• 제목/요약/키워드: family caregiver burden

검색결과 128건 처리시간 0.022초

뇌졸중 기능손상 노인의 가족수발자에 대한 사회복지실천 개입의 효과에 관한 연구 (A Study on the Effectiveness of Social Work Intervention for the Family Caregivers of Older Persons with Stroke)

  • 이인정
    • 한국사회복지학
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    • 제53권
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    • pp.231-255
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    • 2003
  • 본 연구는 뇌졸중 노인의 가족 수발자들을 대상으로 집단 프로그램과 개별상담을 제공하고 이러한 사회복지실천에 입각한 개입이 간병 부담을 완화하는 효과가 있는 지 검증하였다. 12명의 가족 수발자들로 실험집단과 통제집단을 설정하고 사전 검사 후 실험집단에 대해서만 8회에 걸쳐 개입을 실시하고 다시 두 집단에 대하여 사후검사를 실시하여 개입 효과를 확인하였다. 실험집단에 대해서는 3개월 후에 추후검사를 실시하여 개입 효과의 지속 여부를 검증하였다. 통계분석은 비모수통계방법인 Mann Whitney test, Wilcoxon test를 사용하였다. 연구결과는 다음과 같다. 첫째, 본 연구에서 실시한 개입은 수발자의 간병 부담, 소외감을 완화시켜 주는 효과가 있었다. 간병자의 자존감과 간병에 대안 자진감, 노인과의 관계, 정서적 지지도 향상되었다. 그러나 간병자의 우울, 전반적인 삶의 만족, 공적 서비스의 사용은 변화가 없었다. 둘째, 추후검사를 통해 개입 효과의 추이를 확인한 결과 간병부담, 자존감, 간병에 대한 자신감, 정서적 지지에 대한 개입효과는 유지된 것으로 나타났다. 그러나 노인과의 관계는 악화되었으며 소외감도 증가한 것으로 조사되었다. 셋째, 본 연구에서 실시한 사회복지실천 개입에 대한 참여자들의 만족도, 유용하다고 느끼는 정도는 매우 높았다. 참여자들은 특히 지지적 세션에 의해 많은 도움을 받은 것으로 보인다. 이러한 연구 결과를 바탕으로 사회복지실천 개입의 확대, 자조집단의 조성, 지지적 세션을 잘 이끌어갈 것, 간병 받는 노인의 프로그램 참여에 대한 배려, 수발자들의 내재된 분노나 죄의식을 다루어 줄 것 등의 실천적 함의가 제시되었다.

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손자녀를 양육하는 할머니의 양육부담에 관한 현상학적 연구 (A Study of the Caregiving Burden on Grandmothers Who Raise Their Grandchildren: A Phenomenological Research)

  • 김문정
    • 대한간호학회지
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    • 제37권6호
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    • pp.914-923
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    • 2007
  • Purpose: This qualitative study aimed to identify the common, lived experiences of grandmothers who cared for their grandchildren as the primary caregivers. Methods: This study was based on the phenomenological method described by Colaizzi (1978). Results: Seven theme clusters emerged from the data as follows: "grandmother caregivers accept the parenting role of the incessant responsibilities and the distrust of non-kin caregivers.", "grandmother caregivers have a double maternal roles; an instrument-oriented maternal role to their own child and relationship-oriented maternal role to their grandchild.", "grandmother caregivers are partially authorized to make decisions in the matters of their grandchild.", "grandmother caregivers suffer a deterioration in their health by an acceleration of the aging process.", "caregiving causes grandmother caregivers to feel a sense of social isolation, and persue various coping strategies to control this feeling.", "grandmother caregivers have a greater feeling of self-esteem, but they often conflict with their adult children if they don't feel appreciated by them.", "grandmother caregivers have limited social support and their health issues are often overlooked in the family context.' Conclusion: The results of this study can guide nurses and health care workers to understand the experiences of grandmother caregivers and to implement individualized nursing interventions suited for them.

