대한간호학회지 (Journal of Korean Academy of Nursing)

한국간호과학회 (Korean Society of Nursing Science)
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복잡 심기형을 가진 환자의 청소년기 삶

The Life of Adolescent Patients with Complex Congenital Heart Disease

  • 이선희 (을지대학교 간호대학) ;
  • 김소선 (연세대학교 간호대학.간호정책연구소)
  • Lee, Sun-Hee (College of Nursing, Eulji University) ;
  • Kim, So-Sun (College of Nursing.The Nursing Policy Research Institute, Yonsei University)
  • 투고 : 2010.02.01
  • 심사 : 2010.06.09
  • 발행 : 2010.06.30
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초록

Purpose: In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea. Methods: After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated. Results: The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life. Conclusion: The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.

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참고문헌

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피인용 문헌

  1. Coping and Resilience of Adolescents With Congenital Heart Disease vol.29, pp.4, 2010, https://doi.org/10.1097/jcn.0b013e3182865367
  2. Quality of Life and Congenital Heart Disease in Childhood and Adolescence vol.102, pp.2, 2010, https://doi.org/10.5935/abc.20130244
  3. Health-related quality of life in adolescents with congenital heart disease vol.25, pp.3, 2010, https://doi.org/10.1017/s1047951114000304
  4. The effect of a resilience improvement program for adolescents with complex congenital heart disease vol.16, pp.4, 2010, https://doi.org/10.1177/1474515116659836
  5. The Center for Epidemiologic Studies Depression Scale is an adequate screening instrument for depression and anxiety disorder in adults with congential heart disease vol.15, pp.None, 2010, https://doi.org/10.1186/s12955-017-0747-0
  6. Comparison of Physical Activity and Health-related Quality of Life in Adolescents with and without Congenital Heart Disease: A Propensity Matched Comparison vol.35, pp.1, 2010, https://doi.org/10.5763/kjsm.2017.35.1.40
  7. The adaptation process of mothers raising a child with complex congenital heart disease vol.22, pp.4, 2018, https://doi.org/10.1177/1367493518762584
  8. Factor analysis of the Korean version of the Illness Cognition Questionnaire for adolescents with chronic illness vol.27, pp.3, 2010, https://doi.org/10.1111/ijn.12889