Journal of Korean Academy of Nursing (대한간호학회지)

Korean Society of Nursing Science (한국간호과학회)
권호 표지
DOI QR코드

DOI QR Code

Life Experiences of Korean Patients with Hansen's Disease in Sorok Island Hospital

한센인의 삶: 소록도병원을 중심으로

  • Yang, Ya Ki (Department of Nursing, Wonkwang University)
  • Received : 2014.08.05
  • Accepted : 2014.10.02
  • Published : 2014.12.31
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: The purpose of this study was to identify life experiences of Korean patients with Hansen's disease (leprosy). Methods: For this study, 5 participants from Sorok Island Hospital were purposively chosen. Data were collected through in-depth individual interviews from June to July 2014. Data analysis method was based on Colaizzi's approach. Results: The study results showed that experiences of patients with Hansen's disease consisted of 14 themes and six theme clusters: 1) Bad disease approaching as fate; 2) Family breakup and far from the village; 3) New life in Sorok Island Hospital; 4) Treatment of Hansen's disease and disability; 5) Life in the disease community; 6) Comfort and hope of life. Conclusion: The findings of this study indicate that health care professionals should pay attention to patients with Hansen's disease not only to reduce their physical and psychological suffering, but also to help the community and public culture to reduce the social stigma surrounding this disease and causing suffering for the patients. The results of the present study can help us to have a better understanding of various aspects of patients' lived experiences.

Keywords

References

  1. Chae GT. Review of history of institute of Hansen's disease in the Catholic Medical College: (1961.4.1-2011.4.1). Seoul: Institute of Hansen's Disease; 2011.
  2. Jung KS. Dissolution of settlement village and network of migration in Hansen's disease ex-patient communities. Society and History. 2006;69:43-81.
  3. National Human Rights Commission of Korea. Survey on the human rights of Hansen's. Seoul: National Human Rights Commission of Korea; 2005.
  4. Kim JH. The lived experience of leprosy patient [master's thesis]. Gwangju: Chosun University; 2004.
  5. Korean Hansen Welfare Association. Cases under of service in 2013 [Internet]. Uiwang: Korean Hansen Welfare Association; 2013 [cited 2014 July 3]. Available from: http://www.khwa.or.kr/sub.asp?maincode=482&sub_sequence=529&sub_sub_sequence=&strBoardID=kui_529&exec=VIEW&intPage=&intCategory=0&strSearchCategory=$\|$s_name$\|$s_subject$\|$&strSearchWord=&intSeq=548.
  6. Cross H, Choudhary R. STEP: An intervention to address the issue of stigma related to leprosy in Southern Nepal. Leprosy Review. 2005;76(4):316-324.
  7. Shin SY. Social distance towards people affected by Hansen' disease. Korean Journal of Care Management. 2012;7:177-200.
  8. Kim KH, Chung IY, Seo SW. The effect of augmented lateral tarsal strip for paralytic ectropion in leprosy patients. Journal of the Korean Ophthalmological Society. 2009;50(4):497-504. http://dx.doi.org/10.3341/jkos.2009.50.4.497
  9. Kim SS, Kang YS. A study on spirituality and death attitudes of terminal patients with Hansen's disease. Mental Health & Social Work. 2007;25:41-73.
  10. Choi BT. Son Yang-Won and leprosy relief activities centered around the Aeyangwon church. Christianity and History in Korea. 2011;34:191-215.
  11. Jung KS. The start and change of the modern leprosy control in colonial Korea. Health and Social Science. 1997;1(1):1-30.
  12. Jung KS. Historical development and social structure of disease community: A case of Iksan farm. Journal of Modern Social Science. 1998;9:157-191.
  13. Joo YJ. Social works for the Hansen's disease patients in post-liberation Korea: Focusing on the works of Catholic organizations. The Research Foundation of Korean Church History. 2007;29:221-252.
  14. Park KD. Change of meaning in Sorok Island and actions taken in the Hansen community. Korean Regional Sociology. 2010;11(2):91-130.
  15. Kang TK. A study on the patients with Hansen's disease who experienced suicidal urge and overcame suicide [master's thesis]. Daegu: Daegu University; 2013.
  16. Colaizzi PF. Psychological research as the phenomenologist views it. New York, NY: Oxford University Press; 1978.
  17. Lee HK, Yang YH, Gu MO, Eun Y. Introduction of nursing research. 4th ed. Seoul: Hyunmoon; 2009.
  18. van Manen M. Writing qualitatively, or the demands of writing. Qualitative Health Research. 2006;16(5):713-722. http://dx.doi.org/10.1177/1049732306286911
  19. Morse JM, Hutchinson SA, Penrod J. From theory to practice: The development of assessment guides from qualitatively derived theory. Qualitative Health Research. 1998;8(3):329-340. http://dx.doi.org/10.1177/104973239800800304
  20. Heijnders ML. An exploration of the views of people with leprosy in Nepal concerning the quality of leprosy services and their impact on adherence behaviour. Leprosy Review. 2004;75(4):338-347.
  21. Yoo YS, Kim BR, Cho OH. Stigma, self-esteem and quality of life of people with Hansen's disease. Journal of Muscle and Joint Health. 2012;19(3):272-281. http://dx.doi.org/10.5953/JMJH.2012.19.3.272
  22. Oh SK. A study on improvement of management skill for persons affected by leprosy living with their families in Seoul metropolitan area [master's thesis]. Cheonan: Dankook University; 2009.
  23. Cho YS. Depression, loneliness and coping in client with Hansen's disease. Korean Leprosy Bulletin. 2009;42(1):99-114.
  24. Jung KS, editor. Another home, our landscape. Jeollanam-do: Sorokdo National Hospital; 2011.
  25. Chang SJ. Lived experiences of nursing home residents in Korea. Asian Nursing Research. 2013;7(2):83-90. https://doi.org/10.1016/j.anr.2013.04.003
  26. Lee JS. A study on the moderating effects of social support in the relationship between the stigma and social avoidance & distress of individuals with leprosy. Journal of Rehabilitation Research. 2011;15(3):107-130.
  27. Kim SL. Hansen's oral life histories and healing. Korean Journal of Medical History. 2013;22(2):389-420. https://doi.org/10.13081/kjmh.2013.22.389
  28. Kim HY, Eom CH. Search for humanities therapy utilizing oral history: Memory, trauma and history therapy. Studies in Humanities. 2010;24:361-383.