A Study on Burden and Well-being of Primary Caregivers of Patients with a Stroke

뇌졸중 환자를 돌보는 주간호제공자의 부담감과 안녕감에 관한 연구

  • Lim, You-Jin (Department of Nursing, Chunnam Techno College) ;
  • Cho, Bok-Hee (College of Nursing, Chonnam National University, Chonnam Research Institute of Nursing Science) ;
  • Jang, Hyun-Sook (Chonnam National University Hospital) ;
  • Jeong, Hyun-Ju (Chonnam National University Hwasun Hospital)
  • 임유진 (전남과학대학 간호과) ;
  • 조복희 (전남대학교 간호대학, 전남대학교 간호과학연구소) ;
  • 장현숙 (전남대학교병원) ;
  • 정현주 (화순전남대학교병원)
  • Published : 2009.08.31

Abstract

Purposes: The purposes of this study were to identify factors related to burden and well-being in primary caregivers of patients who have had a stroke and examine the correlation between burden and well-being of the caregivers. Methods: Between April 2006 to June 2007 data were collected using self-report questionnaires and interviews with 85 primary caregivers of stroke patients in C University Hospital. Data were analyzed using t-test, ANOVA, Duncan test and Pearson's correlation with SPSSWIN 15.0. Results: Factors related to burden of primary caregivers were sex and activities of daily living of the patients, and age, education level and satisfaction with income of the caregivers. The factors related to well-being of primary caregivers were sex of patients, and age and education level of caregivers as well as cohabitation with the patient. A negative correlation was found between burden and well-being of the caregivers (r= -.393, p<.001). Conclusion: These results indicate a need to develop a nursing intervention program for caregivers and education program for other family members to reduce caregiver burden. These programs should lead to improvements in the well-being of the caregiver.

