Journal of Hospice and Palliative Care

  • 제19권2호
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  • Pages.145-153
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  • 2016
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  • 2765-3072(pISSN)
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  • 2765-3080(eISSN)
한국호스피스완화의료학회 (Korean Society for Hospice and Palliative Care)
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일개 독립형 호스피스 기관의 가정호스피스 이용자 특성 및 서비스 제공 실태

Home-Based Hospice Care Provided by a Free-Standing Hospice Center: Patients' Characteristics and Service Conditions

  • 투고 : 2015.11.12
  • 심사 : 2016.04.18
  • 발행 : 2016.06.01
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초록

목적: 본 연구는 독립형 호스피스기관의 가정호스피스 서비스에 등록한 말기환자의 특성과 가정호스피스 서비스 제공 실태를 파악하여 가정호스피스 서비스 모델 개발을 위한 기초자료를 제공하기 위하여 수행되었다. 방법: 일개 독립형 호스피스기관의 가정호스피스에 등록하여 방문서비스를 받고, 2014년 1월 1일부터 2014년 12월 31일 사이에 서비스가 종료된 말기환자의 의무기록지 75개를 후향적으로 분석하였다. 결과: 등록 환자의 54.7%가 자가 의뢰를 통하여 가정 호스피스를 이용하였다. 종료 후 25.3%가 가정에서 임종하였고, 50.7%는 호스피스병동, 22.6%는 대학병원이나 요양병원으로 입원하였다. 등록 당시 97.3%가 암성질환이었으며, 비암성질환으로 가정호스피스를 이용한 경우는 2.7%였다. 등록 환자의 58.7%가 임종기에 있었으며, 34.7%는 거의 완전한 와상 상태에 있어 전반적으로 낮은 활동수준을 보였다. 등록 당시 환자들이 가진 신체 증상은 통증(89.4%), 수면장애(71.2%), 배변문제(47.8%), 배뇨문제(35.8%) 순으로 나타났다. 전체 환자의 77.4%가 1개월 이내에 서비스가 종결되었다. 환자들에 대한 가정방문 횟수는 평균 3.25회로 전체 환자의 82.7%가 5회 미만의 가정방문을 받고 서비스가 종결되었으며, 전화상담 횟수는 평균 3.4회였다. 의사 방문 횟수는 평균 1.21회였으며, 이는 불안정기에 유의하게 증가하였다. 결론: 독립형 호스피스기관을 이용하는 환자의 특성과 서비스 제공 형태를 반영한 가정호스피스 서비스 모델 개발이 필요하다.

Purpose: This study was conducted to investigate patients' characteristics and actual conditions of home-based services offered by a free-standing hospice center. Methods: A retrospective review was performed with the medical records of 75 patients who received home-based hospice care from a free-standing hospice center from January 2014 through December 2014. Results: Most patients (54.7%) were enrolled via self-directed referral. The reason for the service termination was death at home 25.3%, admission to a hospice ward 50.7%, hospitalization 22.6% and patients' refusal 2.7%. Seventy three patients had cancer, and two patients had ALS. Among all, 58.7% were in a dying phase, and 34.7% were almost completely bedfast at the time of their enrollment in this study. When they enrolled, the patients' physical symptoms were characterized as pain (89.4%), sleep disturbance (71.2%), urinary difficulties (35.8%) and defecation difficulties (47.8%). Among all, 77.4% terminated the home visit service within one month. The mean frequency of the home visits was 3.25 (${\pm}3.98$), and less than five in 82.7% of patients. The mean frequency of the phone service was 3.40 (${\pm}3.12$). The frequency of doctor's home visits was $1.21{\pm}0.79$ on average, and the figure increased when patients' conditions turned unstable. Conclusion: It is necessary to develop a home-based hospice care model with consideration of patients' characteristics and the actual service conditions delivered by free-standing hospice facilities.

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참고문헌

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