DOI QR코드

DOI QR Code

Development of a Korean Version of an Advance Directive Model via Cognitive Interview

인지면담을 이용한 한국형 사전의료의향서 모델 개발

  • Kim, Shin Mi (Department of Nursing, Changwon National University) ;
  • Hong, Young Sun (The Catholic University of Korea School of Medicine) ;
  • Hong, Sun Woo (Department of Emergency Medical Technology, Daejeon University) ;
  • Kim, Jin Shil (Department of Nursing, Suncheon National University) ;
  • Kim, Ki Sook (Department of Nursing, Changwon National University)
  • Received : 2012.11.22
  • Accepted : 2013.02.12
  • Published : 2013.03.01

Abstract

Purpose: The purpose of the study was to develop a feasible form of a Korean version of advance directives (K-AD). Methods: Sixteen adults participated in this study: 10 aged 20~50 years and nine aged 65 years or older. Using a draft version of the K-AD, cognitive interview was conducted on the participants to establish a culturally acceptable form of advance directives whose directions can be understood and responded accordingly by the general population. Results: Cognitive interviews revealed areas of concerns for the draft version of K-AD: lack of instructions or clarity for technical and medical terms, context complexity and inadequate response categories. The draft version was revised by rewording, offering examples and rearranging the context. Editorial style was added with appropriate uses of bold fonts, bullet-points and underlines to facilitate interviewees' cognitive responses. Conclusion: Study results feasibility of the revised version of the K-AD. Further study should be performed with a larger number of participants to develop a K-AD with an acceptable level of reliability and validity.

목적: 본 연구의 목적은 사전의료의향서 사용 집단을 대상으로 초안에서 도출된 한국형 사전의료의향서 콘텐츠의 구성 요소를 바탕으로 실제 사용자 집단에서 인지적, 심리적 및 사회적으로 수용 가능한 문장과 문항으로 구성된 문서를 구축하여 한국형 사전의료의향서 모델을 제시하는 것이다. 방법: 실제 사용자인 일반 성인의 보건의료정보 문해력과 정서적 수용성 및 작성 과정을 고려하여 초안을 작성하였으며 초안을 바탕으로 인지면담(Cognitive Interviewing) 방법을 통한 문항 개발 과정을 수행하였다. 대상자는 9명의 65세 이상 노인을 포함한 16명의 인지면담에 장애가 없는 성인이었다. 결과: 총 2회기에 걸친 인지면담 결과를 분석한 후 최종적으로 3개 속성(가치관, 의료지시[9문항] 대리인 지정)을 중심으로 총 430개 단어로 구성되는 모델을 확정 제안하였다. 결론: 본 연구에서는 한국형 사전의료의향서 문서를 효과적으로 향상시킬 수 있는 방법으로 인지면담을 사용하였으며 그 가능성을 검증하였다. 한국형 사전의료의향서 최종 모델을 위해서는 대규모 양적 연구를 통해 가용성을 검증하며, 신뢰도와 타당도를 확보하여 모델을 확정하는 과정이 포함된 추후연구가 필요할 것이다.

