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Intention to Live Independently in the Community of People with Developmental Disabilities as Identified by AAC

AAC를 통해 알아본 발달장애인의 지역사회 자립생활 의사

  • Kim, Nam-Sook (Dept. of Social Welfare, Tongmyong University) ;
  • Park, Ju-Hong (Dept. of Policy Issues Research, Busan Social Welfare Development Institute) ;
  • Kim, Bo-Reum (Dept. of Social Welfare, Pusan National University)
  • Received : 2021.07.14
  • Accepted : 2021.10.20
  • Published : 2021.10.28

Abstract

This paper aimed to reveal the needs and intentions of the people with developmental disabilities through AAC for supporting their independent living in the community and furthermore to contribute to realizing an inclusive community. From August 7 to September 11, 2020, trained researchers conducted 1to1 interviews(AAC) with 74 people recommended by specialized institutions. Data were analyzed by frequency-analysis, Chi-square-analysis and T-test using SPSS 25.0. As a result, the creation of community-level conditions(ex. housing and employment) and job aptitudes and preferences are important for the independent living and expectations and desires for social participation were high. It is different from the previous survey results through agents. It means the policy for the developmentally disabled should be based on their needs and aim for 'living in the community as a community member'. Based on these results, the implications of supporting decision-making for the ordinary lives of people with developmental disabilities were suggested.

본 연구는 보완대체의사소통(AAC)를 통해 지역사회 자립생활 지원에 기초자료가 될 발달장애인 당사자의 욕구와 의사를 밝히는데 목적이 있으며 나아가 발달장애인에 포용적인 지역사회를 구현하는데 기여하고자 했다. 이를 위해 2020년 8월 7일부터 9월 11일까지, 훈련된 조사원이, AAC 설문지를 활용하여 발달장애인 전문기관에서 추천받은 당사자 74명을 대상으로 1:1 면접조사하였다. 수집된 자료는 SPSS 25.0으로 빈도분석, 교차분석, T검정 분석했다. 그 결과 발달장애인의 지역사회 자립생활에는 주거와 취업 등 지역사회 차원의 여건 조성, 적성과 기호를 고려한 일자리 등이 중요하며 시민으로서의 권리행사 등 사회참여에 대한 기대와 욕구가 높은 것으로 나타났다. 이는 기존 대리인을 통한 연구결과와 다른 것으로, 향후 발달장애인 지원정책이 의사결정 지원에 의한 당사자의 욕구에 기초하고 '지역사회의 일원으로 지역사회 안에서 살아가는 일상적 삶'을 지향해야 함을 보여준다.

Keywords

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