Effects of an Empowerment Program on the Burden of Mothers Having a Child with Cerebral Palsy*

임파워먼트 프로그램이 뇌성마비 아동 어머니의 부담감에 미치는 효과

  • Eo, Yong-Sook (Department of Nursing, College of Medicine, Pusan National University)
  • 어용숙 (부산대학교 의과대학 간호학과, 부산대학교 특수교육연구소)
  • Published : 2005.01.01

Abstract

Purpose: The purpose of this study was to develop an empowerment program as a nursing intervention for mothers who care for a child with cerebral palsy at home and to determine the effects of the program on those mothers' self efficacy, coping behavior and burden. Method: An non-equivalent control group pretest-posttest design was used in this study. An Empowerment program was developed based on Dunst & Trivette's model. Using the program, the study was carried out from Dec. 13, 2003 to Jan. 17, 2004, mothers whose children, aged 1 to 6, were outpatients of the Dept. of Rehabilitation Medicine, at P University Hospital or registered at educational institutions for early disabled children. The experimental group of subjects were included in the new empowerment program which was held for two and half hours every week for 6 times. Results: After treatment with the Empowerment Program, the experimental group was found to be significantly increased in score for self efficacy(t=4.55, p<.01), coping behavior(t=5.54, p<.001), objective burden(t=-3.96, p<.01) and subjective burden(t=-5.05, <.01), in comparison to the control group. Conclusion: The Empowerment Program is very effective in increasing self efficacy and coping behavior of mothers having a child with cerebral palsy and decreasing their burden. Finally, this study would recommend that an empowerment program should be extended to community facilities such as public health offices and welfare centers.

