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환자 가족의 중환자실 일기 체험

The Lived Experiences of Patient's Families with the Intensive Care Unit Diary

  • 정유진 (삼성서울병원 암병원 외과계 중환자실) ;
  • 류성숙 (삼성서울병원 암병원 외과계 중환자실) ;
  • 신현정 (삼성서울병원 암병원 외과계 중환자실) ;
  • 이영희 (성균관대학교 임상간호대학원)
  • 투고 : 2022.09.22
  • 심사 : 2022.11.02
  • 발행 : 2023.02.28

초록

Purpose : Intensive care unit (ICU) diaries have been implemented across the international ICU community. This study aimed to comprehend the meaning and nature of the lived experience of patients' families using the ICU diary in Korea. Methods : This qualitative study adopted van Manen's hermeneutic phenomenology. The participants comprised eight women and two men who were the family members of patients in the ICU for more than three days. Data were collected using in-depth interviews and observation from July 2018 to January 2019. Results : Patients' families who experienced the ICU diary recognized it with six beings according to time: a good idea, forgotten stuff, burdensome work, touching service, my stuff, and a thing in the memory. The ICU diary had three essential meanings for the families: communication, solace and hope, and a record of life. These findings were rearranged according to van Manen's fundamental existential, and the lived things and lived others were remarkably confirmed. Conclusion : Patients' families experienced various ICU diary forms over time and recognized an ICU diary as a means of communication. Therefore, the ICU diary is expected to be used as an intervention between families and healthcare providers in the ICU to support mutual communication.

