Browse > Article

The Experiences of Family Caregiving in a Chronic Care Unit  

Cho, Myung-Ok (Department of Nursing at Dongeui University)
Publication Information
Journal of Korean Academy of Nursing / v.35, no.8, 2005 , pp. 1461-1475 More about this Journal
Abstract
Purpose. The main purpose of this critical ethnography was to examines the process and discourses through which family caregivers experience while caring for their sick family member in a hospital. Methods. This was achieved by conducting in-depth interviews with 12 family caregivers, and by observing their caring activities and daily lives in natural settings. The study field was a unit for neurologic patients. Data was analyzed using taxonomy, discourse analysis, and proxemics. All research work was iteratively processed from March 2003 to December 2004. Results. Constant comparative analysis of the data yielded the process of becoming a successful family caregiver: encountering the differences and chaos as novice; constructing their world of skilled caregivers; and becoming a hospital family as experienced caregivers. During the process of becoming an experienced hospital family, the discourse of family centered idea guided their caring behaviors and daily lives. Conclusion. The paternalistic family caregivers struggled, cooperated, and harmonized with the patriarchal world of professional health care system. During this process of becoming hospital family, professional nurses must act as cultural brokers between the lay family caring system and the professional caring system.
Keywords
Critical ethnograpy; Family; Experiences of caregiving;
Citations & Related Records
연도 인용수 순위
  • Reference
1 Bishop, A. H. & Scudder, J. R. (1991). Nursing: the practice of caring. New York: National League for Nursing
2 Bowers, B. (1987). Intergenerational caregiving: adult caregivers and their aging parents. Adv Nurs Sci 9, 20-31   DOI   PUBMED
3 Cantor, M. H. (1983). Strain among caregivers: A study of experience in the Unit State. The Gerontologist, 23, 597-604   DOI   PUBMED   ScienceOn
4 Cantor, M. H. (1983). Strain among caregivers: A study of experience in the Unit State. The Gerontologist, 23, 597-604   DOI   PUBMED   ScienceOn
5 Hudacek, S. (2004). Making a difference: Stories from the point of care. Indianapolis: Sigma Theta Tau International
6 Kaye, L. W., and Applegate, J. S. (1990). Men as elder caregivers: A response to changing families. J of American Orthopsych, 60, 86-95   DOI   ScienceOn
7 Leininger, M. M. (1991). Culture care diversity and universality: A theory of Nursing. New York: National League for Nursing Press
8 Parsons, K. (1997). The male experience of caring for family member with Alzheimer's disease. Qual Health Res, 7, 391-407   DOI   ScienceOn
9 Poirier, S. & Ayres, L. (2002). Stories of family caregiving. Indianapolis: The Honor Society of Nursing Sigma Theta Tau International Center Nursing Publishing
10 Wood, A. D. (1973). 'The fashionable disease': Women's complaints and their treatment in nineteenth-century America. J of Interdis History, 4, 25-52   DOI   ScienceOn
11 Morse, J. M. (1994). Critical Issues in Qualitative Research Methods. Thousand Oak: Sage
12 Atwood, J. (1978). The phenomenon of selective neglect. In M. Smith and M.D. Bowie(Eds.) The anthropology of health. New York: Prentice-Hall
13 Callahan, D. (1988). Families as caregivers: The limits of morality. Arc of Physic and Rehab, 69, 323-329
14 Barker, C, & Galasinski, D. (2001). Cultural studies and discourse analysis. Thousand Oak, CA: Sage
15 Farran, C. J., Keeane-Haggerty, E., Salloway, S., Kupfere, S., and Wilken, C. S. (1991). Finding meaning: An alternative paradigm for Alzheimer's disease family caregivers. The Gerontologist, 31, 483-489   DOI   ScienceOn
16 Hall, E. T. (2001). The silent language. Translated in Korean by Choi, H. S. Seoul: Hangil Press
17 Sevesten, B. M. (2004). Cultivating stories of care. In K. H. Knavagh and V. Knowlden(Eds.). Many Voice: toward caring culture in health care and healing V. Madison: The University of Wisconsin Press. Madison
18 Sexton, D. L., and Murno, B. H. (1985). Impact of a husband's chronic illness on the spouse's life. Res in Nurs and Health, 8, 83-90   DOI   ScienceOn
19 Stevenson, J. S., and Tripp-Reimer, T. (Eds.)(1990). Knowledge about care and caring: state of are and future development. Kanavas: American Academy of Nursing
20 Foucault, M. (1991). Power and Knowledge. Translated in Korean by Lee, J. W. Seoul: Nanam Press
21 Kavanagh, K. H., and Knowlden, V. (2004). Many Voices: Toward caring culture in health care and healing. Madison: The University of Wisconsin Press
22 Neufeld, A., and Harrison, M. J. (1998). Men as caregivers: Reciprocal relationships or obligation? J of Adv Nurs, 28, 959-968   DOI   PUBMED
23 Given, B. A., King, S. K., Collins, C, and Given, C. W. (1988). Family caregivers of the elderly: involvement and reactions to care. Arc of Psychi Nurs, 2, 281-288
24 Bass, D. M., and Noelker, L. S. (1987). The influence of family caregiving on elder's use of in-home services: An expanded conceptual framework. J of Health and Social Behav, 28,184-197   DOI   ScienceOn
25 Miczo, N. (2003). Beyond the 'Fetishism of words': consideration on the use of the interview to gather chronic illness narratives. Qual Health Res, 13(4), 469-490   DOI   PUBMED   ScienceOn
26 Swanson, K. M. (1991). Empirical development of a middle range theory of caring. Nursing Research, 40,161-166   PUBMED
27 Montgomery, R. J. V. (1989). Investigating caregiver burden. In K. S. Markides & C. L. Cooper(Eds.). Aging, Stress, and Health. New York: Wiley
28 Aamodt, A. M. (1991). Ethnography and epistemology: generating nursing knowledge. In J. M. Morse(Eds.). Qualitative Nurs Res. California: Sage
29 Klein, S. (1989). Caregiver burden and moral development. Image:J of Nurs Scholar, 21, 94-97   DOI
30 Ann, S. Y. (2002). Elderly caregiver's perceived impact of care on daily living. J of Kor Geront Nurs, 4(2), 217-228
31 Park, Y. H., and Hyun, H. J. (2000). Caregiver burden and family functioning of cancer patients. J of Kor Adult Nurs, 12(3), 384-396
32 Abel, E. K. (2000). Hearts of wisdom: American women caring for kin. MA: Harvard University Press
33 Farran, C. J., Keeane-Haggerty, E., Salloway, S., Kupfere, S., and Wilken, C. S. (1991). Finding meaning: An alternative paradigm for Alzheimer's disease family caregivers. The Gerontologist, 31, 483-489