대한간호학회지 (Journal of Korean Academy of Nursing)

한국간호과학회 (Korean Society of Nursing Science)
권호 표지
DOI QR코드

DOI QR Code

지역사회 거주 장애인의 건강관리 향상을 위한 지원 요구 분석: 장애인지원주택 운영 관리자의 관점에서

Support Needs for Health Promotion of Community-Dwelling People with Disabilities: Perspectives of Operators Managing Disability Supportive Housing

  • 투고 : 2023.11.08
  • 심사 : 2024.03.12
  • 발행 : 2024.05.31
PDF 다운로드
⟨ 이전 논문 다음 논문 ⟩

초록

Purpose: Recent studies have focused on policies aimed at supporting the independence of individuals with disabilities in communities. As part of this initiative, supportive housing, integrated care, and residential spaces offer tailored services based on individual needs and autonomy. The attitudes and knowledge of the administrators supporting supportive housing residents regarding health management can influence the well-being of individuals with disabilities. Therefore, this study aimed to explore the challenges faced by supporting housing workers in enhancing the self-management skills of individuals with disabilities. Methods: In this qualitative study, focus group interviews were conducted in August 2023 with nine administrators working to support housing in Seoul. Qualitative content analysis was used to analyze the interview data. Results: The needs and challenges in enhancing the self-management skills of individuals with disabilities were as follows: (1) the complexity of health management challenges, (2) bidirectional strategies for strengthening health management capabilities, and (3) support for systematic health management. Additionally, eight subthemes were derived. Conclusion: By investigating the difficulties experienced and identifying the necessary support requirements for supportive housing workers, this study seeks to uncover insights and identifies areas for improvement and strategies for health management. This study acknowledges the educational and institutional support necessary to improve the health and quality of life of individuals with disabilities residing in supportive housing.

키워드

과제정보

This research was supported by Basic Science Research Program through the National Research Foundation of Korea (NRF) funded by the Ministry of Education (2022R1I1A207290712).

