DOI QR코드

DOI QR Code

Public Participation in Healthcare Decision Making : Experience of Citizen Council for Health Insurance

보건의료 정책 의사결정과 시민참여 : 『건강보험 보장성 시민위원회』의 사례

  • Kwon, Soonman (School of Public Health, Seoul National University) ;
  • You, Myoungsoon (School of Public Health, Seoul National University) ;
  • Oh, Juhwan (College of Medicine, Seoul National University) ;
  • Kim, Soojung (School of Public Health, Seoul National University) ;
  • Jeon, Boyoung (School of Public Health, Seoul National University)
  • Received : 2012.09.28
  • Accepted : 2012.12.10
  • Published : 2012.12.31

Abstract

Public participation in the decision making for scarce health resources is important because health policy requires trust based consensus, which can be achieved by public's understanding and involvement of related policies. In the past, opportunities for interaction between health policy decision makers and lay public were rare in Korea. As political impulses towards public participation in health policy have increased, a few of deliberation methods were attempted. However, there is little research, reporting such cases with a critical examination of relevant theories and previous studies. We first critically review the literature on public participation within theories of democracy, governance, and empowerment. Next, we report a case of a citizen council experiment, which was held to examine public's preferences among different benefit options regarding new drugs and medical technologies. Specifically, in an one-day long citizen council with a total of 28 lay public, twelve questions of whether a drug or a technology should be included in the benefit package of health insurance were asked. Pre- and post-surveys investigated participants' perception of public engagement in health policy. Although it was experimental, the citizen council ensured that lay public could be careful enough to rationally compare the costs and benefits of different options and collectively make decisions. Further, results from pre- and post-survey showed a strong willingness of members to be involved in health care decision making. In the conclusion, we emphasize that better theories and methods need to be developed for more cases of citizen participation in health care policy and management.