Keywords

References

  1. KMGL: precedents information [Internet]. Seoul: Korea Ministry of Government Legislation; 2008. [cited 2008 Nov 28]. Available from: http://www.law.go.kr/LSW/precInfoP.do?precSeq=124927.
  2. Bae J, Rheu H, Lee H, Jung S, Cho J, Lee N. Consensus statements for withdrawal and withholding futile life sustaining treatment at the end of life among diverse groups. Soeul:National Evidence-based Healthcare Collaborating Agency (NECA);2009.
  3. Yun YH, Rhee YS, Nam SY, Chae YM, Heo DS, Lee SW, et al. Public attitudes toward dying with dignity and hospice.palliative care. Korean J Hosp Palliat Care 2004;7:17-28.
  4. BPRC: advance directives version 3 [Internet]. Seoul: Bioethics Policy Research Center; 2011. [cited 2011 Jul 20]. Available from: http://www.bprlib.kr.
  5. Kim KW. National movement to complete advance directives- Starts as civil movement [Internet]. Seoul: Yonhap News Agency; 2010. Dec 15 [cited 2011 Nov 11]. Available from: http://www. yonhapnews.co.kr/bulletin/2010/12/14/0200000000AKR201012142 03900017.HTML?did=1179m.
  6. Heo DS. Patient autonomy and advance directives in Korea. J Korean Med Assoc 2009;52:865-870. https://doi.org/10.5124/jkma.2009.52.9.865
  7. Haisfield ME, McGuire DB, Krumm S, Shore AD, Zabora J, Rubin HR. Patients' and healthcare providers' opinions regarding advance directives. Oncol Nurs Forum 1994;21:1179-1187.
  8. Hahn ME. MSJAMA. Advance directives and patient-physician communication. JAMA 2003;289:96. https://doi.org/10.1001/jama.289.1.96
  9. Kim SM, Hong SW, Eun Y, Koh SJ. Prerequisites for Korean advance directives: from the view of healthcare providers. J Korean Acad Nurs 2012;42:486-495. https://doi.org/10.4040/jkan.2012.42.4.486
  10. Willis GB. Cognitive Interviewing: a tool for improving questionnaire design. London:SAGE Publications;2005.
  11. Willis GB, Lessler J. Question appraisal system BRFSS-QAS: A guide for systematically evaluating survey question wording. Rockville, MD:Research Triangle Institute;1999.
  12. Organisation for Economic Co-operation and Development. Education at a glance, 2011: OECD indicators [Internet]. Paris: OECD Publishing; 2011. Chapter A, The output of educational institutions and the impact of learning; [cited 2011 Nov 11]. Available from: http://www.oecd.org/education/highereducationandadultlearning/4863 1582.pdf.
  13. MedlinePlus: how to write easy-to-read health materials [Internet]. Rockville, MD: U.S. National Library of Medicine; 2012. [cited 2012 Feb 20]. Available from: http://www.nlm.nih.gov/medlineplus/ etr.html.
  14. Rudd RE, Moeykens BA, Colton TC. Health and literacy: a review of medical and public health literature. In: Coming J, Garner BC, Smith CA, National Center for the Study of Adult Learning and Literacy (U.S.). Annual review of adult learning and literacy. San Francisco, Calif.:Jossey-Bass Inc.;2000.
  15. National Library of Medicine (U.S.). Current bibliographies in medicine No. 2000-1 [Internet]. Bethesda, MD: U.S. Dept. of Health and Human Services, Public Health Service, National Institutes of Health, National Library of Medicine, Reference Section; 2000. Feb. [cited 2012 Feb 20]. Available from: http:// www.nlm.nih.gov/archive//20061214/pubs/cbm/hliteracy.pdf.
  16. Nielsen-Bohlman L, Panzer AM, Kindig DA, Institute of Medicine (U.S.), Committee on Health Literacy. Health literacy: a prescription to end confusion. Washington, D.C.:National Academies Press;2004.
  17. Tamayo-Velazquez MI, Simon-Lorda P, Villegas-Portero R, Higueras- Callejon C, Garcia-Gutierrez JF, Martinez-Pecino F, et al. Interventions to promote the use of advance directives: an overview of systematic reviews. Patient Educ Couns 2010;80:10-20. https://doi.org/10.1016/j.pec.2009.09.027
  18. Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: what do we need for success? J Am Geriatr Soc 2007;55:277-283. https://doi.org/10.1111/j.1532-5415.2007.01065.x
  19. Levi BH, Green MJ. Doing what we can with advance care planning. Am J Bioeth 2010;10:1-2.
  20. Holley JL, Hines SC, Glover JJ, Babrow AS, Badzek LA, Moss AH. Failure of advance care planning to elicit patients' preferences for withdrawal from dialysis. Am J Kidney Dis 1999;33: 688-693. https://doi.org/10.1016/S0272-6386(99)70220-9
  21. CCCC: Physician Orders for Life-Sustaining Treatment (POLST) [Internet]. [Sacramento, CA]: Coalition for Compassionate Care of California; 2012 [cited 2012 Jul 22]. Available from: http:// www.coalitionccc.org.
  22. Wendler D, Rid A. Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med 2011; 154:336-346. https://doi.org/10.7326/0003-4819-154-5-201103010-00008