치매환자 및 가족지지 프로그램 효과 연구 : 개별 및 집단프로그램 비교 (A Comparative Study on the Effects of an Individual Intervention Program and a Group Intervention Program on the Demented Elderly and Their Families)

  • 오진주
    • 지역사회간호학회지
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    • 제19권2호
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    • pp.205-215
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    • 2008
  • Purpose: This study was to compare the effects of individual and group intervention programs on the demented elderly and their families. Methods: The programs were applied to two groups, one by home visiting and the other by group intervention. The groups were composed of 14 elders and 12 elders, respectively, with their families. The programs were applied twice a week, ninety minutes per session for four weeks. Programs consisted of cognitive therapy, music and art therapy, and massage for the demented elderly, education on dementia, cognitive-behavioral intervention for problematic behavior, methods to lessen stress, and counselling for the families. Results: AER, problematic behavior, QOL of pts and QOL, caregiving burden, and relationship with the pts of caregivers were improved after each program but not significantly except QOL of pts (Z=-3.37, p=.00) in the group intervention. When the two interventions were compared with each other, the group intervention program was more effective than the home visiting program in all variables but not significantly except QOL of pts (U=32.00, p=.00). Conclusion: In summary, both the individual and group intervention programs were helpful to both pts and families, and even though there was no statistically significant difference between the two intervention programs except in QOL of pts, the group intervention was more effective.

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The burdens faced by parents of preschoolers with type 1 diabetes mellitus: an integrative review

  • Sunyeob Choi;Hyewon Shin
    • Child Health Nursing Research
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    • 제29권3호
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    • pp.166-181
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    • 2023
  • Purpose: This study examined the literature concerning the burdens of parents of preschool-aged children diagnosed with type 1 diabetes mellitus. Methods: We employed an integrative review methodology based on Whittemore and Knafl's framework. The literature search was conducted using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines across four electronic databases: PubMed, Web of Science, the Cumulative Index to Nursing Allied Health Literature (CINAHL), and PsycINFO. Ultimately, 18 articles were included in the review. Results: The review yielded four themes: (1) parental burdens, (2) factors related to the burdens, (3) coping strategies, and (4) implications for clinical practice. Parents experienced psychological, physical, and social burdens due to the diabetes care of their children. Several factors influenced burdens, including child-related characteristics such as age, severity of diabetes, and hospitalization experience, as well as parental factors like family income, race, and residential area. Parents initially felt burdened when their child was diagnosed with type 1 diabetes, but over time, they often adapted to the situation through support and sharing of responsibilities. Parents desired education and interventions reflecting the unique characteristics of preschoolers. Conclusion: This integrative literature review revealed that parents experience numerous burdens when their child is diagnosed with diabetes. Future research should focus on developing interventions to address parents' psychological difficulties, including tracking parental psychological changes over time. Tailored nursing interventions should also be provided to parents of preschool-aged children, as opposed to the more generic nursing interventions traditionally applied across all age groups of children in clinical settings.

만성 재가 기동장애자의 가정병실 모델 개발을 위한 현장 연구 (A Ethnographic Field Study for a Model Development of the Chronic Bed-ridden Patient s Home-ward)

  • 김태연;정연강
    • 대한간호학회지
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    • 제24권4호
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    • pp.597-615
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    • 1994
  • This study is designed to facilitate the creation of home environment conducive to the family taking care of chronic bed-ridden patients with more effective method. The need for this study has emerged against the background of marked changes in the structure of ailments and causes of death, resulting in the number and plights of chronic bed-ridden patients as well as of a rapid increase in demand for medical care and resulting premature discharge. Keeping these in mind, this study focused on home-wards where the majority of chronic bed-ridden patients are being cared for. Despite. their overriding importance, home-words are less than efficient in caring (or chronic bed-ridden patients. These circumstances require the designing of home-wards that can offer greater comfort to patients and at the same time make things easier for caregivers, on the basis of an overall analysis of patients' life and home - ward situation. According1y this study adopted a Participant Observation Method derived cultural anthropology, Toward this end, 3 patients were chosen as subjects of this study for intensive interviewing and participant observation. In the process of this field re-search efforts were made to collect emprical data, that is, to faithfully record the words of the subjects and their caregivers for analysis and interpretation. The findings of these analyses are as follows. Firstly, the chronic bed-ridden patients are mostly being taken care by close family members. Secondly, a room for the exclusive use of the patient, floor, kitchen, bathroom and multipurpose space were found to be necessary for proper caring of the patient. These spaces were respectively used with a view to 1) accomodating the patient as well as caregivers' activities, 2) keeping general and medical supplies and other appliances for patient's care and drying the patient's washing, 3) preparing and keeping the patient's foods and beverages, 4) keeping the supplies necessary for cleaning the patient's body and treating the patient's eliminations, 5) washing the patient's clothes, underwears and bedclothes. The patient's room in turn is subdivided into six portions in terms of uses : specifically the places for accomodating 1) the patient, 2) medical supplies, 3) medicines, 4) linens St clothes, 5) bedclothes and, 6) diapers. Thirdly, the activities of the caregiver are subdivided into seven key areas : hygiene, exercise, diet, elimination, therapeutic nursing, prevention of sore, and other activities. Each area is further classified into several different activities of caring. These activities we mainly carried out in the patient's room. Fourthly, the supplies for caring the chronic bed-ridden patient is divided into two large domains : medical and general supplies. Finally, three main problems areas were found in this study on the part of caregivers, that is, sore prevention, hygiene problem related frequent urination / defecation, the caregiver's physical, psych ological and emotional burden. In consideration of the aforesaid problem areas, a model home-ward was developed in this study. The newly-developed model has been found to have the following six advantages. Firstly, the time and effort required for maintaining the patient's hygiene are reduced, thus relievins the caregiver's physical and psychological bur-den. Secondly, the patient's hygiene can be maintained in satisfactory conditions, because the patient's eliminations are more easily removed. Thirdly, skin irritations caused by the patient's eliminations were remarkably reduced and so were the patient's sores due to moisture and bacteria. Fourthly, the home-ward have a tilt-table ef-fect thanks to the inclining room floor. This improves the patient's cardiovascular function as well as constantly changes pressed skin areas and thus prevents sores. Fifthly, improved shelf arrangements help make the best use of patient's supplies. Sixthly, the trouble of continuously changing clothes, underwears, diapers & bedclothes is remarkably reduced simply by covering the patient with cotton sheets when laid in bed. This is espected to cut down expenses by reducing the comsumptions of diapers and other disposable supplies.