Keywords

References

  1. 권순만, 건강보험 보장성 강화의 정책결정과정, HIRA 정책동향 2011; 5(2): 7-16.
  2. 권순만, 김진현, 김정희, 오주환, 주은선 등. 건강보험 보장성 수준 및 달성전략. 서울: 서울대학교 보건대학원: 2007.
  3. 권순만, 오주환. 시민위원회와 건강보험 보장성 의사결정 사례. 보건경제와 정책연구 2012 (발간예정)
  4. 김명진(편저), 대중과 과학기술. 잉걸, 2001.
  5. 모효정. 이종이식에 관한 시민인식 연구 생명윤리 2012; 13(1): 51-66.
  6. 안네 메테 키에르 (Anne Mette Kjær) 지음. 이유진 번역. 거버넌스. 도서출판 오름. 2004.
  7. 유명순, 김창엽, 김새롬, 윤혜정. 주민참여형 공공병원 운영 혁신방안. 서울의료원 정책실 용역 과제 보고서: 2012.
  8. 이근찬, 유명순. 의료기관의 조직 책무성: 분석을 위한 모형 개발. 보건행정학회지 2011; 21(2): 213-248. https://doi.org/10.4332/kjhpa.2011.21.2.213
  9. 이원영. 영국 NICE 의료기술평가의 환자 및 시민참여 경험에 대한 고찰. 비판사회정책 2012; 34: 47-75.
  10. 이원진. 환경보건에서의 주민참여. 한국환경보건학회 2011; 37(5): 333-334. https://doi.org/10.5668/JEHS.2011.37.5.333
  11. 주성수. 시민참여, 자치권능, 심의민주주의 제도-정책갈등 해결방안의 탐색. 경제와사회 2004; 63: 4-147.
  12. 한재각, 장영배. 과학기술 시민참여의 새로우 유형: 수행되지 않은 과학 하기. 과학기술연구 2009; 9(1): 1-31.
  13. Abelson J., Forest P-G., Casebeer A., Mackean G., Maloff B., Musto R., Kouri D., et al. Towards More Meaningful, Informed, and Effective Public Consultation. Canadian Health Services Research Foundation: 2004.
  14. Abelson J,, Montesanti S., Li K., Gauvin F. Martin E. Effective strategies for interactive public engagement in the development of healthcare policies and programs. Canadian Health Services Research Foundation: 2010.
  15. Ahmad S., Ali S.M. People as partners: Facilitating people's participation in public-private partnerships for solid waste management. Habitat International 2006; 30(4): 781-796. https://doi.org/10.1016/j.habitatint.2005.09.004
  16. Boelen C,, Woollard B. Social accountability and accreditation: a new frontier for educational institutions. Med Educ. 2009; 43(9): 887-94. https://doi.org/10.1111/j.1365-2923.2009.03413.x
  17. Boote J, Rosemary Telford a,b, Cindy Cooper. Consumer involvement in health research: a review and research agenda. Health Policy 2002; 61: 213- 236. https://doi.org/10.1016/S0168-8510(01)00214-7
  18. Bucchi M., Neresini F.,"Science and public participation". Cap. 19:Hackett E., Amsterdamska O., Lynch M. (a cura di), Handbook of Science and Technology Studies - Third Edition, Cambridge, Mass: MIT press, 2008; 449-473.
  19. Caddy, J. and Vergez, C. Citizens As Partners: Information, Consultation and Public Participation in Policy-Making, OECD, Paris: 2001,
  20. Cook, F.L., Carpini M.D., Jacobs L. Public deliberation, discursive participation, and citizen engagement:: A reivew of the empirical literature. Annual Review of Political Science: 2004.
  21. Chafe, R., Neville, D., Rathwell, T., Deber, R., Kenny, N., Nestman, L., Joffres, C., Chappell, H., Conrad, P., Batema, M. A framework for involving the public in health care coverage and resource allocation decisions. Canadian Health Services Research Foundation, Canadian Institutes of Health Research, Newfoundland and Labrador Centre for Applied Health Research, Nova Scotia Health Research, Foundation and Ontario Ministry of Health and Long Term Care: 2007
  22. Chambers R. Involving patients and the public-is it worth the effort? JR Soc Med, 2001; 84: 375-7.
  23. Charles C,, DeMaio S. Lay participation in health care decision making: a conceptual framework. J Health Polit Policy Law. 1993; 18(4): 881-904. https://doi.org/10.1215/03616878-18-4-881
  24. Church J,, Saunders D,, Wanke M,, Pong R,, Spooner C,, Dorgan M. Citizen participation in health decision-making: past experience and future prospects. J Public Health Policy. 2002; 23(1): 12-32. https://doi.org/10.2307/3343116
  25. Coelho, V.S.P., Pozzoni, B., Cifuentes, M. Participation and public policies in Brazil. in J. Gastil & P. Levine. The deliberative democracy Handbook. Jossey Bass: San Franciso. 2005.
  26. Contandriopoulos D. A sociological perspective on public participation in health care. Soc Sci Med. 2004; 58(2): 321-30. https://doi.org/10.1016/S0277-9536(03)00164-3
  27. Creighton J.L. The Use of Values: Public participation in the planning process. from Public involvement Techniques: A Reader of Ten Years Experience at the Institute for Water Resources, IWR Research Report 82-R-1. 1998.
  28. Dedeu T. Participation of the public in the governance of healthcare organisations, Journal of Health Innovation and Integrated Care. 2010; 2(1): Article 1. Available at: http://pub.bsalut.net/jhiic/vol2/iss1/1
  29. Dubnick M.J., Frederickson H.G.(Eds.). (2011). Accountable governance: Problems and promises. Armonk, NY: M.E. Sharpe.
  30. Elliott, J. Characteristics of performative cultures: their central paradoxes and limitations as resources for educational reform, in D. Gleeson and C. Husbands (eds), The Performing School: managing, teaching and learning in a performance culture (London: RoutledgeFalmer), 2001: 192-209.
