Burden and Social Support of Mothers with Cerebral Palsy Children

뇌성마비 환아 어머니의 사회적 지지와 부담감

  • Kim, Eun-Sook (Yonsei University Hospital) ;
  • Kim, Hee-Soon (Department of Nursing, Yonsei University, Nursing, Policy Research Institute, Yonsei University)
  • 김은숙 (연세대학교 의료원) ;
  • 김희순 (연세대학교 간호대학, 연세대학교 간호정책 연구소)
  • Received : 2009.05.11
  • Accepted : 2009.06.17
  • Published : 2009.06.30

Abstract

Purpose: The purpose of this study was to identify the level of burden and social support of mothers with Cerebral Palsy (CP) children, and to determine whether providing social support is an effective strategy to relieve the burden of those mothers. Method: From October to November 2007, the data were collected from 63 mothers with CP children who were admitted and treated for CP at Y rehabilitation center in Seoul. The data were analyzed with t-test, ANOVA, Scheffe's test, Pearson's Correlation Coefficient, and Stepwise Multiple Regression using SPSS 12.0. Results: Burden of mothers was related to the Gross Motor Function Classification System (GMFCS) of the CP children. Social support was negatively correlated and GMFCS was positively correlated with burden of mothers. Social support and GMFCS was statistically significantly related with burden of mothers with CP children by multiple regression analysis. Conclusion: There was a significantly negative correlation between social support and burden. It demonstrated that social support, an important factor relating to burden imposed on mothers of CP children, can be considered as an intervening variable which can contribute to decrease of burden. In addition, applying developmental screening measures are needed to decrease disability severity.

Keywords

References

  1. Brandt, P. A., & Weinert, C. (1981). The PRQ: A social support system. Nurs Res, 30(5), 277-280.
  2. Erickson, M., & Upshur, C. (1989). Caretaking burden and social support: A comparison of mothers and infants with and without disabilities. Am J Ment Retard, 94(3), 250-258.
  3. George, L. K., & Gwyther, L. P. (1986). Caregivers well being: A multidimensional examination of family caregivers of demented adults. Gerontologist 26(3), 253-259. https://doi.org/10.1093/geront/26.3.253
  4. Grad, J., & Sainsbury, P. (1963). Mental illness and the family. The Lancet, 9, 544-547. https://doi.org/10.1016/S0140-6736(02)92640-1
  5. Han, S. H., Oh, G. O., & Na, D. M. (1999). A study on the relationship between burden and quality of life in mothers of mentally retarded children. Unpublished master's thesis, Chosun University, Gwangju.
  6. Lee, M. S. (1995). A study of burden in mothers of children with congenital metabolic disorders. J Korean Acad Pediatr Nurs, 4(2), 221-229.
  7. Ministry of Health and Welfare. Ministry of Health and Welfare statistical annual report, 2007. from http;//www.mohw.go.kr/ volcani.
  8. Moon, J. H. (1995). Burden and social support in mothers of mentally handicapped children. Unpublished master's thesis, Yonsei University, Seoul.
  9. Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 19-26.
  10. Norvac M., & Guest C. (1989). Application of multidimensional caregiver burden inventory. Gerontologist, 29(6), 798-803. https://doi.org/10.1093/geront/29.6.798
  11. Oh, G. S., Chae, S. M., & Jun, N. Y. (2002). The reliability and validity of family burden questionnaire. J Korean Acad Pediatr Nurs, 8(3), 272-280.
  12. Paliasno, R.. Rosenbaum, P., Walter, S., Russell D., Wook, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebralpalsy. Dev Med & Child Neurol, 39(4), 214-223.
  13. Park, M. H. (1991). An analytical study on perceived burden of family caregivers and its associated variables. Catholic Medical University thesis, 44(3), 949-958.
  14. Seo, M. H., & Oh, G. S. (1993). A study on burden of chronic diseased person family. J Korean Acad Nurs, 23(3), 467-484.
  15. Seo, J. S. (1993). Burden and social support of mothers with leukemia children. Unpublished master's thesis, Yonsei University, Seoul.
  16. Singh, P. D. (1990). Psychosocial problems in families of disabled children. Brit J Med Psycho, 63, 173-182. https://doi.org/10.1111/j.2044-8341.1990.tb01610.x
  17. Sung, M. H. (2000). A study burden, social support and quality of life in mothers of a child with nephrotic syndrome. J Korean Acad Nurs, 30(3), 670-681. https://doi.org/10.4040/jkan.2000.30.3.670
  18. Sylvia, S. (1971). Family of the retarded child, the mentaly retarded child and his family. New York, Brunner Mazel Pub. Co, 22-25.
  19. Tilden, V. D., & Weinert, V. D. (1987). Social support and the chronically ill individual, Nurs Clin North Am, 22(3), 613-620.
  20. Thompson. E. H., & Doll. W. (1982). The burden of families coping with the mental ill: An invisible crisis. Family Relations, 31, 379-388. https://doi.org/10.2307/584170
  21. Woo, M. Y. (1998). Burden and needs of mothers with handicapped children. Unpublished master's thesis, Kyungpook National University, Daegu.