참고문헌

  1. Oh U, Kim SH, Park KO, Oh DE. A study of the pathways from institutions to community living for persons with disabilities. Korea Institute for Health and Social Affairs; 2019 Dec. Report No.: 2019-10.
  2. Lee S, Lee B, Kim H. Major issues and tasks of the deinstitutionalization for the people with disabilities: A focus on Seoul. Health & Welfare. 2019;21(4):69-86.  https://doi.org/10.23948/kshw.2019.12.21.4.69
  3. Kim JY, Kang MW, Seo WY, Lee JW. Chronic diseases, health behaviors, and mortality in persons with disabilities: An analysis of the National Health Insurance Service-Health Screening (NHIS-HEALS) database. Health and Social Welfare Review. 2020;40(2):121-150.  https://doi.org/10.15709/hswr.2020.40.2.121
  4. Ho SH, Kim YS, Yang JH, Ahn BK, Baek YJ, Eun SD, et al. 2017 Health management for people with disabilities. National Rehabilitation Center; 2018 Apr. Report No.: IS-11-18-06.
  5. Seo H. A study on developing manual to support for de-institutionalized people with disabilities. Korea's Disabled People's Development Institute; 2021 Dec. Report No.: 21-28.
  6. Seo H, Min S, Kim J, Lee S. A study on ways to build a support housing system for de-institutionalized people with disabilities. Korea's Disabled People's Development Institute; 2021 Oct. Report No.: 21-15.
  7. Kim J, Min S, An E, Lee S, Choi S. Operational manual for Seoul support housing for people with disabilities. Seoul Welfare Foundation; 2021 Dec. Report No.: 2021-42.
  8. Kim UK, Yu HY. The relationship between educational needs and the caregiving burden in stroke patients' primary caregivers. Quality Improvement in Health Care. 2019;25(1):29-42. https://doi.org/10.14371/qih.2019.25.1.29
  9. Rimmer JH, Rowland JL. Health promotion for people with disabilities: Implications for empowering the person and promoting disability-friendly environments. American Journal of Lifestyle Medicine. 2008;2(5):409-420.  https://doi.org/10.1177/1559827608317397
  10. Meade MA, Mahmoudi E, Lee SY. The intersection of disability and healthcare disparities: A conceptual framework. Disability and Rehabilitation. 2015;37(7):632-641.  https://doi.org/10.3109/09638288.2014.938176
  11. Ho S. What are the diseases, medical access, and causes for death for people with disabilities and without disabilities? In: National Rehabilitation Center. Proceedings of 2022 Statistics for Health Status of People with Disabilities Conference; 2022 Apr 21; Seoul, Korea. Seoul: National Rehabilitation Center; c2022. p. 1-100. 
  12. Lee YM. The study on the factors of life satisfaction among disabled elderly focused on comparison between aging with disability and disability with aging. Journal of Welfare for the Aged. 2013;62:35-58.  https://doi.org/10.21194/kjgsw..62.201312.35 
  13. Park S, Conroy JW, Lee S, Kim J. Deinstitutionalization and community supported living: Focused on changes of life quality among persons with severe disabilities. Journal of Intellectual Disabilities. 2023;25(1):133-153.  https://doi.org/10.35361/KJID.25.1.6 
  14. Lee S, Jo J. 2020 Survey on independent living for people with severe disabilities in Seoul. Seoul Welfare Foundation; 2020 Nov. Report No.: 2020-32.
  15. Kim S, Lee MK, Oh UC, Oh DE, Hwang JH, Oh MA, et al. 2020 National survey of disabled persons. Korea Institute for Health and Social Affairs; 2020 Dec. Report No.: 11-1352000-000568-12.
  16. Havercamp SM, Scott HM. National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities. Disability and Health Journal. 2015;8(2):165-172.  https://doi.org/10.1016/j.dhjo.2014.11.002 
  17. Ritchie J, Lewis J, Nicholls CM, Ormston R. Qualitative research practice: A guide for social science students and researchers. 2nd rev. ed. Sage Publications; 2023. p. 456. 
  18. Dilshad RM, Latif MI. Focus group interview as a tool for qualitative research: An analysis. Pakistan Journal of Social Sciences. 2013;33(1):191-198. 
  19. Elo S, Kyngas H. The qualitative content analysis process. Journal of Advanced Nursing. 2008;62(1):107-115.  https://doi.org/10.1111/j.1365-2648.2007.04569.x 
  20. Lincoln YS, Guba EG. Naturalistic inquiry. Sage Publications; 1985. p. 415.
  21. Krueger RA, Casey MA. Focus groups: A practical guide for applied research. 4th ed. Sage Publications; 2009. p. 1-240. 
  22. Lee SH, An HS, Jung JE, Kim GH. Review of research trends and future research directions regarding the health of people with developmental disabilities. Special Education Research. 2021;20(2):31-61.  https://doi.org/10.18541/ser.2021.02.20.2.31
  23. Marshall D, McConkey R, Moore G. Obesity in people with intellectual disabilities: The impact of nurse-led health screenings and health promotion activities. Journal of Advanced Nursing. 2003;41(2):147-153.  https://doi.org/10.1046/j.1365-2648.2003.02522.x
  24. Kim D. Lee B, Lee C, Yoo K, Yu S, Lee K, et al. Seoul transition service support housing project for people with disabilities: Independent living housing coordinator job manual. Seoul Welfare Foundation; 2017. Report No.: 2017-5. 
