Journal of Korea Entertainment Industry Association (한국엔터테인먼트산업학회논문지)

The Korea Entertainment Industry Association (한국엔터테인먼트산업학회)
권호 표지
DOI QR코드

DOI QR Code

Phenomenological Research on Disability Acceptance and Recovery Experience for the Life-Care of Adolescents with Disabilities

장애청소년의 라이프 케어를 위한 장애수용과 회복경험에 대한 현상학적 연구

  • Bak, Ah-Ream (Department of Occupational Therapy, Jeonju Kijeon College) ;
  • Kang, Jin-Ho (Department of Occupational Therapy, Jeonju Kijeon College)
  • 박아름 (전주기전대학 작업치료과) ;
  • 강진호 (전주기전대학 작업치료과)
  • Received : 2019.11.22
  • Accepted : 2020.02.25
  • Published : 2020.02.28
⟨ Previous Next ⟩

Abstract

This Study used phenomenological research method to understand disability acceptance and recovery experience for the life care of adolescents with disabilities. As a result, the study found four components: confusion and psychological anxiety due to disability, gradually accepting disability, strengthening motivation for recovery, overcoming disability, and returning to society. Psychological comfort was obtained through the support of the family and the psychological rapport between the therapists. The Youths with disabilities experienced a change in their perceptions of disability and hoped for life after discharge, overcoming frustration and showing their positive future. Based on the results of this study, we were able to understand the disability acceptance and recovery experience of adolescents with disabilities and identify the components of acceptance and recovery. The derived components can be used to guide disability acceptance and recovery interventions for the care of youth with disabilities.

본 연구는 장애청소년의 라이프 케어를 위한 장애수용과 회복경험을 이해하기 위해 현상학적 연구방법을 사용하였다. 현상학적 연구는 사람들의 경험을 이해하고자 하며, 현상에 대한 연구 참여자들의 인식을 서술하여 기술하는 연구방법으로, 연구 결과 장애로 인한 혼란과 심리적 불안, 장애를 서서히 받아들임, 회복에 대한 동기 강화, 장애 극복과 사회 복귀 네 가지의 구성요소를 도출하였다. 장애청소년들은 가족의 지지와 치료사에게 정신적 교감을 통해 심리적 위안을 받았으며 본인 및 치료사 노력을 통해 효과를 실감하여 회복을 위해 더 노력하였다. 장애청소년들은 회복됨과 동시에 장애에 대한 인식변화를 경험하였으며, 퇴원 후 삶에 대한 희망이 생겨 좌절을 극복하고 앞으로의 진로에 대한 긍정적인 모습을 보였다. 본 연구 결과를 토대로 장애청소년의 장애 수용과 회복 경험에 대해 이해할 수 있었으며, 수용과 회복의 구성요소를 확인할 수 있었다. 도출된 구성요소는 장애청소년의 라이프 케어를 위한 장애 수용과 회복 중재 방향성 제시를 위해 활용할 수 있을 것이다.