Keywords

References

  1. Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ; Prentice Hall
  2. Beckman, P. J. (1991). Comparison of mothers' and fathers' perceptions of the effect of young children with and without disabilities. AJMR, 95(5), 585-595
  3. Behrman, R. E., & Kliegrnan, R. M. (2004). Nelson textbook of pediatricst (17th Ed). W. B. Saunders
  4. Cho, I. S. (2002). Effects of a social support program on stress and coping in mothers with handicapped children. Unpublished doctoral dissertation. The Chonnam University of Korea, Gwangju
  5. Choi, E. O. (1999). Effects of empowerment education program for the type 2 diabetics on the empowerment self-care behavior and the glycemic control. Unpublished doctoral dissertation. The Seoul University of Korea, Seoul
  6. Dibartolo, M. C. (2002). Exploring self-efficacy and hardiness in spousal caregivers of individuals with dementia. J Gerontal Nurs, 28. 24-33
  7. Dunst, C. J., & Trivette, C. M. (1994). Aims and principles of family support programs. In C. J. Dunst, C. M. Trivette. & A. G. Deal (Eds.), Supporting and strengthening families. Cambridge, MA: Brookline Books
  8. Dunst, C. J., & Trivette, C. M. (1996). Empowerment, effective helpgiving practices and family-centered care. Pediatr Nurs, 22(4), 334-337
  9. Dunst, C. J., Trivette, C. M., Davis, M., & Cornwell, J. (1988). Enabling and empowering families of children with health impairments, Children's Health Care. 17(2), 71-81 https://doi.org/10.1207/s15326888chc1702_2
  10. Dunst, C. J., Trivette, C. M., & Deal, A. G. (1988). Enabling & empowering families: Principles & guidelines for practice. Cambridge, MA: Brookline Books, Inc
  11. Dunst, C. J., Trivette, C. M., & Deal, A. G. (1994). Supporting & strengthening families: Methods, strategies and practices. Cambridge : Brookline Books, Inc
  12. Eo, Y. S. (2000). A study on family functioning and burden of parents with cerebral palsy children. Unpublished master thesis. The Pusan National University of Korea, Busan
  13. Ferraro, A., & Longo, D. (1985). Nursing care of the family with a chronically ill, hospitalized child: An alternative approach. Image J Nurs Sch, 17(3), 77-81 https://doi.org/10.1111/j.1547-5069.1985.tb01628.x
  14. Gallant, M. P., & Connell, C. M. (1998). The stress process among dementia spouse caregivers: Are caregivers at risk for negative health behavior change?. Res Aging, 20(3), 267-297 https://doi.org/10.1177/0164027598203001
  15. Given, B. A., & Given, C. W. (1991). Family caregiving for the elderly. Annual Review of Nurs Res, 9. 77-101
  16. Kim, D. H. (1998). A study on the health state and burdens of the chronic patients' family members. Unpublished doctoral dissertation. The Pusan University of Korea, Busan
  17. Kim, H. S. (1989). The effects of an emotional and informational support group on the stress of mother with a chronically ill child. Unpublished doctoral dissertation. The Yonsei University of Korea, Seoul
  18. Kim, H. S. (1995). Support care for the developmental family. J Korean Acad Child Health Nurs, 1(1), 59-65
  19. Kim, S. R. (2001). Burden of the mothers whose children have cerebral palsy. Unpublished doctoral dissertation. The Kyung-Hee University of Korea, Seoul
  20. Korea Institute for Health and Social Affairs (2001). The reports of disabled person in 2000. KlHASA, Seoul
  21. Lazarus, R. S., & Folkman, S. (1984). Stress. appraisal and coping. New York: Springer Publishing Company
  22. Lee, E. O. Lim, N. Y., & Park, H. A. (1998). Nursing, medical research and stastical analysis. Seoul : Sumunsa
  23. Lee, J. W. (1997). A study on the stress and coping patterns of mothers with cerebral palsy children. Unpublished doctoral dissertation. The Pusan National University of Korea, Busan
  24. Man, D. (1999). Community-based empowerment programme for families with a brain injured survivor : An outcome study. Brain Inj, 13(6), 433-445 https://doi.org/10.1080/026990599121485
  25. McCubbin, M. A., & Huang, S. T. T. (1989). Family strengths In the care of handicapped children: Targets for intervention. Fam Relat, 36, 436-443
  26. Merton, V., Merton, R. K., & Barber, E. (1983). Client ambivalence in professional relationships. The problem of seeking help from strangers. In B. Depaulo, A. Nadler. & J. Fisher (Eds), New directions in helping Vol 2 Help-seeking(pp 13-44). New York Academic
  27. Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Fam Relat. January, 19-26
  28. Nugent, K., Hughes, R., Ball, B., & Davis, K. (1992). A practice model for a parent support group. Pediatr Nurs, 18(1), 11-16
  29. Oh, G. S. (1997). Effects of a social support group on burden and well-being of mothers of developmentally delayed children. J Korean Acad Nurs, 27(2), 389-400
  30. Oh, S. R. (1997). A study on the effectiveness of cognitive-behavioral group program in strengthening problem-solving ability of mothers of developmentally disabled children. Unpublished doctoral dissertation. The Seoul University of Korea, Seoul
  31. Park, I. H. (2001). Effects of empowerment education program for the patients having rheumatoid arthritis on empowerment. health status and self-care activities. Unpublished doctoral dissertation. The Chung-ang University of Korea, Seoul
  32. Pearlin, L. L., Mullan, J. T., Semple, S. J., & Skaff, M. M (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30(5), 583-594 https://doi.org/10.1093/geront/30.5.583
  33. Sherer, M, Maddux, J. E., Mercandante, B., Prentice-Dunn, S., Jacobs, B., & Rogers, R. W. (1982). The self-efficacy scale: Construction and validation. Psychol Rep. 51, 663-671 https://doi.org/10.2466/pr0.1982.51.2.663
  34. Shon, Y. N. (2001). The effects of family support program for empowerment of families on stress. self-efficacy and coping capabilities of parents with disabled children. Unpublished Master Thesis. The Ehwa Womans University of Korea, Seoul
  35. Wong, D. L., Hockenberry-Eaton, M., Wilson, D., Winkelstein, M. L., & Schwartz, P. (2001). Wong's esseentials of pediatric nursing(6nd Ed.) .' Family centered home care(pp. 662). Mosby Company
  36. Yang, S. M. (2000). The development and effectiveness of group program on empowerment for the parents with mentally retarded adults. Unpublished doctoral dissertation. The Seoul University of Korea, Seoul
  37. Zarit, S. H., Reever, K. F., & Bach-Peterson, J. (1980). Relative of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649-655 https://doi.org/10.1093/geront/20.6.649
  38. Zeiss, A. M., Gallagher-Thompson, D., Lovett, S., Rose, J., & McKibbin, C. (1999). Self-efficacy as a mediator of caregiver coping: Development and testing of an assessment model. J Clin Geropsychol, 5(3), 221-230 https://doi.org/10.1023/A:1022955817074