Cited by

  1. Facilitators and Barriers to Use of Advance Directives in Korea vol.15, pp.7, 2013, https://doi.org/10.1097/NJH.0b013e3182a001c7
  2. Knowledge regarding Advance Directives among Community-dwelling Elderly vol.19, pp.3, 2013, https://doi.org/10.5977/jkasne.2013.19.3.330
  3. Professional Opinions on Advance Directives in Korea vol.16, pp.5, 2014, https://doi.org/10.1097/NJH.0000000000000034
  4. Feasibility Evaluation of Korean Advance Directives (K-AD) vol.20, pp.4, 2014, https://doi.org/10.5977/jkasne.2014.20.4.639
  5. Ethical Attitudes, Perceptions of DNR and Advance Directives of General Population vol.23, pp.2, 2014, https://doi.org/10.12934/jkpmhn.2014.23.2.113
  6. Communication for end-of-life care planning among Korean patients with terminal cancer: A context-oriented model vol.14, pp.01, 2016, https://doi.org/10.1017/S1478951515000590
  7. The Evaluation of the Korean Advance Directives (K-AD) vol.19, pp.2, 2016, https://doi.org/10.14475/kjhpc.2016.19.2.109
  8. Predictors of Agreement With Writing Advance Directives Among Older Korean Adults vol.27, pp.6, 2016, https://doi.org/10.1177/1043659615587586
  9. End-of-life care decisions using a Korean advance directive among cancer patient–caregiver dyads vol.15, pp.01, 2017, https://doi.org/10.1017/S1478951516000808
  10. Feasibility of the Korean-Advance Directives Among Community-Dwelling Elderly Persons vol.31, pp.4, 2017, https://doi.org/10.1097/HNP.0000000000000216
  11. A Context-oriented Communication Algorithm for Advance Care Planning vol.33, pp.5, 2018, https://doi.org/10.1097/JCN.0000000000000396
  12. Relationship Between Preferences for Advance Directive Treatments and Decisional Conflicts Among Low-Income, Home-Based Cancer Management Recipients in Korea pp.1552-7832, 2019, https://doi.org/10.1177/1043659619832080
  13. Differences in End-of-life Care Decision Making Between Patients With and Without Cancer vol.32, pp.8, 2013, https://doi.org/10.1177/1049909114542646
  14. Validation of the Decisional Conflict Scale for Evaluating Advance Care Decision Conflict in Community-dwelling Older Adults vol.11, pp.4, 2013, https://doi.org/10.1016/j.anr.2017.11.004
  15. Correlates of advance directive treatment preferences among community‐dwelling older people with chronic diseases vol.14, pp.2, 2013, https://doi.org/10.1111/opn.12229
  16. 간호대학생의 사전의료의향서에 대한 지식과 간호전문직관이 사전의료의향서에 대한 태도에 미치는 영향 vol.10, pp.6, 2013, https://doi.org/10.15207/jkcs.2019.10.6.337
  17. Psychometric Testing of the Korean Version of the Attitudes toward the Advance Directives in Low-Income Chronically Ill Older Adults vol.8, pp.1, 2020, https://doi.org/10.3390/healthcare8010062
  18. Exploring Advance Directive Perspectives and Associations with Preferences for End-of-Life Life-Sustaining Treatments among Patients with Implantable Cardioverter-Defibrillators vol.17, pp.12, 2013, https://doi.org/10.3390/ijerph17124257