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퇴원에 따른 만성 질환아 어머니의 반응과 환아 돌보기 지지 요구 (The Reaction and the Supporting Need for the Mother in Caring for their Chronicly III Child after Discharge)

  • 채현이
    • 가정∙방문간호학회지
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    • 제8권1호
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    • pp.50-61
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    • 2001
  • With the improvement of current medicine, the number of the chronicly ill children are increasing. The illness of the child drives all of the family to despair. especially it is a burden on the mother who takes care of the ill child. She's faced with many emergencies and feels powerless. The home care for a child is for finding a child's problems early and mediating them. The purpose of this study was to investigate the mother's reaction following their chronicly ill child's discharge and to investigate the supporting needs for caring for an ill child. The subjects of this study were mothers with a chronicly ill child being discharged from a general hospital in Seoul and the data was collected from July 20 to September 30. Data was collected by using questionnaires which were developed by the researcher. (The questionnaires were composed of the average 5 points - Likert's method). The Mother's reaction means that the higher the score, the more negative the mother's thoughts about discharge are. Supporting need for caring for ill an child means that the higher the score, the higher the demand of nursing is. The statistical analysis used the SPSS program for t-test. ANOVA, and Pearson Correlation. The results of this study were as follows: 1. The mother's reaction scores following discharge were the lowest. 19 and the highest 72 so that the total average was 43.15. The answer, 'I worry that my baby will be troubled with illness again after discharge gained the high points (3.94 of 5 points). The answer. 'The discharge of my baby makes me gloomy' gained 2.05-it was the lowest points. Their were significant differences according to religion (p=.006). salary (p=.050). the burden of the medical fee (p = .005) and caregiver (p=.027). 2. Supporting Need for caring for ill an child was the lowest 15 and the highest 67. the total average was 47.87. The answer. 'I'd be glad to get a person whom I could always get counsel about the health of my baby with' scored the high point (average 4.04 of 5). The answer. 'Caring for my baby at home makes me exhausted' gained the lowest point. 2.49. Their were significant differences according to religion (p=.019) and diagnosis (p=.019). 3. The relationship between the reaction of the mother and supporting need for caring for an ill child was a positive correlation (r=0.585). In conclusion. this study revealed that mothers weren't positive about their chronicly ill child's discharge and they wanted to get support for caring for an ill child. Through this study. I proposed that the program to support the chronicly ill child at home and home care by continuous counselling after discharge should be develop.