  31. Emanuel EJ,, Emanuel LL. What is accountability in health care? Ann Intern Med. 1996; 124(2):229-39. https://doi.org/10.7326/0003-4819-124-2-199601150-00007
  32. Esfandiari S. The Limited Role of Citizens in Shaping Healthcare Policies. World Medical & Health Policy. 2010; 2(1): 39-47 https://doi.org/10.2202/1948-4682.1031
  33. Giddens A. Runaway world : how globalization is reshaping our lives. New York : Routledge. 2000.
  34. Grant J,, Sears NA,, Born K. Public engagement and the changing face of health system planning. Healthc Manage Forum. 2008; 21(4): 22-6. https://doi.org/10.1016/S0840-4704(10)60052-X
  35. Habermas J, The Theory of Communicative Action, Vol. One, Reason and the Rationalization of Society, Boston, Beacon Press. 1984.
  36. Harrison S., Mort M. Which Champions, Which People? Public and User Involvement in Health Care as a Technology of Legitimation. Social Policy and Administration, 1998: 32(1): 60-70 https://doi.org/10.1111/1467-9515.00086
  37. Ham C. Priority setting in health care: learning from international experience. Health Policy. 1997; 42(1): 49-66. https://doi.org/10.1016/S0168-8510(97)00054-7
  38. Kitzhaber J.A. Prioritising health services in an era of limits: the Oregon experience. BMJ. 1993; 307(6900): 373-7. https://doi.org/10.1136/bmj.307.6900.373
  39. Klein R. Accountability society and health care. in D. Chinitz (Ed.), The Changing Face of Health Systems. Jerusalem: Gefen Publishing House. 2002: 403-408.
  40. Mitton C,, Smith N,, Peacock S,, Evoy B,, Abelson J. Public participation in health care priority setting: A scoping review. Health Policy. 2009; 91(3): 219-28. https://doi.org/10.1016/j.healthpol.2009.01.005
  41. Mullen P.M. Public involvement in health care priority setting: an overview of methods for eliciting values. Health Expect. 1999; 2(4): 222-234. https://doi.org/10.1046/j.1369-6513.1999.00062.x
  42. Newman, J., Barnes, M., Sullivan, H. and Knops, A. Public participation and collaborative governance. Journal of Social Policy, 2004; 33(2): 203-223. https://doi.org/10.1017/S0047279403007499
  43. O'Neill, O. A Question of Trust: The BBC Reith Lectures, Cambridge: Cambridge University Press. 2002.
  44. Pollitt, C. Managerialism and the Public Service. OXford: Blackwell. 1990.
  45. Ranson S. Public accountability in the age of neoliberal governance. Journal of Education Policy 2003: 18(5): 459-480. https://doi.org/10.1080/0268093032000124848
  46. Redden CJ. Rationing care in the community: engaging citizens in health care decision making. J Health Polit Policy Law. 1999; 24(6): 1363-89. https://doi.org/10.1215/03616878-24-6-1363
  47. Pivik J.R. practical strategies for facilitating meaningful citizen involvement in health planning. Ottawa: University of Ottawa, 2002.
  48. Redden, CJ. Rationing Care in the Community: Engaging citizens in health care decision making. Journal of Health Politics, Policy, and Law. 1999; 24(6): 1364-1389.
  49. Rosen B, Israeli A, Shortell S. Accountability And Responsibility In Health Care: Issues in Addressing an Emerging Global Challenge. World Scientific Series in Global Healthcare Economics and Public Policy. 2012: Volume 1
  50. Rowe G., Frewer LJ. Public participation methods: a framework for evaluation. Science, Technology, and Human Values, 2004; 25(1): 3-29,
  51. Simces, Z. Exploring the link between public involvement / citizen engagement and quality health care. Ottawa: Health Human Resources Strategies Division, Health Canada: 2003.
  52. Singer P. Community participation in health care decision making: is it feasible? CMAJ 1997; 3(4): 421-4.
  53. Weinstein M.C,, Stason W.B. Foundations of cost-effectiveness analysis for health and medical practices. New England Journal of Medicine. 1977; 296(13): 716-721. https://doi.org/10.1056/NEJM197703312961304
  54. Yee, J & Chang, D. Social Quality as a Measure for Social Progress. Development and Society. 2011: 40(2): 153-172. https://doi.org/10.21588/dns.2011.40.2.001
  55. Zakus JD, Lysack CL. Revisiting community participation. Health Policy Plan. 1998; 13 (1): 1-12. https://doi.org/10.1093/heapol/13.1.1

Cited by

  1. Public Perception of the Concentration of Cardiac and Cerebrovascular Surgery to Metropolitan Hospitals vol.49, pp.S1, 2016, https://doi.org/10.5090/kjtcs.2016.49.S1.S44
  2. Improving the Reliability of Clinical Practice Guideline Appraisals: Effects of the Korean AGREE II Scoring Guide vol.29, pp.6, 2014, https://doi.org/10.3346/jkms.2014.29.6.771