Keywords

References

  1. S-H. Do, and H-S. Jun, The General Teacher's Cognition about the Inclusion, The Educational Journal for Physical and Multiple Disabilities, Vol. 41, pp. 253-270, 2003.
  2. J. Ablon, The Nature of Stigma and Medical conditions, Epilepsy & Behavior, Vol. 3, No. 6, pp. 2-9, 2002. https://doi.org/10.1016/S1525-5050(02)00543-7
  3. L. Thompson, Functional changes affecting people ageing with disabilities, Aging with a disability: Johns Hopkins University, 2004.
  4. J. Rothman, Social work practice across disability, MA: allyn and Bacon, 2003.
  5. A-L. Kim, Quality of life model for spinal cord injured persons, Ehwa Womans University, Seoul, 2000.
  6. S-H. Kim, Disorder Acceptance and Depression Response by Disability Type and Return Type, Disability & Employment, Vol. 10, No. 4, pp. 64-88, 2000.
  7. J-Y. Ha, H-S. Park, S-J. Lee, J-H. Jeon, H-Y. Jo, and Y-J. Jee, The Recovery Experience of Young Adults and Middle Aged Stroke Patients, Korean Society of Adult Nursing, Vol. 22, No. 3, pp. 342-351, 2010.
  8. J-I. Won, and M-Y. Lee, A Prediction Model for Functional Recovery After Stroke, Physical Therapy Korea, Vol. 17, No. 3, pp. 59-67. 2010.
  9. D-Y. Lee, M-S. Lee, B-J. Na, K-Y. Kim, D-J. Lee, and D-K. Kim, Related Factors of the Motivation for Rehabilitation in Stroke Patients, Physical Therapy Korea, Vol. 13, No. 1, pp. 16-23. 2006.
  10. H-L. Kang, S-Y. Lee, and M-S. Sung, A Study on the Recovery process of Stroke in the Middle-aged Men Patients, Qualitative Research, Vol. 10, No. 2, pp. 152-165, 2009.
  11. P-F. Colazzi, Psychological research as the phenomenologist views Existential phenomenological alternatives for psychology. New York: Oxford University Press, pp. 48-71, 1978.
  12. N-H. Kim, E-J. Lee, S-Y. Kwak, and M-R. Park, A Phenomenological study on the experiences of parenting burden of working mother with young children in korea, Korean Journal of Women Health of Nursing, Vol. 19, No. 3, pp. 188-200, 2013. https://doi.org/10.4069/kjwhn.2013.19.3.188
  13. K-H. Koh, A Phenomenological Study on the Disability Meaning that the Visually Impaired Experienced, The Korean Journal of Visual Impairment, Vol. 27, No. 1, pp. 25-47, 2011.
  14. Y-J. You, M-H. Lee, E-R. Paik, and B-C. Choi, A Study on Family Burden and Needs for Family Support for Parents of Children with Disabilities, Special Education Research, Vol. 10, No. 1, pp. 209-234, 2011. https://doi.org/10.18541/ser.2011.02.10.1.209
  15. S-Y. Son, Illness Experience of Adolescents with Hematologic Malignancies, Journal of Korean Academy of Nursing, Vol. 41, No. 5, pp. 603-612, 2011. https://doi.org/10.4040/jkan.2011.41.5.603
  16. M-A-M. Gignac, and C. Cott, " A conceptual model of independence and dependence for adults with chronic physical illness and disability", Social Science & Medicine, Vol. 47, No. 6, pp. 739-753, 1998. https://doi.org/10.1016/S0277-9536(98)00149-X
  17. J-D. Llibre, A. Valhuredi, O. Fernandez, and J-C. Llibre, "Prevalence of stroke and associated risk factors in older adults in havana city and matanzas provinces, Cuba", MEDICC International Journal of Cubon Health & Medicine Review, Vol. 12, No. 3, pp. 20-26, 2010.
  18. M-O. Kim, H-S. Kim, and M-Y. Lee, A Phenomenological study on the disabled adolescents' experience of puberty, Korean Journal of Youth Studies, Vol. 10, No. 1, pp. 167-197, 2003.
  19. K. Charmaz, The body, identity, and self: Adapting to impairment, The Sociological Quarterly, Vol. 36, No. 4, pp. 657-680, 1995. https://doi.org/10.1111/j.1533-8525.1995.tb00459.x
  20. C-R. Burton, "Living with stroke: A phenomenological study", Journal of advanced Nursing, Vol. 32, No. 2, pp. 301-309, 2000. https://doi.org/10.1046/j.1365-2648.2000.01477.x
  21. Y-Y. You, and C-S, Ann, "A study of the relationships between perceived rehabilitation-motivation and quality of life in patients after a cerebrovascular accident", Journal of Korean Society of Occupational Therapy, Vol. 17, No. 2, pp. 1-16, 2009.
  22. H-K. Kong, and H-J. Lee, "Effect of empowerment program on rehabilitation motivation, depression, activities of daily living among the patients with stroke", Adult Nursing Association, Vol. 20, No. 3, pp. 406-417, 2008.
  23. Y-J. Kim, and H-J. Kwon, The Experiences of Adolescents Suffering from Cancer: Breaking out of the withdrawn Ego, Asian Oncology Nursing, Vol. 13, No, 4, pp. 304-312, 2013. https://doi.org/10.5388/aon.2013.13.4.304
  24. J-Y. Ha, H-S. Park, S-J. Lee, J-H, Jeon, H-Y. Jo, and Y-J. Jee, "The recovery experience of young adults and middle aged stroke patients", Journal of Korean Academy of Adult Nursing, Vol. 22, No. 3, pp. 342-531, 2010.
  25. K-S. Choi, S-A. Chi, and M-Y. Ham, "An ethnographic study of the experience study of the experience of stroke recovery", Nursing science research institute, Vol. 6, pp. 1-7, 2003.
  26. A-Y. Song, and S-K. Kim, Phenomenological Research on Recovery Lived Experience of Stroke Inpatients, Journal of the Korea Academia Industrial cooperation Society, Vol. 18, No. 7, pp. 200-207, 2017. https://doi.org/10.5762/KAIS.2017.18.7.200