Keywords

References

  1. Bak, Y. J., Jeong, M. Y., & Ann, E. H. (2001). A study on the factors affecting sense of well-being of stroke survivor family care taker. Journal of Korean Academy of Nursing, 31(2), 315-327.
  2. Cho, N. O., Suh, M. J., Kim, K. S., Hong, Y. S., & Kim, I. J. (2000). Social support network and gender difference in post-hospitalized stroke patients. Journal of Korean Academy of Fundamentals of Nursing, 7(1), 71-85.
  3. Choi, K. S., Eun, Y., & Ham, M. Y. (2000). A study on burden of middle aged spouses of rheumatoid arthritic patients. Journal of Muscle and Joint Health, 7(2), 241-257.
  4. Decker, S. D., Schultz, R., & Wood, D. (1989). Determinants of well-being in primary caregivers of spinal cord injured persons. Rehabilitation Nursing: The Official Journal of the Association of Rehabilitation Nurses, 14(1), 6-8. https://doi.org/10.1002/j.2048-7940.1989.tb00664.x
  5. Dupuy, H. J. (1978). Self-representations of general psychological well-being of American adults. Paper presented at American Public Health Association Meeting. Los Angeles. October.
  6. Epstein-Lubow, G. P., Beevers, C. G., Bishop, D. S., & Miller, I. W. (2009). Family functioning is associated with depressive symptoms in caregivers of acute stroke survivors. Archives of Physical Medicine and Rehabilitation, 90(6), 947-955. https://doi.org/10.1016/j.apmr.2008.12.014
  7. Eun, Y., Choi, K. S., & Kim, S. J. (1999). A study on burden of older spouses of patients with chronic illness. Journal of Korean Gerontological Nursing, 1(2), 160-171.
  8. Franzen-Dahlin, A., Larson, J., Murray, V., Wredling, R., & Billing, E. (2007). Predictors of psychological health in spouses of persons affected by stroke. Journal of Clinical Nursing, 16(5), 885-891. https://doi.org/10.1111/j.1365-2702.2006.01744.x
  9. George, L. K., & Gwyther, L. P. (1986) Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26(3), 253-259. https://doi.org/10.1093/geront/26.3.253
  10. Han, B., & Haley, W. E. (1999). Family caregiving for patients with stroke: Review and analysis. Stroke; A Journal of Cerebral Circulaion, 30, 1478-1485 https://doi.org/10.1161/01.STR.30.7.1478
  11. Jang, I. S. (1995). A study of the family caregiver's burden for the elderly with chronic disease in a rural area. Unpublished master's thesis, Seoul National University of Korea, Seoul.
  12. Kang, S. J., Lee, H. J., & Choi-Kwon, S. (2002). Caregivers' burden in patients with acute stroke. The Korean Journal of Rehabilitation Nursing, 5(1), 27-37.
  13. Kawamoto, R., Okamoto, K., Yamada, A., & Oguni, T. (1999). A study of the degree of burden and subjective sense of well being in care-givers involved in home care. Nippon Ronen Igakkai Zasshi. Japanese Journal of Geriatrics, 36(1), 35-39. https://doi.org/10.3143/geriatrics.36.35
  14. Kim, H. R. (2007). A study on burden of stroke patients’ primary guardians. Unpublished master’s thesis, Hanyang University of Korea, Seoul.
  15. Kim, I. S., & Yang, S. H. (2004). A study on the burden and coping behaviors of stroke patients' family members. Journal of Korean Clinical Nursing Research, 10(1), 28-41.
  16. Kim, J. H., & Kim, O. S. (2005). Influencing factors that affect the psychological well-being in family caregivers of stroke patients. Journal of Korean Academy of Nursing, 35(2), 399-406
  17. Korea National Statistical Office (2007). Change in leading causes of death (1997-2007). Retrieved May 6, 2009, from http://ups.kosis.kr/upload/Magazine/NEW/YD/VD0005.xls
  18. Lee, K. H. (2001). Correlations among the stroke patient family’s health status, burden and of life. Journal of Korean Academy of Nursing, 31(4), 669-680
  19. Lee, K. Y., & Sohng, K. Y. (1996). A study on the degree of burden and depression in family caregivers of patients with stroke. Journal of Korean Academy of Nursing, 26(4), 853-867.
  20. Lee, Y, W., Kim, H. S., & Cho, I. S. (2008). Factors influencing care burdens of caregivers of elders with dementia who request dementia domiciliary welfare services. Journal of Korean Academy of Fundamentals of Nursing, 15(3), 274-283.
  21. National Stroke Association (2006). Effects of stroke. Retrieved May 6, 2009, from http://www.stroke.org/site/PageServer?pagename=effect
  22. Novak, M., & Guest, C. (1989). Application of a multidimensionalcaregiver burden inventory. The Gerontologist, 29(6), 798-803 https://doi.org/10.1093/geront/29.6.798
  23. Oak, J. W. (2003). Effects of stroke incidence on the patient's family burden. Unpublished master's thesis, Hallym University of Korea, Seoul.
  24. Oh, W. O., & Kim, E. J. (2009). Factors influencing health conservation among elders. Journal of Korean Academy of Fundamentals of Nursing, 16(2), 134-143.
  25. Park, Y. W. (1999). The effects of support group intervention for spouses of stroke patients on caregiver burden and well-being. Unpublished doctorial dissertation, Seoul National University of Korea, Seoul.
  26. Saha, S., Vanclay, F., & Cooper, B. (1989). Improving the sensitivity of the Barthel Index for stroke rehabilitation. Journal of Clinical Epidemiology, 42(8), 703-709. https://doi.org/10.1016/0895-4356(89)90065-6
  27. Tooth, L., Mckenna, K., Barnett, A., Prescott, C., & Murphy, S. (2005). Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury: [BI], 19(12), 963-974 https://doi.org/10.1080/02699050500110785
  28. Vincent, C., Desrosiers, J., Landreville, P., Demers, L., & the BRAD group (2009). Burden of caregivers of people with stroke: Evolution and predictors. Cerebrovascular diseases (Basel, Switzerland), 27(5), 456-464. https://doi.org/10.1159/000210092
  29. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649-655. https://doi.org/10.1093/geront/20.6.649
  30. Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260-266. https://doi.org/10.1093/geront/26.3.260