  25. Lee J, Jang S. A comparative study of formal education systems for long-term care workers in six countries. The Journal of Long Term Care. 2018;6(1):6-30.  https://doi.org/10.32928/TJLTC.6.1.1 
  26. Rimmer JH. Health promotion for people with disabilities: The emerging paradigm shift from disability prevention to prevention of secondary conditions. Physical Therapy. 1999;79(5):495-502. https://doi.org/10.1093/ptj/79.5.495 
  27. Yoo HY, Kim MO. Social workers' experience of supporting the right of self-determination of people with developmental disabilities at residential facilities. Korean Journal of Qualitative Research in Social Welfare. 2017;11(3):69-94.  https://doi.org/10.22867/kaqsw.2017.11.3.69 
  28. Bigby C, Whiteside M, Douglas J. Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services. Journal of Intellectual & Developmental Disability. 2019;44(4):396-409.  https://doi.org/10.3109/13668250.2017.1378873 
  29. Owens R, Earle S, McNulty C, Tilley E. What works in community health education for adults with learning disabilities: A scoping review of the literature. Journal of Applied Research in Intellectual Disabilities. 2020;33(6):1268-1283.  https://doi.org/10.1111/jar.12746 
  30. Rimmer JH. Health promotion for individuals with disabilities: The need for a transitional model in service delivery. Disease Management & Health Outcomes. 2002;10(6):337-343.  https://doi.org/10.2165/00115677-200210060-00002 
  31. Ruggiano N, Whiteman K, Shtompel N. "If I don't like the way I feel with a certain drug, I'll tell them.": Older adults' experiences with self-determination and health self-advocacy. Journal of Applied Gerontology. 2016;35(4):401-420.  https://doi.org/10.1177/0733464814527513 
  32. Carrington S, Lennox N, O'Callaghan M, McPherson L, Selva G. Promoting self-determination for better health and wellbeing for adolescents who have an intellectual disability. Australasian Journal of Special Education. 2014;38(2):93-114. https://doi.org/10.1017/jse.2013.16 
  33. Feldman MA, Owen F, Andrews AE, Tahir M, Barber R, Griffiths D. Randomized control trial of the 3Rs health knowledge training program for persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. 2016;29(3):278-288. https://doi.org/10.1111/jar.12186
  34. Chinn D, Homeyard C. Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review. Health Expectations. 2017;20(6):1189-1200. https://doi.org/10.1111/hex.12520
  35. Mastebroek M, Naaldenberg J, Lagro-Janssen AL, de Valk HVSL. Health information exchange in general practice care for people with intellectual disabilities-a qualitative review of the literature. Research in Developmental Disabilities. 2014;35(9):1978-1987.  https://doi.org/10.1016/j.ridd.2014.04.029
  36. Roll AE. Health promotion for people with intellectual disabilities - a concept analysis. Scandinavian Journal of Caring Sciences. 2018;32(1):422-429.  https://doi.org/10.1111/scs.12448
  37. Kim YD. Community centered approach on social service policies for disabled people: Issues and directions. Journal of the Korean Association for Social Service. 2016;6(2):1-28.
  38. Kim JW. Implication learnt form the history of deinstitution-alisation for disabled people in the UK - centred on living in the community and enhancement of subjectivity of disabled people. Korean Journal of Social Welfare. 2018;70(3):7-27. https://doi.org/10.20970/kasw.2018.70.3.001
  39. Kim S Hwang JH, Kim YJ, Roh SH, Lee DS, Chong HK, et al. A study on the promoting strategies for the right to health for healthy life of persons with disabilities. Korea Institute for Health and Social Affairs; 2017 Dec. Report No.: 2017-42. 
  40. Choi KH, Kim M, Choi Y, Cho YM, Kim MS, Jeong E, et al. Current status of unmet health care needs in the disabled in Korea. Health and Social Welfare Review. 2021;41(3):160-176. https://doi.org/10.15709/hswr.2021.41.3.160
  41. Moon D, Yoo Y. Analysis of community housing support for the realization of community care for the disabled - based on the residential facilities for the disabled according to 「Act on Welfare of Persons with Disabilities」. Journal of Disability and Welfare. 2019;43:5-35.  https://doi.org/10.22779/kadw.2019.43.43.5
  42. Ho SH, Lee M, Choi Y, Lee EY, Ahn H. Implementation of web application supporting customized Health management of healthcare managers of people with disabilities. In: Whang MC, Lee JH, Jung EC, Lee H, Yeoun MH, Kim HS, et al., editors. Proceedings of HCI Korea 2019; 2019 Feb 13-16; Jeju, Korea. Seoul: The HCI Society of Korea; c2019. p. 928-931.
  43. Kim JH, Kim KM, Rhee HS. Development of essential items for personal health record(e-PHR) for integrated healthcare service for people with brain lesions. Health and Social Welfare Review. 2022;42(3):95-119.  https://doi.org/10.15709/hswr.2022.42.3.95