Annals of Clinical Neurophysiology

The Korean Society of Clinical Neurophysiology (대한임상신경생리학회)
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Establishment and Perspective of the Korean ALS Registry

한국 근위축성측삭경화증 등록체계의 구축과 향후 전망

  • Sohn, Eun-Hee (Department of Neurology, Chungnam University Hospital) ;
  • Kim, Byung-Jo (Department of Neurology, Korea University College of Medicine) ;
  • Kim, Jong-Kuk (Department of Neurology, Dong-a University Postgraduate Medical School) ;
  • Bae, Jong-Seok (Department of Neurology, Inje University College of Medicine, Busan Paik Hospital) ;
  • Baek, Won-Ki (Department of Neurology, Hanyang University College of Medicine) ;
  • Suh, Bum-Chun (Department of Neurology, Kangbuk Samsung Hospital) ;
  • Sung, Jung-Joon (Department of Neurology, Seoul National University College of Medicine) ;
  • Ahn, Suk-Won (Department of Neurology, Chung-Ang University College of Medicine) ;
  • Cho, Joong-Yang (Department of Neurology, Inje University College of Medicine) ;
  • Hong, Yoon-Ho (Department of Neurology, Seoul National University College of Medicine) ;
  • The Korean ALS/MND Research Group, The Korean ALS/MND Research Group (The Korean ALS/MND Research Group)
  • 손은희 (충남대학교병원 신경과) ;
  • 김병조 (고려대학교 의과대학 신경과학교실) ;
  • 김종국 (동아대학교 의과대학 신경과학교실) ;
  • 배종석 (인제대학교 의과대학 부산백병원 신경과학교실) ;
  • 백원기 (한양대학교 의과대학 신경과학교실) ;
  • 서범천 (강북삼성병원 신경과) ;
  • 성정준 (서울대학교 의과대학 신경과학교실) ;
  • 안석원 (중앙대학교 의과대학 신경과학교실) ;
  • 조중양 (인제대학교 의과대학 일산백병원 신경과학교실) ;
  • 홍윤호 (서울대학교 의과대학 신경과학교실) ;
  • Received : 2011.11.02
  • Accepted : 2011.11.23
  • Published : 2011.12.30
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Abstract

Geographical differences in the incidence of amyotrophic lateral sclerosis (ALS) have been reported, and there are still many unresolved problems. The incidence as well as epidemiologic data of ALS is not known in Korea. Web-based multicenter registry of ALS, the Korean ALS registry, was established at January, 2011. The aim of "the Korean ALS registry" is the following: (1) to establish a database for the prospective collection of epidemiological information; (2) to assess the incidence and prevalence; (3) to find the temporal and geographic trends in the disease; (4) to define the full clinical spectrum of the disease; (5) to develop treatment guideline based on the database.

Keywords

References

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