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뇌졸중 환자의 한방의료 이용 경험 (The Experience of the Stroke Patients about the Use of Oriental Medicine)

  • 김이순
    • 한국보건간호학회지
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    • 제11권1호
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    • pp.82-92
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    • 1997
  • Cerebrovascular diseases in Korea is an important health problem since mortality and mobidity have been increased rapidly. It marked the 2nd cause of specific death rates in 1993. The subjects of the study were seventeen citizens who are using to the Oriental Medicine. The data were collected from Apr. to Oct. 1996. The researcher as a caregiver and volunteer made confidence of them and asked for their agreement on the purpose of the study. The subjects expressed their experience as openheartedly as possible. The researcher described closely the experiences of using to the Oriental Medicine with there words themselves and under the observation of the reseacher. A tape-recorder was used under the permission of the subjects to prevent the leakage of the spoken information and communication. The analysis of the data was made through the phenomenological analytic method suggested by Van Kaam, which is as follows; as an unit of description which include the subject' expressions and the researcher's observation. The conclusions of this study was as follows : one hundred eighteen descriptive expression found and they were grouped eighteen common factors. These are ${\ulcorner$to effect needle${\lrcorner}$ ${\ulcorner$to effect Chinese medicine${\lrcorner}$ ${\ulcorner$treatment method${\lrcorner}$ ${\ulcorner$attitude of herb doctor${\lrcorner}$ ${\ulcorner$recommendation of family and other person${\lrcorner}$ ${\ulcorner$what one sold to${\lrcorner}$ ${\ulcorner$traditional custom${\lrcorner}$ ${\ulcorner$experience of the past use${\lrcorner}$ ${\ulcorner$to be desolate${\lrcorner}$ ${\ulcorner$negative recognition${\lrcorner}$ ${\ulcorner$Ineffective drug${\lrcorner}$ ${\ulcorner$Unfaithful of doctor${\lrcorner}$ ${\ulcorner$positive recognition${\lrcorner}$ ${\ulcorner$Oriental medical hospital surroundings${\lrcorner}$ ${\ulcorner$to build up one's health${\lrcorner}$ ${\ulcorner$to be clear blood${\lrcorner}$ ${\ulcorner$economic burden${\lrcorner}$ ${\ulcorner$deficit of profession${\lrcorner}$ Finally. eighteen common factors were grouped under six highter categories. These are ${\ulcorner$Belief to oriental medicine${\lrcorner}$ ${\ulcorner$motivation of use${\lrcorner}$ ${\ulcorner$distrust to western medicine${\lrcorner}$ ${\ulcorner$stability of emotion${\lrcorner}$ ${\ulcorner$Alteration of positive physical function${\lrcorner}$.

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장기요양보호서비스의 비용분석 (Cost Analysis of Long Term Care Services)

  • 박창제;김수영;주수현
    • 한국노년학
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    • 제29권3호
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    • pp.1043-1061
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    • 2009
  • 본 연구의 목적은 현재 실시되고 있는 장기요양보호서비스에 대하여 유형별로 비용측면에서 경제성을 분석하고 정책적 함의를 논의하는 것이다. 조사대상자는 2008년 7월부터 시행되고 있는 노인장기요양제도의 적용대상자로 인정받은 65세 이상 노인과 그 부양가족이었고, 주부양자를 대상으로 요양보호서비스유형별로 구분하여 설문조사하였다. 회수된 설문지 중에서 방문요양 155부, 방문간호 67부, 요양시설 108부, 요양병원 92부 총 422부가 본 연구의 분석 표본으로 사용되었다. 조사결과 다음과 같은 사실을 확인할 수 있었다. 첫째, 부양 가계의 가계소득이 높지 않았다. 둘째, 장기요양보험제도가 실시되고 있음에도 불구하고 노인부양가계가 노인을 위하여 직접 지불하는 금액이 여전히 높은 편이다. 셋째, 부양가계가 노인을 위하여 수발하는 데 소요되는 간접비용이 아주 높은 편이다. 특히 재가서비스인 방문요양의 경우엔 평균 756,947원, 방문간호인 경우 594,807원으로 시설서비스에 비하여 간접비용이 상대적으로 아주 더 높았다. 넷째, 장기요양보호 노인에 대한 사회적 비용이 아주 높다. 이 금액은 본 조사에서 확인한 부양가계의 평균가계소득과 비슷한 수준이다. 다섯째, 요양보호서비스 유형별로 부양가계가 부담하는 서비스 비용에서 유의한 차이를 보였다. 여섯째, 부양가계의 직접 비용에서도 요양보호서비스 유형별로 유의한 차이를 보였지만 서비스이용비용보다는 그 차이가 작았다. 일곱째, 사회적 직접 비용은 요양보호서비스 유형별로 아주 유의한 차이를 보였다. 여덟째, 요양보호서비스를 이용하는 노인에 대한 사회적 비용금액이 아주 크고 서비스 유형별 총 사회적 비용이 전체 서비스 이용노인의 평균적인 사회적 비용에 수렴하는 경향을 보였다.