Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
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Nurses' Perceived Needs and Barriers Regarding Pediatric Palliative Care: A Mixed-Methods Study

  • Kang, Kyung-Ah (College of Nursing, Sahmyook University) ;
  • Yu, SuJeong (Department of Nursing, Sangji University) ;
  • Kim, Cho Hee (College of Nursing, Seoul National University) ;
  • Lee, Myung-Nam (College of Health Science, Department of Nursing, Kangwon National University) ;
  • Kim, Sujeong (Department of Family Health Nursing, College of Nursing, The Catholic University of Korea) ;
  • Kwon, So-Hi (College of Nursing, Research Institute of Nursing Science, Kyungpook National University) ;
  • Kim, Sanghee (Yonsei University College of Nursing & Mo-Im Kim Nursing Research Institute) ;
  • Kim, Hyun Sook (Department of Nursing, Korea National University of Transportation) ;
  • Park, Myung-Hee (Hospice & Palliative Care Center, Seoul St. Mary's Hospital, The Catholic University of Korea) ;
  • Choi, Sung Eun (Regional Hospice Care Team, Regional Hospice Center, Chungnam National University Hospital)
  • Received : 2022.02.17
  • Accepted : 2022.04.13
  • Published : 2022.06.01
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Abstract

Purpose: This study aimed to describe nurses' perceived needs and barriers to pediatric palliative care (PPC). Methods: Mixed methods with an embedded design were applied. An online survey was conducted for nurses who participated in the End-of-Life Nursing Education Consortium- Pediatric Palliative Care (ELNEC-PPC) train-the-trainer program, of whom 63 responded. Quantitative data were collected with a survey questionnaire developed through the Delphi method. The 47 items for needs and 15 items for barriers to PPC were analyzed with descriptive statistics. Qualitative data were collected through open-ended questions and analyzed with topic modeling techniques. Results: The mean scores of most subdomains of the PPC needs were 3.5 or higher out of 4, and those of PPC barriers ranged from 3.22 to 3.56, indicating the items in the questionnaire developed in this study properly reflect each factor. The needs for PPC were divided into 4 categories: "children and adolescents," "families," "PPC management system," and "community-based PPC." Meanwhile, PPC barriers were divided into 3 categories: "healthcare delivery system," "healthcare provider," and "client." The keywords derived from the topic modeling were perception, palliative, children, and education for necessities and lack, perception, medical care, professional care providers, service, and system for barriers to PPC. Conclusion: In this study, by using mixed-methods, items of nurses' perceived needs and barriers to PPC were identified, categorized, and weighted, and their meanings were explored. For the stable establishment of PPC, the priority should be given to improving perceptions of PPC, establishing an appropriate system, and training professional care providers.

Keywords

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