardiovascular Prevention and Rehabilitation, 12, 138-143.
22 Kamphuis, M., Ottenkamp, J., Vliegen, H. W., Vogels, T., Zwinderman, K. H., Kamphuis, R. P., et al. (2002). Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart, 87, 356-362.   DOI
23 Kools, S., Gilliss, C. L., & Tong, E. M. (1999). Family transition in congenital heart disease management: The impact of hospitalization in early adulthood. Journal of Family Nursing, 5, 404-423.   DOI
24 Claessens, P., Moons, P., Dierckx de Casterle, B., Cannaerts, N., Budts, W., & Gewiling, M. (2005). What does it mean it live with congenital heart disease? A qualitative study on the lived experiences of adult patients. European Journal of Cardiovascular Nursing, 4, 3-10.   DOI   ScienceOn
25 Lane, D. A., Lip, G. Y. H., & Millane, T. A. (2002). Quality of life in adults with congenital heart disease. Heart, 88, 71-75.   DOI
26 Casey, F. A., Sykes, D. H., Craig, B. G., Power, R., & Connor Mulholland, H. (1996). Behavioral adjustment of children with surgically palliated complex congenital heart disease. Journal of Pediatric Psychology, 21, 335-352.   DOI   ScienceOn