키워드

과제정보

본 연구는 2018년 삼성서울병원 간호본부 지원을 받아 진행되었음

참고문헌

  1. Kim ES, Park JS, Park CJ. A relation study on burden, health promotion behavior and health status of the family caregiver of intensive care unit patient. Journal of Korean Academy of Nursing. 2002;32(5):654-64. http://dx.doi.org/10.4040/jkan.2002.32.5.654 
  2. Hwang HN, Kim KB. The lived Experiences of the inpatients' families in the intensive care units. Korean Journal of Adult Nursing. 2000;12(2):175-83. 
  3. Lee JY, Kim H. Communication type of nurses, satisfaction with care, satisfaction with decision making, and intention to revisit perceived by family member of ICU. Paper presented at: The 12th International Nursing Conference; 2019 october 24-5; Seoul, Korea. 
  4. Egerod I, Christensen D, Schwartz-Nielsen KH, Agard AS. Constructing the illness narrative: a grounded theory exploring patients' and relatives' use of intensive care diaries. Critical Care Medicine. 2011;39(8):1922-28. http://dx.doi.org/10.1097/CCM.0b013e31821e89c8 
  5. Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, et al. Diaries for recovery from critical illness. Cochrane Database of Systematic Reviews. 2014(12):CD010468. http://dx.doi.org/10.1002/14651858.CD010468.pub2 
  6. Mickelson RS, Piras SE, Brown L, Carlile C, Drumright KS, Boehm L. The use and usefulness of ICU diaries to support family members of critically ill patients. Journal of Critical Care. 2021;61:168-76. https://doi.org/10.1016/j.jcrc.2020.10.003 
  7. Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, et al. Impact of an intensive care unit diary on psychological distress in patients and relatives. Critical Care Medicine. 2012;40(7):2033-40. http://dx.doi.org/10.1097/CCM.0b013e31824e1b43 
  8. Garrouste-Orgeas M, Perier A, Mouricou P, Gregoire C, Bruel C, Brochon S, et al. Writing in and reading ICU diaries: qualitative study of families' experience in the ICU. PLoS One. 2014;9(10):e110146. https://doi.org/10.1371/journal.pone.0110146 
  9. Drumright K, Jones AC, Gervasio R, Hill C, Russell M, Boehm L. Implementation of an intensive care unit diary program at a veterans affairs hospital. Journal of Nursing Care Quality. 2021;36(2):155-61. https://doi.org/10.1097/NCQ.0000000000000510 
  10. Shin NR. Developing of ICU diaries for critical care patients [master's thesis]. Seoul: Yousei University; 2018. p. 1-84. 
  11. Husserl E. The crisis of European sciences and transcendental phenomenology. Lee JH, translator. Seoul, Korea: Hangilsa; 2016. p. 42-3. 
  12. van Manen M. Researching lived experience. Shin KR et al, translator. Paju, Korea: Dongnyok; 1994. 
  13. Hong SH. A phenomenological study of the caring in nursing science. Phenomenology and Contemporary Philosophy. 2011;50:213-41. http://www.riss.kr/link?id=A82731289 
  14. Kong BH. Nursing science and phenomenology. Journal of Meditation based Psychologial Counseling. 2014;11:1-12. http://www.riss.kr/link?id=A100316584  100316584
  15. Lee YH. What is phenomenology?. The Korean Publishing Journal. 1988;23:26-7. 
  16. Kong BH. Phenomenology in nursing research. Philosophy and Phenomenological Study. 2004;23:151-78. http://www.riss.kr/link?id=A76165166 
  17. Spiegelberg, H. The phenomoenological movement. Choi KH, Park IC, translator. Seoul, Korea: Theory and practice; 1991. p.109-19. 
  18. Yeu HR. Logic and methods of phenomenological research: Max van Manen's perspectives of hermeneutic phenomenological research methodology. Journal of Family and Counseling. 2015;5(1):1-20. http://www-riss-kr.libproxy.samsunghospital.com/link?id=A105776439  105776439
  19. Jung S. Inquiry of van Manen's hermeneutic phenomenological methodology. Journal of Qualitative Inquiry. 2018;4(1):1-30. http://dx.doi.org/10.30940/JQI.2018.4.1.1 
  20. Lincoln YS, Guba EG. Naturalistic inquiry. Beverly hills, CA: Sage; 1985. 
  21. Kang JW, Kim SO. A study on the components, contents, errors, and functions of teacher-parent daily report in day care center. Early Childhood Education Research & Review. 2017;21(5):303-24. 
  22. McEwen M, Wills EM. Theoretical basis for nursing. 4th ed. Koh CK, translator. Paju, Korea: Soomoonsa; 2016. p. 198. 
  23. Heidegger M. Sein und Zeit. Lee KS, translator. Seoul, Korea: Kachi; 1998. p. 198. 
  24. Kong BH. Nursing science and philosophy. PanKorean Philosophy. 2008;48:336-7. 
  25. Park WS. Only say the word. Seoul, Korea: Segyesa; 2004. 
  26. Cameron J. The right to write. Cho HN, translator. Seoul, Korea: Ida Media; 2013. p. 63. P. 66. 
  27. Garrouste-Orgeas M, Perier A, Mouricou P, Gregoire C, Bruel C, Brochon S, et al. Writing in and reading ICU diaries: qualitative study of families' experience in the ICU. PloS One. 2014;9(10):e110146. http://dx.doi.org/10.1371/journal.pone.0110146 
  28. Blair KTA, Eccleston SD, Binder HM, McCarthy MS. Improving the patient experience by implementing an ICU diary for those at risk of post-intensive care syndrome. Journal of Patient Experience. 2017;4(1):4-9. http://dx.doi.org/10.1177/2374373517692927 
  29. Nielsen AH, Angel S. Consolation or confrontation when interacting through an ICU diary - a phenomenological-hermeneutical study. Intensive and Critical Care Nursing. 2016;37:4-10. http://dx.doi.org/10.1016/j.iccn.2016.06.002 
  30. Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman AJ, Le Brocque R, et al. Perspectives of patients and family members regarding psychological support using intensive care diaries: an exploratory mixed methods study. Journal of Critical Care. 2017;38:263-8. http://dx.doi.org/10.1016/j.jcrc.2016.12.003 
  31. Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E. The extent and application of patient diaries in Danish ICUs in 2006. Nursing in Critical Care. 2007;12(3):159-67. http://dx.doi.org/10.1111/j.1478-5153.2007.00219.x 
  32. Teece A, Baker J. Thematic analysis: How do patient diaries affect survivors' psychological recovery? Intensive and Critical Care Nursing. 2017;41:50-6. http://dx.doi.org/10.1016/j.iccn.2017.03.002